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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

FET Sept/Oct

996 replies

Lolly2803 · 02/09/2016 17:36

Hi ladies,
I am due to start an FET in Sept/Oct and wondered if anyone else was too?! Had my first cycle of IVF in August but due to fluid in my uterus and thin lining had to freeze everything. I seem to always have fluid mid cycle, including natural cycles. Very worried that it will always be a problem and will never get to use my embryos. Having a hysteroscopy the week after next to check incase anything in there but doc suspects not. Would be great to have a few buddies! xxx

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Bear2014 · 22/09/2016 09:13

Started my Cyclogest this morning. That stuff really is the worst! It had better be worth it ;o)

Lolly2803 · 22/09/2016 09:38

Aww it will be bear!! Fingers crossed!! How you doing? xx

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bananafish81 · 22/09/2016 09:55

Cyclogest is minging. I've got more Lubion now so I'm on one fanjo bullet a day and tbh I'd rather stab myself in the belly than walk around leaking white goop. Apparently up the bum is less leakage, but I'm more comfortable self administering up the front tbh!

That said before ET I was on four pessaries a day when I was on the vaginal viagra - that schedule was almost a full time job!!

Bear2014 · 22/09/2016 10:04

Always up the back door here! I can't be doing with leakage, it just makes you aware of it all day IMO and it's easier to get on with your life if it just disappears. Plus my sister got cervical bleeding with cyclogest and having had a MC I think that would just traumatise me too much. I've got to do 3 a day though, so one in the office! Ha ha ha.

Yep doing ok thanks. Allowing myself to get a bit excited as this is so much more likely to work than anything else so far this year. Hope everyone else is good too.

Lolly2803 · 22/09/2016 10:15

I did them the same way Bear. Found hardly any leaking that way - I didn't do for long though as ended up freezing everything. Hoping to be doing them soon!!

What's your next step Bear? Is it Monday?

I'm still bleeding a bit. Is that normal post hysteroscopy when they didn't actually have anything to fix? Still feeling groggy and queasy too. Hey ho!!

Did anyone watch that Alex Jones program? Got it on record was going to watch today.

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bananafish81 · 22/09/2016 10:36

Lolly I think that's perfectly normal - panic not!!

Bear so excited for you to get your frostie on board. I'm very optimistic for you!

Programme was interesting and the science was really excellent, Alex Jones as the face of the campaign massively does my nut in though

She hasn't experienced infertility! She was just a bit worried that she might do, because Omg she didn't know that your fertility declined with age

And then got magically upduffed as soon as she got married. And claims the Zita West tips helped her get pregnant. No love, you got lucky

Would it be so much to ask that someone who had a modicum of understanding about infertility fronted the infertility awareness campaign?!! Angry

Bear2014 · 22/09/2016 10:39

It's Tuesday, 2pm. Trying to wrap up all my loose ends with work this week so I can chill out a bit. Got childcare and help covered for the whole 2ww so I don't have to look after DD on my own as she's so heavy now but still only 2.5 so still needs a fair amount of manhandling.

Haven't seen the doc but she irritates me in general so might give it a miss ;o)

Not sure on that Lolly, no experience but hopefully it lets up soon for you xx

Lolly2803 · 22/09/2016 10:58

Oh Bear I'm so excited for you!! Eeek!!!

Banana I know what you mean, I was more interested in the science to be honest. She annoys me as well Bear! I would much rather a real woman who actually has been through the mill go on and be the face of fertility. Someone people can actually relate to!! Will check it out anyway.

Glad my bleeding is normal, I had assumed it was but always good to be sure. Can't wait for Monday to get my plan in place. What's everyone up to this weekend? xx

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HelloMist · 22/09/2016 15:46

My scan was Tuesday, thanks for asking banana, and was fine. :) Lining good (didn't ask for numbers and they didn't say). My ET is Tuesday as well! But don't know a time until the day before.

Sorry I didn't update here. I did on another thread. I'm feeling a little down today... maybe it's the added hormones or the prospect of a wait until next week and then a 2ww are getting to me. At least DR is over now though, no more injections.

Pleased to see the talk about bum bullets etc Grin just started my progesterone and read an old thread that reminded me of all the joys of it so I'm glad that at least I'm not alone here! Mine's (vaginal) crinone and they say I have to walk around for 15-20 minutes after using it. Just as it's getting colder and darker in the evenings. DH had forgotten the walking already (denies I did it to that extent). The leakage isn't nice. Just went out to buy more panty liners :(

Hope you're feeling better soon, Lolly. Sorry there was no easy answer but at least you've got it out of the way, nothing sinister like you said, and can move on to the next thing.

Good luck, Bear! It's good you've got help sorted. Is this partly because they say to avoid heavy lifting after ET? Can we stay quite active otherwise? I haven't really got anyone I can ask. DD is a bit younger but heavy enough! I'll have to do the best I can. Confused there must be others in my/our situation who have been lucky and managed despite it.

Lolly2803 · 22/09/2016 16:20

HelloMist glad your scan was all good and you're ready for ET on Tuesday too! What a day that'll be on here! Eekk! Very excited for you.

Don't worry about being down. I think it's probably a mixture of all emotions rolled into one! It's positive to negative to uncertain I mean it's a miracle we've all still got all our marbles!!!

You're doing amazing though and we'll keep you company in the 2WW don't worry. Is it a day3 or 5 embryo transfer? Does that actually make a difference I don't know?!

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Bear2014 · 22/09/2016 16:31

Hello Mist - sorry you're a bit down. Does the down reg make you a bit depressed? I've never done that bit but have not heard good things about it.

It's cool that we're going in on the same day. Does still seem a fair wait, not to mention the 2ww you're right.

I'm sure it doesn't matter if we are active and look after toddlers. But mine is VERY physical, likes to scoot around the park for hours on end and is always up and down the stairs etc. She weighs 16kg which is the weight of an average 3+ year old so I just don't want the added stress of it. I completely obsessed about it when I ended up wrestling her into her buggy or whatever during my last 2ww, even though realistically the cycle failed the second the eggs hit the petri dish.

It's glamorous this process isn't it! We should buy shares in Carefree panty liners.

Chin up - not long now and we'll be PUPO xx

Lolly2803 · 23/09/2016 08:22

Good luck today banana! Let us know how you get on xxx

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Lolly2803 · 23/09/2016 14:06

Any news banana? Hope you're getting on ok xxx

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bananafish81 · 23/09/2016 14:18

It's a chemical pregnancy 😓 Stopping meds now. At least this pregnancy was shorter lived than the last one. Gutted.

Bear2014 · 23/09/2016 14:43

Oh Banana I'm so sorry to hear that Sad - hugs to you xx

Lolly2803 · 23/09/2016 15:25

Oh Banana I am so so sorry. Nothing we can say to make you feel better but I'm so sorry. Argh it's fucking shit!! I am so sorry. Hope you are being looked after. Sending you a lot of love xxx

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bananafish81 · 23/09/2016 20:18

Thanks ladies. Wasn't expecting this to be viable but you can't help but hope 😓

Consultant was absolutely gutted when he called me. Said he was really hoping it had just been a late starter, but sadly not.

At least we found out it's not viable from the bloods, and didn't have to find out at the scan. Which would have been pretty much bang on my due date for the last one.

Just have to hope I actually have a bleed this time. Have a horrible feeling I might not (again)

Sigh.

Lolly2803 · 23/09/2016 21:22

I bet he was gutted. He'll be thinking of you tonight no doubt and thinking about what to try next. I'm so so sorry. It really is shit and unfair. Do you know when you can start the next plan? Not sure you're thinking of that but sometimes that's where our heads get straight to. Thinking of you xxx

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AgainPlease · 24/09/2016 00:02

Just catching up on the thread.

Banana I am so so sorry. Nothing any of us say can make you feel better except we do know what you're going through. I can't believe we have to deal with this shit then have fucking Alex Jones who got pregnant soon after getting married talk to us about infertility. I mean, for fuck sake!

We are here for you and lots of hand holding.

What are the next steps for you?

I'm paranoid that after all the IVF shit I've been through only to lose my son due to NHS bungles that no further IVF will work for me and I've had my chance and that was it.

:(

Bear2014 · 24/09/2016 07:38

Banana and Again - there really are no words, you've both been through so much and are so strong.

Again - is going private an option next time you get pregnant? (I have faith that you will!!)

Absolutely nothing akin to what you have been through but i found the provision in my area for miscarriage was so woefully inadequate and women at their most vulnerable were treated pretty badly. I don't know how much money we'll have in the bank if i ever get pregnant again but i would definitely at least have some extra private scans. Xx

AgainPlease · 24/09/2016 08:28

Hi bear. Yes we have considered private and are very VERY lucky that we have the money for it but I've been seen by two NHS specialists since losing my boy, both of whom told me my early labour was preventable and know why it happened and I will be under their care for the next pregnancy and monitored every two weeks. So because of that we are most likely to go back to the same hospital. If I'm ever lucky enough to have more babies after my next pregnancy then I think private is the way to go... I've heard some horror stories though about the bill ending up being £25k+ which is absolutely eye-watering and nothing to sneeze at.

bananafish81 · 24/09/2016 21:08

Thanks so much ladies, I’m really touched, sorry to bring the thread down

I’ve stopped the IVF meds and just really hoping I get a proper bleed. After my fresh cycle in May I grew 11mm of lining but didn’t have a proper bleed - just black clots and brown spotting. Scans showed it had thinned (and HyCoSy showed no sign of retrograde menstruation back down my tubes) so it had somehow absorbed Confused

Hoping if I’ve stopped the progesterone yesterday I will get some kind of period next week. The hCG was low so there can’t be much to pass, I’d have thought?

Follow up consult is arranged for a week on Friday - hopefully I’ll have had a bleed by then, but if not then we can see what’s going on when he scans me and take it from there. He’s put us in for the last appt of the day so we can take as much time as we need, he said he wanted to meet up so we could review everything step by step, and discuss where we go from here

The broad plan will be another hysteroscopy to check out the uterine environment. We had discussed putting in a copper IUD for 1-2 months to help support the endometrium, but this is TBC, to be discussed when we meet. If I get a bleed then I will restart progynova on day 2, to start to prepare the lining for a hysto & potentially a coil. I’d also taken him some studies about the use of another drug, a vasodilator called pentoxifylline, alongside estrogen therapy in women with very thin endometrium, to prepare the lining for a treatment cycle. So if I get a proper bleed, I’ll start this as well.

If I don’t get a proper bleed that’ll be a pretty important diagnostic tbh (as well as the quality of whatever bleed I do get)

I don’t think I will be able to cycle again for a while, as we really need to work on the endometrium - we can’t keep doing rounds of stims with EC just to put back a frostie, and we need to get me menstruating properly. Ideally if we do the IUD plan I imagine we’d want to have another crack at a dummy medicated FET, to see if I respond better to HRT. We’d also mooted the idea of a Tamoxifen cycle, so that’s on my ever-growing list of questions

Again I can only imagine the anxiety you must feel after what you’ve been through. I’m really glad your hospital have sat up and taken stock of what happened to make sure lessons are learned when (not if) you get pregnant again. Have yu been able to access counselling support or similar?

Hope you are all doing OK ladies xx

bananafish81 · 24/09/2016 21:11

Oh and Alex Jones claiming relaxing helped her get pregnant can just FUCK RIGHT OFF!!!

Lolly2803 · 24/09/2016 21:56

Hey Banana, firstly yes Alex Jones can fuck right off!! Bloody joke that was!

Your Dr sounds like such a gem! You're def in the best possible hands by the sounds of it and I've no doubt he's already thinking about what to try next and I'm sure he'll have a few things to talk you through in your meeting with him.
Really hope you get a good and proper bleed! Do you think you'll get to cycle again before Christmas? The uterine environment looked good on this transfer right so there's a chance? Hopefully as you say this bleed will be proper and will give some useful insights for you.

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Lolly2803 · 25/09/2016 20:46

How you doing ladies? How was your weekend?

You doing ok Banana? Been thinking of you. I had a bit of a cry into my pillow this am as good friends announced they expecting. I'm so happy for them but just felt emotional. Went shopping to cheer myself up!!

Got my appointment tomorrow to plan my treatment. Oh banana meant to ask did you get any headaches on l-arginine? xxx

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