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Original poster

Pamela - Bile Duct Cancer (last thread pancreatic and liver)

1000 replies

WilsonMilson · 30/06/2023 18:19

Hi everyone, I’ve created a new thread as I am overwhelmed to see that the last one is full. You have all filled me up with your hope and encouragement. I’m keeping going as long as I possibly can!!

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Alargeoneplease89 · 30/06/2023 20:42

Do look at getting help with feeding, if you aren't tolerating the protein shakes look at NJ/NG tubes for a temporary solution just to build you up.

NowZeusHasLainWithLeda · 30/06/2023 20:47

Good evening everyone.
Just catching up. Beautiful photos Pamela of you and your beautiful family. ❤️

SirenSays · 30/06/2023 20:48

Such a beautiful family 💛 Sending you all so much love and strength.

June2008 · 30/06/2023 20:48

I'd like to add my very best wishes for you and hope you have the strength to get through whatever you need to do. Don't be afraid to ask for more pain relief if you feel you need it.

My beloved Grandma went through something very similar a number of years ago and while she found eating hard, the one drink she did find palatable was PJL lemon juice. I don't know how easy it is to get but might be worth a try.

Strength and love to you and all your family.

Izzy24 · 30/06/2023 20:48

Dashel · 30/06/2023 19:15

Hi Pamela,

You are inspirational and I wish you and your wonderful family get some good news soon. Hopefully the operation will give you the strength you need for the chemo.

I don’t know if you have heard of yoga Nidra? They are guided meditations for things like sleep, calm and healing and there are loads on YouTube. It might be worth trying and keep your mind focused on something other than pain?

Try to keep eating what you can even if it’s little an often, that will help. I don’t know if a meal replacement would be better, something like Huel that has lots of nutrients or the energy sachets that runners take?

Evening Pamela,

Thinking of you as always. Would just like to say that I don’t know how I would have got through my cancer treatment without yoga nidra. In the dark hours of the soul this is what kept me (mostly) in the here and now. Xxx

Izzy24 · 30/06/2023 20:51

Re nausea: Ondansetron is extremely effective.

Brrrrrrrrrrrr · 30/06/2023 20:53

Incredibly poignant threads Pamela. Seeing your lovely family make it all the more real and it’s just so fucking sad. It’s everyone’s worst nightmare. Truly evil and insidious.

Please insist they get your pain management under control. You don’t want to be chasing the pain, regardless of prognosis you should be comfortable as much as possible.

Keep writing your updates as and when you can, I think it’s a good way of offloading all the thoughts you can’t say to those around you.

Efrogwraig · 30/06/2023 20:56

l lost my husband to pancreatic cancer. 10 days before he died he insisted on having a massive party for family & friends in a local village hall. Everyone came. We had pink fizz & cake & everyone saw Howard & got to make their farewells. He heard all the love and memories from everyone before he died. And saw & spoke to all those he loved. lt was hard but we all have a fabulous memory of him, with us all, laughing & crying & loving. The children in particular.

l know this may sound strange but l am so glad we did it.

Missingmyusername · 30/06/2023 20:58

Just stumbled across the thread and the photos of your gorgeous family.

I wondered if you had heard of Melinda Bachini and if immunotherapy had been mentioned to you at all. A work colleague really, really fought to have this treatment for his cancer and it was given to him. It’s not so aggressive as chemo and you don’t lose your hair or feel as sick. I’m in the U.K. so not sure what treatments are offered etc depending where you are.

Sewingdufus · 30/06/2023 20:58

Sending you good wishes for you and your loved ones.

Justtobeclear · 30/06/2023 20:58

Another just adding to the admiration and hope. I have been tracking the posts and hoping for good news. Now wishing for you anything that you want/need. You are an inspiration x

TheNinthLock · 30/06/2023 21:00

Pamela, I have followed your thread from the start, I am in awe of you. You are one beautiful, strong , lovely lady and your close family bond with Kerr and Jacob shines from every post.
Hang in there lovely. I don’t really know what else to say as it has all been said so much more eloquently by posters before me, but please know you are in my thoughts daily and I hope that in the days to come your pain can be controlled, you get some strength back and that stent can be fitted to allow you some relief and the option of treating. Keep going , we are all behind you, willing you on.
Petra from Surrey xx

wineschmine · 30/06/2023 21:01

Sending so much love to you and your boys, Pamela.

I know you were only 45, but gosh you look so young and vibrant in those photos.

Keep going, my love.

Get that stent asap and take it from there.

Love xxxx

808Kate1 · 30/06/2023 21:02

Sending lots of love and strength to you from Scotland. x

Ohno778 · 30/06/2023 21:02

You look lovely in your photos , sending you love and best wishes 💕

someonethatyoulovetoomuch · 30/06/2023 21:04

Hi Pamela,

I am so sorry you’re going through this, and I wish you nothing but the best. You seem so warm and loving, Kerr & Jacob are lucky to have you and you them. I will keep you in my thoughts and hope for good news.

Much love, Ali in Perthshire Xx

Lizzy1328 · 30/06/2023 21:08

Beautiful Pamela, just in case (JIC) drugs would be really helpful (meds that can be administered as and when by district nurses for pain, nausea or anxiety). Ensure drinks would be helpful also as nutritionally complete and can help keep your electrolytes on track and uou in the best shape for treatment. Maybe a GP (out of hours service) could come and see you over the weekend whilst waiting for the palliative care referral. Sending love, hugs and virtual support. XxxxxX

MumLass · 30/06/2023 21:10

Pamela I just discovered your thread this evening. I just wanted to add to what others have already said. Your bravery is astounding. I’m 44 now, but I was 17 when my mum was diagnosed with aggressive breast cancer. She lived for 4 years after that but I can remember like yesterday every feeling, every worry. If you want to PM me please do, if it helps give some perspective on what your son might be feeling (but we are all different obviously).

Londoncatshed · 30/06/2023 21:11

Just seen your thread for the first time. Such beautiful photographs, you look like a wonderful family. I will be praying for you all and sending you strength.

ButtonMoonBlanketSky · 30/06/2023 21:11

I'm so sorry this has happened to you. Thinking of you and wishing you strength. Xx

Icouldabeenalawyer · 30/06/2023 21:11

Sending so much love & strength to you Pamela. You have a beautiful family. 😍
Photos are amazing, as your memories are too. Xxxxx

rossogingerale · 30/06/2023 21:13

Love & strength to you and your beautiful family Pamela. Thinking of you all

JudgeAnderson · 30/06/2023 21:13

Just wanted to send you my love and my very best wishes, you and your beautiful family x

Lookitaahhh · 30/06/2023 21:13

Sending you and your lovely family all my love and strength 💛

Youdoyoubabe · 30/06/2023 21:14

Oh you poor sweet thing. You look like such a lovely family. I am so sorry you are going through this but it is lovely you are finding a little solace here. It is very scary what you are going through. I can't imagine how I would cope, I know I would be demanding ultra strong painkillers and sleeping pills. I might also wish I had ever got around to renovating this scruffy old house. Which really is such a silly thing to think about.

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