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Elderly parents

Caring for elderly relatives? Pop in for support, a hand hold, advice, whatever you need.

981 replies

picklemepopcorn · 06/03/2018 12:42

Carrying on from previous thread, IF I can work out how to link...

Come and offload your worries and frustration here, and share your experience and hard won wisdom with the rest of us!

OP posts:
yolofish · 01/07/2018 20:54

oh does I think distance may be your friend here? ie dont rush in, just wait and see what they can tell you?

thesandwich · 01/07/2018 21:34

Yolo, sorry you are back in the fray. And you are absolutely right to go on thurs. you need it to sustain you.
Does, as others say step back. And look after yourself.
Oak, Monica, whatever and everyone else, extra Teflon all round.
Latest high drama.... THEY ARE CHANGING THE BIN DAY!!! Shock horror!!!!! Much indignation from dm........

yolofish · 02/07/2018 07:54

CHANGING THE BIN DAY?!!! the bastards, how very dare they!

UnderTheOakTree · 02/07/2018 09:06

'They' are responsible for an awful lot... making washing machines too complicated, collecting everyone's recycling except hers, cyclists who cycle on the road, rubbish tv, dressing inappropriately for your age, people driving the wrong way round a supermarket car park...

They really ought to do something about it!!!

MoreCheerfulMonica · 02/07/2018 09:51

Hello everyone and thank you for the Teflon top-up. I’m likely to need it today, as we’re experiencing a minor family drama (can’t say much here, but not mother-related) about which she has firm opinions which will be loudly and repeatedly expressed.

Brew and Cake and Gin for anyone in need.

yolofish · 02/07/2018 13:21

haha under yes 'they' are to blame for everything!

monica good luck.

Visited mum on Sat, couldnt yesterday as was doing a thing for my charity, visited today, will go tomorrow, cant go Weds (DD2 and boy to airport) or Thurs (party!!!) but will go Fri - at considerable time/effort cost I might add.

She is 'devastated' at such a lonely week, could I think of ANYONE who might like to visit her? Given that she doesnt want to see the befriending lady, or my PIL, her neighbours visited last week, the only person I can think of is her (absolutely lovely) cleaner who is a friend as much as a cleaner. Pointed out that she has a hospital appt on Thurs which the home will take her to/from so that will exhaust her... will ask cleaner if she might be able to pop in on Weds, but its a big ask as a 40 mile round trip.

When I do visit she has no real interest in us anyway, and convo is hard. To my shame I only stayed 20 mins today, I start to twitch as soon as I arrive. The thing is, I walked in and instead of asking me about my day yesterday (which was a big thing) she just launched into a list of things I must buy for her and do for her. I know its cause she saves stuff up in case she forgets, but then I get the hump.

Ho hum I am treating myself to a lunchtime glass of Wine - cheers everyone

yolofish · 02/07/2018 13:22

oh, and she said "dont you want to know what they say at the hospital on Thurs?" well yes mum, but I can phone you... even though you dont think the mobile phone works and its like talking to Shackleton in the Arctic or something...

notaflyingmonkey · 02/07/2018 19:29

I'm going on holiday soon. Visited mum last weekend and reminded her, wrote it on the calendar, etc. Went again to see her mid week and she went on about how nobody had been to see her while I was away, she had no food etc. Had to remind her I hadn't actually been away yet, and had seen her a couple of days before. She then said she is planning on going out and just needs the bus fair (she's been house bound for the last year).

God knows what she will be like when I actually go on holiday.

yolofish · 02/07/2018 19:55

oh nota just go on your holiday, please just go. DH missed my niece's wedding because DM had had a fall and we didnt think we could leave her. (more importanltly, actually, the dog had been ill!) but it's important to go and DO stuff xx

MoreCheerfulMonica · 02/07/2018 22:12

Nota - I'm in much the same situation. I'm determined to go on holiday (I can't ask my family to miss out) but I know there will be a lot of hints and grumbles about her not being able to get to the shops while I'm away. There are options, but she rejects them all.

Needmoresleep · 03/07/2018 11:16

" she went on about how nobody had been to see her while I was away, she had no food etc. "

Love it!

I am now a decade into this caring for an elderly parent with dementia lark, with possibly another decade to go. The standard greeting when I arrive, after a three hour journey, is "oh its you!".

My problem is that I have also been landed with managing my mother's property, which is a real pain. But it does mean I have other reasons to make trips down there so can call in. Plus we have deliberately decided to recentre our lives so we have nice things to do which make for a pleasant weekend away. And a beach hut so I can take a break between chores.

I have also managed to structure things (sheltered housing, a directly employed carer, an address book of people who would stand in an emergency) so I am not the first port of call in an emergency.

After a decade things are pretty stable, so much better than they were mid-crisis. I no longer hear my mother's moans so she has largely stopped, and actually she seems surprisingly happy. My next task is to get Court of Protection permission to sell her property, which will remove a huge admin and stress burden. And now the kids at University, it will be easier to spend more weekends down there.

I am not sure if it is Teflon, or that I could not keep up the level of stress and commitment or rise to the emotional blackmail. Its not good really as I now have no particular wish to see my mother, nor her me. I do so out of duty and a need to monitor that the care is being delivered smoothly. I should take her out more etc, but I find it difficult to motivate myself for someone who won't show gratitude. At least she seems to have lost the capacity to hurt me.

thesandwich · 03/07/2018 13:24

Yes you must all go on your holidays. Strict instructions.
And 🌺🌺to needmoresleep as I have just got a £90 refund on mums power of attourney!!www.gov.uk/power-of-attorney-refund
5 minute job on line!

Needmoresleep · 03/07/2018 14:10

Then you owe me lunch...

DM was ineligible for a POA refund by a month.

Sandwich is right though. Unless you are in the throes of a genuine crisis you need to maintain your, and your family's, emotional
and physical reserves. Park the guilt, have some time off, and come back refreshed, and perhaps with some useful perspective on where you are and how things might be improved.

UnderTheOakTree · 03/07/2018 16:19

Needmore, wise words! Thankyou

thesandwich · 03/07/2018 17:30

You’re on need!!
Yes- wise words. This is a marathon not a sprint..

whatever45 · 03/07/2018 21:14

Hi all, just checking in. Gin and Cake to you all x

UnderTheOakTree · 04/07/2018 11:58

Does anyone have any experience of disinhibited behaviour as a result of dementia? Apparently my dad has started propositioning the staff at the care home, albeit in a very gentlemanly manner!

thesandwich · 04/07/2018 12:42

I think it is quite common sadly.... staff will have seen it before.Elderly relative was found in the bedroom of another resident in a compromising position.......

UnderTheOakTree · 04/07/2018 13:26

sandwich, I really don't know whether to laugh or cry! He's the absolute last person to do that sort of thing, & is a real indication of how much he's deteriorated, but because it's so unlike him, part of me is finding it quite funny!

thesandwich · 04/07/2018 15:24

Under, it is so very hard..... in some ways with the relative who was the most prim and proper person, all the family could do was try and accept the new reality of the illness, and try and deal with it..... making sure more checks were in place etc.... and also take time to grieve for the person who is vanishing...... finding it funny is one way to cope. 🌺🌺and 🍷🍷for all.

UnderTheOakTree · 04/07/2018 16:21

Thankyou, sandwich. I'm not altogether sure if my mum is aware of this, as I can well imagine that she won't want to discuss it -understandably - so I think I'll have to just file it away in my head!

notaflyingmonkey · 05/07/2018 19:18

Under if it helps, my DM went through a period last summer of being obsessed with my then 16 year old DS's sex life (and we most certainly do not have the sort of family where that is an appropriate topic of conversation). To make matters worse, the way she raised it was by asking if he had been initiated into the wicked ways of women. I kept DS away from her for a while, and then when I did take him to see her did a half arsed job of preparing him in case nana said something 'odd' to him. Luckily as a self absorbed teen, he didn't really get what she was on about, and I changed the subject.

I think it was down to the hospital deciding to put her on anti-depressants, as it generally made her quite manic like that.

UnderTheOakTree · 05/07/2018 22:44

Thanks, nota, it does help to know that other people have similar experiences.

WineGinCake for anyone who needs it!

yolofish · 06/07/2018 14:32

checking in, slightly hungover after fab party last night. DH and I stopped in to see DM on our way home. She was not good, ortho consultant says bones not healing and she needs another 6 weeks in the care home (after being there 3) and then he will see her again but with no guarantee of discharge then.

Obvs she is very depressed, wants to come home and for me to find her carers and a daily physio to visit. Discussed with DB, she would not be safe without someone there 24/7, and likelihood of a physio visitng 5 days a week - what she currently gets - are about zero.

Think we are going to have to tell her to suck it up for the moment, which is not something I am looking forward to doing. Considering asking the home if I could bring her cat in to see her?! Not sure if it will be allowed, but she would love it (not so sure about the cat tho)

yolofish · 06/07/2018 19:16

it gets worse. frantic phone call, can I bring in some of her secret stash of temazepam as she 'only' gets one a night. having spoken to DB, DH and DFriend the answer will be no. DB's rather brilliant solution: get her private GP to visit, if he is happy to prescribe then that's up to him. I will NOT be involved in this. grrrr. Wine etc to all, except for me as I have to pick DD1 up from work at some ridiculous hour tonight.

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