Recurrent Miscarriage Support Thread 23 - tests, treatment, trying again.

[bythesea82]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Thanks jady that clears that up a bit. I wondered if it might just be left till after results. Did you get a letter to take away with you? I wasn't given one and was wondering how I'd persuade my GP without it.

march you've all done a good job of selling it for them- you should get commission! How are you feeling today? Hope you feel a bit brighter. Dreading the prog comedown already and I've not started it (I can be pretty narky pre af as it is!)

Longest I'm back Thursday night which is 12 dpo

Minnie glad you had a good Cov appointment but i agree they are very rushed!!!!

Minnie after scratch visit I got test results 5 weeks later (but it is usually 4, mine were delayed due to someone starting maternity). Telephone consultation was the following evening and letter received at same time.

Thanks minnie. This morning started with a meeting with my colleague who is due two weeks before when my last loss would have been due. Can't believe how big a bump I would have had by now. . So it wasn't a great start but feeling a bit better this afternoon.
Should have said, prof b also mentioned nothing about heparin at my appt and I also forgot to ask, but the treatment letter says the same as jady's about heparin, so i think it is still standard.

Welcome Texta, I think you're going to fit in nicely with us, with all your info x

March, sorry to hear you're feeling flat x

Minnie, glad to hear Coventry went well x

I've turned into an eating machine in the last three days as feel icky when hungry (I am very hungry!). Starting to pile on pounds (normally very healthy strict diet) wish it was a good sign but know it's probably not. Only a day and a bit to go...

girlie it could well be a sign. I really, really hope so.

I wish longest but preparing for the worst x

girlie - have everything crossed for you. The hunger could be a very positive sign! Is your scan weds? Will you be 8 weeks at that point?

I have booked a scan for Thursday am when will be 7 weeks but already accepted it will be a 5th mc, for me, as apart from a couple of days of feeling very very mildly off colour, I just don't feel pg at all. Think at that point I will be hanging up my ttc boots. x

Not long to wait now girlie. Still got absolutely everything crossed for you that it will be ok xxx

Hope it goes ok tomorrow bubbly. I'm sure you just want it over now so you can start to heal. Make sure you've got lots of lovely treats to keep you going over the next few days x

sun please don't give up hope. My symptoms have varied in each pregnancy and this time didn't get going till well over 6 weeks.

Thanks ladies. Sorry for being a bit needy at moment. Dh is being useless today. Shouldn't moan about him as normally he's good. Either way scan is wed so should know either way. In meantime will try and find my normal positive head.

Sun, ignore me, I'm being a drama queen. It's still early days and symptoms do vary at this stage. Just remember today, you are pregnant x

Girlie and Sun hugs to you both. I'm also tormenting myself wondering if symptoms are just side effects of meds. As you say Girlie today we are pregnant.

Hi all. Im new and need your help on where I go from here. Im currently going through mc number 5, fourth consecutive. I saw local RMC after number 3 who did usual bloods and suggested should I mc again they wld look into genetic testing. Sent me away with a letter I was to take to epu. Last week at 5w3d i started spotting, popped along to epu, gave my history, gave them the letter, scan showed sac in right place, gave me appointment for 2nd scan. Continued to spot all week until last night when I started bleeding heavily. Back to epu today where scan revealed sac is moving down and out. Spoke to 3 different nurses where i had to repeat everything. The last nurse I saw left me fuming. I asked what happens next (meaning tests etc). She said well its best to let it happen naturally, its very sad but 1 in 4 pregnancies end in mc! Im in tears again, said, This is number 4 out of 4. What happens now re tests. Clearly she hadnt read my notes, and there seems to be no clear guidance for the epu on what happens now. Except She gave me a pot and said if I can capture some tissue and bring it in they can send for genetic testing and she will email the RMC and ask them. I go back in 2 weeks for another scan to ensure to tissue left. Hopefully but I doubt it, they might have a plan for me. Im so angry that despit giving my history through tears last week, I had to do the same today and still that last nurse didnt know this was number 4.
Is there anything I can do in the meantime myself, I have no faith in epu. Other than going private.
sorry for the rant and the long post. Ive read a few pages and u ladies seem amazing.Yours hopeful.

texta really sorry you find yourself here but welcome.

brummie I am getting a little bit excited for you!

minnie really glad appt went well. I too felt a little rushed but they were very, very busy.

biscuits not flippant at all. All the advice and thoughts on here are extremely helpful. And I hope your day got better. Did you hear back from the docs?

bootles I like that thinking re 'deathbed' stuff and, once I've worked out what I would like to do, will go with this if I want to try again. It was the reason we started to try for ds 4 years ago as we'd never wanted children (oh the irony) but thought we might ultimately regret it if we didn't try. I just didn't know if love it so much I'd want another child and, obviously, didn't know the life-changing heartache and grief that would come with that wish.

And thanks everybody else for the lovely, kind words. It really has been a shitty year for me and my dh but I do know we'll get through it. It is still very early days but this place has been such a life line. And the consultant? I really think she was trying to help but it was just the completely wrong thing to say! It's made me feel selfish for trying again last autumn and then losing my dd, like I'm not allowed to have the same hopes and dreams about my family like other women have. But that's just one of the many cruel aspects of recurrent loss, I guess. X

March, probably easier just to upload the chart so you can see, it has it as a dotted line because I input some ewcm after the date it thinks I ovulated on...

Texta sorry you are in the same boat. Hope scans go ok for girlie and sun.

Brummie you have more willpower than me. With symptoms like that I'd have been straight into boots!

portmoon that sounds completely awful, I would have lost it I think! So sorry to hear all you've been through. I hope you find some help and support here.

I got my positive OPK today, funny how it's the day before that I always seem to panic that it won't happen. So guess what we're doing this evening... (Actually we are watching Game of Thrones. I wonder if this is why I'm not pregnant yet.)

Cloud Couldn't be happier for you!

Pop I'm so sorry that you didn't get an answer about your perfect little DD. I can't imagine how hard it must be for you. I'm not surprised you are angry - I can't think of anything more cruel and unfair.

Texta Welcome, I too came out of lurking not long ago! I'm so sorry to hear about your mmcs, heartbreaking.

Bubbly I really hope all goes ok tomorrow. It's so awful that you have to go through this.

Barking Glad you've kept some of the knits. I really hope and pray you have your happy ending. You've been through so much.

Cheesy Have a fab hol in Sorrento!

Minnie glad things went ok today. I love a bit of gas and air! Wish I could have it on a Fri night as well as instead of wine! So glad your lining looked thick and healthy. The lining seems to be half the battle with rmc.

Lurker hope your cold shifts, It needs to do one - colds don't belong in May!

Monten Glad you are getting some tests done. Do you know why they won't do the hysteroscopy? Seems a bit unfair.

Sun and Girlie Good luck with your scans. I really hope you both have the happy outcome you deserve.

Biscuits I'm sorry about your DS mentioning bullying. I can't imagine how hard that must be to hear. We just want to protect them from all of life's pain but we can't.

Waves to everyone I haven't mentioned xxx

AFM, think I'm about 4w5 today and have gone past the timing of my last 2 chemical pregnancies. Got another strong line this morning. I've had an ectopic in the past so my EPU has agreed to do a location scan on Friday. Then if I make it to 6 weeks+ I'll get a heartbeat scan. I've got Factor V Leiden so I'm taking fragmin, progesterone and aspirin. Emotionally I'm finding it a slow torture. In all my attempts to get pregnant, I had forgotten how hard it actually is to be pregnant after recurrent loss. x

pop huge hugs. I'm sorry you didn't get any answers and what a cowbag of a consultant with her flippant comments. Take some time to digest it all and look after yourself x

Minnie glad Coventry went ok! And you got to the pharmacy I only had my phone consultation with Prof Q and she seemed to be overflowing with enthusiasm.

Welcome texta! You've done the right thing delurking. This bunch of ladies are amazing.

brummie you are being so strong. Hope the trip passes quickly so you can poas soon.

girlie fingers crossed for Wednesday. You're being so strong. I don't know how you do it x
sun will be thinking of you too on Thursday. It's not unusual to not feel pregnant. A colleague of mine was really annoying saying things like 'I keep forgetting I'm pregnant' in her amazing straightforward symptom free pregnancy.

Hope the thread babies are all doing ok. just how's the feeding going? Hope he can come home with you soon. How are you purple? Hope things are a bit easier Tanny

portmoon sorry you find yourself here and you are going through this all over again. What a rubbish experience at your epu. Are you planning to use the pot? Sorry to be graphic but have you thought about how you're going to do it. Think ladies on here have used sieves before. Regarding options, lots of us wave pom poms for Coventry's implantation clinic on here. It is nhs research but does cost £360. You have to have 2 AF since your last mc to go and they test for uterine natural killer cells by carrying out a biopsy (a scratch) which also helps improve your lining. They give you a treatment plan which involves progesterone and heparin, and steroids if your test results come back high. Hope you have some RL support but we're all here to help and support you as well.

I've booked another scan on Wednesday because I've turned into some crazy batty symptom obsessed lady and have been signed off work for a week by my gp.

portmoon sorry, x post. I'm really sorry you are here and sorry you've had so many losses. If you've had the standard recurrent pregnancy tests and they've shown nothing, I would also advocate Coventry. X

Welcome Portmoon and sorry for your losses and the rather speculation crap experience you've had your local epu. Could try giving them a call tomorrow and speak to the sister in charge about what's happened today and how you feel let down? Surely they wouldn't be impressed with what's happened given you have a history and direction previously from your rmc x

texta i am in the same boat i have had 3/3 waiting for my appointment. do you think i should speak to my GP. i am going for my d&c tomorrow.

thank you to everyone for your warm wishes for tomorrow,

march I think last month at appeared three days after I'd stopped the progesterone.

brummie fingers crossed for testing on Friday! I've been telling myself that it's not a zebra all day today, I like that saying! I'm 10dpp today and had a really big temp dip this morning so who knows what's happening but not holding out much hope!
sun and girlie good luck with the scans this week x

Welcome Portmoon and sorry for your losses and the rather speculation crap experience you've had your local epu. Could try giving them a call tomorrow and speak to the sister in charge about what's happened today and how you feel let down? Surely they wouldn't be impressed with what's happened given you have a history and direction previously from your rmc x

Hmm. I see your confusion loopy. I can see why ff thinks you ov. The later temps are all consistently higher (except cd23, but could be a fallback chart). Were you ill at all or anything that could have caused higher temps? I'm presuming you didn't do opk (sorry, you've probably already said this). Would be tempted to agree with ff on earlier ov, although the cm is confusing. Did you say this is early than you normally ov?