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Conception

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Immune /natural killer cell treatment when ttc or pregnant (aka the 17th pred thread!)

1001 replies

Hula2 · 27/08/2015 20:55

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

OP posts:
Seekingmiracles · 11/12/2015 16:31

It's only natural to be scared snoopy, especially given your history. But you're pretty far along now, you must start to enjoy it. You e wanted this for sooo long, it would be sad if you looked back and regretted being unable to enjoy it. You ARE pregnant, you WILL have that beautiful little girl with you before you know it. Please try to relax a little, I can only imagine how hard that must be but Its such a special time, embrace it Smile

Snoopysimaginaryfriend · 11/12/2015 16:58

You're right seeking, I've already said to DH that I regret not being able to enjoy the scans more because I've been scared to look at the screen. He said he got tunnel vision and palpitations he was so nervous at the eight week scan haha

I'm so grateful I have all of you to be positive for me, don't know where I'd be without you!

sunnyday01 · 11/12/2015 17:17

Snoopy, I still check the toilet tissue when going to the toilet and I'm getting to the point where I may see blood I guess!!

I also had aversions to meat at around 20 weeks - I was ok if someone else had cooked it but if I had cooked it if could smell it cooking I couldn't eat it!

Drttc · 11/12/2015 18:18

Awww Snoopy! Sending you a big hug. There's no right/wrong way to feel after your journey. If can little by little enjoy things more than that's a win- and I think you're going in that direction :) You really are in a much safer zone now & it is time to revel in it :)

Drttc · 12/12/2015 01:58

I know this is really silly but I just hit the 2-3 weeks mark on clearblue (Cycle day 27) Grin Makes me feel a little less dread for the Monday beta Xmas Blush

Snoopysimaginaryfriend · 12/12/2015 08:05

drttc that's brilliant! I'm sure you've already said but when are you having your intralipids again.

I think once I've had the scan on the 22nd I will feel a bit better. Ran out of cyclogest today, I had been cutting it in two because I didn't want to go cold turkey Xmas Blush

Seekingmiracles · 12/12/2015 10:04

That's great Drttc, it's all about small milestones and not looking ahead too far at a time. Every day you're little bean gets stronger and you get closer.
It must be scary coming off all the drugs completely Snoopy, hope cold turkey doesn't cause too much anxiety. Your baby girl is snuggled perfectly in there. The 22nd will be here in the blink of an eye.

Drttc · 12/12/2015 10:16

Thanks Snoopy & Seeking! I'm having intralipids with my beta blood test on monday morning. I had intralipids 4 days before my BFP though so I may be overzealous Shock

Scan right before Christmas- wow! That's going to be such a great way to kick off the celebrations Xmas Smile

Tryingno1 · 12/12/2015 10:35

Snoopy totally understandable ur will worrying u won't relax fully till u have baby girl in ur arms! But I hope maybe after ur scan u can have moments of enjoyment!

Drttc that's fab! U really have done everything in ur power to make sure these r your bean(s)I think the sneaky pre bfp intralipds will do the trick for u esp as previously you have had chemicals!

Seeking when u off on holiday? I'm off in a week yay! Thank god.

Had a look at mr shehata plan for I've patients and it's actually the same as Argc! Except Argc occasionally use ivig and don't use hydroxy. And they tweak ur dose of meds depending on ur hcg. But actually it's very similar (asprin pred il and clexane-some reason mr s and Argc use that for Ivf patients regardless of their diagnosis) so I feel a bit better coz I trust mr s expertise too and so many babies on this thread born with that tx. I've started hoping that I just need the pre bfp immunes for the hope the next one may work!

Seekingmiracles · 12/12/2015 11:19

That's reassuring that both sides would have you on the same treatment plan. Hopefully the pre bfp immune this time will be just what is needed.
We don't go until 30th, so a little while off yet. But it'll fly by!!

Tryingno1 · 12/12/2015 11:39

New year in Vegas! Whooopppyyyyy!

Tryingno1 · 12/12/2015 11:40

Yep v reassuring as I'm mainly going to Argc to get me good embryos and they r amazing with male factor infertility and now reassured their mc plan is similar to mr s. Trying to remain hopeful!

Drttc · 12/12/2015 13:40

Trying that sounds so good about ARGC and Dr S being on the same page with treatment. We're all at the point that we just want 'everything' thrown at us and it sounds like you'll be having the absolute best & most attentive care in world. So exciting! Have you thought about acupuncture and wobenzym as well? I added that to my regime at the end of October (6 weeks pre-BFP). I'm can't recommend the acupuncture enough... I had one AF when on it and for the first time ever I wasn't in terrible pain! She said it improved my circulation so less menstral cramps. I also overall felt really good after I was able to really relax at the sessions.

Vegas will be amazing!!! So exciting- can't wait to hear about it.

Snoopysimaginaryfriend · 12/12/2015 14:12

seeking New Years in Vegas sounds like it could get very messy haha I can't remember the last time I got good and drunk! And I bet they have amazing fireworks!

trying I know it won't be very pleasant for you but I'm really excited for your next cycle. ARGC sound amazing, not sure I could handle them but their results speak for themselves.

drttc I'm still taking wobenzyme, although a reduced dose. Do you think it helped your bfp?

Tryingno1 · 12/12/2015 16:17

hey drttc - how r u holding up? these early days r too stressful for words!!! to be fair the whole thing is but i haven't made it past the early days for a while now so i can't even imagine what sunny and snoopy feel!

I've had acu fornightly for over a year! she's amazing and lovely but it clearly doesn't do anything for me! plus after finding out that it was DH sperm why we couldn't conceive i kinda started going less......i find counselling more beneficial to keeping me strong and positive....so i only do acu once a month and counselling about every 8weeks (can't afford both all the time!!!)

I've really started believing that you can do all these things, but really when the jigsaw wants to fit it just does and everything comes together and it works out. but all this......this supplement.....acu....being positive....gluten free....even the immune meds - i wonder!!! i think the reason i think that is coz i tried for a year SOOO hard to get preg, timing it doing acu not drinking. and then i got a miracle bfp after one s* and with a ridiculously low count. whats that about?! i think sometimes with fertility there is so much unknown....

I've recently been in touch with someone who had 6mc, then 2 under mr S then she got her bfp NOT TRYING and not on ANY meds and started then late and is now due?! i mean whats that about?!

saying that, i am restarting healthy eating/loosing weight/supplements as it makes me feel like i have control and its good for my general health. but if its going to work, it just is. and if it not mine and DH time yet - it just won't.

sorry for the long essay! just what I've been thinking recently!!

Seekingmiracles · 12/12/2015 17:33

I'm kind of thinking the same as you Trying. I've stopped all the supplements except folic acid and apsirin, which I'm only taking because of my know blood issue. I'm not giving up alcohol, not eating a specific diet because like you I kind of believe it'll just happen when it happens now... (Or not). Saying that I am gonna detox in Jan but that's more to do with General well being than anything else. AND obviously after Vegas I may need to!

Drttc · 12/12/2015 19:26

No idea if the wobenzym helped my BFP as I wasn't on it that long... But may have helped maintain things so far?

Trying- Completely agree with questioning whether it will just happen when your body's is ready regardless of treatment. However, as I've only had chemical pregnancies I sometimes wonder if my issue is something different. I'd found a blog on this woman who had recurrent chemicals as well and then she listed her the protocol that had now worked for her to have THREE children. It used SO for a string ovulation and the trigger shot as a booster to kick off the pregnancy. I must admit I'm really hoping this is what does the trick for me as well.

I'm very up and down actually! I've been a bit crampy all day and had a very tiny incredibly faint bit of pink last night (AF was due yesterday). I'm hoping it's just the implantation or breakthrough bleeding you can get when you're supposed to have AF. Am also clinging to everything online that says cramping is normal now! It's quite mild cramping- but I'd rather it not be there! Sometimes I think 'that's just baby snuggling in' and other times I'm more negative :( I know it's a process and it's out of my hand... So taking it one day (or should I say hour) at a time...

Drttc · 12/12/2015 20:10

Snoopy- what have you reduced your wobenzyme to and what was your reasoning?

Snoopysimaginaryfriend · 13/12/2015 11:18

Honestly drttc it was a cost thing, it is damn expensive! So I've reduced it to two tablets at night. In the morning I have my thyroxine then before bed I have the wobenzyme, n-acetyl cysteine, vitamin d3, pregnacare Max (because it has metafolin instead of folic acid), omega 3 and aspirin. I'm good at swallowing pills Grin

I think early spotting is very common and I always have cramping early on. Didn't rosa have spotting and they raised her cyclogest? Are you planning to have an early scan?

billy15 · 13/12/2015 15:32

Hi Snoopy do you have an under-active thyroid or do you take the throxine for antibodies? My NHS clinic have said they might be able to off me Thyroxine with a positive for antibodies (my TSH is within normal range) but Dr S said not to bother!
Also whats wobenzym and is it something that can be taken on the treatment?
Cheers

Drttc · 13/12/2015 17:05

Hey Snoopy! I do remember Ross having spotting and upping her Cyclogest but don't remember when in her pregnancy it was... I hate the cramping! I'm now petrified for tomorrow's HCG. This is all so mentally grooling :( Yes I'm having a early scan... Kind of hoping I can have one just before 6 weeks just to look for a gestational sack? Maybe I can sweet talk the clinic I go to Hmm

Drttc · 13/12/2015 17:06

Rosa not Ross lol*

Drttc · 13/12/2015 17:07

Billy Wobenzyme is an enzyme treatment that can calm the in bye system. It's not 'approved' but some people say it helps. Snoopy & I have added it to our meds! I'm not sure Dr S would agree though...

billy15 · 13/12/2015 18:22

Thanks Drttc good luck for tomorrow. Keeping everything crossed for you! Let us know how it goes x

billy15 · 13/12/2015 18:22

Does anyone know when Dr S clinic is closed over Christmas? Cheers

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