Recurrent Miscarriage Support Thread 29 - Support for Tests, Treatments and Trying Again

[barkingtreefrog]

Support, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so prepare to read fast!

Previous thread here

Link to the RMC investigations information

Stats update:

allthereis: 29. DC, 4MC
anniehoo: 42. TTC#1 for 2.5yrs, 4MC
barkingtreefrog: 36. TTC#1 since Dec 11, 2MC
bettybutterchops: 40. DS, 3MC, pg
bootles: 41. DS, 1TFMR, 4MC, pg
brummiegirl: 38. TTC#1 since Apr 14, 3MC, pg
bubblybubbles80: 34. TTC#1, 3MC
bumblebee0: 29. DS, 2MC, pg
bunnymad: 40. DD, 2MC
bythesea82: 33. TTC#1 since Dec 12, 3MC, pg
casiopeia: . TTC#1, 3MC
chrystley: 41. DD, 5MC, pg
cloudjumper: 43. DS, 4MC, pg
confu3ed: 39. DS, DD, 5MC, pg
desperatelyhopeful: DS, 10 MC.
emerald72: 43. DS, 3MC
enlightenedbunny: 34. TTC#1 since '10, 1TFMR, 3MC, pg
erica21: 32. DS, 2MC, pg
extrablessings: 33. DS, 6MC
fackinell: 44. TTC#1, 4MC
fififolle: 37. DC, 2MC, pg
flen: 36. TTC#1, 3MC, pg
floweroct: 34. TTC#1 since 11, 3MC
frecklefire: 40. DS, 3MC
genwah85: 29. DS, 3MC, pg
girliesaints: 37. DD, 4MC (1 twins)
girlinoz: 32. TTC#1, 3 MC
Ifinishedthebiscuits: 37. 2DS, 4MC
iloveyoubaby: . DD, 2MC
inamaymaybewrong. 37. DS, 2MC
jady77: 37. TTC#1 since Sep 14, 2MC, pg
kazz2112: 31. TTC#1 since Feb 14, 3MC
lauren83: 31. TTC #1 for 7yrs, 2MC (1 twins)
leah1984: . TTC#1, 2MC
loopyaboutmy2boys: 38. 2DS, 6MC
lovemylittlebear: 29. 1 ectopic, 2MC, pg
marchgirl: 37. DD, 5MC, pg
maverick79: 35. TTC#1, 2MC, pg
me2me2: 2DC, 2MC
mimidoddrioni: 35. TTC#1, 2MC
minnie74: 40. DS, 3MC, pg
monten: 37. TTC#1 since Apr 13, 1TFMR, 1MC
morganlefey: 29. DD, 3MC
mrsb0710: 29. TTC#1, 2MC
mrsconfusion: 36. DD, 3MC, pg
mrsdiddlydoo: 34. DS, 2MC, pg
notspartacus: 39. 2DD, 2 ectopic , 3MC
onedaymaybe1: 32. TTC#1, 3MC
onestep2015: 39. TTC#1 since May 13, 3MC, 1 ectopic /PUL
patienceisvirtuous: 37. TTC#1 since Mar 14, 2MC, pg
peqpit: 33. TTC#1 for 2yrs, 3MC
portmoon: 43. DS, DD, 5MC
sallywade: 36. DS, 1TFMR, 5MC, pg
sashakerr: 37. DS, 3MC
sebsmummy: 40. DS, 3MC, pg
sizethree: 35, TTC#1, 3MC, pg
snoopysimaginaryfriend: 29. TTC#1 since Sep 14, 3MC
spamminit: 25. 2DS, 2MC
strubidooo: 34. TTC#1 since Sep 12, 3MC, 1 ect
sunandrainbow: 38, TTC#1, 4MC, pg
teach3: 27. TTC#1, 3MC
texta: 32. TTC#1, 3MC
thepopandcry: 38, DS, 4MC
thornfield38: 34. TTC#1 for 2 yrs, 2MC, pg
tomcat81: 34. TTC#1 since Oct 14, 2MC
twilightstruggle: TTC#1 since Nov 12, 5MC
wadsy: 36. DS, 1 ectopic , 4 MC, pg

ourdaywillcome
daisybell

Thread babies
bakingtins: 40. 2DS, 4MC. Faith born May 14
tannyloo: 42, 2DS, 5MC. Bertie born Mar 15
tinytear: 41. DD, 5MC. Alice born Mar 15
justonemoretime: 39. 3MC. Scott born May 15
purplefrogshoes: 38. 2MC, 1CMP. John born May 15
longestlurkerever: 34. DD, 3MC. Beth born Jun 15
catlover2014: 35. TTC#1 since 09, 3MC. Louis born Jun 15
boozle80: 34. 3MC. Mhairi born Jun 15
belleende: 40. TTC#1, 2MC, 1 TFMR. Cissy born Jun 15

patience that's terrible treatment of you in your hour of need, but don't get me started on NHS I think it's disgusting how women are just left like that to suffer. Do you have health insurance? I was like you scared I wouldn't last till the op and be forced to do it naturally again, and then worried the effect of that would have on my mental health.
Try this number I got through on it ok: Cheryl, Mr Shehata secretary 01372 232243, good luck! His clinic is at 110 Harley St on Mondays. I don't know of any up your way who would do same nk treatment except the Coventry clinic.
Good luck for Friday I hope you make it

Just what exactly is the TEG test? And does it take long for gp to contact local consultant with Coventry letter? Bit worried about the time it might take as NHS referral appointment took 3months! Guess can always go back to Coventry for any drugs?

Minnie good luck for tomorrow!

kbbeanie welcome and so sorry to hear of your losses. Just shows it can happen young or old unfortunately and I understand how you feel about Ttc again and the effect MC has on your son too. It's so damn hard and a big deal. You'll find lots of support and advice on here they're a fab bunch of women. Good luck with whatever you decide.

Sebs that's fab news!!! Congratulations to you!! Well done for looking.

patience I can't believe how you were treated at the scan, that's appalling and you should definitely complain . I'm very on your behalf.
I also have a huge apology to make, I was mortified when I realised later that copying and pasting the last stats list from the previous thread was insensitive given some people's situations have changed, I am so very sorry .

Patience/Morgan if it's the nk cells biopsy you're interested in you can have that done in Sheffield at Thornbury - details are in the spreadsheet linked to at the top of the thread. Closer than Coventry if it's just the results you're interested in rather than ongoing care.

Great scan news Sebs, just waiting for the other two so we get the hat trick .

Emerald, this is the TEG test en.m.wikipedia.org/wiki/Thromboelastography. I imagine the GP/consultant communication depends on them, best to have both their secretary's direct emails and numbers in case you have to chase.

Fab news sebs
I'm just on the way home from my 12 week scan and all looks good. Thank you so much for all of the good vibes, I was so nervous. I just about kept it together when I was sent to wait in the EPU area. We have a bouncy baby who was doing back flips and now has an EDD of 16.2.16. Nuchal fold measurement was 1.3 and I've had the blood tests. Lots of happy tears this time.

Fab news sebs

I had TORCH test after MC 2 as wet-behind-the-ears doctor decided since I was a vet I was bound to have an infection that caused my miscarriages It's vaguely useful to know if you are immune to infections that can be a problem in pregnancy (and bugger me after more than 20 yrs of training and working with sick cats I have still not had toxoplasmosis!)

So its a long shot that an infection caused mmc? Not that I mind having bloods done if needed but just wondering what exactly it will do for future management.

Game plan for GP appt it to stress how much emotional distress I'm under and ask for routine bloods for RMC. Hopefully it'll happen.

So happy for good scan news from you ladies!

Welcome beanie, hope you'll find lots of support and advice here.

claire my gp wouldn't prescribe coventry meds at first as he didnt have expertise in the area so he referred me to a consultant who immediately said they were fine (and non-risky meds) and wrote a letter to my gp saying so.

Great news sebs

Fifi fab news!! Only Flen to go then.

Baking what's the torch test?

Just thanks for the link will have a read.

Anyone out there had a saline scan? Is it uncomfortable? And have I already asked that?!

Fan news Sebs and Fifi. you ladies give me hope that maybe, just maybe this pregnancy will work out. I'm only 4+3 so still so so early and I'm terrified. My boobs aren't hurting as much as yesterday and DH just made a comment that I'm being moody and if he didn't know better would've said I was about to come on. Don't think he realised how that would come across and how much it would upset me!

Great news too Fifi!

Yay Fifi and Sebs fab news!!!!!

Right I'm all admined up on the fb group. Thanks so much for add Sasha

March and Just would you like me to add you ladies?

Anyone else, just send me your name and profile pic description and we can look for you and add. Will add you as friend - but feel free to delete if you want.

fifi that's such great news!

All good with ours too, heartbeat seen and measuring 9+1. Got told off for the consultant for being too anxious, have just ranted to OH for almost an hour about how on earth I'm meant to be anything but.., but mainly feeling relief!

brummie have pm'ed you

Gosh, it's busy on here today!
Great scan news sebs and fifi, I'm so delighted for you both. What a milestone to reach.

Welcome beanie, sorry to hear your story. I hope you find lots of support here

I would definitely wave pompoms for coventry too. I don't think I'd be where i am without them. Although it's a good idea to go down the nhs route as well for the standard testing (clotting etc), as they don't do those tests.

patience, I'm appalled to hear about your treatment. Incredibly insensitive and a potential 3 week wait? Unbelievable. If you find the strength when you are feeling better then i would definitely make a complaint (or several)

Great news flen! So relieved for you. A hat trick! Just hope we can achieve the same tomorrow minnie and monten.
I'm really nervous about this one as it's right in my danger zone. Lots of cramping today. Hope I've not overdone it.

I can't seem to join fb page, any ideas why? Just says error loading when I click on join group x

So happy for all the good scan news! What a relief flen sebs fifi

patience sorry I missed your post earlier. The treatment you had was disgusting, I'm so angry for you. And definitely when you feel better it would be worth complaining. People like that shouldn't be able to get away with.

beanie welcome and so sorry for your losses. I hope you find lots of support here.

I can't remember who was asking about Coventry but I'm another recommender. Even though they didn't find anything, I'm pretty sure the scratch helped me get pg quicker this time.

march looks like it's the three m's up for scans tomorrow! What time is yours? Mine's 1.30 so a bit of time to kill with some shopping in the morning! I've had a bit of weird cramping today too. I'm hoping it just nerves!

Sorry if I've missed anyone xx

thanks for a the conventry info, would you go before having my first gynae app in Sept? ice been referred as I have brown spotting monthly for about a week before af. im Just worried if gynae want to run any tests I might not be able.to ttc before them therefore I would waste the few months after the scrape possibly?x

Aaah how wonderful Fifi and Flen . Massive good luck to the Three Musketeers tomorrow

Brummie I'll PM you and it would be great to have you as a friend too xx

Thrilled about all the good news. Well done, sebs, flen and fifi! And lots of luck to all who have scans tomorrow.

Woohoo, great scan news today
Good luck everyone for tomorrow

Wonderful scan news flen, and everyone else today.

I would definitely recommend coventry too btw! You need to be 2 cycles post last mc before it can be done and you go around 7-10dpo.

Hooray flen and fifi! Looking forward to more good news tomorrow

Claire I'm not sure how the Coventry protocol would go with the response trial if you intend to go with that when you get a bfp. Might be worth hanging on to see the gynae first but I've no experience at what they might offer you in that appointment. Visiting Coventry to rule out uNK cells is worthwhile if you haven't had them checked.

Mrsdiddly I'm only on response trial until October and I'm pretty sure I'm out this month which probably only leaves Sept cycle. bro just isn't happening . I will maybe wait until gynaecology appointment just to see what they want to do first.x