Alfie Evans 6

[CamomileTeaShotofVodka]

Following on from the last thread. If there's one already please do delete this one.

Remember not to speculate or make negative comments about the family or discussions will be stopped.

Thoughts are with Alfie tonight

Such an important and sensitive topic.

I do wish people would say something like some people on AA rather than lumping all 500,000+ people in that group into one 'uneducated, trouble making, barmy, mob mentality' category. I know there are people on there that have said some terrible things and I completely disagree with protesting outside a children's hospital but I think a large number of people in that group probably feel the same and have just joined because they rightly or wrongly feel a huge injustice has taken place and care about what happens to Alfie and his family

Sorry mrsdv I don't think these threads have been anything like AA in the main. Yes there have been some awful things said especially at the beginning and they have been deleted but generally there has been a lot of sharing of similar experiences and a lot of explaining EOL to people who have sensible and reasonable questions. I have learnt so much from it and have much appreciated the honesty and vulnerability of posters who have clearly struggled very much with guilt, sorrow and sadness but have still taken the time to articulate their experiences.

But @TheFirstMrsDV any posts that HAVE been considered disrespectful, inflammatory or insensitive have been moderated. Unlike the unfettered by fights on twitter and Facebook.

@Sozzler fair point actually.

Shape, that is awesomely deranged.

I have said several times that I think the father should step away from social media and focus on spending time with his son.

Hoping that he is sincere in what he has said, for his sake as well as for the hospital's and everyone else involved.

I don’t think anyone on here needs to justify why they want to talk about this subject.

People are entitled to feel that discussion on this is distasteful, just like others are entitled to want to talk about a situation that is all over the news and SM and could potentially have ramifications for people as parents and end users of the NHS.

Tom's brother has just posted this on the AA FB page under a post from Sky about them preparing for their son's death......

⚠️Family update⚠️

I’d just like to clear up that this is infact NOT TRUE. I’ve show this to Tom and he has said he doesn’t know where this statement has came from but that is not the plan atall. Thomas and Kate are not ‘preparing themselves for their sons death’ in no way shape or form, to get him home is their priority and that’s what they plan to do with the help and accompany of Alder Hey.

Alfie is doing good, 72 hours independent breathing!!💙

The irony is, MrsDV that you are contributing to this thread in exactly the same way as every other poster, albeit from a different viewpoint. No-one made you thread monitor or asked you to peer down from a great height to make pronouncements on the thread. You are free to post your opinions as are we all, unless we break MN's rules.

I've some sympathy with the idea that this shouldn't have been discussed publicly at all. Maybe that's what will happen if there are future similar cases. The tactics the parents chose, which did include whipping up a mob, unfortunately rendered that impossible. The problem with the idea that this shouldn't be discussed now is that it still is, by AA and revolting fundamentalist Christians. So the question is simply whether that's going to be the only narrative on the block or not. It's better that it not be, unless you're from the CLC.

With that said, I'm not sure I'll be on future threads as the main area I've been able to contribute is discussion of the legal proceedings. And those hopefully are over.

MrsDV the thread is “in the news”. It’s discussion worthy. The parents put it in the news and kept it in the news. Many other parents don’t and their privacy and that of their child is maintained. My cousin and her child were in this position 2 years ago also at Alder Hey. My cousin took a different approach to Alfie’s parents.

So there are similarities in that both threads appear in online forums with a mix of comments, like any other SM platform. But you can’t expect people to not comment on behaviour that incites death threats to committed HCP’s doing their absolute best, regardless of the background to it.

I agree with TheFirstMrsDV.

I've asked my FB friend to remove that batshit post from a "nurse" and said how dangerous it is.

That Guradian article from this evening was well written I thought.

I'm glad these threads are here, and agree they're more respectful and measured than Facebook posts in general. And people are a lot less likely to share things from on here all over the internet.

This will probably be my last post tonight,
TheFirstMrsDV
Yes there are similarities between here and AA, but on here many posters have either been in a similar position to TE and KJ or have been HCP, or even got knowledge on the legal situation.
Many of the inaccuracies on here have been correct by other posters, and we have also said if people where rude/misinformed.

Also just because I never met or never will meet Alfie or his parents, doesn't mean I won't shed a tear when he dies. I will, I have a small common bond, I think many who have been in TE/KJ position will too
Good night and thank you all once again

Yes silvery, it's odd that none of the people criticising the existence of these threads have applied those principles to their own contributions, isn't it?

Indeed, CuntinuousMingeprovement

CocoaGin Oh dear, I wish I could say I'm surprised.

@user1471450935 your posts have been thpught provoking and empathetic. Thankyou for your insight into a hellish situation x

Yes, thank you user.

"The problem with the idea that this shouldn't be discussed now is that it still is, by AA and revolting fundamentalist Christians. So the question is simply whether that's going to be the only narrative on the block or not."

Good point. Some of the people exploiting this case have scary goals (i.e. pro-life, anti-children's rights, anti-NHS). I don't think we can afford to hand them complete control of the narrative.

Thanks user 1471, big hugs to you & your family ( or pat on the back whichever you prefer! )

Yes, if there's one thing political developments of the past couple of years should've taught us, it's that shit on social media can have more significance than it might initially seem.

I don't think we can afford to hand them complete control of the narrative

Who’s we? The handful of dementors on MN

Yeah your doing the world a real service! AA army in reverse this thread

Fb update by Toms brother Daniel

I have seen that people are believing this is the end of Alfie’s army?
Tom has released a statement that states he will not approach media or want any protests

This will be until something changes with the hospital but we hope and pray it doesnt🙏🏼🙏🏼

They aim to get him where they have always desperately wanted him HOME.

And with today’s positive meeting this could be a goal complete for Tom and Kate🙌🏼

I will continue to update when necessary