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Elderly parents

Responsibility for Elderly Parents? Support thread right here!

997 replies

Needmoresleep · 01/09/2014 09:08

Several of us are on the same journey. Some more difficult than others, some longer than others, but none easy. Feel free to share tears, rants or laughter with others who will understand.

OP posts:
CMOTDibbler · 08/07/2015 20:10

Really sorry to hear that Eccles. I hope shes awake enough for you to talk to her.

twentyten · 08/07/2015 22:27

Oh Eccles I am so sorry. ThanksThanks To you. Wishing you strength and a big hug. Lots of us here to listen.

SugarPlumTree · 09/07/2015 06:51

Eccles I am so sorry FlowersFlowersFlowers

bigTillyMint · 09/07/2015 11:20

Oh Eccles, sorry to hear that. Good Luck on FridayFlowers

twentyten · 09/07/2015 22:40

Thinking of you Eccles

twentyten · 10/07/2015 20:00

Eccles how did it go?

twentyten · 12/07/2015 21:47

Hello all - Eccles how are things?
Spent a lovely afternoon with dh and fil at the care homes summer strawberry fair- I was so impressed by the effort and dare the staff had made and the whole thing was lovely. Fil( paralysed down one side and confined to a wheelchair ) was on good form- and so appreciative of our visit. Sad really- I get on better with him now than I ever did. Still lots of signs of his old self- good to see after 5 years in a home. Dh still had to tell him that no mil would not be coming- she died in October. Aww. Today dm" I haven't been out for lunch for ages" me- " you didn't want to go" a contrast......

StepAwayFromTheEcclesCakes · 13/07/2015 06:44

Thanks for the good wishes mum is very poorly, weak and in pain. I hate that I am spending hours each day watching her sleep just feel as if I am just waiting for her to go. She is not eating so don't know how much longer she can go on its heartbreaking

twentyten · 13/07/2015 08:56

So sorry Eccles. It must be so sad. Sending you BrewBrewBrew andThanksThanks to keep you going. Please look after yourself too.... You need your strength.

whataboutbob · 13/07/2015 09:19

Sorry to hear this Eccles, it really is hard. I had something similar with my grandfather. I was just sitting there, he wasn t engaging at all. in the end i just picked up magazines and read them, then felt guilty and vaguely inappropriate especially when nurses etc walked into the room. But really there was nothing to do except sit there. Wishing you strength.

Needmoresleep · 13/07/2015 10:42

Sad to hear she is in pain. I hope she soon finds peace.

OP posts:
bigTillyMint · 13/07/2015 11:15

Sorry to hear that Eccles - it is a really difficult time for you.

SugarPlumTree · 13/07/2015 17:19

Really sorry to hear that Eccles, how hard for you all. Wishing you strength FlowersFlowersFlowers

derxa · 13/07/2015 21:16

Flowers Eccles
I am in the same position. Father getting weaker by the day and today he was completely delirious. He keeps saying he wishes he could die.

twentyten · 13/07/2015 23:09

Drexa so sorry to hear about your dad.WineWine For you.

Signoritawhocansway · 14/07/2015 19:49

Hello. Thought I would pop back and update the thread re my folks. First off though, Flowers for Eccles - it's so hard.

So my Dad is thriving in his care home, which I'm very pleased about. He settled in well, is benefitting from the physio support, and is generally a much happier chap, which is great. SS came out to review him, and he's been put onto the long-term review team. So that's him sorted for now.

But my Mum, who has just about everything going wrong has also had to move into the home, as in the last couple of weeks she has had swollen, painful legs, which after the Doc started her on ABs, didn't improve, so she had a short hospital stay, and when she came out had to go in for respite as my brother was away for 10 days and unable to support her.

The brief diagnosis is that her right heart failure has got worse, she has poor kidney function, weakened lungs, cellulitis, fluid seeping out through her umbilical hernia and is generally in a pretty poor state. I'm usually very good at not "Dr Googling" for me (as I have health anxiety), but have been reading up for her, and would agree with Docs assessment that her prognosis is very poor. But as well as managing that, I'm desperately trying to get SS to come out and assess her as she deffo needs nursing care, and isn't safe to be at home. But because she's not in hospital, it's dragging on and on and on.

This leaves my Bro at home alone - lost his entire support network in three months (he's also disabled) and he's struggling now too. As am I...

whataboutbob · 15/07/2015 09:18

Signorita I feel for you. I know what it's like when you have a family unit of vulnerable sibling plus dependent parent. Just wondering whether your mother would at least qualify for the nursing component of the home fees, if not for all fees outright (ie continuing health care). It usually is necessary to shout to get this, as often it is not offered or even mentioned. Ask the home to start the assessment process, if they are no help then contact the CCG. Also, the website CaretobeDifferent offers great advice on care funding and how to get the NHS to fund wherever someone qualifies, check their website out.
My brother suffers from mental illness and lives with my dad who has dementia. I know that Dad and the carers are now a big part of his life and he we will lose all that when Dad is no longer around and will need a lot of help to adjust. Not sure what to suggest as haven't crossed that bridge yet, but I guess it will be important for him to link into other activities or social networks, maybe a day centre (my brother attends one).

SugarPlumTree · 17/07/2015 18:28

Flowers for everything struggling.

We are waiting for news from Spain.FIL taken off by ambulance over 4 hours ago. All we know is he was unable to speak and it is very hot there. DD coming home tomorrow so have an airport run.

SugarPlumTree · 17/07/2015 19:45

Pneumonia not the Heat Stroke we were expect. Responding well to IV AB'S and saying he wants to come home but will be in for a bit.

twentyten · 17/07/2015 20:36

Sorry to hear those struggling- it doesn't end does it? Hope things improve signora and others- spt another challenge?

SugarPlumTree · 17/07/2015 20:52

Thanks TT. This is the difficulty of being abroad . It would be helpful for someone to be able to have a proper conversation with a Doctor.

He is 89, parkinsons, glaucoma and diabetes plus losing his hearing. DH is unable to have a conversation with him on the phone. His quality of life appears to be pretty much bugger all.

Swallowing and chewing had become an issue so I assume he has aspiration pneumonia . I thought this was the sort of things that happened at the end of life 'the old man's friend' . If they are treating him with AB'S and he is responding does that mean this isn't the end then ? Or are AB'S given palliatively ? If not and he is responding to initial stages of IV AB's does this mean he is likely to pull through ? So many questions, no answers.

CMOTDibbler · 17/07/2015 21:03

Flowers for all those not having a good week.

I've been away for work for a week. They managed to call the ambulance out twice in that time - but which has resulted in the paramedics referring them to the integrated locality team. This is a new thing with nurses, dementia nurses, physio, ot and a number of other specialities who are integrated health and care and go to their home to deliver the services. Already they've redone their medications, putting up more rails and bedguards, organising a stand in carer while theirs is on holiday. Oh, and booted their GP up the backside.

And my brother decided to tell dad that his wife had to go for more scans, baby would be delivered Tues probably, he'd update him daily. Hah. Leaving dad fretting that something awful has happened.

But on the bright side, I found an Amazon supplier of really good old man vest and pants at a very reasonable price, so have earned good daughter points.

whataboutbob · 18/07/2015 09:30

Hello to all on this thread. CMOT the integrated care team sounds like it could be really useful. Sometimes something that has been much needed for ages suddenly happens, I hope the service continues to deliver for your parents.
Just wondering what the Amazon supplier is? - Dad is now firmly in old man pants territory. Pls let me know if you have a minute.
SPT your FIL's situation sounds distressing . In my experience here abs might be given even when someone is quite close to the end (and of course prognosis in frail old age can be quite hard to judge). I suspect palliative care is probably not as well developed in Spain as here, and culturally they probably do things differently anyway eg maybe not tell people clearly when they are near the end.

CMOTDibbler · 18/07/2015 09:39

I'm hoping the promises of the team keep following through too. Fingers crossed.

I got pants and vests from Shazally trading. Dad is v pleased that the vests are really long so tuck in properly and stay there.

SPT, unfortunatly I agree with Bob that ABs will be given even when it might be kinder not to as they aren't seen as heroic measures. Its a very difficult conversation all round.

SugarPlumTree · 18/07/2015 15:20

Flipping heck CMOT, what a totally sensible idea the team is. Fingers firmly crossed they co tinus to deliver.

Thank you both. I think I know how this is going to pan our with FIL and I don't think it will be good . His family simply doesn't do difficult conversations, plus we are all miles away. There is a deafening silence today.