Recurrent Miscarriage Support Thread 23 - tests, treatment, trying again.

[bythesea82]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

I'm feeling the anxiety already about being in the 2ww. I'm worrying about when to take the progesterone.
Worrying about having not DTD enough and if not, how will I cope with DP struggling to finish next time...
Scan feel my anxiety levels rising already.

What the fuck is wrong with me?????

brummie 2ww is inherently anxiety-provoking and any change in any factors at all make it worse! I took the progesterone 7 days after my strongest line on the ic opk. So I got the line on a Friday, and started taking it the following Friday. Remember, anxiety is a totally appropriate response.

Jady, glad to hear the scan went well x

So if I got a smiley face on Saturday, I start taking it this Saturday?

But I can actually feel the anxiety in my chest and tummy and need to calm down.

Me: 37, DH: 48, DS1, DS2
MC1, Nov 12, approx 7 weeks
MC2, Aug 13, approx 9 weeks
MC3, Nov 13, approx 5 weeks
Attended RMC, Prothrombin G20210A mutation identified. Prescribed progesterone and Dalteparin from next BFP.
MC4, Aug 14, approx 10 weeks
Attended Coventry in March 2015, results clear. Currently nervously TTC.

I can also sympathise with struggling to DTD. This is second month post-Coventry and managed to do it once in first cycle after, but not sure it was the right time as had constant spotting between scratch and AF and had run out of ovulation test strips.
And guessed again this month because suddenly had panic that buying online from an Amazon fertility health store might be a red flag for mortgage company.
But still only DTD once on day 12 but that's been too early for me in the past.
So worrying about effects of scratch wearing off!
Gosh, lots of Coventry news. Onwards and upwards ladies, hopefully this will provide a solution.

brummie exactly, if you got it Sat, start taking Sat. Maybe do a little grounding exercise, that sometimes helps me when anxiety gets big. Wiggle your toes and feel them, press yourself into the chair, get yourself back in your body. Man, this stuff is hard!

Marking my place, will update with my stats later!

jady yay for the good scan! So pleased!

brummie the 2ww is such a mindfk! I'm pretty sure you got the dtd in at the right time- they say it's better to have the sperm waiting rather than trying to rush up there. Try not to worry about next time (I know easier said than done). Hopefully once you're on the prog it might take away a bit of the stress.

march why will your consultant not prescribe the Cov meds. I'm worried about that too as my consultant was really dismissive of the protocol. And I'm definitely not able to rely on my GP!

Found you!

2ds, 4mc at 9-10 weeks, DD Faith born May 2014 after NK diagnosis from Coventry and treatment with steroids, progesterone, heparin.
Faith was diagnosed in January with infantile spasms/ West syndrome, a rare form of epilepsy causing brain damage. We're in a quiet period at the moment, nothing to report (a good thing) no seizures for 3 months and off medication apart from hydrocortisone. Hopefully she'll remain well for her birthday next week! Her appointments start again in earnest in June/July with HV, physio, community paeds, neurologist, endocrinologist and neurodevelopmental charity all lined up...

Glad to hear faith is still doing well baking. Good luck for her upcoming appointments x

minnie, not sure why she refused. She said it was a very strong medicine and she wouldn't be happy to prescribe, even with the letter from coventry, but that perhaps if I went to gp, they would. I managed to persuade her to prescribe heparin when i need it, which I thought would be harder, and actually that's the most important one as I don't think gp can prescribe it.

Thank you for the new thread :). Will read back and catch up as soon as I finish large amounts of paper work! Wave to everyone :)

Hi everyone. I'm so sorry you're having spotting girlie. It's such a worry. You know it could mean nothing but it's impossible not to worry. I hope tomorrow goes quickly. How are you cloud, has your spotting stopped?

What a flurry of Coventry results! I'm no expert on Coventry but am sure others will have something more useful to add. In a weird way I'm guessing it might be a bit of a relief to have a 'reason'?

You have my sympathies brummie it's so hard, it really does take it's toll on your sex life. I don't have the answer, but my advice would be to keep talking and try again in a non ttc context to take the pressure off. I'm sorry you are feeling so anxious. Deep breaths. Remember, this is just one month. I know you probably feel like you've been waiting forever, and you have been so patient, but try not to put too much pressure on conceiving. If it happens then amazing, if it doesn't there's no reason it won't happen the month after.

Hugs flen. I'm glad he's here, the anticipation is always worse than the reality. It's still bloody tough tho. My nephew is a month older than my first would have been. Mostly it's fine but sometimes it's hard, like when my SIL sent me a video of him crawling for the first time. You will get your baby, I am sure of it.

My stats: me 37, DP 40. Ttc number 1 since April 13. TFMR Jan 14, MMC June 14. Ttc since then and nothing. Now on cycle 10 and getting slowly more panicked.

Af arrived today, not unexpected as we weren't trying this month due to getting married in 2 weeks but still gutting. Starting to doubt it will ever happen.

Hello to newbies

So glad to hear faith is seizure free baking. I'm getting married on her birthday! Let's hope we both get nice weather

Really interesting links Baking, thanks for those. Really glad Faith is doing well too, I hope it remains that way with the tests coming up.

Also Cat I think you have a good point in working to make things fairer. Now might be a good time just after the election and new MPs wanting to make an impression. I think I will write to my local MP with my findings with my experience with differing people. DP couldn't believe the contrast in treatment today in Coventry from the consultant we've seen previously locally. It's a real shame the local lib dem MP just got voted out as it turns out his wife helps out at the mc support centre I use and is known for pushing agendas like this.

Sorry forgot to post my stats...
Me 29 DH 32
DS 08/13
Mmc1 09/14 just under 12 wks but baby measured 8+5, mm
Mmc2 01/15 7-8wks, natural, sac 4-5 wks

Been to coventry, results just come back and I have elevated uNK levels of 9%
Had blood clotting tests done by gp (for my piece of mind as they wouldn't show anything, ha) which showed I had factor v Leiden clotting disorder.

Now I'm 2ww on 1st cycle post coventry but not hopeful as ovulation was delayed by a week and then DH was away.

Glad faith is doing well baking and I hope the appointments are positive.

No idea if it's linked march. As I understand, the condition is due to a faulty gene and then that affects the clotting process, maybe having too much of certain substances which prevent too much clotting... I don't really understand it properly when it gets to the technical sciency bit.

Good news jady!

Girlie** was so relieved to read your spotting has stopped. Big hugs lady, i so know that heart dropping moment.

Glad scan was positive jady!**

Can i ask a question about progesterone to those ladies taking it? I am now 10 days post ovulation and have been taking 400mg twice a day. I've knoticed that i feel an irritation/stinging 'down there', like its slightly sore (a bit like thrush and when i wipe hard and press on with toilet tissue i get a few tiny spotts of bright red blood (more like blood from a wound than period blood. Anyone had any experiences like this?

Great news on the scan Jady and very glad to hear Faith is doing well baking.

Hugs to you Brummie the anxiety of it all is so overwhelming at times. X

Hi Freckle not yet take it yet - got that joy on Saturday but I think a lot people choose to take it through the "back door" for this precise reason, irritation to the cervix.

So whilst doing it that way might sound unpleasant, from what I've been told it's the most comfortable way to do it.

I will be using back door on Saturday not that I really want to but it sounds the most comfortable.

Not a sentence I'd ever thought I'd write

Wow, I've only been off the thread one day and I had to track down the new one!!

Me 35 (for a few more weeks...) DH 34. TTC #1 since Dec 2011. Unexplained infertility. Clomid bfp summer 2013, mc @ 7 wks. Iui bfp summer 2014, mc @ 7 weeks. Iui failure jan 2015, ivf failure march 2015. Factor v Leiden thrombophilia. Going for nk biopsy this month if we're not away at the critical point. A 7 day LP limits the flexibility for testing... Currently torn between moving house and saving the money for ivf.

girlie hope it's nothing to worry about

purple thinking of you tomorrow! It's time!

flen hugs. Hold onto it being your turn soon.

I hope all the positive results from Coventry bring a successful plan of action with them.

So tired, off to bed! Will attempt to look in earlier tomorrow!

Back in hospital, on a drip. Biggest bleed yet and a blood clot the size of a kidney (sorry, tmi). MiniJust seems fine, but we may be meeting each other sooner than planned... 33.6...

Oh Just, that must have scared the bejesus out of you! Maybe minijust and babypurple will share a birthday? I know you're in good hands, but we still worry about you and want you to be safe and well. Lots of hand holding. Keep us posted x

Thanks Tanny, it wasn't great but glad I was already in hospital. Came in last night with some spotting and they kept me in. I was annoyed at the time, but so glad I was here, as it turned out.

Oh my goodness just, you're not getting an easy ride of this!
Glad you were already at the hospital, fingers crossed minijust hangs on a bit longer.

Sorry to hear you're in again just. Really hoping the clot you've passed is what was causing the bleeding and that now it's gone it'll stop, but must be incredibly worrying. Hand holding x