Recurrent miscarriage support, tests, treatments and trying again.

[Monten]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Sorry about results you didn't want to hear brummie and twilight.

I think your pattern still fits the badly prepared lining theory brummie. I wish i understood if/how the high nk cells indicator fits in with the lining. ie can you have a lining that's not doing the right thing and still have normal nk or vice versa. Also is high nk more likely in secondary than primary rmc (and if so, why)

twilight, sorry about the partial molar. does that mean more treatment or just monitoring? Hope you're doing ok. Are you still planning Coventry?

Good evening all. My stats:

Me 39; DH 42
2006 DD1
2008 ectopic (medical man), chem preg, ectopic (tube removed)
2009 DD2 (hurrah!)
2012 MMC. HB but then stopped at 8.5 weeks. Found out from a scan a day or so later after I stopped feeling pg
2015 MMC. Virtually identical to MMC1. ERPC both times.

The baby bombs are coming thick and fast today. Some friends who started having kids after I had DD2 just had their third. I have been triple-lapped. And three sodding scan photos on Fb. Normally I am pretty chilled about this stuff. Today I just can't take it.

Also horrible today: suddenly started v heavy bleeding on the train home from work. I do feel well enough to be back, although sad, but this really doesn't help. I had to shower when I got home to clean myself up. Tomorrow I have a v long client meeting which I am leading and I am not sure it is a good idea. Cramping too. So much for the "some watery bleeding" that was described to me at the hospital...

Hope everyone is ok. Booked myself in to see Raj Rai in a few weeks. With any luck I will have the embryo test results by then so will be able to throw that into the mix. Insurance won't pay (I have AxA, they are SHIT for anything involving woman-stuff ) so am getting ready to kiss goodbye to my savings!

Sorry for the me-post. Will catch up with the thread in a bit.

Agh just realised I missed pages and pages of posts including 3 bfps! Congratulations ladies, what a day.

brummie I totally understand the fear about trying again without a diagnosis but tiny, tanny and I had the same and it still worked out ok.

twilight hugs re partial molar. I thought partial ones weren't dangerous though? I am glad you got some answers.

AllThereIs 29, 1 DC, 2 Mc.

brummie chin up - there is a lot of success on the progesterone/heparin combo for those with normal NK cells. Good luck for tomorrow.

twilight sorry about the double whammy of triploidy (is that an extra chromosome - same sort of thing as Downs, Edwards, Pataus?) and partial molar. I'm pretty sure purple had something similar, and there's a molar support thread on this board.

I've come to the conclusion there are no good things to hear about RMC - it's upsetting and worrying to have something wrong with you or your lost LO, and frustrating when you are told it's all normal. You just muddle through and cobble together a way forward.

Brummie - really sorry to hear you didn't get any specific answers from Coventry. Hugs.

Thanks for the stats thread Spartacus. I especially like the success stories as it gives us hope.

Going to scroll back now and look at what others have written. Previously tried flicking back and forth on my phone and lost a long essay and don't want to risk it again.

From my 'research', I gather partials can be risky but are far less likely to be. I think the risk is 1 in 100 so they just will be monitoring for now. I'm fairly confident all will be fine though. It's been 2 months since erpc, no apparent complications since and just poas and got bfn so think it's just precautionary.

Yes, definitely going to Coventry. I know it wouldn't have made a difference to the last MC but I just want to throw everything at it now. Pleased St Mary's were behind the idea. I'm aware others haven't had the same experience so it made me wonder if the researchers are reaching a consensus or have learned there's no point trying to stop us

Baking - my very lay understanding is that there is an extra set of chromosomes so the baby has 69 all together. This can happen if two sperm fertilise one egg or if the egg has two sets of chromosomes. It's random apparently though I have googled recurrent Triplody and there is such a thing

Brummie - have you had histology etc before to rule out the random or inheritable genetic stuff? I guess I'm wondering if yours could be down to similar issues as my recent one (and pos my others). Though huge apologies if you've previously told us that's not the case. Also, apologies because I know what I've said is precariously close to saying the "bad luck" line - I don't mean it like that.

Spartacus - no wonder you're finding the baby bombs difficult with the day you've had. Hope you're safely cuddled on a sofa somewhere. Congrats on your appointment with Raj Rai.

It does sound like consultants are getting behind Coventry more than a year ago. This is good news. All that ego battling is more than we deserve. Good luck to those with appointments and those ttc.

All the chat about wet farts is definitely making up my mind about which entrance I'd try the progesterone in if I go to Cov

My saga of poor nhs care continues as my blood tests were wrongly labelled yesterday so I have to go back for them doing again! Can't be done till at least after next wed as the nurse dealing is on holiday, so results may not be back for my next RMC appointment! She offered to do it next wed in the ante natal clinic which I politely declined.

brummie sorry your results weren't useful. The one time normal isn't really what you want to hear. The Coventry protocol still sounded so promising though.

twilight also sorry about your partial molar disgnosis. I don't know an awful lot about it but it sounds like they're taking precautions and looking after you well.

sasha your appointment sounds great. How fast are those results?!!! It's just good to know things are happening isn't it. I've given up worrying about age gaps. Worrying about having a successful second dc is taking up too much headspace!

spartacus sorry about the baby bombs- they are shit!

flen I'm so sorry you're finding it hard. Keeping everything crossed for your testing day. It sounds like you have a lovely job, though I can see it must be really hard at times to separate yourself.

Sorry and waves to anyone I've missed xxx

Sorry but this thread moves too fast, i'm strugglimg just to lurk and read, never mind post to everyone by name, just so sad how many are now on this thread, we seem to be gaining new members faster than sticky BFP's. Congrats to whoever it was who just had a BFP. And hope bleeding stops diddly. Brummie good luck for tomorrow, hope they take care of you at Redditch. I'm just in limbo as on cd10 and waiting to ttc, am expecting to ovulate circa cd 26-28 but really hard to be sure as my cycles were long ever since they came back after I stopped breastfeeding ds2 and I had an AF in nov, got BFP dec. miscarried jan, got BFP February, miscarried March, and so I've only just had my first AF since Nov, following the hysteroscopy at the end of March so really can't be too sure what to expect from my body this month. Have a follow up appointment booked with Mr Watts on 1st June and am really hoping that I get a BFP during the week before that appointment, as the 1st will be cd44 as I can then collect a prescription from him on that day. But at the same time trying not to get my hopes up, as I have fallen pregnant first time every time and that hit rate can't continue, unless that's part of the problem and my body just lets anything implant whether it's a good or bad egg....if only we all could know the reasons for certain

I had phone follow up with Coventry tonight. Was off the phone within 5 minutes and not hugely confident about what will happen next time because it will be similar protocol to last time.
I did ask about the theory that having a boy previously can cause your body to reject them in the future. There has been research into this in Denmark, but there's no treatment. And apparently if that's the cause I'll be ok if I have a girl... but I would rather not keep killing off boys.
However I do find it hard to believe that I've conceived six boys in a row.

And wowsers, more BFPs! Think that makes around 40% of us pregnant!

Loopy, are you on any treatment plan?

Oh god, there's a thread in active convos where someone has posted her 12w scan photo and asking people to guess the gender. For some reason it's made me very

If we have a 40% success rate on here i recon this thread may well be part of bfp! (Congrats btw Jady and erica!) Perhaps it's about feeling more cared for and looked after?!
So much going on today on here, smashing info sasha.
I wish this thread had a search bar, so you could look up stuff like 'wet fart' !
Was also thinking, maybe we should create a seperate thread which outlines all the tests rmc people could have and the current protocals, like an index for newbies and we could add data/info as we learn it. Kinda for prosperity, so that future nubies and ladies on here don't have to start from scratch. Just a thought. We just collectively seem to have put a big picture together that is incredibly useful.

Sorry, too tired to catch up with everyone but I have read up to date!

Sasha I'm really interested that they gave you clomid. I was given 6 months of it (they chuck it at all 'unexplained infertility' as it's cheaper than iui/ivf and fobs you off for another 6 months...) the first round got me a bfp but sadly no luck after that. It didn't move my ovulation forward much though, while I was hoping it would sort out my cycles. The cycle I conceived I ovulated on day 17/18 I think (going back almost 3 years now!) but following cycles were later. That was brought forward from cd22 though, so if you're not as far out from the norm it might be good for you. My mate took it the same time as me. She got pg with triplets, mc one of them and gave birth to twins. Another mner I know from the infertility threads took clomid the same time as me as well as she now has twins. Just sayin' .

I think if our frozen round fails in summer my last ditch 'natural' attempt will be angus cactus and progesterone (I happen to have a supply stashed from the iui/ivf/previous pg) Nothing like a bit of self medication when the doctors have given up .

Dreading Duchess Kate's announcement. Her pregnancy was announced the day I should have been having my 12 wk scan for number 2.

I'd held it together that day, until the news broke and I absolutely fell to pieces. In my head I should've been joyfully announcing my pregnancy to the world - instead I was faced with rolling news coverage of someone else's pregnancy and I was left with nothing.

And since then, I've lost another!!!

Fear has ramped up again for tomorrow - I know it's an easy procedure but still scared. Thanks for encouragement Loopy I do feel better knowing you've had the same care. It's Redditch but it's still Mr W's clinical team.

I am trying to keep the faith that we'll both be at Worcester come February

Got my phone consult with Prof B on Thursday - although by sounds of it. I shouldn't expect much !!! I will be asking about the 200mg progesterone twice daily vs 400 mg. plus I also can't have the boys theory because I've not had a successful pregnancy yet.

Although pg 2 and 3 both miscarried at 8.5 / 9 weeks so maybe it is the placenta / lining theory...

Anyhoo I'm babbling now - nervous about tomorrow...

Hopefully this one will happen!!!

Freckle, that's a really good idea.

We could add research/studies too.

Will also say, I didn't have any of the problems with progesterone at the back... Found it much less messy and they didn't fall out either. It's worth a try!!

Good luck for tomorrow Brummie.

I'm also dreading Kate's announcement. In fact I saw it on Facebook an hour ago but think it was a hoax?!

I'm also not looking forward to the Royal baby, how sad am I. Prince George was born when I would have been due with my first mc, and I remember all too vividly how heart-breaking it was to be constantly assaulted with pictures and headlines (even though I was actually pg again at the time). I'm happy for her to have a baby or 10, I just don't really want to hear about it (yeah, so much chance for that happening).

brummie Good luck for tomorrow x

Monten Yeah, those naive pregnancy threads... Ignore, ignore, ignore. May they never have to feel like we do.

twilight So sorry about the extra worry! How will they monitor you? Does it mean you will have to wait with ttc for a while?

Minnie Gosh, you have one incompetent healthcare team, how frustrating!

Spartacus Do take time off if you don't feel up for it. Bleeding heavily is more than just a little inconvenience, look after yourself. Clients are usually much more forgiving than you give them credit for (I wish my work would believe that, too).

5+1 today (well, nearly 5+2). Can't help looking at my calendar and think, if I miscarry then, it will be right around DS's birthday, if I mc at this point, it'll impact our summer holiday. It's a total headf**k

Cloud, totally with you about best date to have a mc. Need to be more positive, but easier said then done. When's your first scan?

minnie that is so frustrating about your tests! GRR.

biscuits I also had my very brief phone consultation last night! His advice re: progesterone and upset stomach was to reduce to one pessary a day at night.

brummie good luck today, hope it goes well.

cloud I really struggled with Prince George's birth, he was born just as we were going through our first fertility treatment, we'd already been ttc 19 months and she took the name I wanted for my baby (my Grandfather's name, and name of my cousin). I was so !!! I couldn't use that name now!!! Sounds so petty but it really upset me at the time.

brummie lots of luck for today

freckle excellent idea on separate 'everything you need to know' thread. I think there are a few consultants around who could do with reading it .

Goodluck today Brummie! E x