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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

FET Sept/Oct

996 replies

Lolly2803 · 02/09/2016 17:36

Hi ladies,
I am due to start an FET in Sept/Oct and wondered if anyone else was too?! Had my first cycle of IVF in August but due to fluid in my uterus and thin lining had to freeze everything. I seem to always have fluid mid cycle, including natural cycles. Very worried that it will always be a problem and will never get to use my embryos. Having a hysteroscopy the week after next to check incase anything in there but doc suspects not. Would be great to have a few buddies! xxx

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Bear2014 · 25/09/2016 20:50

Hi Lolly. Hugs to you - it is so hard!

I'm on the 48 hour countdown now, have been in a bit of a 'nesting' frenzy this weekend getting the house in order so i can chill out on the 2ww. Got my extra large pineapple ready, thank you Waitrose.

Feeling quite crampy and heavy in the pelvic area, i'm sure normal for progesterone but i can't really remember?!

Hope everyone's doing ok xx

Jellytots85 · 25/09/2016 22:32

Hi ladies I'm really lost not great on these things but need some people to talk to read a few of your posts, I have a daughter born in May 2015 it was 3rd attempt Ivf 2 blast embryos day 5 my beautiful girl took, we had some frozen ones from Ivf number 2 they were all grade a d5 blasts but all slightly different think one was 3a one 2a then not sure about 3rd, so I had 2 better ones transferred this month and it's failed already I bled 2 days past transfer I really thought we'd had a chance, we have one left to use can't use till January because need to save again feeling so low and have no one to talk to also feel guilty as I have one perfect child but want another for her aswell as us I don't think some of my family understand x

Bear2014 · 26/09/2016 09:08

Hi Jelly Tots. How many days past transfer are you now, are you sure it has failed? I had implantation bleeding with both my pregnancies, 2-3 days after transfer.

So sorry to hear you are going through this. You are not alone! We've been trying since Jan this year to give our LG a sibling, she is 2.9 now. It's so tough as everyone assumes/knows you are trying again, and because you hang out at so many baby and toddler groups all you see is pregnant women :o( Try to stay strong, you still have a blast left and you will get there in the end xx

Lolly2803 · 26/09/2016 09:32

Welcome Jellytots,
This process is so up and down so feeling down and low is totally normal. I haven't been to transfer yet so not sure about the bleeding but I have read many people's experiences of bleeding in very early pregnancy and having BFP so don't give up yet and try and keep those thoughts positive!
If it's not good news then you do have another chance and I know Jan feels like ages away and the waiting is just a bloody mind boggle but it will be here before we know it! Just take the time in between to be nice to yourself, enjoy Christmas and then be ready to start 2017 with a bang!!! I know it's hard but we are all here together. Sending you a big hug xxx

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Jellytots85 · 26/09/2016 11:19

Thank you ladies, so sorry to hear you've been trying for your second for a while like you say it can take a while but it will happen I guess when you know it's failed you just get down for a few days before you get strong again, just got to keep going havnt we, have you been doing a natural cycle? Sorry I hadn't read all of the posts just a few to get the gist, I havnt tested yet but I had my transfer on Wednesday I said to my dh I felt it hadn't gone well and he said don't be silly it was fine but they had to put in the catheter twice as couldn't get it in so lots of poking and prodding, and I spotted some brown discharge Friday night and it got heavier and heavier and I am now having full blown period, but I can't believe how quick I bled this time, I have a short cycle 26/28 days and ovulate on day 16 which they say is late for that cycle length, it's almost like the embryos didn't have a chance to implant, where do you have your treatment ladies.? Xxx

Bear2014 · 26/09/2016 11:23

Hi there, ok so you had a natural cycle? It definitely sounds like you would benefit from a medicated cycle, or at least some progesterone support. So sorry to hear this.

I'm on a short medicated protocol, transferring tomorrow! I've had a failed cycle and a miscarriage this year so definitely feel like I'm due some luck.

Hope you can find the strength to keep trying. Be good to yourself xx

Lolly2803 · 26/09/2016 12:35

When is test day Jelly? It could be blood from the prodding... Especially if it's brown? I would say hold out till test day, you never know!! I would also agree with Bear about medicated cycle, could you discuss this with your Dr?

Bear how you feeling? Getting excited?
What time is it tomorrow.

I just had my appointment and FeT plan made!! Have to wait for my period and then go in on Day 2 to start meds. Is this same protocol as you Bear? Also told her about the antibiotic recommendation for fluid and she said she'll give me some around Day 6 and we can try that as well. If the fluid comes we might try aspirate but she doesn't want to interfere with the lining ideally as according to hysteroscopy there is nothing wrong with it!
We also need to decide 1 or 2 embryos. She said because of my age and the grading of the embryos she recommends 1 but it was up to us. Something is telling me to put 2 in. I'd love twins and I want this to work so much I want to give myself the best possible chance. Tough one!
She also talked about and recommended embryo glue. Have you had any experience with this? She said they'd seen some great results and with my lining issues this could really help us. Have you heard much about this?

Banana how are you doing? xxxx

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Bear2014 · 26/09/2016 13:08

Lolly - finally! That's great. Yes I did the short protocol where you start meds on day 2. I'm just on the basic protocol as I've never had any issues with lining etc. I was going to request a scratch but we were on holiday the day I would have needed to have it. My main issue is with egg quality, as I have carried a baby to term from donor eggs (my OH eggs).

Feeling ok thanks, will call the clinic shortly to double check the details. Got acupuncture tonight and am off work from tomorrow until next Monday.

Hope you're ok Banana. Don't blame you if you're having a break from us all! xx

Jellytots85 · 26/09/2016 13:08

I wish you all the best bear it sounds like it's your time lots of baby dust! Your right I think I need to ask about medicated cycle even tho my hormones are all normal will they still recommend that for me? Hi lolly I'm afraid it's not brown anymore but bright red but thank you for your positivity really does help test date is 2nd October but I'm afraid I'm very heavy more than a normal period, I had embryo glue and an endometrial scratch to I also had this on Ivf round 3 where we had to embryos put in and conceived our beautiful Madelyn so I definitely recommend glue xxx

Bear2014 · 26/09/2016 13:38

Thank you very much. I kind of feel it's our time but very much haven't got my hopes up as well. Even if we did get the BFP i would probably be shitting myself on a daily basis that something would go wrong up until the 20 week scan and even beyond. xx

Lolly2803 · 26/09/2016 13:43

Positive vibes only Bear!! Of course you'll worry but for now your almost at the PUPO stage which is an achievement in itself I say!! I've got good feelings about this so just hang in there!! It's good you've got time off as well. Just relax, chill and be nice to yourself. We'll be here to keep you company :-)

I'm furiously googling embryo glue at the moment and looking for guidance on 1 vs. 2! I've got another 2 weeks or so to wait to I'll be here for positive support! xx

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Lolly2803 · 26/09/2016 13:44

Aw Jelly I really am sorry if this isn't the time. It's really shit there's no beating around the bush. Just got to get back on the roller coaster and learn from this cycle. So sorry though it's not easy I know. Sending you lots of love.
Thanks for commenting on the glue - good to hear a success story from it!

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Bear2014 · 26/09/2016 13:50

If you actively want twins then why not go for 2? We didn't want twins then and don't now, so it would definitely have taken a lot of balls to put back 2. There are risks associated with twin pregnancies but most go without too much of a hitch so I wouldn't get ultra hung-up about it.

Bear2014 · 26/09/2016 13:50

And thanks again for good vibes! Means a lot x

Lolly2803 · 26/09/2016 14:04

Thanks Bear!! Let us know how you get on tomorrow! So excited for you!!

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Jellytots85 · 26/09/2016 14:10

What is the medication ladies for a medicated cycle is it injections or is it oral tablets?/pessaries? We went for 2 as we wanted to keep everything the same when we caught with Dd, was for our own piece of mind even if it hadn't worked but our fertility dr told us if one was slightly better than the other this could effect the good one but I don't no as we caught with 2 before think you have to go with your heart wish you both the best of luck and will be great to hear some success stories and give some hope xxx

Bear2014 · 26/09/2016 14:12

I'm on Progynova tablets 4 per day and now I'm almost at transfer day I'm on Cyclogest pessaries 3 per day. If it's a BFP both of these medications continue until week 12. My clinic obviously prefer medicated cycles as they didn't even offer natural to me as an option. My hormones are completely normal as far as I know. Hope that helps!

bananafish81 · 26/09/2016 14:25

Hi ladies

lolly big hugs - it is really emotionally hard, this whole process is totally shit! Retail therapy all the way I say

Great news about your appointment. Short protocol is much easier going on your body than down regging I think. And great news about the antibiotics

We didn’t use glue because Dr said there was no evidence it actually worked, and it sometimes created issues where the embryos could get stuck inside the catheter and need flushing through

Re: the one vs two, I’ll post some stats that my clinic and the HFEA have about success rates of one vs two. Worth also looking at the oneatatime website I linked to before - lots of data there

It all comes down to whether you’re prepared to accept the risks of twins or not

I know too many sad stories about friends with twin pregnancies, so I have a skewed view - so important to make the decision that’s right for you and your partner. Take on your Dr’s advice but ultimately the only opinions that matter are you and DH xxx

Bear very excited for you! nesting frenzy sounds great - keeping everything crossable crossed for you!!

Jelly big hugs. I have just had a failed cycle (BFP but chemical / v early mc (5w) as the pregnancy failed to establish itself)

Medicated cycle is usually

  1. long protocol: down reg with buserelin (injections or nasal spray), then build up lining with oestrogen (pills and / or patches), then add in progesterone (pessaries / injections)

  2. short protcol: as above but without the down reg - start oestrogen off a natural cycle

My Dr prefers to do natural FET if possible, as he says the hormones your body naturally produces are superior to artificial ones. However most clinics prefer to do medicated as it’s easier to schedule and they have more control over the cycle

If you have bled early would they up your progesterone in a subsequent cycle? A friend bled early in her first FET and in her next FET she was put on progesterone injections as well as pessaries - and she’s now not far off giving birth after that transfer 9 months ago

AFM, well, I think we have a pretty good indication as to why this pregnancy failed to establish. I stopped my progesterone on Friday and today I’ve started to have a ‘period’ of sorts. However it’s following the same unhealthy pattern of bleeding as in previous cycles - pretty much exactly how my May fresh cycle (which was freeze all - so no transfer) went. I grew loads of thick lining which looked great on ultrasound, but then when my ‘period’ came, it was just black clotty gunge and brown spotting, no red flow or fresh blood at all. My consultant said although the lining looked great on ultrasound, there was obv some kind of quality issue going on, and the quality of my bleed suggested that if we had transferred into that endometrium, the cycle would have likely have been unsuccessful

I think that seems to be what is happening here - I’m obviousy hoping the black gunge will turn into a beautifully healthy Niagara Falls of red flow. But I don’t think that’s likely.

I'm just really sad. It's the second chromosomally normal embryo that hasn't made it and so it's my body that can't look after them. And I don't know how we fix it. We know the uterine environment looked good on a scan but obv something isn't right. Yes I had a bleed before this cycle (which is why we cancelled the hysto and started a treatment cycle), but we don't know why I didn't properly shed the 11mm of lining I grew in my May cycle - why I just got a day of black clots, and although lining thinned, I never got a bleed. And this seems to be what is happening again now.

There's other questions which we'll discuss in the follow up. Given I did successfully propagate a pregnancy into crappy lining with no immunes, but didn't into supposedly decent lining with pred / intralipids, question is whether they left me over suppressed. Prof Quenby and Brosens at the Coventry implantation / RM clinic say if uNK cells are on the low end (even if peripheral blood levels are high) that you need some inflammation for successful implantation, and that in some cases pred and intralipids can do more harm than good. I'm not sure that going to their clinic for the endometrial biopsy for uNK cells would add any clarity - from stalking the Quenby threads on FF it seems it could raise more questions than answers. Quite a few women get wildly different levels of uNK cells from one month to the next - which of course doesn't get you any closer to identifying whether pred would or wouldn't be beneficial in a treatment cycle. I'm minded to use my own history as a diagnostic - we know the embryos were both normal, so given I had decent implantation without immunes but didn't with immunes, I think if / when we eventually get to another treatment cycle

Follow up consult is arranged for a week on Friday. He’s put us in for the last appt of the day so we can take as much time as we need, he said he wanted to meet up so we could review everything step by step, and discuss where we go from here

The broad plan will be another hysteroscopy to check out the uterine environment. We had discussed putting in a copper IUD for 1-2 months to help support the endometrium, but this is TBC, to be discussed when we meet. He said if I get a bleed then I will restart progynova on day 2, to start to prepare the lining for a hysto & potentially a coil. I’d also taken him some studies about the use of another drug, a vasodilator called pentoxifylline, alongside estrogen therapy in women with very thin endometrium, to prepare the lining for a treatment cycle.

The quality of this bleed is a pretty key diagnostic tbh. I’ve emailed his secretary to ask if I should count this as day 1 - if so then it’s back on the progynova in prep for a hysto

I don’t think I will be able to cycle again for a while, as we really need to work on the endometrium - we can’t keep doing rounds of stims with EC just to put back a frostie, and we need to get me menstruating properly. Ideally if we do the IUD plan I imagine we’d want to have another crack at a dummy medicated FET, to see if I respond better to HRT. We’d also mooted the idea of a Tamoxifen cycle, so that’s on my ever-growing list of questions

Jellytots85 · 26/09/2016 14:55

Thank you banana I like to have a plan in my head for the next as that's how u cope isn't it makes you strong again, I'm so sorry you are going through that and the miscarriage Sad you sound like one strong lady we all are! We can do this ladies ! Xxx

HelloMist · 26/09/2016 16:07

Thanks Lolly! Will be glad to have you all in 2ww! It's a 5 day, and I think it makes the chances better.

I'm so sorry Banana. :(

Bear, actually I was OK in DR. Just got a little bit fed up of it as I was doing it for quite a while. I've heard about lots of moodswings, headaches etc so I think I got off lightly. Think I started feeling more hormonal when the oestrogen was added into the mix (and still DRing at lower dose). Thanks for your thoughts on that. Mine definitely likes to get out and about but I think I could more easily get away with a day here and there of doing less. I need to get out some of the time for my own sanity though! Thank you, hope we are indeed both PUPO ... tomorrow!!

sorry if I've missed anything. was trying to catch up on the thread but I think I will read the rest after tomorrow... I should go for now.

Bear2014 · 26/09/2016 17:46

Massive good luck tomorrow Mist - bring on the PUPO Smile xx

bananafish81 · 26/09/2016 17:50

Good luck tomorrow bear and mist - so excited for you both!!

HelloMist · 26/09/2016 17:57

Thanks both! Good luck to you too Bear. Smile

Banana, I especially appreciate your support after what you're going through! And all the knowledge you've shared here.

Lolly2803 · 26/09/2016 19:38

Bear and Mist aaaahhhh I'm so excited for you both! Let us know when the embryos are safely on board!

Banana sounds like a lot riding on this AF but whatever happens it will be super useful and influence the next course of treatment. Think you're point about over suppressing is an interesting one. I know it's not the same but my dr today decided not to DR me as she wanted to make sure I responded to the thickening meds... So I guess it is a thing and worth exploring. I am sure your Dr is well on the case though. Like you say it's so annoying and frustrating as you've got great embryos you know for sure are ok and you can grow your lining. Still you're one step closer to getting there once this AF happens I'm sure of it. You're so strong and we are all here for you when you need us. You'll get there I'm certain of it.

I'm still considering the one or two option (assuming I get that far!) It is such a hard decision one or two. For some reason I really want two, my husband thinks we should listen to the doc. It's so hard!!! Not sure what the right thing to do is. Am wondering if we did 2 whether to our best and our third best and leave the second one for another round. The other remaining 2 are frozen together and not as good as day 6 so bit slower... So tricky!! Also reading about the glue and it's got some great reviews actually. Am thinking we'll give it a go!! Although didn't think about them sticking to the catheter...one to ask about me thinks! xxx

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Lolly2803 · 26/09/2016 19:41

Bear and Mist aaaahhhh I'm so excited for you both! Let us know when the embryos are safely on board!

Banana sounds like a lot riding on this AF but whatever happens it will be super useful and influence the next course of treatment. Think you're point about over suppressing is an interesting one. I know it's not the same but my dr today decided not to DR me as she wanted to make sure I responded to the thickening meds... So I guess it is a thing and worth exploring. I am sure your Dr is well on the case though. Like you say it's so annoying and frustrating as you've got great embryos you know for sure are ok and you can grow your lining. Still you're one step closer to getting there once this AF happens I'm sure of it. You're so strong and we are all here for you when you need us. You'll get there I'm certain of it.

I'm still considering the one or two option (assuming I get that far!) It is such a hard decision one or two. For some reason I really want two, my husband thinks we should listen to the doc. It's so hard!!! Not sure what the right thing to do is. Am wondering if we did 2 whether to our best and our third best and leave the second one for another round. The other remaining 2 are frozen together and not as good as day 6 so bit slower... So tricky!! Also reading about the glue and it's got some great reviews actually. Am thinking we'll give it a go!! Although didn't think about them sticking to the catheter...one to ask about me thinks! xxx

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