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Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

TTC/Pregnancy on Prednisolone or similar part 5

999 replies

suemays · 25/01/2012 16:48

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
suemays · 29/01/2012 11:49

Hi bellyd and welcome to our thread! I don't know what I would do without this thread sometimes!
Well I had a bfn today so will test again in a couple of days. I am only 10dpo so it's prob too early to pick anything up.

OP posts:
Arianrhod · 29/01/2012 12:42

Morning all, and welcome bellyd! Sorry for your losses and the troubles you've had with diagnoses so far. Did you have a repeat APS test with Mr S then, I would have thought that difficult to misdiagnose - surely the test either shows you as positive or negative for it, and that's that??

Ah sue, I remembered you were testing today and came on to see what your result was. But as you say, 10dpo is very early indeed - give it another few days, I should.

stogan I'd echo what digi said - take the BH as a sign to slow down a bit and take it easy for a while. But exciting stuff all the same, not long now :) :)

snoopygirl · 29/01/2012 12:42

pico I take Sunvite vit d3 25ug which is what Louise at NLC told me to get. I usually just neck everything in morning, especially pred the minute I open eyes just to help sleep.

belly hello and welcome. Can't really comment on the Intralipids - did you ask him if there an alternative maybe? Good luck with Project Baby.

sue still time yet fc x

stogan put your feet up and relax...ooohhh v exciting! Carlisle blimey miles away! Is it chilly up there?

digi when we built out house it was mud which was our problem, sod the house best bit of whole thing was having a drive which meant end of mud.

Pebbles73 · 29/01/2012 13:17

Iggi sorry to hear about your bleeding but hope you are reassured now. I guess the worry and checking never goes away.
That's hilarious Free about your dh (feels weird calling him that!) having that conversation, how mad.
Hello to Belly D I am also new to this thread and recently diagnosed with high nk killer cells, starting my first treatment in pred and super ov next month.
Have been in Devon this weekend at my mil, times must be desperate as my dh drove me to see the Cerne Abus giant ( the fertility giant etched on the hill with a large you know what) lol!! :)

batteryhen · 29/01/2012 15:09

hello everyone :)

Everyone has been busy this weekend :) Hello to new people, and old timers :)

sue still loadsa time for a bfp - I didn't get mine till around 12dpo and even then it was v faint!
free i really think you ought to be getting some sort of comission from Mr S you know!
iggi I am glad you have stopped with the bleeding - any type of bleeding is scary.
pebbles lol at the big fertility giant. Are you sure just looking is enough? Maybe you ought to sneakback at night for a quick swi on it?!!! Don't get arrested though!!

All ok here, busy busy weekend. Feeling dreadful about the scan on wednesday - I have to go on my own though as DP works away from home during the week and everyone else is working. I hope I don't get the same crap news as i did last time. coley When is your scan - you are only a couple of days away from me aren't you ??

Hope everyone else is having a good sunday xx

eurochick · 29/01/2012 16:16

pebbles I agree with battery. I think you are supposed to do more than just look at it to get the maximum benefit.....

Igggi I am glad the bleeding has stopped.

Wave to everyone else!

suemays · 29/01/2012 16:51

Pebbles maybe we should have our next Mumsnet meetup there next time!!!

Battery I am sure your scan will be fine - I am used to going to them on my own too as my DH works away a lot so I know next time I get to the scanning stage I will be on my own. It's horrible but at least you have got this far so dont lose sight of that!

Iggi glad the bleeding has stopped - it will be such a relief when you have the baby in your arms!

Belly I forgot to say, I have been through the St Marys system and wished i hadn't bothered. Feel like I wasted all of 2011 with waiting for results (which they lost) and then miscarried on their plan of only aspirin (raised TEG result). I wish I had gone straight from miscarriage number 3 in Dec 2010 to see Dr S. Dr S said the raised TEG didnt mean anything and that my V High killer cells were the prob.

OP posts:
digitalgirl · 29/01/2012 16:54

Attempting list update via phone. There was someone who had bfp recently...but can't scroll back to remember their name Blush - was a lady who ovulated earlier than expected on a non-ttc cycle and wondered whether to take the pred just in case. Was it Mercator?

cheerful do you have a scan this week?

free do you have an anomaly scan booked in yet?

iggi hope no more bleeding today, can't believe how many scares you've had this pregnancy - you deserve a pain free birth and baby who sleeps through from day 3! Not long till magic 24 weeks.

Have spent today either napping or sitting on my arse - thankfully dh has been very understanding and is currently prepping dinner. Completely wiped out after yesterday's activities.

Sunday 29th Jan
BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 34+1 Due 10/03/12 next scan 10/02/2012
Digitalgirl - High NKC - BFP cycle#2 28+6 Due 16/04/12 MW appt 25/01

2nd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 25+6
Comedy - V High NKC - BFP cycle#2 ? 23+1 due 26/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 22+5 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 22+1 next scan?
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 14+5 Next scan ??
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 14+3 Next Scan (15 weeks)

1st Trimester
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 11+1 next scan 1/02/12
coleyoz - V High NKC. TTC #2, BFP cycle2, 10+6, Nuchal scan ??
picolina123 - V High nkc, BFP cycle 1. Next scan 19/02/12
Hopefulfor2nd - High NKC - TTC#2. First scan 8/02/12

TTC
Waiting to test
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Suemays - V High NKC, TTC #2. Superov cycle 1, testing on 29th Jan

Waiting to ovulate
buster76 - V High NKC, Factor V Leiden
eurochick - High NKC, superovulation cycle 2, pred cycle 2
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)
Snoopygirl - V High NKC TTC, #3
Cherrycheeks - V high NKC, TTC#2

WTTC
duggs1976 - High/V High NKC - TTC #1 - awaiting AF then, superovulation cycle3
ScooterChaser - V High NKC - TTC#2 -awaiting follow up appointment
ChoccyPud - V High NKC - TTC#1 from March
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Pebbles - High NKC, PCOS - TTC#1
BellyD - V High NKC - TTC#?

Stogan · 29/01/2012 18:45

Thanks for the list Digi x hey coconut will be joining us in 3rd tri in a week woo hoo, we're getting there ladies slowly but surely !!

Dragged my sorry ass up and out for afternoon tea with an amazing friend today, was lovely but sooo nice. Got home to DH telling me off as I was wrecked this morning and he had my hospital bag packed, bless he's so excited its unreal but making time drag now lol. !!!Grin

Oh and yeah snoopy it is bloody cold up here lol Grin

PQ77 · 29/01/2012 20:06

Hello everyone, hope it's been a good weekend. Thanks for updating the list digi. euro how are your horrible ov pains? And ari are you ok?

pico re calcium, my gp prescribed it as a matter of course even though we only are on short bursts of steroids. The supplements are chewable and foul (like eating chalk) but since i have given up lattes etc my dairy intake is close to zero so I have reluctantly added calcium to the cornucopia of supplements.

hi belly and welcome. Wishing you all the best with project baby. Great that you can take time out to focus on things - I think it must have been v difficult being a teacher and dealing with the appointments - not to mention the physical fall out from mcs.

Thinking about about you and your scan battery. I usually have scans without dh so I do know the feeling.

Lovely to see you at lunch girls, everyone will be pleased to hear that we weren't sprung by a dm reader berating us to stop messing with nature and trying to reproduce. Don't know what I'd do without the pred thread gang.

free must be very challenging being congratulated. My difficulty is I find it hard to congratulate someone until they're actually holding the baby - not because I am jealous but because I am a professional obstetric worrier now!

Been in the car for 4 hours today travelling north of london and then back south agan. home with no potty training accidents or car sickness. Result! That's what constitutes a good day in our household.

Hi to everyone I've missed, I did have everyone's posts in my head but have failed to remember everything I was going to say...

Coconutfeet · 29/01/2012 20:08

Welcome to BellyD! Make yourself at home here. It must be frustrating about the intralipids. I wonder whether Mr S will come up with an alternative for you? Good to hear you've got time to concentrate on Project baby. A friend did exactly that after a few rounds of failed IVF and managed to conceive naturally. Hope it works for you too!

Stogan ? I hope you?ve got your feet up now and you?re taking it easy. I?m excited about joining you and Digi in the third trimester. Not sure when it officially starts?

Pebbles ? I hope you?re doing OK after getting your results back. I agree with the others that is must be so hard to know the sex. I imagine it makes the what-ifs even harder. Lol about the fertility giant. I?m pretty sure you?re supposed to shag on it ? I?m sure I saw it on a tv programme once.

Let us know how you get on with the Big Hair thing, Lemon. I have to admit I?ve been tempted after reading about it on here, which is ridiculous as I?m incredibly low maintenance usually.

So sorry you?ve been having such an awful time Willitbe. We all know what it?s like, so please feel free to come on here whenever you need virtual support.

Any more bleeding Iggi? How are you doing?

Free - I?ve completely lost track of whether I congratulated you on your scan results. Great news, even if I have said it already!

Glad to hear the meet-up went well. I was sorry to miss it. We had another fruitless day house hunting but have managed to find another area to search in, which hopefully will increase our opportunities of finding something soon.

Sorry if I've missed out important news. Hope everyone else is doing OK.

PQ77 · 29/01/2012 20:09

Sorry, duh, it was iggi who had the scare. ari I would love a badge maker. It might even overtake my dymo label maker as favourite gadget.

eurochick · 29/01/2012 20:34

PQ thank you for asking. My ov pains have subsided to just a few twinges today, thankfully. Yesterday was horrible. I think I was overstimming to some extent. I have just googled symptoms and as well as the bloating and pain I had yesterday the site I found mentioned nausea (tick) and lack of wee despite drinking (tick). I have also put on about 3 pounds in the past few days (! - I haven't eaten that much cake) and weight gain is an indication of fluid retention The symptoms can get much more severe so I don't think I had a bad case but am anxious to have a chat with Mr S.

I'm glad you had a successful accident-free car trip!

Welcome to BellyD!

I'm reposting the list just to move myself to waiting to test as that was definitely ov yesterday! (Either that or I was about to emulate the John Hurt scene from Alien...)

Sunday 29th Jan
BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 34+1 Due 10/03/12 next scan 10/02/2012
Digitalgirl - High NKC - BFP cycle#2 28+6 Due 16/04/12 MW appt 25/01

2nd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 25+6
Comedy - V High NKC - BFP cycle#2 ? 23+1 due 26/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 22+5 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 22+1 next scan?
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 14+5 Next scan ??
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 14+3 Next Scan (15 weeks)

1st Trimester
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 11+1 next scan 1/02/12
coleyoz - V High NKC. TTC #2, BFP cycle2, 10+6, Nuchal scan ??
picolina123 - V High nkc, BFP cycle 1. Next scan 19/02/12
Hopefulfor2nd - High NKC - TTC#2. First scan 8/02/12

TTC
Waiting to test
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Suemays - V High NKC, TTC #2. Superov cycle 1, testing on 29th Jan
eurochick - High NKC, superovulation cycle 2, pred cycle 2, AF due around 9 Feb.

Waiting to ovulate
buster76 - V High NKC, Factor V Leiden
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)
Snoopygirl - V High NKC TTC, #3
Cherrycheeks - V high NKC, TTC#2

WTTC
duggs1976 - High/V High NKC - TTC #1 - awaiting AF then, superovulation cycle3
ScooterChaser - V High NKC - TTC#2 -awaiting follow up appointment
ChoccyPud - V High NKC - TTC#1 from March
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Pebbles - High NKC, PCOS - TTC#1
BellyD - V High NKC - TTC#?

Stogan · 29/01/2012 20:54

coconut u join us at exactly 27 weeks Hunni. 1st is 13.3 weeks 2nd is 26.6 weeks so not long now YEY GrinGrinGrin x

duggs1976 · 29/01/2012 23:28

Hey ladies, sorry I missed catch up on Saturday. Was thinking about you all. Am still in Vegas,surreal place. The guy I've been out here with is winston churchills great great grandson and princess di's cousin- how totally out of my world is that. More than a few awkward moments and hilarious comments. Anyway I cannot actually believe ttc never left my mind- even amongst all of this over here. If anything it intensifies it being away. Flying back to normality tonight. Welcome to the new lady tummy or belly or something ( sorry am on iPhone) congrats free. I am now waiting to ovulate am on day 5 so have a week or so to go but at least am back in the game.

picolina123 · 30/01/2012 07:00

snoopy, dont you have to take that other pill for acid 1 hour before pred? i usually take that when i get to work and then wait, i was told if i took it with pred it didnt absorb as well, i better check that.
i felt this weird pressure/pain this morning lower down , felt like a period pain . prob wind , on the other hand i had a reasonable sleep last night whoo hoo! i wish i wasnt working at mom, i feel so much less tired on the weekend and due to the redundancies moral at work as well as stress is bad, anyway got 2 mths left .

BellyD · 30/01/2012 08:51

Thanks for being so welcoming everyone. Next cycle starts 7th Feb, so just taking the vits til then. Start clomid on Day 2.
Suemays - I am sorry you didn't have a positive experience at St Mary's. I had a similar experience to you and at the time felt really hopeful, now i just feel I have wasted time I don't have.
Battery good luck with your scan.

Havingkittens · 30/01/2012 11:27

It was lovely seeing you ladies PQ, Choccy and Scooter on Saturday. I did a bit of a Google on dry cleaning fluids and what have you and am now about to start shampooing my make up brushes as a matter of course rather than using the chemicals that I have been using. Annoying though as takes rather longer to do, and also to dry as the solvent based cleaners we usually use in the industry do dry very quickly enabling us to re-use our brushes much more easily. I have a ridiculous amount of brushes but sometimes not enough if I have a lot of 'extras' to do. Anyway.... the interesting thing is that whilst Googling I came across a miscarriage support website based in NZ, akin to the Miscarriage Association site I guess. They listed all the possible reasons for miscarriage, and in contrast to the Miscarriage Association who pretty much condemn NK Cell treatment, they list it as a valid possible cause. Also, in past internet searches I have stumbled across forums where people in the US were having the same treatment as us as far back as about 10 years ago. So, why are they so against it here, I wonder? Hmmmm.

Oh, whilst I'm on the subject of the meet up, before I forget... Thank you Digi for the tests and vitamins.

Igggi how are things with you? Has everything settled down?

I was pretty fed up and grotty yesterday. I've been having quite bad cramps since my scan which was a bit worrying. It's been a good few days. Nothing so far today so fingers crossed it's over now. Also, had really bad acid attack - and haven't had Pred for a good couple of weeks. I'm wondering if I should stop taking the Asprin. When I was told to take Asprin by the RMC at UCH, they said that if I get bad reflux that I should just take it from BFP. I get it really badly and quite frequently these days Sad.

freelancegirl · 30/01/2012 12:15

Agh! I have missed a load. Going to have to knock this out on word doc and scroll properly so I can hopefully catch everyone's news.

First of all ? welcome BellyD! Lovely to have you here, although horrible that you have had to go through all this business too. Am so pleased when new people join though as I know it can be of tremendous support to all of us here. Not sure about the soya allergy and the intralipids but between us we are on a variety of things ? at least one of us is pregnant and having intralipids but not Pred, other people are having Pred but no intralipids and a growing number of us are taking another medication (hydroxychlorquine) in addition to the Pred. So I am sure there is a way of working around it for you.

It?s fascinating about the St Marys thing. Why don?t they just bloody test for NK cells I don?t know.

From the bottom of the thread upwards ? Kittens that is good research about the cleaning products for your brushes! Sorry you have been feeling grotty, no idea what the cramping could be. Did you SWI this month, I can?t remember what you settled on.

Picolina and Snoopy. I always spread out my drugs, not sure why. I took Pred on its own in the morning, aspirin mid morning, Omeprazole around that time too, then the Pregncare and other standard vits in the evening with meal. If I didn?t take Pregnacare with the main meal I could and still can feel a bit nauseous. They say to take it with main meal too.

A big glittery Vegas wave to Duggs! Sounds like you are having a rather surreal one, as Vegas does tend to be. Hope even thoigh you have ttc on the brain you are still having a few drinks and enjoying yourself. And good that the time has come for you to start getting back on with it again. Scary I know, but a necessary step!

Am very excited too about Coconut joining the third trimester soon. Woo hoo! We will soon have some people with actual Pred Babies on this thread.

Thanks for re-doing the list Euro. Hope the ov pains have subsided. Maybe you are brewing an ostrich egg? It certainly felt like that to be last time I fell pregnant (oh, that?s ?this? time isn?t it I guess). I don?t know the details but I know that under IVF Pebbles ?overstimmed? (I think! She will be able to clarify that as I am not exactly sure what it all means). So she might be able to tell you more about it. Or I might be completely wrong.

Talking of Pebbles, hope you had a good weekend, can?t wait to hear what the doc says. Is your appt today?! Loving the visit to the fertility thingymagig, hope he gives you some nice sperm meets egg action!

PQ ? glad you had a poo free day Grin . The calcium thing is a new one on me, I haven?t been taking it and it hasn?t been mentioned. I have been guzzling milk though so hopefully that helps. But yes I was aware of the osteoporosis connection with Pred and that is in my family too. Hopefully if we are only on it for a few months it is not so destructive. I am with you on the congratulating thing when holding the baby. We can say congratulations to each other on here ? ie for a BFP , for reaching a milestone, for a god scan but we all know what each other mean by that.

Digi glad you have been taking a few moments to chill out and look after yourself. You ARE heavily pregnant you know. When does work end and ML start?

Battery is it going to be your 12 week scan on Weds? Agggh! We all know the anxiety you must be feeling. We are all going to be watching out for news (even me on holiday) so do come on and let us know when you can!

Right that?s as far back as I can manage to go at the moment so I hope I haven?t missed any vital news. As for me, my scan reassurance lasted less time than usual this time and so this morning, after arriving back from BIL?s for the night, I got the Doppler out again. Took me a couple of minutes (but I expect that so don?t panic) but I found the heartbeat there, thumping away. I can?t help it but I am going to take it away with me too. Try to limit it to once a week but I want to check it after the flight etc.

Am off to get some extra large pyjama type shorts for sleeping in when am away. It's funny, this holiday was my goal remember? Back in the every long drawn out, dark, cold early days of this pregnancy I used to be drawn to tears when thinking about the possibility of still being pregnant at 15 weeks and being able to go on holiday and rest my aching, pregnancy and miscarriage wracked body and hopefully, I am almost there! It's been a long time coming it feels.

freelancegirl · 30/01/2012 12:16

Oops, forgot to bold everyone's name.

Havingkittens · 30/01/2012 12:56

free, I'm taking a break this month. Just as well as OH is doing his sperm test on Thurs which means no ejaculating for 3 days prior, and this is my OV week. Another amusing sperm analysis anecdote, along with the £10 handling fee, was that a motorbike courier turned up unexpectedly, whilst my 70ish year old next door neighbour was visiting on Friday with a sample jar for OH saying it was a "wait and return". Just imagine. Excusing ourselves from the neighbour "Sorry, just got to pop upstairs for a bit. Please ignore any strange noises." and then try to ensure we could get the sample pot filled quick enough not to incur any additional waiting time charges from the courier. Not to mention the very idea of a courier waiting for him to "finish". I told the courier that we had an appointment to bring the sample back next week so not to wait, but the whole idea was most amusing. I didn't want to think about the possibility of him earning the £10 handling fee. Who knew you could get so much hilarity out of a sperm analysis?

Stogan · 30/01/2012 14:29

Just had my second anti d and my perfectly on target for birth weight baby has gone off the scale according to today's measurements !!! Not a giant she said but certainly not a tiddler...... Ouch !!!!Blush

igggi · 30/01/2012 15:31

Kittens, thank you for the laugh! Grin. We have experienced stuff of which most people are blissfully ignorant!
I am blood-free since that one episode on Fri, one day I will learn simply not to look at the loo paper!
Here is a warning though - feeling constipated yesterday, I took a glass of prune juice. One hour later, I was very far from being constipated, and was simultaneously projectile vomiting round the bathroom! Not to be recommended.
GP signed me off for a week so I can get some rest, hurrah.
Stogan you will be pleased to have had a big baby once it's here, though obviously less so in the getting out stage!

Free your happy holiday is long overdue, and I am sure you will enjoy every minute. Remember to take out the doppler batteries before you pack it!

Havingkittens · 30/01/2012 15:59

Oh no, igggi, you poor thing. I've never had that kind of reaction to Prune juice. Great that you've been signed off. Time to really look after yourself.

Stogan · 30/01/2012 16:19

I've never tried prune juice igggi and must thank u for the heads up, won't be bothering lol !Grin hope ur ok now x