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Original poster

Help me please! DH been called in hospital, talking of WBC and Bone marrow

271 replies

lisad123 · 12/03/2009 07:32

DH been unwell for a while and I finally dragged him to GP on Saturday. GP sent him for blood tests that were taken yesterday morning. Had a phone call at 9.30pm last night saying his White cell count was very very high and he needed to go to hospital and they were expecting us.
They rechecked blood and very very high (normal is 4-11, DH had 382!)
They have done chest xray but they just said they think its a blood disorder and something about bone marrow! Of course we are now thinking leukemia
I have had all of one hours sleep as didnt get home till 4am and baby woke at 5am. Im going back once seen DD1 off to school, and they said the hemotologist will be round first thing and we should have more answers then.
Anyone know anything other than cancer that it could be? Docs werent willing to say a lot last night tbh.
We all have to wear masks and gowns and his in isalation!
Help im panicing
Help Im panicing.

OP posts:

FlyMeToDunoon · 12/04/2009 20:03

MuffinBaker · 12/04/2009 20:04

Happy Easter no doubt.

Original poster

lisad123 · 13/04/2009 01:16

no more blood tests for 2 weeks! You would be amazed how really stupid things matter now days!
I was happy he was eating again, although now i dont, his eating me out of house and home!!

OP posts:

Bucharest · 13/04/2009 13:09

Pleased to hear that dh is going in the right direction...I have followed your story since you first posted...
Happy Easter to you all..xx

ChampagneDahling · 13/04/2009 16:29

Same here - I've been following your news too - glad it looks like you're going in right direction - power of prayer eh?!

Don't forget to look after yourself as well as DH and DC - you are the button holding things together. Take care of you [hugs]

Original poster

lisad123 · 13/04/2009 18:53

so nice to hear that people are following pur journey though cancer. Are you following on the MN board or blog?

OP posts:

ThePhantomPooer · 13/04/2009 20:15

Good news Lisa.

Best wishes to you all.

Original poster

lisad123 · 30/04/2009 20:47

UPDATE:
Darren is now in what is classed as clinical remission, which means his white cells are normal so is spleen. Another year before Full remission but on the right path
He went back to work this week too, just till 12pm but still moving forward

OP posts:

cazboldy · 30/04/2009 20:49

fantastic news well done Darren xxx

Original poster

lisad123 · 28/05/2009 00:25

well 2 months in, things areok. More results today. White cells still good, but liver not handling the drugs at all, so off to see another specialist soon.
Get % of cancer cells in 6 weeks, so hoping that shows good results.

OP posts:

wrinklytum · 28/05/2009 00:28

Just seen this Lisa,am haem nurse and chronic leuk usually respond quite well to treatmentProb totally after the fact but glad dh is doing well

Original poster

lisad123 · 28/05/2009 00:31

thanks tum, yes we have loads of good advice and things seem to be postitive and we are hoping for remission within a year. Do you know what they will do about liver problems? was a huge shock, but we live each day as it comes. Couldnt do within MN

OP posts:

wrinklytum · 28/05/2009 00:35

Depends on meds that are affecting liver,consultants will advise and adjust accordinglyGlad dh is in remission.Have nursed LOTS of pts who have achieved remission for years.dh seems to be progressing in right directon,take as a positive

Original poster

lisad123 · 28/05/2009 00:42

his not in full remission, just that all outward signs arent there, the white cells ect. Last cancer count was 37%, so still soem way to go.
Just glad to be normal most days, his back at work and getting out on his bike, tbh you'd never know to look at him. He looks better now than he did a year ago.

OP posts:

wrinklytum · 28/05/2009 00:49

Take each day as it comes and all that.dp has a chronic condition,and is immunocompromised.Even though I have the training I still panic a bit if he is unwell and has an infection.But honestly,cll is one of the more treatable haem cancers.Write down any questions for when you see the consultants,but it soundslike he is doing well

Original poster

lisad123 · 28/05/2009 00:51

he has CML

OP posts:

wrinklytum · 28/05/2009 00:55

cll AND cml,both very treatable.The acute leuks much more aggressive.

Original poster

lisad123 · 28/05/2009 01:00

i know, they thought it was aml when he first went in as wbc had reached 411 and spleen was so big it was pressing on stomach and bowels, you could see it poking out :s

still mostly good news atm, just need liver sorted but i know some of the girls here like to have a updated now and then.

OP posts:

wrinklytum · 28/05/2009 01:03

Glad it wasn't aml,sounds like he is doing wellGood luck with liver function tests

Original poster

lisad123 · 05/07/2009 00:21

liver still not great. Waiting for next loads of results. They dont know if his rejecting drugs as his lost more weight and very tired.

OP posts:

Original poster

lisad123 · 05/07/2009 11:31

Reading back though this 3 months on reminds me how wonderful MN really is.

OP posts:

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