Recurrent Miscarriage Support Thread 16 - tests, treatment and trying again

[Justonemoretime]

Information, support, hand holding, tea, sympathy and a hell of a lot of combined knowledge - all welcome as we try to make sense of the RMC roller coaster of tests, NHS admin, heart ache and (hopefully) happy endings!
Please start with a recap of your stats :)

Hop on Rebecca and sorry for your losses. I can empathise with your frustration, take care dear and rest up.

andcounting thank you. Getting plenty of rest today, on the sofa wallowing in self pity and hash browns

Sorry you're here rebecca. How are you feeling? Will you be having surgical management?

me2 my cycle has shortened by a whole week, used to be 35, now 28.

I'm so embarrassed I've decided the only way I can deal with it is to literally pretend the whole thing never happened. Ostrich.

Sorry you find yourself here rebecca but welcome.

me2 - yes. Mine were pretty short anyway at 28 days but after mc seemed to settle at 26. Hope they don't get even shorter after this latest one!

X

monten no, not this time. Scan today showed no contents in my uterus, so I'm just riding it out, to be fair it isn't as painful as I would have imagined it to be, and the blood doesn't seem much more than a heavy ish period. Not sure if the worst is yet to come ? I have no idea what to expect really as last miscarriage was missed and then had the erpc, so it's all new to me this time round. I don't feel as traumatised by this miscarriage, my heart felt like it had been ripped out of my chest the first time round, but this time I guess in the back of my mind I had prepared myself for the worst from the first bfp. I'm just hoping and praying I've just been unlucky these past two times and the next pregnancy will be okay.

Monten, that is classic!

Rebecca, welcome to the most lovely group of ladies. Sorry for your losses and ask away any questions. Statistically speaking you have a very good chance of the next pregnancy being successful after two however if you're like me, then it doesn't feel like it at the moment x

Rebecca Welcome to the club that no one wants to belong to, sorry that you find yourself here

Me2 My cycles used to be 28-30 days before the mcs, and now they are on average 25-26 days, so yes, definitely shorter! I was worried about a short luteal phase at some point, but apparently, 9-10 days are OK.

Gosh so quite a few with shoetened cycles post mc. I wonder what it is

Sorry you find yourself here Rebecca

monten that is BRILLIANT

monten morto.
All.good at consultant. Glucose good, no protein in urine, only gain half a kilo. Heartbeat clear and strong. Still going to keep and eye on thyroid levels,.apparently it will go up again. Movement good today. Havd the details of a counsellor should I need it.
boozle you got me in trouble. Confessed to doppler, got a talking to. Turns out the reason I thoought the hb was slow is because I was listening to my own. D'oh.
rebeccah sorry you find yourself here,but welcome.

Rebecca welcome to the thread, everyone here rocks.
Belle never admit it to anyone medical! Doh! It's a secret! Although I told my midwife and she said officially she need to condem me for it but unofficially she thinks it's a great idea - although she did give me the health warning that not to panic if I can't find it. I look for a hb around 150, mine is about 80. Sorry if I caused you extra angst with my over paranoid ideas - I'm lucky that mine seems reasonably easy to find. I crapped myself yesterday when it dropped to 140 - well inside the normal range.

Another super speedy day on the thread I see.

Welcome Rebecca but I'm very sorry for your losses and that you have to be here. I've had miscarriages at around the number of weeks you're experiencing and they've been much like periods so I wouldn't necessarily expect it to get worse. As Girlie says, the likelihood of a good outcome next time is still as high as for anyone else so try and keep hold of that. But for now hash browns on the sofa and generally a lot of tlc sounds like a plan. Hugs.

Baking - glad to hear you've got your scan date through. I've worked in neurology services previously and I second everyone else who says it's not in Doctor's natures to be unrealistically positive. Praying for a good outcome for Faith. You continue to be in my thoughts.

Sorry you're getting shite from work Bootles. Where I am pregnancy-related sickness doesn't count for disciplinary stuff but you run through your sickness 'quota' as usual. That suggestion by Longest about seeing about extra discretionary leave sounds like a possibility?

Thank you Monten and Counting for some real laughs today. The temptation to share the video on Facebook is strong!

Also lovely news from Belle et al about kicks and scans and good stuff. We need that stuff here! Let's keep it coming.

I spoke to St Mary's today and found out that my TEG result was ok. Also found that they did see a yoke sac after all (obviously dissociated completely in the appointment and missed this minor detail) - so feeling a little more positive today.

Rebecca glad you found us. So sorry for your loss. I think at 5-6 weeks you may find the physical symptoms not too bad. I didn't. I am glaf you feel calm but you may find the emotions hit you later and we will be here for you.

Your chances of a healthy pregnancy remain very good and your age is hugely in your favour but if you can persuade your gp to run some hormone tests, thyroid and insulin tests these could be beneficial.

That's good twilight. X

baking thank you for sharing that. It sounds so strange to say but I really hope they don't find a reason. Your friend sounds so sweet. Sometimes it really is so hard to find any words to say. I remember after my dad died I was watching a film with my friend and an upsetting (and relevant to him) scene came on, and she just reached out and held my hand. Sometimes words are not enough. Take every comfort from your consultant being positive, as others have said they are not in the habit of giving false hope. If anything they tend to be brutally honest and err on the side of pessimism. Thinking of you.

rebecca I know what you mean about not being as traumatised. Like you I only knew anything was wrong at my 12w scan of my first pregnancy. Any miscarriage is awful but there is something uniquely awful about toddling off in excitement to your 12 week scan, after months of excitement building, only to be told bad news. I hope the bleeding stays manageable.

Thank you every one. Your all so kind.
I totally broke down yesterday when I realised what was happening, panic attack and all. But today I feel in control of my emotions, but you are very right, it will hit me at some point, I still have wobbles of the first miscarriage.

My gp is very good, I think if I asked he would run some basic tests. I suffer with severe anxiety and he seems to understand well what impact it has on my mental health. I think it's worth an ask. I've got a gynaecologist appointment on Wednesday to look in to some un identified pain I've had in my right lower abdomen since my erpc, hoping that appointment in itself can shed some light on why I can't seem to keep my bubas.

monten yeah it's the joy and excitement of seeing your baby for the first time, I remember looking over at my partner and seeing him smile looking at the screen, I felt so complete, and then the lady asked me if I had had any pain or bleeding and I knew immediately what was coming, totally heart breaking. I had to go back to have a smear about 4 months after and it's on the same unit where you go for your scans, I couldn't control myself and just sobbed and sobbed in the waiting room. Truly awful !

Baking I filled up a little when I read about your friend, that's so lovely . Glad you've got some dates, hope you don't find a reason and the positive response from the doctor is not unfounded. I, too, agree that I've not had any experience of medical professionals giving false hope.

Welcome Rebecca, sorry you have reason to be here.

I'm all systems go tomorrow for me. I'm at the clinic in the morning for the forth day running, but it's D day and I won't be back again until the end of the dreaded 2ww..
Wish me luck ladies, I want to be in the 13% of women who get a bfp through iui..... Everything crossed! It worked for me last time, just need to get through this hurdle again and hope that the heparin will keep it going this time if I'm lucky enough to get started. I'll probably go a bit quiet over the next two weeks while I bury my head in the sand, but I'll be lurking and following and hoping to read about some more positive scans .

Everything crossed Barking!

Rebecca Glad you have a supportive gp and a gynaecology appointment. Positive steps. Xx

Bless you Bellende, I can imagine your face as you had the talking to!

Good luck Barking. Got everything crossed for you. Hopefully see you the otherside with some good news x

I will be crossing fingers, legs, toes and arms for you Barking. Whenever you want to talk we'll be here!

Welcome to the feed Rebecca, so sorry to hear you've had two miscarriages. One is heartbreaking but two is even harder and my heart goes out to you.

But the good news is that there are a lovely bunch of ladies on here who will support you. Please stay hopeful and positive if you can. There is much in your favour, it's good you're young and can conceive. It took me a long time to get to where I am now but I am 17 weeks pregnant and so far things are looking good so there's always hope.

I would certainly suggest asking your GP for some basic blood tests and as you've had pain since your ERPC it might be worth asking if you could have hysteroscopy (where they put a camera in your uterus) to check things are as they should be.

You might also like to ask if you can see a counsellor to help build your strength and confidence before you starting trying again. Keeping fit and taking supplements will always be a healthy boost too.

Monten that's hilarious

Barking good luck and big hugs!!

Rebecca welcome to the best worst place in the world... These ladies are ace. I'm so so sorry for your loss. It's heartbreaking, devastating and utterly shit but between us we have felt every single emotion possible, been at rock bottom (some of us are admittedly still there) but some of us have seen the glimmer of hope.

So feel free to rant, rave, swear like a Navy Seal - the certainty is, we will be here. Hugs

Thank you ! Currently my main support system/cuddler seems to be my dog ! He hasn't left me alone since yesterday. As I type this I have all 5 and a half stones worth of german shepherd on my lap. Still doesn't realise he is not a lap dog. Strange how animals respond to emotions isn't it ?

Barking - good luck, crossing everything for you! Hope you'll be in the right side of the stats for once!

Ugh - did an OPK earlier, and it came up with a big fat line I'm only on CD11... Thought I'd get a break, but now I'll have to dtd for the next 3 days I'll likely end up with another bladder infection, sigh... Hmph. Needs must, I guess.

Aw Rebecca, he sounds great!