Recurrent miscarriage support, tests, treatments and trying again.

[Monten]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Welcome *willow"

Thinking of you cloud

Happy bank holiday everyone!

mrsc I got unexpectedly baby bombed this weekend. I had a horrible time on Saturday, turned up at my mate's house for a cycling weekend (DH and a mate were cycling there and I had thought would be arriving at around the same time but I got there first) and there were two small children there. Can't even tell you how old they were, both under 3 though. I was totally side swiped, wasn't expecting it and it hit me. I left again without even taking my coat off, saying I was off to get some food and walk the dog. Ended up walking the dog along the river, sobbing, not knowing what to do with myself. My mate sent a text asking if I was lost. She then called. I had to explain that I just couldn't handle it and I would stay out with the dog until DH arrived. I felt like a complete idiot but I completely lost it, not cried like that for ages. And just when I thought I was starting to hold it all together again . What upset me was that this mate knows everything that's going on, and last year there was a similar situation at her house when I turned up and was baby bombed by a new born, while I was still mc'ing #2. I ended up crying in the kitchen that time. So I really thought she would have warned me, but because it wasn't a baby, she didn't think to. I had to explain that I was facing the possibility of never having that pregnancy, birth, family experience. If everything had happened easily then DH and I would have two small children by now. Even parents with teenagers make me , as they've got what I'm scared I will never experience. I don't just want a baby, babies grow up, I want the whole bloody package!!! It was quite obvious she had absolutely no empathy though.

Sorry, that was quite a rant, it's obviously not quite out of the system yet, still getting upset just typing it.

And Allsop can fuck off. I met DH when I was 30. We started ttc only 2 years later as I knew my clock was ticking. What was I supposed to do? Shack up with the first man who'd have me just so I could start trying in my early 20's? Who is to say I wouldn't have had the same problems with infertility then?

barking that sounds bloody horrible, I'm so sorry you had to go through that. that people just don't understand something that seems so understandable to me.

willow so sorry you find yourself here.

Two quick Coventry questions (the first of which I know has been discussed before but I can't find which thread it was on!)

Why are some people prescribed 400g progesterone, while others 200g? (I'm in the latter group).

What kind of heparin is prescribed? Is it the unfractionated stuff or the 'newer' types like Fragmin?

Hi Pop

I asked Prof B this exact question when I had my phone consultation last week.

You get prescribed 200mg when TTC so 7 dpo.

However you only get 400mg once you are pregnant, otherwise the fear is that it will make the lining far too selective. So I've got 4 wks worth of 200mg - to try for 7 days from 7 dpo for 3 cycles. If it hasn't worked after 3 cycles to only then use from a BFP

Barking massive massive hugs xxx I really feel for you. I know that fear of never ever having a family. It haunts me.

A friend of mine who was pregnant the same time I was pregnant the first time wants to meet up. She was due 4 weeks before me and I'm trying to diplomatically avoid it and just let my other friend go as it will remind me what i don't have.

I feel your pain and grief. I really do.

Thinking of you xxxx

willow Sorry you find yourself here. It's the club no one wants to belong to, but the support on here is fab.

barking So sorry you had to go through that. But sometimes, our emotions just have to come out - we are all too good at getting on with things, bottling up our fears, frustration, anger and, well, the sheer desperation. Hope you are feeling a bit calmer now.

pop Sorry, can't help with that question. I'm on 2x200mg/day, but I don't know who gets prescribed what.

The spotting has gone down, only a bit of brown discharge this morning (so far). I feel less ill than in the last 2 days, but still sore, and frankly, as if someone has kicked me in the fanjo (sorry for tmi!). I am wondering if I should buy a digital test, to check what it says... I want to know what I am in for, but at the same time, I don't want to. Time will tell, but the waiting is just torture. Some things you never get used to.

Morning cloud. Yes, mother nature likes to wear toe capped dr martins for kicking one in the fanjo i find! Xxxx Would a digital give you correct info? Given hcg can be in system 3 weeks after? I think a scan is what you need my love. x

Oh cloud that sounds like better news. Fingers crossed the spotting disapates and you can book a scan tomorrow with EPU.

Keeping everything crossed Cloud

Well something seems to be doing something with AF. Normally very light bleed, barely 3 days and often quite dark in colour. Often by day 3 it's dark brown spotting

However this time. Am on day 4 and still getting fresh bright red blood. This never happens!!! It's not as heavy but defo still red and fresh. Maybe my lining is finally doing something!!

Mind you that stuff that I've been doing to try and improve is, quite frankly bordering on ridiculous

Raspberry leaf tea
Pomegranate juice
L-arginine
Vitamin E
Folic Acid
Zinc
Royal jelly
Plus also 2 x eggs a day - every single sodding day

Everything above was pretty much recommended by my acupuncturist but the eggs and l-arginine especially as they are "blood building and nourishing"

However of course it could just be the scratches from the hysteroscopy but it could be a bit of everything and not just a load of bollocks

cloud sounds like the spotting has finished now which is good. Hope that's the last of it now. I agree that a scan might be useful for you. Although appreciate it could cause more anxiety given how early it is.

brummie good news about a healthy looking af.

I'm now starting to worry about my progesterone as I was prescribed 2x400mg from the start. I wonder why I'm different, surely they can't have made a mistake. I worry it will make me too selective. I need to call Kerri tomorrow anyway to tell them about my blood results so will ask about it then. Don't really want to sound like I'm questioning their protocol though so think I'll need to word it right.

Welcome willow. Sorry for your losses and that you find yourself here but I'm sure you'll fibd lots of support here.

Got another flashing smiley this morning! Grrrr! I'm starting to think I may have missed the surge somehow, but then wouldn't I have a negative after ov rather than flashing smiley...?

Hugs to those dealing with baby bombs on top of the royal news and losses. xxx

*Cheesy, I was on 400mg all the way through. Don't know why though and have a feeling it's an inexact science. ..

We're full of cold here and all a bit miserable. Mine is definitely man-flu.

bootles, I used 400(mcg?) of my remaining progesterone in February from day 21 to 28, then got BFN, went to Coventry in March, and used 400 of my old stuff again in April. Will try 200 next time!
Freckle, I think she probably is talking to younger women. She also said there is a lot of misunderstanding around fertility and again I disagree. I think most women will have heard the saying that your fertility 'falls off a cliff' at 35, whether it's true or not.
But I think most people who have children later have very good reasons for it. She comes from a wealthy background and I assume has a good income from TV work and books.
If she had children younger rather than waiting for right partner and right time, she could probably cope with being a single mum better than others who don't have money to fall back on, or without a degree to increase their earning potential.

flen, sorry to hear you're not sleeping. I found the effects of the progesterone lasted about a week after I stopped it, so hopefully it will get better soon if that is contributing to it. Insomnia just makes everything seem terrible so I really feel for you.

cloud, glad the spotting has eased a bit. Do you think it could be something else if it's associated with pain like you describe? Really hope it stays away and you are able to get scanned soon.

barking, sorry you had such an unexpected baby bomb . So horrible when you haven't had time to prepare yourself. Sounds like you needed to let out the emotion a bit but maybe it wasn't the ideal situation you'd have chosen to do this. Hugs x

On the question of progesterone 200 vs 400, were the 400 people seen as 'hyperfertile' perhaps? Or is it more random than that? I get the impression they are still fine tuning their treatment plan. It wasn't discussed at all at my appointment but hoping it will be in the email when I get results. I've only got 400s so would have to cut them up or ask gp to prescribe again if i follow Coventry protocol.

Arrrrgh for flashing smiley still cheesy. My gut says it's just late, but I'm basing this on precisely zero actual medical knowledge.

Despite my smiley last night/this morning i haven't felt ov pain yet and cm not been very fertile at all really. Just feeling like this month isn't working for me. Anyway. One more go today and then the dreaded 2ww. Only got a week without poas, as I have to start hpt on 7dpo for response trial

I havn't been to cov (although am serriously Considering it in june) but proff walker at leeds has said he will let me follow their protocall and he has prescribed me 2 x 400 from 7days post ov (which would be a wacking cd 37 this month!) And i would def put myself in the hyperfertile category, as i've pretty much got pregnant first time every time. So maybe that is why i got the 400g??

So dtd a few times over the weekend since got smiley on DAY 30 (ffs) if af doesnt show her face by next friday i'll start on the progesterone. So thats me on the 2 ww!

march I think it may be delayed too as the ic I did this afternoon had a faint line. Plus I've still got lots of ewcm which would have gone by now if ov had been and gone. Hope your ov happens soon.

Re the progesterone dosage, prof b said he thought the hyper-fertility theory could fit with mc2 and because I have fallen pg quickly in the past...so maybe that's why I'm on higher....
That's good to know tanny as it obv didn't make your lining too selective!

Just looked at my letter again and I WAS meant to take 400mcg from CD21. And I do fit possible hyperfertility theory.
But they did say to contact them in three months, so maybe if no BFP they'll adjust it then.

It really is good to know tanny because i'd have been chopping the peogesterone bullets in two come friday! X

pop I'm on 200mg progesterone, but did get given 400mg when I last saw prof b which I didn't realise till I got home. Have been cutting them up because I don't know which dose to take and my letter doesn't say 400. The heparin is clexane.

mrsC lovely story about your nephew. Sorry about the baby bombs. Same to you barking. Grr at your friend

cheesy I gave up using cbdh opk because I would get over 7 days of flashing Smiley's. Only started happening after mc 2. Would do my bloody head in.

cloud it really is torturous isn't it, the waiting.Totally identify with the want to know but don't want to know feeling. Are you approaching 6 weeks? If you had a scan at 6 plus, and you know when you ovulated, a scan would give you a fair idea of what is happening. I know they always say that 6 weeks is too early to be definitive, but I'm not so sure. What is your plan for this week? Xx

flen progesterone can certainly make you feel a bit odd I think, but so can the reason we are taking it, but either way I hope you get a decent nights sleep soon.

barking I am a bit shocked by your friends lack of understanding. Poor you. As cloud says, the emotion has to come out sometimes. I hope you managed to get through the rest of the day ok.

biscuits it was pop asking about the progesterone but I would like to know too. I am on 200 twice a day from 7dpo. Am interested as to why we are given different doses.

cheesy could you have missed the peak of the LH surge and are getting it on the way down as it reduces again? Or it could just be late O. I was 3 days later than usual this month and heading into the tww. I think some people never get great results with opk's?

I'm not sure that Kirstie Should be making any comments about fertility misunderstandings unless she is a medical professional or someone who has learnt alot through personal experiences and research that she can cite.

tanny get well soon and hope bertie is ok if he has the cold too

sasha hope is extra hard with a hangover. Maybe give yourself a break to feel shite today then start again tomorrow with a new head and renewed hope tomorrow.

Hooray for better af brummie

Hand holding for all of us for the 2ww (cheesy, freckle, sebs, bootles, anyone else? )
How are you doing mrsd? Have you had any more spotting?

Ladies - when you are talking about 200 or 400mg. Is that 2 x per day? So a total of 400 or 800 per day? I'm just confused as I'm on 2 x400mg once pg so a total of 800 per day??!

sun think its twice a day for most of us

So the baby has been named, and yep, the name is my chosen name if we had had a girl with my middle name thrown in. Fuck it hurt to hear it when DP told me. I WILL get over it but the blanket election coverage can't come soon enough to my mind.

Thanks mrsd - was panicking in case over dosing on progesterone!

Cloud glad the bleeding seems to have stopped. Hope when you have a scan it's good news.

Brummie the bleeding is a side effect of the op it seems. I assumed foolishly I'd have next to no AF after it, given Mr Watts words that he had removed all my lining as well as the adhesions. I had 3 days of very very heavy bleeding, heavier than my miscarriages. Was changing constantly. It eased off on days 4 and 5, and extremely light on days 6 and 7.

Waves to everyone else, hope everyone enjoyed the bank holiday and no more baby bombs happen this week.