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Miscarriage/pregnancy loss

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Original poster

Recurrent Miscarriage Support Thread - Thread 17 - Tests, treatment and trying again

984 replies

Flower29 · 05/02/2015 12:28

Information, support, hand holding, tea, sympathy and a hell of a lot of combined knowledge - all welcome as we try to make sense of the RMC roller coaster of tests, NHS admin, heart ache and (hopefully) happy endings!
Please start with a recap of your stats Smile

OP posts:
Catlover2014 · 11/02/2015 16:23

barking think that's the right choice but know it's hard. Be sure to let us know the time-scales when you have them. X

Catlover2014 · 11/02/2015 16:26

baking angry to read you're not getting more help. Could you speak to your mp? X

Catlover2014 · 11/02/2015 18:40

Hope counselling was good brummie. It is hard work but really did help me at my darkest times x

Boozle80 · 11/02/2015 19:24

I'm not far away Flower, based in Holmfirth.

Catlover2014 · 11/02/2015 21:28

Boozle one of my best friends lives in Holmfirth, it's so pretty! I'll be visiting them at the end of the month and can't wait Smilex

BettyButterchops · 11/02/2015 22:39

Sorry to hear your news March x

BettyButterchops · 11/02/2015 22:51

And rollercoaster, sorry to hear your story, I just scrolled back and read it, you've really been through the mill to say the least.
Wishing everyone having a horrible week better days soon. We all need a lucky Spring! baking, I'm frustrated just hearing about what's going on for your family, can't imagine how you haven't thrown something at someone yet. Hope you get someone's ears pricking up asap. x

bootles · 11/02/2015 23:41

Oh march, I'm so sorry that you are going through this, and am just gutted for you. As soon as a line appears on a test everything shifts mentally, so step back down again so hard. I think you said you are thinking about coventry now, which seems a good plan. I will be there next Friday to discuss my non-results from the erpc, so let me know if you have any questions for them before then, and I will make them my questions. Lots of hugs xx

baking you must be raging. As if you weren't going through enough as it is, things seem to be being made more difficult through lack of communication between the professionals. Horribly rubbish. Is faith to stay on the high dose steroids again for now? Hope all the results come back soon xx

bootles · 12/02/2015 00:00

Words missing..so to step back down again is so hard..is what I meant.

barkingtreefrog · 12/02/2015 06:27

flower29, yep, I'm in Yorkshire Grin. I seem to remember that Ourday is as well.

Marchgirl · 12/02/2015 06:42

Thanks bootles, that was well described. I didn't yet feel like this one was a baby like the others, but I had that mental shift you describe. Thanks for the offer of asking questions for me at coventry, but I have a million for them, and I really think you'll have enough to ask for yourself, so think it's best you concentrate on you. I hope they are able to give you some answers or at least a good plan for next time x

bythesea82 · 12/02/2015 07:17

Good luck today twilight
cat sorry I can't remember when your scan is, soon I think?

bakingtins · 12/02/2015 07:25

Thanks everyone. I did finally manage to speak to the consultant yesterday evening and feel a bit better. He's been away - always seems to be at one bloody conference or another - but I got the impression he's going to kick some junior butts for dropping the ball. He doesn't think the eye rolling is spasms but it is probably connected to whatever is causing them so he's ordered another EEG and more blood and urine tests, and we're to pick up another med to start next week. We're seeing him on 23rd and someone in the ciu next week for check up. He's reviewed the MRI and it's all clear,which is a massive relief.
I've given up on the GP and am going to book a cp vax privately which magically transforms the response from "I've never heard of Cp vax for siblings" to "what time on Saturday morning would you like, madam?" Confused

to all the Yorkshire lasses, I grew up in the Aire valley.

bakingtins · 12/02/2015 07:28

twilight good luck for your scan!

Justonemoretime · 12/02/2015 07:32

March, so sorry, that sucks. Sad
Welcome Rollercoaster, sorry you find yourself here. Good luck with getting answers and fingers crossed your re-scan gives better news than you fear.
Good luck for your scans Twilight and Cat.
Half term next week for me. It can't come soon enough. Been totally snowed under this week and have been involved in the recruitment process for my mat cover this week. Scary to think of handing my job over for a year, I never dreamed I'd get to that point, but the wheels are in motion! Re-scan for 20 week scan part two next Tues afternoon for uncooperative baby Just!
Waves to everyone!

Justonemoretime · 12/02/2015 07:36

Baking, glad you finally got the consultant's ear. Glad the MRI clear. Hope you get some more answers and a plan soon.

tannyLoo · 12/02/2015 07:56

Good baking, so good to have more idea about what they think is going on. Being left without answers for so long is shocking, and I still find it hard to believe that paediatric doctors don't understand this!

March, sorry it's turned out that way, I really am. I've had several early MCs that some might have classed CPs, but in my head they have felt real and CP somehow belittles the emotions attached to any pregnancy loss. Do get it recorded by your GP, I can't remember if this is your plan, but there shouldn't be any distinction made by them.

So much going on at the moment, it sounds really tough, and its hard to know what to say without it sounding smug. I'm not though, anything but. My last MC anniversary is rapidly approaching, and that was the one that took months (if not still feeling the effects) to recover from. It doesn't go away (sorry) but has completely shaped who I am. I'm so relieved not to be in that place any more, and without the support of the women here, I have no doubt I'd be much worse off. Big hugs.

Twilight, is it scan day? Good luck chuck x

I'm finding that I have less time to post since starting mat leave, as DS is quite a distraction, and as soon as I start writing he starts demanding! No news yet...

Original poster
Flower29 · 12/02/2015 08:11

baking great news the MRI is clear and the consultant is going to kick some asses for you. Hopefully now you won't be left waiting and tearing your hair out and Faith will get better care.

just exciting about arranging your mat leave, must make it feel all the more real!

twilight good luck for your scan! What time is it? How are you feeling?

Hope everyone else is ok. Ey up fellow Yorkshire lasses! Smile

OP posts:
bootles · 12/02/2015 08:28

baking that is truly good news that the MRI is clear. I know it doesn't take away the problem but as I understand it, its the best outcome you could have hoped for. It sounds like now the consultant is back things are moving again, but its just crap that you've had to go private to get something basic that your gp won't give you.

twilight and cat you have scans today? Hand holding.

AndCounting · 12/02/2015 08:31

By eck! Me too I'm a Yorkshire lass. I'm heading to God's own country for half term (Leeds then Goole). Hope you're feeling better flower. Wierdly I tend to feel euphoric the morning after a crying session.

DH was being v supportive last night and doing my Pilate's for mums DVD with me. Halfway through he said, 'counting do men have a pelvic floor?' I did laugh.

bootles my DS occasionally asks those questions too. Out of the blue he'll say, 'is there a baby in your tummy mummy?' Or ask when.

Does anyone else get horrendous ovulation pains? Mine have been worse in the past few months and have to to the stage where I spend an hour lying in bed crying out in pain. It's like being stabbed with a knife.

Welcome rollercoaster sorry for your losses and agree with everyone else about that 98% being tosh

Good luck twilight!

bootles · 12/02/2015 08:34

Tanny hope the anniversary passes ok, and hope you get some rest in (high on impossible with a little DS I know - but try!) before the arrival.

Flen · 12/02/2015 09:06

Good luck for scans today twilight and cat, let us know how it goes.

bsking that sounds like things are moving at last! Can't imagine how frustrating and worrying it has all been.

just I am longing for half term and I'm not even pregnant! Sounds like we both need a rest...

counting in my second cycle post mc, I got the worst ov pains I've ever had - exactly as you describe. It's kind of useful, but blimey it hurts!

bootles · 12/02/2015 09:14

counting I get over pains, started after mc 1. Sometimes bad enough that I need painkillers, though not as bad as yours sound. I think its scar tissue on ovaries due to age, from what I have read..

Catlover2014 · 12/02/2015 09:22

Glad MRI is clear baking, sounds like they are starting to listen.

Good luck for scan twilight.

Mine is on Monday. I'm in bed ill, think I have a middle ear infection but worried sick about baby Hmm
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Catlover2014 · 12/02/2015 09:34

Glad MRI is clear baking, sounds like they are starting to listen.

Good luck for scan twilight.

Mine is on Monday. I'm in bed ill, think I have a middle ear infection but worried sick about baby Hmm
as