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Original poster

Been in hospital 2 weeks now and get my results today, so scared.

296 replies

LargeGlassofRed · 20/10/2011 04:35

have a few health threads going, it's been a long 2 weeks, I miss my kids so much it physically hurts :-(
The results from my lung biopsy come back tidal and with it a final diagnosis.
The front runner is neurosarcoidosis but the big c is yet to be ruled out.
So scared just want to press fast forward and get on with what ever it is. :-(

OP posts:
Original poster
LargeGlassofRed · 27/11/2011 13:20

Thanks all , unfortuantly things taken turn for the worse,
Infection levels up in blood so on heafty iv antibiotics, also chest Xray showed fluid in lung again,
Now they ve just been to tell me my blood HB level is only 6.9 so need transfusion!

OP posts:
essexgirl31 · 27/11/2011 15:16

You poor poor thing.

The tranfusion should help you feel a bit better. Hopefully these antibiotics will sort it out for you.

eaglewings · 27/11/2011 15:19

It's been nearly 2 months, you have really been through it. Hope the treatments work
Gentle hugs, ribs must be sore!

oxcat1 · 27/11/2011 22:01

Oh bu**er, LargeGlass! On the plus side, you will feel very much better after the transfusion, and the breathlessness should improve too. I was in hospital pretty much this time last year with exactly the same: collapsed lungs, infections in lungs and blood, and multiple transfusions. If it's any help at all, I'm so, so much better this year, and the whole thing feels almost like a bad dream. Fingers crossed yours is also soon behind you.

giraffesCantDookForApples · 27/11/2011 23:02

hope transfusion helps you are in my thoughts

magso · 28/11/2011 17:11

Thinking of you. It has been a long few weeks for you. You will turn that corner soon and get home to recuperate. (hugs)

WorkingItOutAsIGo · 28/11/2011 17:57

Sending you healing thoughts xxx

essexgirl31 · 30/11/2011 06:27

How are you LargeGlass? I hope you are on the mend

Original poster
LargeGlassofRed · 02/12/2011 23:34

Sorry haven't been back for a while, still in hospital things have been going from bad to worse.
I haven't seen my twins now for four and a half weeks feel like my hearts breaking :-(.
The infection won't go out of right lung, so will probably operate Monday again, I'm having a central line put in tomorrow as veins keep colapsimg, also had ct today which shows problems with heart and bowel so have heart echo and camera up the bum thing tomorrow.
I have had sickness and runs for 3 days caused by antibiotics, they changed it to another that made it worse so back on original.
Have a awful fever, fast heart ect due to infection.

Sorry for the out pouring just need to get it down.
If anyone would like to say a prayer for me and my family, I would really appreciate it x

OP posts:
Angelswings · 02/12/2011 23:37

We are praying LargeGlass, it's unbelievable what you are going through.

Will pray that you know peace, your family have strength and know your love and the medics and surgeons get it right

anotherglass · 02/12/2011 23:40

Thinking of you massively. Have you got anyone keeping an eye on your treatment? Are you having colonoscopy? Stay strong. Xxx

PreHeatedOven · 02/12/2011 23:50

Just read through your thread.
You poor thing, a very gentle hug!
I really hope you get better ASAP.
Is there anything I can get you? I'm not local but live very close to a post office!
Hope you get better and back to your family very soon.

giraffesCantDookForApples · 03/12/2011 02:03

Oh large glass am so sorry things are so so shit for you x

essexgirl31 · 03/12/2011 06:50

Oh LargeGlass I am so sorry things are so awful for you.

I so hope you start to get better soon

Send you and your family lots of love and strength.

chimchar · 03/12/2011 07:07

Have just read your thread for the first time. You poor poor thing. You have really been through it. I really feel for you.

Sending massive healing vibes and a wish for good news very soon. Xx

ObviouslyLovesTinsel · 03/12/2011 07:11

Thinking of you LargeGlass.

Alouisee · 03/12/2011 07:45

Oh love! Huge hugs and positive wishes x

ThatsYuleThatIs · 03/12/2011 07:47

Been thinking about you LGOR. Really hope things start looking up for you soon and you get to see your twins before Christmas Smile

magso · 03/12/2011 15:53

Oh Large glass! I am so sorry you are still not out of the woods! You and your family are in my thoughts and prayers. I cannot imagine how hard it is to not see your children. I was told fast heart rate etc can just be part of being ill but it is sensible to check it all out. Hoping too for excellence in the staff trying to get you well. (Hugs)

LakeFlyPie · 03/12/2011 21:54

Have just read your thread LGOR and am so sorry you are going through this Sad

I really hope that your infection comes under control v.v. soon and you can start to feel better and can get back to your family ASAP.

Your dignity and love for your family shines through your posts Smile

cityhobgoblin · 03/12/2011 22:11

So sad to see you missing your twins so painfully , LGR , and going through infections & painful procedures .

Have seen a relative & couple of friends with sarcoidosis go through complicated times in hospital . I wish there was more opportunity for hospitals to help patients through the stress of their illness & the miserable aspects of being an inpatient .

Does your DP / DH / other family have no way of bringing your twins to visit ? Are there many practical problems , as so often happens when a parent is in hospital ? I'm wondering if your council or Sure Start can help , or if any of us live near & could help in some way , such as with lifts ? Please say if that , or other help , could help you cope at this horrible time .

Been thinking of you since you started the thread & will pray for you & your family xx

Methe · 03/12/2011 22:14

You're on my watch list lgor, I'm sorry I haven't posted before not but I just want you to know I am thinking of you and praying you start feeling better soon xx

Original poster
LargeGlassofRed · 04/12/2011 08:10

Thank you all so for your kind messages, feeling alot brighter I think my body is kicking the infection at last, still have a fever but feel alot brighter. Having bloods done today, to check levels.
My three older children are visiting today, I can't wait! The twins aren't aloud to visit as too young :-( . Dp has been sending me videos of them though which I blub all the way through.

OP posts:
Angelswings · 04/12/2011 08:59

So glad you are feeling brighter, have a great day with the older kids

4nomore · 04/12/2011 14:13

Never posted on your thread before but I have been watching... Just wanted to say that I'm really glad you're starting to feel better, hope it continues and that soon you're back with all your children. x