I am blown away by your replies today and the fact I’ve had to create a new thread. I didn’t expect this at all.
To the person who mentioned media, that’s really not me and I hope no one picks this up as I’m quite a private person usually, just threw caution to the wind as sharing felt right, and I don’t regret it, but the absolute last thing I want is to be plastered all over the Daily Mail!
To those who suggested hospice/ palliative cafe. Kerr phoned our GP this afternoon who is now making a referral, I’m not scared of that as I know it’s not all about death, and I would really appreciate better pain management support. Even the GP said that I’m not on the hard hitters - I’m only taking codeine, pregabalin and paracetamol for pain, and cyclezine for nausea. So some input would be helpful as I’m sure that being in less pain would make me feel a bit more human. Concentrating on nutrition too, a week on hospital food really didn’t serve me well. I’m not absorbing much, but I’m trying to do my very best in small quantities often.
I’ve been so encouraged by the posters who have talked about loved ones who have received a similar diagnosis and felt much better after stenting and were able to then have treatment - just seems a long way off when I’m so sick and weak, but so hopeful to read.
Especially thanks to the poster who sent her husband’s liver function test improvements - thank you so much for that and I hope your husband continues to do really well.
You’re all stars. I don’t know you, but your goodness and humanity just shines. Never underestimate the power of a kind word - the darkest time of my life is being made a bit more bearable because of your support, prayers and words.