Recurrent miscarriage support - tests, treatment, trying again - thread 8

[Bakingtins]

Welcome everyone, pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of company, information, moral support, tea or sympathy.

Can I suggest we start page 1 with a recap of where we are all up to, because my fuddled head can't keep track?

Hi all, sad news from me. FIL passed away last night. Off to st Marys tomorrow. DH in shock still I think. Waves to all.

Tanny how horrible for you. Take time off if you need.

Late what a shame about your birthday. Glad you're having a me-day.

Jbird gah, horrid for you. Would a £5 electric one show maybe?

just sorry to hear that. Such a tough time for it to happen. MIL passed similarly a few years back :( thinking of you.

Tiny good to hear the session went well. I never got a leaflet funnily enough. Grr. Junior doctor grumble grumble...

just sorry to hear about FIL

jbrd some antibiotics are safe in pregnancy, I'd ask the doctor to assume you are and prescribe accordingly. Hope it settles soon.

tiny good to hear that the counselling is helpful.

tanny hope you find your hormones have dropped tomorrow and there is no more talk of ectopics. I agree with the others, take some time off whilst you deal with all this.

to everyone else. I have OSCAR screening tomorrow so getting nervous again, wondering if this is the hurdle at which it all goes pear shaped. I'm sure I used to be an optimistic person!

Good luck Baking. Hope it goes well...

what is OSCAR screening baking? hope it goes well.
tanny how are you today? Did you manage to get some time off work?

Coils out, bloods normal. Free to go forth and multiply.

That has some sort of synergy, doesn't it Just?

Baking I hope things went well.

I've had a call from my consultant to say that my hcg has risen slightly. Therefore the diagnosis of ectopic is confirmed. I'm going in to meet him tomorrow morning to discuss what to do. I really wanted to avoid any treatment, but the thought of this continuing for weeks is horrible.

I have a choice of having Methotrexate or a laparoscapy.

I took all your advice and came home yesterday afternoon. Of course I instantly felt better. The Dr I saw this morning has signed me off for a fortnight.

Still in a bit of a daze tbh. I really thought it was going to be ok...

Thanks everyone. OSCAR is a combined scan and bloods for risk of Downs, Edwards and Pataus as our trust doesn't offer NT screening. Baby seems to be doing fine and low risk for all three syndromes.

just good to hear you have the all clear.

tanny sorry to hear your HCG is going up. If they can see a sac in your uterus, why do they think it's ectopic? Surely in a blighted ovum situation the sac continues to grow and produce HCG. Can you make sure you get a consultant to scan you before agreeing to either methotrexate or surgery? If the pregnancy is in your uterus I would think either ERPC or medical management is an option, neither of which would compromise TTC again.

Tanny so sorry that things are not quite as straightforward as they could be. Hope you get sorted and on the road to recovery very soon. Its horrible to be at the start of a recovery.

Baking hope you're OK?

Late hope you're procedure wasn't too awful and that you are enjoying a birthday celebration somewhere. I kept seeing people this morning and thinking 'Is it Late?'. :)

Sorry for my brief post earlier, my phone is on its last legs and its difficult to post anything detailed.

I was pleased and surprised to be given the green light today as I thought the bloods wouldn't be back until 17th Dec. To be honest, DH and I were going through the motions this morning, still in shock I think and weird to be back in yet another hospital after the events of this week. We told Prof Regan what was going on; she was lovely and hopefully didn't think we were a pair of zombies! I know FIL would want us to keep on with our quest! Having the coils removed was uncomfortable, but hopefully that's the last I'll see of them until I have a massive family and am begging the GP to put one back in for contraceptive reasons!

So, another TEG blood test once I get a +ive pg test and then TLC care from Prof Regan in the early pg clinic until 12 weeks. Aspirin if the TEG is +ive, otherwise, no intervention other than regular scans.

Hope everyone else is doing OK?

Baking glad all still going well. I took so long to type, you answered my question! :)

BTW, Thanks for all your kind wishes over the past few days, everyone. We knew it was coming, but in the end it was very quick. Another part of the circle of life...

So sorry to hear about your FIL, Just. It is funny, every person I see milling around St Mary's is totally under suspicion of being on this thread! All seemed to be well with results of the saline scan - the fibroids don't seem to be distorting the shape of my uterus which is good news. Was also told, on this occasion of turning 40, that I have 'the ovaries of a 20 year old'. DH and I got a good giggle out of that one. We were told NOT to TTC until blood results in Jan which completely blows- I wanted at least one window of opportunity to try naturally before IVF. I feel frustrated by this but will ask again when we go back in 2 weeks.
Today is Thanksgiving and I'm a Yank so I want to wish all of you a Happy Thanksgiving. Here's what I'm grateful for: the NHS, DH's surgeons and oncologists, DH's spirit, this thread on MN, yoga, ice cream, pumpkin pie, and my Hungarian goose down duvet

So sorry just so sorry tanny good news baking very frustrating having to wait bloomer but good news! happy thanksgiving! I am feeling a bit fed up this week, I had to take DD to hospital for ultrasound scan of her tum yesterday it was the same hospital/same dept as I had my scans and treatment, silly but it made me feel a bit good news though as my hcg is still zero hope everyone else is doing ok! I can only see so much on my phone

Waves! Hi all just a quick check-in.

Completely fricken knackered, worked 7.30-9pm several times this week. Actually, for once, glad I'm not currently up the duff, that plus sickness plus metalling would have done me in!

so sorry Tanny.

if there is a sac in your uterus why do they say ectopic? what is the explanation?

ok, stupid question, but could your dates be wrong? especially as you conceived straight after the last one xxx

Well the headline news is that I have been re diagnosed with a failing pregnancy!

After a bad night, and some pain on my right hand side, I was really upset to think that I had such a shit decision to make, and being in epac surrounded by pregnant women didn't help my mood much.

Anyhow, after a long wait I met a consultant who was new to me. She was still keen to rule out surgery and go down the conservative route of watch and wait. I described the pain and she thought it was the cyst on my ovary, but offered to scan to see.

I had the scan and the sac had grown, so she changed the diagnosis and I have to go back on Tuesday for another blood test. If it's gone down, she's confident it will mc naturally and if it hasn't she'll book me in for an erpc.

That is very much the short version!

I feel such a sense of relief. it's still shit that I don't have a baby to look forward to, but no chemo or losing a fallopian tube.

Off for a Daniel Day Lewis night at my friends house to celebrate!

Feels odd to be saying it's good to hear that when you are talking about having a miscarriage, but your options now sound much better than those for a suspected ectopic. Hope you manage to have some fun with your friends this evening.

Tanny whew that must be a relief to you (been there, that moment they tell you it's sad news but not life-and-fertility-threatening-scary is a weird one). Hope life gets smoother for all of us in future! :)

Hi ladies, wondering if someone can give me a little bit of advice please. Nearly 2 weeks since I had my erpc at 9 weeks pregnant and I am still getting very strong bfps. How long does it normally take until a bfn? After my 19 wk loss when I went through labour and delivery my af turned up pretty much exactly 4 weeks later and the same with my 4 natural miscarriages. We really want to ttc again as soon as possible but can't start with opk until I get a bfn. Consultant said we can try again as soon as we wanted to.

Hi Katie Sorry to hear that your recovery is taking so long. I've always had issues with retained products after erpcs, if you can, if you ever need one again (hope not) or end up having a repeat procedure, ask for (insist upon) having it done with ultrasound guidance. This made all the difference for me last time. It turned out I had a septum in the uterus which meant 'products' were being missed when the procedure was done 'blind' (still can't believe that's how they do it!).
In the end I had the septum surgically removed - maybe those kinds of investigations, for anatomical issues, might be something to investigate?
I advise that you get a scan to see what's going on ASAP and ask to be referred for RMC investigations before TTCing again. Many of us on here have been to St Mary's and you can self refer I think. Good Luck!

Katie so sorry for your losses. I would ring your gynie/epu - strong readings 2 weeks later could suggest retained materials. I had similar and was glad I did ring as there were complications (which they fixed thankfully).

Having a really bad few days.

I've tried really hard not to become obsessed with poas at the end of each month. Partly cos the intensity of my emotions are becoming hard to handle but also because I almost don't want to see a positive result. Cos I've stopped believing that it'll turn out ok. I'm very mixed up.

This month I've tried really hard to ignore what my body was telling me. (I had hg with dc and suffer horribly with nausea and vomiting when pg from very very early on). I've felt sick for days. Properly ''mention that food and I'll recoil before I've formed the words in my head to say no'' nauseous. My boobs have been solid fierily uncomfortable. I didn't test. I knew what was coming simply cos I don't believe it end differently for me - this morning it was like a switch had been flipped. Nada. Boobs fine after being unbearable only 24hrs before. I ate fried fish this evening when I had been tortured by the smell of toothpaste the day before. And because I didn't test - to stop me obsessing and going bonkers - I have no proof that it really happened so I'm taunting myself that I'm just making it all up.
This is so hard.