TTC/Pregnancy on Prednisolone or similar part 8

[Arianrhod]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Thanks for doing the list update. Belly good luck with your scan tonight.

Beautiful name Free, hope you are enjoying your first full day as a Mummy.

Sorry to burst the good news bubble but bad news at our end. Baby only measured 6 weeks when it should have been 7+3 and no heartbeat. Same old story for us - all gone wrong between 6-7 weeks. Feel so guilty that I was only on the Hydroxy and didn't take the pred, but Mr S said it wouldn't have made any difference. Having a 'just to be sure scan' followed by ERPC next Tuesday. No 5th time lucky for us. We were really hoping this would be our little miracle, especially with the lack of spotting. Totally numb and don't know what else to try. Wondering if we need the uber monitoring of the ARGC. Persuaded Mr S to retest my NK cells whilst we were there. He said it would be hard to interpret, but I just want to know. Sorry to put a total downer on all the success stories on here at the moment.

Sarah praying for a positive outcome for you tomorrow.

Wednesday 18th July 2012

(Reposted as typo with Sebastian's name - sorry Free)

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.

BFP 3rd Trimester

Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 39+1 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 35+6
coleyoz - V High NKC. DC#2, BFP cycle2, 34+5
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 30+5
Mercator - V High NKC, DC#2 30+5 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) Next scan 27/07 ELCS 14/09/12
Hopefulfor2nd - High NKC - TTC#2. ? 29+3
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 29+3

2nd Trimester

PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 24.6
HelterSkelter (IVF and immune therapy) 15+1

1st Trimester

Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 12+1
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 8+5
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. Est 8+4 Next scan 30th July
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 8+3

BFPs awaiting first scans

sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin and cyclogest. Est 6+1 Scan 19th July

TTC ? ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 ?pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -12 pred replaced with Hydroxy 10/7/12 ? 5th cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, SO

TTC

Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
LJ71 - mc on treatment
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks
Mollieboo - 5 early mcs between 4 & 10 weeks, 1 premature birth (lost my little angel), high NKC - pred, intralipids, aspirin, clexane, cyclogest

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid, 2 mcs on treatment?
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine

Belly Im so sorry to hear that xx

I'm sorry to hear your news, Belly.

belly I am so, so sorry. I know your pain & it's really upsetting knowing the horrible situation you find yourself in - its the scenario we all dread. Please don't give up or try to blame yourself in anyway for the outcome; this process is so complex for us unlucky recurrent miscarriers but somehow we find this crazy strength to keep putting ourselves in the 'firing line' of so much potential distress. I lost 5 before my beautiful son came along & I really thought that my life path just wasn't to include having my own children. A good friend assured me my 'little soul' was just waiting for the perfect time to join me & I took a lot of comfort from that in my darker moments. I don't mean to go on but I felt at such a loss when I miscarried for the 5th time & whilst none of us are guaranteed a baby, so many of us have managed to get there somehow x
free such a lovely name. Your post took me back a couple of years to the shock of becoming a living zombie for a while! Oh yes the breast feeding - its not like they portray it in the movies that's for sure!!! Good luck with everything & hope you are doing ok.
sarah good luck tomorrow
bertha congratulations on your scan news
Hope I haven't missed anyone as only quickly caught up on today's news

Belly, so sorry to hear your news. Look after yourself.x

So sorry bellyd

belly So sorry , this thread is a rollercoaster at the moment. I hope you are getting looked after in RL xx

oh belly I can't believe it... I so hoped I would log in to find good news from you. So so sorry. I feel like we were kind of in it together because our scans were so close. Did Mr S give you any more insight into it? I'm interested to know why he thought the pred wouldn't have made any difference? The problem for us NKC ladies is that we are still just as prone as everyone else to 'normal' miscarriages, on top of our NKC-caused ones.

I hope you have plenty of RL support and are able to find a way through this. Totally understand how you feel, not that that's any help of course.

ive somehow stubbled onto this thread, and i havent read the whole thread, but i am astounded at the courage and bravery you ladies show.
i hope you all get the babies that you long for, what treasured lucky babies they will be too.
anyway, i admire you all and wish you all the best of luck

Belly I am so sorry to hear your news. Big cyber hugs.

bellyd im so sorry to hear your news. Love to you both x

free what a cool name. Welcome to the world sebastian x

sarah good luck for tomorrow x

Hello to everyone else.

Belly that is so unfair, I am so sorry.

Thank you for your post Orchid.

belly im so sorry, i feel your pain and fustration, just reading your post took me back to that day. stay strong.
free how do you feel this morning ?

im loving my accupuncture, amazing . my cycle has not been normal since coming off steriods as well as all my muscel and joint pains. last week for the first time in months that i could get out of a chair without my leg muscles hurting , also she said she was me to ovulate a few days later and have a 27/28 day cycle and presto this mth i ovulated 13/14 and had a 27 day cycle instead of 11/12 25 days, also feeling better physically , finally getting back to normal.
does anyone use vit b complex ? can you tell me how much vit b6 is in there and if its helped

Really sorry to hear your sad news belly.

Orchid Thanks for your post it was really lovely.

Belly Thinking of you and sending big hugs.

Sarah Good luck today!

Free Hope you MrFree and Sebastian are having lovely family time together :)

Belly - so sorry to hear that, you must be devastated.

Belly so sorry to hear your sad news. Hope next Tuesday goes as well as can be expected. Thinking of you at this difficult time.

Free hope you're now up and about a little bit and that Sebastian is settling in with his new Mummy and Daddy.

So sorry to hear your news Belly. I hope we can be of comfort in some way. Did mr s think it was 'just one of those things' type miscarriages - just wondering about his comments re medication and what he might plan to do next. I know either way you must be feeling hideous right now. I can't scroll through to check but is this your first mc on the treatment? I hope it reassures you to know that quite a few of us have had miscarriages our first or second time on treatment and gone on to get pregnant and stay pregnant. Myself included. Here for handholding.

Who else has scans as well as Sarah? I will be lurking profusely and keeping everything crossed for you all.

I am good here at Epsom general. Baby and myself are being checked regularly and all signs seem to be good. Yesterday morning I felt pretty awful after no sleep and the pain kicking it but it's quite amazing how quickly I have started to feel way again. Had a good night with the baby last night and some good bonding time. Also as I get more mobile I am getting more confident in holding him and moving him around! Within a few weeks I will be spinning plates with him :)

Thinking of you all and still aware how fragile this all is and how lucky I have been so far. Hope you all take some comfort from the treastment doing its job. hopefully will be at home tomorrow so will muster up a small batch of photos for Facebook - hopefully getting the right balance between irritatingly baby-y or upsettingly baby-y and showing you and other friends what he looks like!

Will be lurking for scan news and thoughts again with Belly xx

Well.... I am the proud owner of a 6+3 measuring (that's a day ahead!), 122bpm little embryo! I am so very relieved and quite stunned. It hasn't sunk in yet at all and the knot in my stomach is still there.

Mr S was very happy but has decided he wants me on intralipids, as a precaution, because of my history with severe pre-eclampsia. Which kind of adds to the budget somewhat unexpectedly, but hey. Not thinking about money right now. Thinking about those five little ones that didn't make it, and the genius that is the Mr S method.

I feel a bit uncomfortable posting this after the bad news that we've had over the last day or so. Just wanted to say I am still very much thinking of those whose time wasn't just yet.

Congratulations sarah that's lovely news & such a relief!

Sarah Thats fabulous news! Im chuffed for you :) Did you have the intralipids today?
Free Cant wait to see some pics!

Sarah I am so glad and relieved that everything is looked good on your scan.

Thank you for all your lovely messages of support everyone. Not sure how many more times I can scrape myself off the floor but the success stories really do help. Has anyone had a Mr S erpc before? He is going to do it under local and I've had a general for all my others. Just a bit worried it might be a bit traumatic.

Free lovely to hear news of you and Sebastian.

Thanks for your kind post Orchid.

Sorry to hear your news Belly

Congratulations Freelance xx

I've got my "Outpatients ERPC" tomorrow afternoon. Not looking forward to it at all - the two ERPC's I've had before I've been given a General for. Louise said she'd hold my hand (if she's back at work - she's been off sick this week). She told me it would be noisy but that they'd play loud music!

The rest of today has been filled with trying to make sure I haven't mc'd naturally (bleeding started Tues am), and with loads of em's from Cheryl/NL telling me how much it is all going to cost!

Really not sure if we'll try again. Want to make a decision so that I don't stay on medication unnecessarily, and also to get to a place in my/our head/s where we can grieve, get p**ed, count our blessings and then move on with our lives. Not to mention trying to sort out the dreaded overdraft after having paid NL for nearly the last year.

If the testing on my "products" show that there was a problem with the egg/baby rather than it just being my NK cells being out of control, we MAY consider, but I don't want to flog a dead horse, and although I'm reasonably strong at the mo, I don't want to rock that boat and end up being a basket case.

belly so sorry you are going through this again. Its so unfair. I am another one who has had 2 losses on mr s's treatment plan. First was without hydroxy and just steroids, 2nd was with steroids and hydroxy but I had only been taking it for a few weeks. I also went for weekly acupuncture. I said to myself that I would try 3 pregnancies with mr s and then see dr gorgy if it then failed. Maybe this time for you was a bad egg/chromosomes so the treatment would never have worked whatever you took?

mollie got your pm so will mail you the pic.

Well done sarah on your scan, first hurdle done!

free Sebastian is a lovely name, I also would love to see some pics. Happy to add you as a friend on Facebook.

LJ good luck for tomorrow.