Been in hospital 2 weeks now and get my results today, so scared.

[LargeGlassofRed]

have a few health threads going, it's been a long 2 weeks, I miss my kids so much it physically hurts :-(
The results from my lung biopsy come back tidal and with it a final diagnosis.
The front runner is neurosarcoidosis but the big c is yet to be ruled out.
So scared just want to press fast forward and get on with what ever it is. :-(

I hope you are ok today.

Thinking of you

Hi all another update, I was moved to a 4 bedded bay, Thursday, which is nice with nice ladies to talk too, had another rough night Thursday morning, they were suppose to be leaving the para verbal block and morphine drip in for snother day or so, but the nurse doing my dressings pulled out the block by accident!
And another one can't be put back in, que lots of crying by me as very scarred of even more pain.
Anyway to cut a long story short, I now have 20mg of morphine every 2 hours and parscetamol and tegretol 4 times a day and diclafenic twice a day.
Still in alot if pain last night so anethatist came and gave be locals into the nerves on my back.
Also I might be home Monday! As longvas chest drain doesn't play up, that's coming out later today x

Only seen this this morning.
Good morning Largeglass!
Hope you get some positive answers soon xx

Hope you get home on Monday and the pain management is helping.

Hope pain management is well controlled, chest drain behaves, nice ladies around help keep your spirits up and you heal quickly enough to get home on Monday! (very gentle hug)

Hey large glass, the pain sounds scary and unpleasant. Make sure they stay on top of it xx

Sending you some love.

I hope you get home soon xx

How was the weekend? Are they letting you out today?

How are you LargeGlass?

Been thinking of you. Hoping the drain came out without incident and that pain control has been better.

Just to say am thinking of you and hoping you are recovering.

Another voice here to say I hope that you are doing well and they are keeping you comfortable with pain relief if you are still inpatient.

Hi all, sorry taken a while to update had a very poorly few days :(
Have had awful pain innmy right rib cage, like someone stabbing me. After 3 days of it they finally did an exray last night, I have also had a temp and Sats around 92/94

Also on Sunday night had awful constipation as I hadn't been for a week, so bad I was throwing up too, the night nurse gave me to eneamas, so most of sunday night, I spent pooing and

Pucking
Am on whole ton of pain killers, so feel completly doped up but at least there re starting to work.

I had the biopsy last Wednesday, so I'm praying for answers today.
Still in Bristol btw, cant go back to gloucester till the pain under control.
.

Morning LGOR. Sorry to hear that you have had some bad days :(

Thoracic surgery is so horrid but I hope that you do get the answers that you are looking for today. How is your breathing? Are you feeling like you are struggling to breath?

Hope you get someanswers

Sorry to hear you are having a hard time.

I hope you get your biopsy results so you can start getting treated.

Thinking of you

I rather worried that things weren't good for you, but am glad to see you posting as it must mean you are a little bit better. Take it easy, concentrate on recovery and just know we are all thinking of you.

Thanks all. Had my results of the biopsy and it is sarcoidosis!
Very very releaved.
Unfortunaly have been unwell again though, finding it difficult to breath. And SAts around 90, am
On 2% oxygen now at sats around 96,
Have a cough and have been coughing clear fluid that tastes awful.
Also have had major leaking from wear the chest drain was, it happened first at 7 last night, I felt a weird pop and them lots of warm sticky fluid pouring down my back, the nurse patched it up and feltb it was fluid from around the lung leaking out of my track caused by having the tube in
It happened again at 1 am when I was coughing, sudden warm fluid pouring down my back.
Seeing the doctors at 8 will ask them about it then xx

Oh, that's great news! (have been following your thread quietly). So glad for you, and hope you're on the mend and home with the family soon. I gather sarcoidosis is a self-limiting disease?

Great news on the biopsy result, wishing you a fast recovery now, and back home soon x

Pleased you have your results back. You know now and you will get better.
Sorry to hear you are still suffering though. This will get sorted too. Hopefully soon so you can get home to your family.

You have been so strong. I do admire you.

Hi LargeGlass, only just seen this. You must be very relieved to have a sarcoidosis diagnosis (that rhymes!). You've had an incredibly rough time! I'm also being investigated for sarc but the only symptoms I've had have been with my eyes (recurrent iritis and general dry-look-like-I-never-sleep redness) and some wonky bloods.

Hopefully now you have a firm diagnosis they will get you onto some serious steroids ASAP! Keep us updated x

great news on your results, so pleased you have them back. Hope you have a speedy recovery now and can get home soon. You have been through a lot and you deserve a medal for staying so positive.

Well at last you know what is making you so ill! Its been a long and very traumatic wait indeed!!
I hope that your recovery from surgery will proceed more comfortably, and you will soon be feeling much better.

Bring on the treatment! Hope the pain eases soon, the oozing stops and you can get back to your home ASAP