Recurrent miscarriage support, tests, treatments and trying again.

[Monten]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Sorry twilight I got trisomy and triploidy muddled up.

Biscuits, yes, I tested positive for lupus anti coagulant. Last BFP they gave me baby aspirin and progesterone, but it didn't work. They think may have been a bad egg. Since then have had the hysteroscopy, removed several adhesions, and next BFP will be on progesterone and heparin from BFP, and he said I'd be on heparin the whole pregnancy.

Brummie there is nothing I'd love more than to meet you in February in Worcester. Trying to stay positive here from all the comments people have made re coventry saying that you just need to keep trying, i think I could cope with more miscarriages if I knew for sure that at the end of it I would end up with a baby, but after having had 4 mc's there is still a part of me wondering if I am flogging a dead horse and that I'm chasing something that will never happen. But then I think on the flip side what if the next BFP was destined to be the sticky one and I give up now and so I stop just as its my turn for a baby. If only I could know for sure the last one was a bad egg. How far gone do you need to be for genetic tests on an embryo that has MC?

Also wondering if stress has something to do with it all, moved house last Sept, have been bogged down in unpacking and decorating ever since, ds's are playing up a lot, DH barely here as has a long commute so I've done the bulk of everything and to top it all my dad is currently undergoing tests for suspected cancer. Not had a holiday in 6 1/2 years, and can't remember the last time I slept through at night (and it's not the children's fault as we rarely have to go into them, they both sleep really well)

Good luck today brummie final hurdle before meeting loopy on the maternity ward in Feb!

Good luck brummie!

Good luck brummie

Can't believe all the bfps, really hope they all work out.

Glad I wasn't the only one whose cov follow up call was short not that I expected it to be particularly long but thought maybe I should have had more questions!

Af is about to disappear so onto the next phase and hoping some of this lucky thread rubs off on me!

sasha the positivity will come, things are still quite recent for you so don't beat yourself up if you feel low.

Another one not looking forward to the royal announcement - George was born just after my first mc due date and here I am 2 more mcs laterand still no children!

Good luck today brummie.

Sorry to hear you're feeling so stressed about everything loopy . This thing just never let's up and it sounds like you have a lot on your plate besides.
Have you tried acupuncture for regulating your cycles and for stress relief? It's brought ov forward by several days for me so i would recommend it if you've not tried it already

I too would recommend acupuncture. My cycles were down to 23 days last year and when I started acupuncture they started getting longer and directly they got to a reasonable length I fell pregnant. Coincidence maybe but I definitely feel more confident now my cycles are a standard length again.

Big hugs today Brummie. I can totally understand feeling disappointed there is no 'reason' for three lost pregnancies. I am praying that when you get pregnant again the protocol works for you xx

I am just twiddling my thumbs now for 2 weeks. Hate the 2ww. Don't know why the first two weeks of the cycle go so quick and the last two so slowly!!!

I'm marking my place. I keep dropping out, sorry! All is well if stressful here. My relationship with DH is strained at the moment, and I know it's due to me.
Anyway, I'll try to catch up x

Sorry to hear that tanny. It's a stressful time the newborn phase. Just a question of getting through it relationship-wise I think and trying not to take each other too seriously.

Hugs to everyone feeling low. This does seem to be a turning point with so many people getting their results and bfps. Let's hope so.

Don't be hard on yourself tho - every baby brings a time of readjusting. Things will even out.

stats for the update - early mmc aug 2014 erpc; early mc dec 2014

What's the disadvantage of progesterone vaginally? That's how I was prescribed it. Starting again tomorrow

Good luck Brummie. X

Hugs Tanny. Sorry things are stressful. Don't beat yourself up.

Metoo - I was advised progesterone vaginally because the research participants did it vaginally and it is difficult to generalise positive findings of it is taken a different way. I however took it 'differently' because I couldn't bear it vaginally. I'm pretty sure it doesn't make a difference but they have to advise based on evidence.

Sasha, I'm doing a daily diary to help me track symptoms and help ease some of my irrational thoughts. Was suggestion of my Mw and been doing since the weekend and it does seem to be helping. Also if things do go wrong, then will help to track back when.

Tanny, remember well hope newborns impact relationships. Hope it all settled down soon.

Brummie, good luck lovely lady.

Hi all.

I'm home. Very tired wobbly groggy and a bit sore/crampy .

Uterus was completely clean, absolutely no scarring. So they just did a few niggles in the lining to irritate it and give the same effect as the scratch.

So basically there is absolutely nothing wrong with me. Feel a low (post GA which I appreciate is normal) about that. That my babies losses were all for nothing.

But have to hang on to fact that because there is nothing wrong I should be successful at some point....

So just waiting for AF now and then I'm ready to jump back in the TTC pool.

So tired and crampy now though.

Tanny big hugs. Hope you are ok xx

Brummie hugs. I think what baking said was right. There isn't a good news story here - if they'd found something fixable you'd be sad you hadn't known about it sooner. But I do understand the fear about trying again with no diagnosis - I went into a proper tailspin about it. But then I tried to think more positively. I think mine was probably a hormonal or implantation issue. These could happen again, but they're not inevitable- every cycle is different. And you've had the scratch and have been looking after yourself with the raspberry tea etc. You've done all you possibly can - it's a question of keeping trying now. Good luck, and hugs!

girlie I want to have a scan when I'm 8 weeks, which will be mid-May. Need to get in touch with the midwife about that - she is really good at getting the ball rolling, but the whole system is so inefficient that I doubt she knows about me yet. Having said that, last time she managed to get a scan organised for me within 2 hours of me speaking with her. Alternatively, I might actually call the EPU directly (given how well they know me by know, it should not be a problem).

brummie No diagnosis is so frustrating. But your losses did not just happen nilly-willy, there has been a specific reason for each and everyone of them. Whether you will ever find out what that was, is a completely other question. I can't remember, did you ever have any of your mcs tested?
Remember, there is still so much that is not know about why miscarriages happen - the successes on here are really encouraging, but truth is, probably not a realistic representation of what is going on 'in real life'. Correct me if I'm wrong, you will be getting progesterone and heparin, is that right?
You are doing all the right things. It's an uphill struggle, no doubt. You will get better, please look after yourself.

Hugs brummie. Glad to hear you have no adhesions but totally understand the fear that comes with no diagnosis. I know that officially that means you're more likely to be successful eventually, but I also know that sounds a bit hollow. Please don't think that you have to believe the 'just bad luck' line. It's not just bad luck to have 3mc but there's still a lot they don't understand about the process. I do, however, believe that what Coventry are doing is the start of understanding, and hopefully their protocol will work for you. On the plus side, you can now go ahead with ttc knowing that you've covered all the bases and you have your super-lining and drugs to help x

Brummie glad to hear you're home. That sore and groggy feeling isn't pleasant but it will pass soon, just get plenty of rest. I know you'll be disappointed that things are still unexplained but I think this statistically makes you more likely to carry a healthy baby to full term. I'm putting trust in the Coventry team for you and will keep hope that you get your BFP soon.

Waving hi to Tanny and sorry to hear you and your DH are having a rocky time. I imagine that having a newborn does place pressure on things. Hopefully it'll settle down and you'll have a bit more normality soon.

XxX

Argh, my acupuncturist has just announced she will be out of action for three months due to having to have an operation on her thumb. She is distraught - understandably, and it could be in a few months time, so not imminent. Not sure what the plAn is yet as I get subsidised treatment so might have to either not go while she's off or swap to every other week and pay the full amount. I'm praying it won't screw with my cycles now I've got them so settled. Blimming Sod's law isn't it.

Glad you are back and the results are good Brummie xx

Hugs Sasha. I would say do what you feel like doing, so if that's staying at home and crying then do that. It's so soon to expect yourself to be 'back to normal' by going out and arranging to see people. Just be kind to yourself and give yourself time to recover at your own pace.

brummie sorry your 'good' results aren't helping. I agree with March and cloud in that there is so much undiscovered about mc and it seems they're only beginning to scratch the surface now. But, you've done everything you can possibly do to help make the next one succeed and no doubt you are in a good position for the next one to be 'the one'. I hope things feel more positive for you with time and when it comes to ttc. Not long to go now.

Good luck to those in 2ww and to those ttc soon (like me, ha! ). flen when are you testing?

diddly did you manage to speak to epu? Hope everything is ok.

Well after all the talk of needing spare pants, irritation, wet farts and leakages I've decided to go right down the middle and opt for 1 up the front and 1 up the back!! ha ha! Just writing this makes me chuckle!

Sorry to those I've missed, I'm rubbish at this name checking! X

cheesy testing tomorrow morning. Feeling really terrible today so am home from work early and watching shit TV. Think the progesterone is having impacts, but also haven't slept properly for some time now so very tired. Just want to test and know now. Either way.

Sorry, not keeping up very well. But just wanted to say I know how you feel Flen. I'm in bed now, but was up at 3.30am for several hours. On a positive note, wind & diarrhea has subsided. Wishing you a positive result tomorrow x

Brummie glad you're home. Have been thinking of you today.

Sorry those who had consults leaving you feel empty. I know I've felt the same and no doubt will following Coventry one. Even though you know that normal results are good news it leaves you feeling so powerless.

Sorry for not name checking more. Focus seems to have left the building.

Well done on your willpower flen! Fingers crossed for you tomorrow! X