TTC or pregnancy on prednisolone or similar part 9

[sarahs999]

Oh dear - we reached 1000 posts on thread 8 without noticing! I hope you can all find this. THis is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Good luck for today Kittens. I know exactly what you mean about going back to somewhere where you have terrible memories, but hopefully today you will have loads of positive news. Nothing happening with me (apart from painful cramp in my upper back - no idea what that is) so going to ring the GP and see if I can be scanned at the local EPU on Monday to check I haven't got an infection or anything. It is the place where we had our first two Mcs diagnosed - dreading it.

We have a baby, all present and correct!

They have changed the antenatal clinic at UCH since all my horrific experiences too so it was like going somewhere new.

I hope your cramp eases up Belly.

Congratulations kittens, what a relief. Really pleased for you and mr kittens!

Hope the cramps ease up for you belly

Really good news Kittens So happy for you.
And I hope some better luck will start to spread around others on the thread now, it seems to have been a very hard time of late.

Fantastic news kittens!!

That's brilliant news kittens!

Thank you everyone. It's certainly a massive relief. Now I have to get my head around sorting out the chaos in my flat before I'm too rotund to manage.

Olives, how are you getting on? You must be pretty far along now!

Yes, I hope it's time for a flurry of BFPs again on here.

Great news kittens!! Am so delighted. Lovely news.

Yes let's hope for more good news here soon... X

Brilliant news Kittens. So happy for you and Mr Kitten.

So funny to read OH referred to as Mr Kittens as, completely unconnected to MN, he calls me Mrs Kittens.

Wooo kittens! That's fabulous. After all you've been through that's such good news and so good to hear. So happy for you!

Good news kittens! I've done my 6th super ovulation cycle and still no luck, in fact I've not been naturally pregnant since July 2011 since starting dr s programme. So I'm off it now. Over a year and an epic 2 chromosonally normal failure so going it alone in 2013. NK cells were measured normal by dr g in may so i don't think is my issue. Will still pop in here and wish all of you the best of luck ladies - what a strong, inspiring lot we all are!

Thanks Free and Duggs.

Duggs, I'm so sorry the SO hasn't worked for you. It's been a pretty punishing couple of years for you and I will keep all my digits crossed for you that you have better luck next year.

Thanks for asking kittens I am 27 and bit weeks now! Actually not doing too well at the mo, have started to have relax type sickness after most meals then last week caught the dreaded Norovirus - ended up severely dehydrated and had to spend 24 hours in hospital on iv fluids. Im back home now with several different anti sickness meds but my tummy is still very unhappy, I can only eat tiny bits of food and I am very crampy and bloated. I think the bug is just taking a while to get through my slowed down digestive system but I wish it would hurry up! Im starting to feel quite low in mood because of my restricted diet and because of being stuck in the house feeling crap! Im going to head back to the docs if there's no improvement by the end of next week.
Good luck duggs I really hope 2013 brings some good news for you. Xx

^ Reflux not relax - if only it was relaxing to vomit!

Olives, I'm sorry to hear you've had such a rough time of it recently. I get quite bad reflux and know how miserable it is, but have only been sick with it a few times. Norovirus is definitely something you didn't need on top of that. Poor you. I can only suggest drinking lots of water to flush the bug out and keep your mineral levels up by taking something like Dioralyte. You probably know all of that though. I really hope you feel better soon.

Greenolives sorry to hear you are feeling ropey. Hope you are on the mend soon and able to start enjoying food again.

I posted this on the SO thread but I went for another scan today just to see what was going on. The fetus has shrunk but the pregnancy sac showed no sign of collapsing so they advised to sit it out for another two weeks to see if anything happens, and then will probably recommend an ERPC. I am as happy as I can be with that advice. I would love to have it all resolved well before Christmas so that we can just enjoy ourselves and start to plan what we will try in 2013.

Hi all. I thought maybe I'd finally have some good news to share, but it's turned out not to be "lucky 7th" for me. I made it to dead on 7 weeks this time, it had definitely implanted, I had lots of symptoms, implantation pains especially, and was doing really well staying calm and relaxed. It all went a bit quiet last weekend and I began to wonder. Instinct was sadly proved correct.

Sorry for only saying something now. I got pg again first time of trying, which I felt kind of awkward about as I know lots of you are struggling, esp the SO ladies - that's partly why I decided I would keep quiet until my scan, which was due to be this Saturday. Saying that, it does me no bloody good to get pg when I just kill them off!

Anyway, sorry to be a bit gruesome, but I passed it yesterday morning, a large clot/lump of "products". Scan yesterday afternoon confirmed I'd lost it. I have to say I took a bit of comfort in seeing it, because with the last two there's been nothing obvious in the blood, and just empty scans. I was beginning to wonder if I was imagining that second line and the sore boobs etc!

Mr S says I'm unique in the sense that we're doing everything on the immune side but its still not working. Next thing to try is IVF, ironically, given that falling pg is the one bit I can do! I have no clue about IVF so will need to start reading up when I feel ready. We have to start ASAP though because the humira will run out soon, so January is kick off time.

Can anyone point me towards good websites for info on IVF? Especially in combination with immune therapy? I'm sure there's loads of information online, but those of you who are familiar with it can hopefully point me in a useful direction. I'll stick with NLC. We haven't got time to faff about choosing another clinic, they know me and my history. And I trust them. It's not their fault I'm so bloody aggressive.

Sorry this is all "me". Hope everyone's well. Fingers still crossed that someone surely has to have some good news soon!

Oh Choccy, shit shit shit, I'm so sorry. I don't know what else to say. That's just rotten. I reckon Duggs is the IVF expert around here but not sure if she's lurking at the moment as I know she's had a rough time this year and was going to take a break until next year. Why don't you drop her a PM?

Sending you a big hug. I'm so sorry love. xx

Really sorry to hear that choccy I have no clue about IVF im afraid but I hope someone else will come along and point you in the right direction. Xx

choccy i am so sorry to hear your news. Thinking of you. I am afraid I know little about IVF too but the HFEA website is useful for stats etc. Good luck with it.
Hope everyone else is ok and I think we are in some desperate need for some good news on this thread

Oh feckin buggerations choccy, I'm so very sorry! Can I ask a silly question .. given that you can get pregnant, and the embryo cam quite clearly implant ok, how does Mr S think IVF is going to help? You can fertilise your own eggs, clearly (or rather your DH can!) and they implant .. I'm just wondering what Mr S thinks IVF can do that you're not doing on your own? Does he suspect a chromosomal issue or something, that IVF plus the appropriate screening would get past? If it's down to your body aggressively killing them off, how does IVF stop that? Sorry to ask, I just wondered.

duggs is of course the expert, but I know there is a huge IVF-with-immunes board on Fertility Friends, as I read it every day!

Big hugs to you and Mr Choccy xx

Thanks all for your lovely words. To add to my joys I've been up all night with dreadful D&V. Lets hope I keep the Pred down or I'll have to deal with going to hospital to sort that out too. Just brilliant. Argh!!

Ari I need to properly assimilate the info but in basic terms he said that by growing to blastocyst ie five days in a nice clean, free of NKCs, Petri dish, the embryo will be stronger when it's transferred. I could add the chromosomal testing too as Duggs did just to clear off that risk. I did ask if they could grow it to 9 weeks...!

We are running out of options but he reckons as I get pg so easily, I should be able to churn out lots of good eggs from one cycle so we can freeze whatever we don't use first go. But we've basically got one try before the humira runs out... Then what?! Surrogate?!

Oh Choccy I am so so sorry to hear your news, life is so unfair. The D & V on top is the last thing you need. I felt exactly the same as you this time around, guilty about sharing the news, all to no avail.

You won't be in the right pace for this at the moment, but a friend who has been through the same thing recommended the book Zita West's Guide to fertility and assisted conception.(You may have already got it) It's about getting your body ready for IVF.

Interesting Mr S suggested IVF. I do know of someone who was losing her babies so early (I think even earlier than us) that she had ivf at the ARGC so they could literally monitor her day by day and now she has twins. So maybe Mr S has the answer.

Take care of yourself, sending you a big virtual hug. Xxx

Ok, that makes sense. Is it Mr S that takes charge of the IVF side of things, or does he hand you over to his colleague (whose name completely escapes me, but it's the chap who used to be at ARGC and is supposed to be really good)? When do you have to start the drugs, and what protocol is he suggesting, or don't you know yet? I know it's a bit of a scary (not to mention bleedin' expensive!) route, but if it works, then gotta be worth a go?