TTC/Pregnancy on Prednisolone or similar part 6

[Arianrhod]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Evening all, just a quickie from me as I?ve been out again (third night in a row! Making up for the fact I hibernated all winter) and had a good but tiring day of work.

Duggs that is indeed great news ? can?t wait to see how it all pans out.

And Battery ? great news about the 20 week scan! Woo hoo!

Dunnit that is fab news as well! Welcome to the second trimester! Shame about the IVIG. I have forgotten ? are you doing that with Mr S? And is it because you had an allergy to soya or something? Either way, if it is going to do the trick it is expensive but worth it.

Euro I think that is a great idea to amend the list ? go ahead! Yes it must be frustrating with the meds, they do cause so many bloody issues don?t they.

Choccy so glad to see that your boss has been so good about it all. You really need to have that understanding right now. How is your dad doing now? Just try and take it easy when you can and look after yourself.

Finally, hello Abney and welcome to the thread! Please do stay around and join us. Am assuming you are on the Pred for the same reasons we are rather than another immune issue? Does that mean you have already had a Pred Baby or just been through an awful four years of TTC on Prednisolone? Do let us know how things are going for you and please come and join us. The more the merrier.

Thanks Digi for the countdown to viability! I have been googling survival rates at 23 weeks and that freaked me out. So yes it will be great to get to 24 on Tuesday. Did I tell you that out of my ?miscarriage friends? ? you know the group I got friendly with when miscarrying and we seem to have stuck together ? there have now been 3 thread babies. In fact two of these people got a BFP on the same day that I did but of course I had another mc. So it is nice to be pregnant myself and also great to see them all progressing well. Everyone on that thread is pregnant now! So good to see after people were going through such tough times this time last year.

And yes Digi please make sure you have a plan of action to update us! We are your 30 or so best virtual friends?

Hey igggi wow, fame at last eh?! Good work :)

Hello Abney and welcome, though sorry you find yourself here of course.

My Dad got taken down to critical care at 5am today, having had trouble breathing overnight, presumably due to the pulmonary embolism, and v low blood pressure. I'm not sure what the plan is yet, waiting for my step mum to call, or whether it's "necessary" for us to go up there today. He's not well, and awfully weak with everything he's gone through the last 3 weeks since he initially went into hospital. Worried and scared but keep telling myself that he'd go mad at me if he thought I was putting him before looking after myself right now. Me being pg again is giving him something to keep positive about, I'm very conscious of that. And knowing how tired I'm getting he'd worry more if I show up, and wonder what he's not being told...... Tough call.

Did another test this morning... Bloody bloody CBD told me 1-2 weeks, bastard thing. So, in went my last FRER and a cheapy, both of which were darker than a week ago. So, although dh did a mini storm out the room in frustration asking "What the fecking fuck do we have to do??"., we are now choosing to ignore the CBD on the basis of the other tests and of course the principle of PUPO, and I said I would ask you lot for stories of CBD inaccuracies/ unexpected results.

Oh fuck, "unexpected results" can mean ectopic. Fuck. oh well, fuck it, PUPO, scan on Friday the 13th if I make it that far and nothing I can do in the meantime except look after myself as best I can and try not to let myself go into headfuck mode. My boobs are as bruised and sore as they've been til now, some days more so than others, but usually my first sign of trouble is a sudden shrinkage. Tick. Also the funny taste is still there. Tick. And tired in the afternoons, then dead on feet about 8/8.30. Tick.

Wish I could get put to sleep for a couple of months and wake up at second trimester. At least I'd feel I was making some actual noticeable progress with all this baby lark.

Thanks for listening/reading and for asking after me and my Dad ... Sorry for banging on, I find it quite cathartic seeing my thoughts in black and white.

Oh, and I'm also still receiving complaints about being radiator-hot at night. Another tick.

Choccy CBD are the work of the devil and I think you are absolutely right to ignore it. Symptoms sound very good so please try not to worry. I'm really sorry to hear about your Dad but he's in the right place and will be really closely monitored. I have everything crossed for your Dad to improve and for the 13th to be hear in a flash and reveal a lovely little bean waving at you!

Euro Sounds like a good plan with the list. Good that you're feeling better off the super-ov drugs!

Battery Yay! Great news about scan, that's a fantastic milestone

Dunnit 2nd trimester is also a fab milestone! I don't know much about IVIG, what does it entail? And is it hideously expensive? It will all be worth it in the end!

Abney Hi, nice to meet you. What's your TTC/Pred story? [extremely nosey emoticon!] I have only had one cycle of Pred so far and I really noticed how much harder it was to get up and get on once I stopped taking it!

here not hear

choccy I can reassure you. I never got past 1-2 weeks on a cb digi. I did one at 6 weeks and it still said 1-2 weeks. I even emailed Louise and asked her about super ov considering this was another non-viable pregnancy! Well as you know me and my non viable pregnancy just had our lovely 20 week scan :) yours just may be a slow burner like mine, but you have no reason to think this pregnancy is not working xxx it can't help with all the worry about your dad, but rest assured, until you know for sure - your pregnancy is progressing as normal xx

Choccy I am so sorry to hear about your dad too. I really hope you get some good news about him soon. Where do he and your step mum live - is it far away?

Olives is right too, CBD are not very accurate at all and you should try to ignore that as best as possible.

All those ticks you talk about are all also normal symptoms of pregnancy. Awful as it is, just because you have not had a successful pregnancy before it doesn't mean you haven't had proper pregnancy symptoms. I was exactly the same for the first 4 months - having not had a successful pregnancy to relate to all the symptoms I had were of course signs it was going wrong. But boobs fluctuate, symptoms come and go, you do go hot and cold and you do get a nasty taste in your mouth. So far - so pregnant.

How far gone will you be on the scan on the 13th?

Oh digi I saw we crossed posts last time and am glad you have a plan of action to let us know how it is going. And yes we want all the gory details. Not that anything is going to be gory about your calm, serene and perfectly easy impending birthing experience. I am like you, I can't imagine my DH sending around texts etc for me as I am so glued to my communication devices. I suppose that WHEN I hopefully give birth I might be otherwise occupied thinking - f*ck, what the hell do I do with this baby?!

Shall we all settle round in a circle whilst Abney tells us her story? I have the cookies and milk.

Oh and battery is good reference for this sort of thing Choccy. Even the experts did her a negative pregnancy test at the beginning if I recall!

Yep - the dr at st Mary's told me my pregnancy test was negative! That was a bit of shock. However, I just had low hcg , which sorted itself out eventually!!

free I don't like milk can I bring squash?

Congrat and welcome london and welcome abney

dunnit fab news on reaching the 2nd trimester!

duggs great news re egg collection and good luck with the Rest of the process!!

free a little late in replying but for stretch marks I used Clarins body treatment oil,mead ages ago that Elle the body used it so thought if good enough for her well... Anyway had none from my first and trying it again this time. Enjoy Spain - I love it over there, the Spanish are just so laid back and friendly.

choccy thinking of you at the mo with your Dad. Try not to dwell on the cb as I am not sure how accurate they are post pg.

Have a good weekend everyone!

You can have squash, as long as it is the really bright orange variety we used to have as kids - full of e numbers and not an orange or drop of vitamin C in sight :) Actually I am a huge squash fan of all varieties myself too. Even posh squash, squash away!

Choccy I am sorry about your Dad. Hopefully they can get him well again.
As for stupid CD tests.. ignore like the other ladies said. It is all dependent on urine and concerntration and if the other tests show a stronger line then it is going in the right direction.

I am v interested in all this talk of pred at BFP and also IVIG or whatever that is ? BTW.. my IVF protocol is 5mg until egg transfer so perhaps that is a self suggested compromise ??? dr google style.

Selfishly will give IVF news update..just had a call from the clinic and out of the 19 eggs they collected.. 13 were mature enough for ICSI. Out of those 13 all of them fertilised so the clinic were pleased with the 100% fertilisaiton rate. Now we must wait until Monday morning for a call to tell us how they have got on over the weekend. They will then decide how many (if any) are eligble for CGH testing. Tuesday is when the CGH test results are back (my most scary moment as I am sure this is my main issue). I was told yesterday by the embryologist that I would be a day 3 transfer candidate because of my history. From what I have read.. getting the embies back into us gives a higher survival rate. The day 5 blasto option is really to identify any obvious front runners and is better for single transfers. DH and I just spent an hour talking about our options including egg donation and adpotion. If we don't get anywhere with 19 eggs and 200 million sperm then I think we need to call it a day and accept our lot and embrace the alternatives positively. Just don't want to waste more years on this journey. But will try to end with a more positive note. Think if this fails and no frozen ones to try again with.. will go back to TTC naturally with no pred until BFP as after 7 cycles on it I am over it a bit, whilst exploring the adption/ egg donor route. It is all a learning exercise. JEZUS not even to fekking BFP stage.. is good news but how quickly we jump onto next worry point. deep breath. waves to everyone.

So far so good duggs. Must be scary but 13 potentials is bloody good going - a football team with 2 subs! Fingers crossed they all pass the cgh quality control mark and you have a years worth of embies stockpiled in the freezer.

choccy ((hugs)) for your dear old dad. Ignore evil cbd, you are doing well with the ever darkening lines on the FRs, the reassuring symptoms, and battery is testament to non-standard hcg counts resulting in a perfectly healthy chick.

duggs that's a great result! So far so good. Bugger going to have to take laptop to Brittany to keep up with your progress! Don't want to miss anything

No line for me on 10dpo. Still Jan + was 14dpo and Feb was 12dpo so still time I spose. Sleep awful so what to do, keep taking pred for couple of days or stop??

Off to Dh Brothers wedding at 2pm and got to be in Portsmouth at 8am in morning so all packed for France! Talk about rush...

love to all sorry for lack of personals. iggi great milestone!

Digi oh bloody hell I might miss the action . Good Luck honey x

snoopy here's hoping for you. However, I do think it is interesting to think about 5mg pred per cycle then 25 of BFP or 40 whatever protocol we are on ?
What SO cycle are you on now 3 or 4 ?

Enjoy France.. so jealous..

This is cycle two duggs. So if you read SO thread youll see i screwed up and couldn#t get any Letrozole this month!

Thanks all. Esp Battery - v good point about your pg. There is no reason to think there's anything wrong.

This one really must work out. We lost my darling Dad earlier today. About 1.5 hours before we got to the hospital sadly but he was under sedation in the final hours having been taken to theatre this morning so he wouldn't have known. They opened him up and saw there was very little blood going to his stomach/digestive system or his heart and there was nothing they could have done to help him. He'd had so much thrown at him the last 3 wks it beat him in the end. Dad'll go mad at me if I dont do all I can to look after this pregnancy and I'm determined to think good thoughts and that he's wherever you go watching over me and the pg. He knew I was pg again and was so pleased. If this baby works I'll be devastated he won't be here to know it but te baby would hear all about my wonderful Dad.

Thanks for being there everyone.

Oh Duggs that's great. Fx for next week.

choccy so sorry for the hell you're going through right now. Crossing fingers everywhere for your dad's fast recovery. Re the CBD oh I did so much reading around on these things when I went through that last chem. pg and I came to the conclusion that they are indeed the work of the devil. From everything I read they are notoriously unreliable especially the higher your hCG gets, oddly enough. I swore I would never use the CBDs again, and I won't - they are the biggest mind-feck going. Throw any more of those you have firmly in the bin and just go on those good symptoms you have - plus the stronger FRERs. I read so many stories about women having false readings from the CBDs, I just wouldn't believe anything they say now.

abney welcome to the thread, pull up a chair and get comfy.

Can I have tea with my cookies please free' but rooibos only, don't drink anything else :)

snoopy hoping that 12 DPO blows raspberries at your 10 DPO result :)

duggs what fantastic results so far. Really interested to hear what happens with the aCGH tests.

/waves to everyone, waiting for news of Little digi :)

Oh God choccy, what a time to cross-post!! :( I'm so, so very sorry to hear about your Dad, I really am. Words fail me. Huge hugs to you, tell DH to take really good care of you now.

Choccy :( I don't know what to say. You poor poor thing. I am so pleased he knew about the baby. My thoughts are with you and your family xxx

Choccy I am so sorry to hear about your Dad, that is so unfair. . I can't think of what else to say, it just seems wrong that you've had to go through so much.

Oh choccy - what sad news. Thinking of you and your family. Wishing you all the strength to get through the next few weeks and months. Come on babychoccy, mummy needs you to grow big & strong!

Choccy, honey, words fail me too. You must be going through hell. So so sorry to hear about your dad. Thoughts are with you and the family xx

choccy so so sorry to hear about your dad, my heart goes out to you. Like battery said I am so glad he knew you were pregnant. Thinking of you and your family xx