Recurrent Miscarriage Support Thread 28 - Tests, Treatments, Trying again, Trying to stay sane and most of all TREMENDOUS support!

[Kazz2112]

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!

Previous thread:
www.mumsnet.com/Talk/miscarriage/2416801-Recurrent-Miscarriage-Support-Thread-27-Tests-Treatments-and-Trying-Again?

Sorry you've had more bleeding too thorn. Such a worry for you both

I'm really not sure about the heparin flen, I would guess that it depends on the source of the blood. If it's coming from a little pocket of blood that's previously formed then perhaps it wouldn't be affected, but if it's coming directly from your body then maybe it does (you should def wait to hear back from the prof as I'm no doctor! )

Haven't read to pg 16 yet but its the only way I can keep up..so several posts coming..

freckle and flen I am sorry for mixing you up - I absolutely know which of you is which and was aiming to write flen but freckle came out. Was rushing. freckle your bfp WILL arrive.

Thanks all for good luck on booking in. Mostly done through gritted teeth and tears. The mw wants to refer me to the prem labour clinic (which she seems to think is the RMC, but it's not - its at a different hospital in the trust). She was lovely but her reasoning was that I had 3 erpc's, as well as the 2 natural/medical, so my cervix may be affected and not so good at staying long and closed as it should in pg. However I am pretty sure this is bollocks - I have asked many a doctor if the erpc's could affect future pg's and they all said no. I really hope this is the case?

onestep agree a massive awareness campaign is needed.

sebs that great news! Think it's too early to see the gender. Hope the next week speeds by until your 12 wk scan.

flen argh to waiting until Wednesday - so hard. Hope it all settles soon. You too thorn.

barking I see..yes I did think they must have looked into it. Sorry about the dizziness - think avoiding early morning swims is probably a good idea.

mrsb a few short breaks sounds good. Yes avoided booking in with previous pg's, and with this one have waited until now.

snoopy FFS. It's great you are seeing Mr S. My first RMC appt was such a major thing for me, and in the event I was utterly underwhelmed by it. They may/should/hopefully be able to offer you further tests, but if not, you have Mr S up your sleeve.

flen I don't know either about the heparin, and agree you should wait to hear back from Prof B, but I have previously been told that at 20mg it's not going to anti-coagulate you. If the blood is still brownish/dark, and not fresh, and it is still 'only' spotting (I say that because I know for us lot there's no such thing as 'only') rather than full on bleeding, I would personally be tempted to continue taking it - but that's only a personal opinion. Tough few days for you until Wednesday x

march how are you bearing up with symptom monitoring?

And girlie I have been tempted to poas on a month where we didn't even dtd..insane of course.

I've just realised I meant to ask the consultant today about whether they should check my cervix due to a previous LLETZ (pre my sons pregnancy CIN2) and recent ERPC. Not sure what to do now as the stitch tends to be put in pretty early doesn't it?

Thanks Bootles, glad to know I'm not the only slightly insane person! Hope the booking in went ok x

Evening all. Just checking in and sending happy vibes to everyone tonight, whether you're feeling up or down. I'm keeping you all in my prayers (if that's ok - and if that's not your bag, I'll be keeping you in my thoughts instead).

School finished today and, whilst this was an academic year I always hoped would be interrupted by maternity leave when we started ttc in March 14, I have had the most wonderful time with my class and feel very blessed to have had the privilege of their company since September. They've helped me this year more than they will ever know - indeed, on the morning I found out I'd had a second MMC, I went straight into school because I knew they'd help me forget about it for the duration of the school day... and they certainly did. Whilst I wait for my own baby, I try never to take for granted how lucky I am to work with other people's children, who make me smile every day without fail.

In other, more mundane news, I finally got my referral letter to St Mary's Manchester, only to ring Choose and Book and be told that 'there are no appointments available at this time'. Blooming marvellous! I now have to wait for the hospital to contact me to make an appointment. I shan't be holding my breath. Considering starting the private route whilst we wait - we do have some private health care cover for infertility investigations (not treatment), but our initial decision was to keep this as our back up plan. Hmm - something to think about.

I hope everyone's OK tonight. Whilst I am chirpy today, I spent Wednesday night in tears because ANOTHER friend announced a 12 week scan on Facebook. So... it's swings and roundabouts, I guess. Big hugs to all, whether you're on a swing or a roundabout :)

Flen - I continued taking the heparin all the way while I was spotting, no one suggested I should stop. Lasted about 4 weeks, which I hope it won't for you!

I'm freaking out a bit at the moment - one of the lovely ladies on the Pregnant After MC thread has just lost her baby at 27 weeks. My heart goes out to her, but I am also really scared again now. I was so happy after my mw appointment yesterday, got to hear the heartbeat, but now I feel very anxious (and guilty because it's obviously so much worse for that poor woman)

cloud I'm sorry you're feeling anxious. These threads are a godsend, but can sometimes feel like your worst enemy. I know you are freaking out about what has happened to someone else, but remember that many women out there would be freaking out about the very thought of being on this thread. But we're all here... and we're all coping... and taking it a day at a time. That's all you can do. Just focus on how far you have come and how positive a sign that is - I can still only dream about a pregnancy making it that far. I'm sending you big hugs. Try to do all you can to stop yourself from thinking the worst (I realise that here I am giving you advice which I myself find very hard to follow, but you have to try and do it for the benefit of your little one). Maybe put on some nice, trashy telly? Or settle down with a good book? And remember we are all rooting for you - every step of the way.

Cloud I would be terrified too. In fact Sebs I've had 2 lletzs and I'm scared to death. In Worcestershire it is standard procedure to scan the length of cervix after lletz.

My scan is Monday 3rd when I'm exactly 14 weeks. My cervix going is a huge fear of mine - also because my body hasn't coped well so far and I'm just scared there are more surprises to come

I left a message with the midwife team today and hopefully they will get back to me next week. Sounds as though I could ask them about the potential cervix issue. Did you get your cervix scanned Brummie?

Sorry just read your post again and I think you're saying you are getting you cervix scanned at 14 weeks. God I'm tired, apologies.

counting it's understandable to be shaken by someone else's tragic news, but this is your pregnancy, and what happens to anyone else has no bearing on yours

bootles how did booking in go?

Snoopy who is Dr S? Is it Shehata?

Oneday thanks for your thoughts to everyone and sorry you were down Weds night. It's so hard when friends announce on fb their scan pics. Know exactly how you feel; just when I found out this last pg was MMC my friend who knew what I was going through sent a group what's app pic of her early successful scan pic. It fucking hurt. She did apologise after once she realised. Saw same friend tonight she's now 16wks, I would've been 3wk behind her, instead I'm looking forward to going to First RMC clinic wed. Was hard tonight spending 2hrs listening to all the pg stuff and planning that I would've been doing, and none of them really asked how I am feeling now. Bastards.

cloud so sorry to hear of your friend on other thread that's just awful. What was the cause? Don't worry lovely, it's very rare for that to happen isn't it, you will be fine x

Sasha wishing you good luck and strength and courage for meeting your sister tomorrow, it's going to be hard but hope you can get through it and feel ok somehow.

oneday I know you are having a tough time, but I just wanted to say how lovely it is to hear a teacher talk about their job and their pupils so positively.
cloud how awful for that lady to lose a baby at such a late stage. Truly heartbreaking. understandable thhat this has increeased your anxiety levels. please make sure you are putting your own needs first right now. Ut is entirely ok for you to be utterly selfish right now.

Cloud, understandable that you're freaking out but as the others have said it has no bearing on your pregnancy.

Oneday, my dd starts school in September and I hope she has lovely teachers as you. Hope you can use the 6 week (although I appreciate for teachers it isn't 6 weeks) to focus on you for a bit x

Gosh cloud, that's awful. Who was it? I must have missed that post. I'm not surprised is freaked you out but it really does have no bearing on your pg. Sobering though.

So lovely to hear you speak about your class oneday, i wish I felt the same about going to my work! Sorry they haven't any appointments though. Really hope you get one through soon.

Sorry af arrived sasha . Hope your relaxed approach this month works for you x

snoopy, how fucking annoying. And to get the referral wrong? I don't suppose it's just one of those admin things is it, where is the same dept so they just say that on the letter but it's really an rmc specialist you'll see?

Sorry you had a shit time with your pg friend emerald, how thoughtless of her.

Glad you got through booking in bootles. I've also put mine off. I'll have to book it soon after the 6 week scan as they get v busy but going to arrange it for 10 weeks (the latest they like you to do it). Managed to hold off testing again this morning and starting to feel calmer for the moment. Step son arrives today so hopefully he will be a good distraction this week and not bring on another mc by his mere presence

Hey sasha glad you had a good week away and sorry for AF. It's such a minefield knowing what to do with all the drugs and stuff, I think going with what you feel is very important.

oneday it is so so lovely to hear you talk so positively about your job! I wish you strength for today, pregnant sisters with same timings are a special kind of difficult. Hugs.

bootles well done for your booking in. Could you ask a consultant about the early labour thingy?

How are you feeling this morning barking?

And how are you doing march?

No word from Prof B yet, I didn't take the heparin last night and the bleeding is lighter this morning so far. Amazing how much of a relief this feels! We will see how it goes today and if it continues light I will take it tonight. The last thing Prof B said was not to take it during an active bleed, just not sure if that description counts for what I'm experiencing...

TMI ALERT!
Omg. Just had a major panic. Went to the loo and lots of red blood and clots. Took me a few mins to realise it's coming from the back end and not the front. Anyone had this issue? I've been alternating front and back for the last few days as back has been sore and loose (sorry for tmi!) I do have some long standing piles. Do you think one could have burst? Don't know if i need to do anything about it or just keep an eye on it

Sending strength for today with your sister sasha

Emerald how thoughtless. This is why I have cut all pg woman out of my life other than the two at work I can't avoid

Bootles sorry, missed your post about booking in. I know nothing about it but it sounds like bollocks to me. However, if you get to see the experts they're the best placed to know, and any extra monitoring is surely a good thing?

Flen I'm feeling okay, thanks for asking. Was disappointed to wake up at 7am after I'd been looking forward to my lie in all week!!!!
I hope you can get some advice soon, it's so frustrating when you don't know what to do for the best.

Well, it's Saturday, and the start of my 2ww based on official test date being in 2 weeks. Slightly bizarre really, given I don't yet even know that I'll have a nicely defrosted embryo to pop in on Thursday. Could be the shortest 2ww ever!!

xpost March sounds like it could be piles, not sure about the clots in it but would make sense if an internal pile ruptured?

What a heart stopper though .

march that sounds scary. No ideas I'm afraid, is it a calling 111 job? I switched to prog front only as it was really irritating my back and causing diarrhoea etc... Sounds like a medical opinion is what you need. Is there an out of hours GP?

Hmmm. Thought about 111 but it seems so minor compared to what they deal with! I remember calling once about a potential broken toe to find out whether i needed to get it xrayed or if they would just do nothing anyway, and they started asking me all these questions about whether i was having difficulty breathing etc. Obv just a standard set of questions, but i felt like a right fraud.