TTC/Pregnancy on Prednisolone or similar part 5

[suemays]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

pico with my first mmc - I waited for 3 weeks to bleed and didn't so had the medical management ( pessaries) my next 2 I had erpc's. I wouldn't have another erpc because I would worry about scarring now. I would try and wait it out. I am so sorry you are having to go through this xx
kittens My nuchal scan was 1.1 so really low. My appointment at FMC is tomorrow. I was wondering today if I should just go straight to amnio, but with me taking aspirin and clexane, there is a risk I will bleed. If I have to stop taking them there is a risk I will clot. So if I can avoid an amnio I will, so I off I go to London again. I hope you get some answers on Monday and you have a plan. Am not sure about the oestrogen - there are lots of different types though so I am sure Mr S will have a plan xx

I thought we had some other scans today too - any news on them?

I hope everyone is ok - this thread is up and down x.

So in order to make myself stress even more I used the doppler today and couldn't find the HB. Admittedly it was the one at work which is old and crap, so now more worry to go to FMC with tomorrow.Marvellousx

lisa sounds like an idea , lets organise a coffee in a couple of weeks.

Thankyou everyone , im feeling more like myself

snoopy once i have a break i will give this another go , but im also going to start with some research on surrogacys and adoptions , got to have those plan b and c happening and d i suppose which would be the obvious depending on which way we go.

poco honey. It has all be said you poor thing. All I can add is my first and third mc were "blighted ovums" no visible Fetal pole. Anembryonic pregnancies but they don't know if there was a tiny pole that got reabsorbed or there never was one. My first was at 9.5 weeks bleed. It showed a sac and yolk of 5 weeks age. I naturally miscarried the night after the initial bleed which prompted the epu scan. Third one was an early 7 week scan showing a 2mm pole and then after a week the 2mm pole had dissaeared. Had an Erpc as couldn't be arsed with it. Now I'd probably wait as had so many ops down there.
They really don't know what causes a "blighted ovum" but say is 95% chromosonal. Such a rollercoaster and so so unfair. I wish it was 1950 and we didn't know we were PG until 9 or 10 weeks earliest after 2 missed periods and a dr appointment.

Apologies I can't spell, write or form sentences. I blame the iPhone and train I'm on

So sorry Picolina. Two of my mcs were blighted ovums. One went to 10+3 and I mc'd naturally about 3 days after I started to bleed. The other was discovered at an early scan - i had to wait 2 weeks and go back again before it was confirmed. I had an ERPC as I just wanted it over. Good luck with whichever route you take. It's just so shitty. Sounds like a trip home is what you need. Big hugs.

im going to try natural but keep an open mind and see what happens.

now enough about bad news we all need all the good stuff, i dont want to bring too much doom and gloom to everyone , we are all so stressed as it is.

thank you for all the advice and sharing .

pico so sorry to hear your news. If its any consolation and puts your mind at rest, I was told by Louise at nlc that the intrallipids support a viable pregnancy but it's the steroids that suppress the killer cells which cause most of our miscarriages. Don't blame yourself for not having the intrallipids as it wouldn't have made any difference. I asked this when I had my chemical pregnancy in December as I wondered if I should have had the intrallipids. I am guessing it was just a bad embryo do hopefully next time will be ok for you. I waited naturally for 3 out of my 4 miscarriages but had to have an erpc with one of those as nothing came away on its own after 2 weeks of waiting once the bleeding had started. The other one I had an erpc as I was 11 and a half weeks and didn't want the dead foetus inside me. I was told by my Epu that they advise an erpc or the pill after 2 weeks due to the risk of infection. I would also avoid an erpc due to the risk of scarring.

dunnit some of us are meeting up in Amersham on Sunday 19th feb if you fancy it? Does anyone else want to join us?

pico I would also try natural to start with. Sometimes when you stop the cyclogest that can bring it on. Last time I discovered a mmc at 12w 2 days stopped the cyclogest that day and miscarried naturally 3 days later. I suppose it depends how long it goes on for and risk of infectioN but I was going to try and give it 2 weeks at least to reduce worry of scarring.
. I was told not to have baths or go swimming to reduce chance of infection.

I had a good scan on Tues. Baby was measuring 16 w 4 days. According to dates based on NT scan it should have been 16 days exactly. I also went and had final intralipids yesterday. Got a huge telling off and lecture for putting on too much weight and a warning how I am putting me and the baby at risk of complications :-( I felt awful as I've been trying so so hard to do everything so perfectly but probably have had quite a few unnecessary cakes and choccy.

I've put on 8lbs since getting pregnant and Dr says the max I should have put on by now is 6lbs. Bmi was 25.5 when i started so just a little overweight, yes but not morbidly obese. Very embarrassing, especially as DH was there. Can I ask how much weight you ladies have put on? I was talking to my neighbour about it to get some comfort and she said '8lbs?? That's far too much by 16 weeks. You need to watch it! ' I was a bit startled, but she's French and has a great figure after 2 babies so maybe I should suck up her attitude!

sue thanks for that , in our meeting next week thats what i will say, i want to wait 2 weeks and see. my husband has been really good, hes the silent type and i worry about that , they are going through this to but bottle it all in and just says im the one that needs to be looked after, this morning he just said that we have to take one thing at a time , reduce my meds tomm to 35 and so on, go for the final scan wed and tell them what we plan and look forward to my holiday in april. itend to worry about things all at once and way into the future.

cheerful thats what i was wondering about the cyclogest, thanks for telling me that, i was in two minds to stop now or wait till wed , weve decided to wait till wed , also i think i many stop asprin as well and start again after, i was thinking my periods were so much heavier on asprin, again i will wait to speak to them on wed .

i think i will get my prescription etc all sorted soon for the next time we try so when i come back from aust i will be all ready to go for the next round of mentalling , sleepless nights and feeling pretty much crap, ahh the things we have to look forward to, re job situation, i think i will temp, finding a perm job at the moment is a joke , they want you to jump through hoops and spin on your head, i told hubby, next time im on all the meds if we can afford it i would like to temp when i can and when i feel crap just look after myself and focus on me , dont know if this will happen with the financial stress but i feel better thinking it might.

Morning

Sorry I didn't get on yesterday, just had a catch up and am so sorry to hear ur news pico massive hugs to u Hunni. I've had medical management with each one of my 4 MCs (apart from the 2nd which was natural) and it takes time but is fine , whatever u decide Hunni look after urself and just do what's best for you ????x

cheerful your're abroad aren't you? In the UK they tend not to weigh pregnant woman other than at the very first appt to check BMI (as if it is high it may trigger additional referrals). My French colleagues tell me that French Drs don't let their pregnant patients put on weight, it is a very big thing there (and presumably in other countries too).

I think in kilos - put on 5 kg (which is lots and lots of pounds - comfort eating as I felt sick and was so anxious) in the first trimester, another five in the second and then 1 or 2 in the third. 6 months later I weighed less than I did when I conceived, I guess from breastfeeding as I ate like a horse and didn't do much else.

Please don't worry about it, just focus on eating healthily for the baby and for you and don't get hung up on numbers I am not an expert but 8lb really doesn't sound like enough to trigger complications.

you're

and final word from me - DS arrived a month early which goes further to explain the drop off in weight gain in trimester three

Morning everyone

pico I hope you are ok today, one day at a time xx
cheerful I agree that it is different in the UK, I have put on about 6lbs already and am only 13 weeks. I am trying to eat carefully but I don't think the steroids help either.

Can I just have a mental moment. I have my scan at the fmc today at 2pm. I am sick with worry. Not about the results but about the fact I don't even think the baby is alive anymore :( I don't feel pregnant - my tummy doesn't feel as 'heavy' and I heard the hb on sunday night with the doppler and not heard it since. I swear if there is a hb there tody - I am getting rid of the doppler. I just have this awful feeling of doom which is what I had with my last mmc. My boobs are still sore and I do feel sick but am sure that is nerves more than anything else. I can't bear it if this goes worng now :(

Sorry for the depressing post x

oh battery wish I could come and sit there with you. What a horrible feeling. Only a few more hours to go until you know. Everyone is wishing you the very best but we are here for you if things don't work out. I know in RL everyone says "don't be silly, don't worry" but at least for my part I like it if someone acknowledges that the fear is very real.

FWIW it is v early to use a doppler isn't it? I don't think my MW could get a heartbeat until I was a bit further on. And you may have seen my earlier posts where there was no heartbeat found on doppler at c. 7 months when obcviulsy DS was fine. But I appreciate that it is horrible if you found a hb earlier and now can't.

Thinking of you. Please keep us posted.

battery theres not alot I can say to you to make the next few hrs easier, just know we are all thinking of you and those symtoms do come and go as you know. Hope you are with someone to hold your hand. xx

cheerful they sound like they are being a bit over the top. god I've put on same just on pred. Just enjoy your pregnancy (it's such a special time when you look back on it) you have been through enough to get this far don't let them spoil it or those skinny french women!

battery i was going to buy a doppler with my second pregnancy and i read that it can cause a lot of stress because even when everything is fine you sometimes cant hear anything and that would freak anyone out, the good news is you still feel sick and your boobs are sore those are real, focus on that, the quicker you have the scan the better you will feel when we feel like this nothing but that will help but you see everything will be fine. wish we could have one of those scannners at home , shall we all pitch in and get one , the stress it would save us.
cheerful its the bloody steriods!!! ive put on so much of weight i dont even want to know!! fat face , fat butt, even fat back!! fat all over!! and im usually really small on top. youve done well if you are only a little over what they want.

Suemays yes I'm around on the 19th, thanks. Just let me know time/place.

Battery Keeping all my fingers and toes crossed for you. I'm having weekly scans at the moment and they are always terrifying.

Sending love and lots of hand holding to u battery not long to wait now Hunni and hopefully all will be fine, I know what u mean though we wait ages for a scan and then make ourselves I'll thinking about it. Massive hugs hun xx

battery thinking of you. Hopefully you're in there right now getting all the reassurance you need. The worry really never ceases, does it? I've got my fingers tightly crossed that a) you get rid of the doppler after this because it IS too early b) that the extra measurements the FMC do lower your down's odds c) that you'll be able to unhunch your shoulders a little bit after this and maybe relax a bit and enjoy the pregnancy. (I know is probably unrealistic!)

cheerful oh god 8lbs?!!!! Fuck! I've just worked out that I've put on 17 pounds since my booking in appointment where I was already on the cusp of normal/overweight thanks to the 'roids. But I got my bump measured a couple of weeks ago and was measuring spot on so have no growth scans lined up. My GTT was also fine - so clearly my body is able to process all the sugary-shite I've been stuffing my face with. AND most importantly I've done this before and lost all my baby weight by about 6 months with exclusively breastfeeding DS (but still eating loads of cake). Was still feeding him at 13 months and had lost more weight so I was even thinner that pre-pg. Went back up to my normal weight after giving up BF at 15/16 months. That was annoying - had to start watching what I ate and doing exercise after that.
From what I've read on here and in the 'papers French women tend not to breastfeed beyond a couple of weeks as it's not culturally acceptable plus they have to go back to work quite soon, so I can imagine that they need to keep an eye on their weight gain a lot more than if you were planning to 'stock up' for breastfeeding.

pico glad you're bearing up ok. The silent husband thing is sad isn't it. I know my DH went off for a cry by himself durnig my last mc...he didn't say anything till a few weeks later. They do feel the pain, but I guess it's easier for them to focus on you/us because we're dealing with it physically.

In the spirit of offering up good news - the baby is moving LOTS. Not just thumps and kicks, but lots of wriggles and stretches that hit parts of me quite unexpectedly. DH and I have started the names discussion when I realised that potentially we have less than 7 weeks till baby arrives (although due date is 9 and a bit weeks away).

Battery I'm thinking of you. I hope all will be well.

Digi it is good to hear positive news. I spent yesterday very despondent thinking this treatment would never work for me. Hearing that it does work for some people is a good thing.

Just a quickie from me as am on the mobile and difficult to catch up. Wanted to send my love to Pico and hope that it all goes well whichever way you choose to go. My two natural ones were very painful tbh, one age 20 when I didn't know I was pregnant and the other at 12 weeks in March last year, however I think this is quite rare especially as there has been no foetus seen this time. I hope you can take comfort in feeling that this one was hopefully 'just one of those things. I had exactly the same with my last one in august/sept and I know it almost made it a bit easier this time that the foetus hadn't been seen. It's still awful though so do try take it easy.

Battery, we are all thinking of you today and really hoping it all goes well. I've been lucky do far with the Doppler but it has taken some searching for and remember other people on here have struggled to find a hb and all has been fine! Mr s, when I confessed to him id bought one, said they often cause more anxiety than anything.

Charlie I think 8 lbs is absolutely fine! Am pretty sure I have have racked up about the same. Like PQ says this will probably even out as you go on. You and I must have around the same due date, considering these things are not an exact science. As long as we are getting a good range of vitamins that's all that matters.

My current brand of anxiety is that I don't know if the baby is growing properly, even though I have regularly been detecting the hb. Some days I have looked very pregnant then other days the bump deflates and I just look chubby. I try to tell myself that's normal at this stage. Equally, I have no idea when the next scan might be! If am booking in at 17 weeks am guessing my next scan might not be until 20 weeks. Which inlmpe is normal but it will mean have gone 5 weeks without a scan, whilst coming off Cyclogest too.

Hope I haven't missed anyone else with important news. I have to say I am not looking forward to coming home to the cold on tuesday. For start none of my outdoor coats now fit my tummy comfortabl and I know I will be uncomfortable with my day to day clothes too. I will buy more clothes but it's galling to have to think about getting warm ones when spring will hopefully soon be here.

Digi, crossed posts. It is indeed so good to hear about your wriggly baby and that it's really not that long to go now at all! I've been aware of your (and several of the others too) 'journey' almost a year now and it's wonderful to see good news emerging. We've had miscarriages, searching for reasons, finding reasons, scary diagnoses, scary drug taking, further midcarriages... But slowly and surely the good news stories are starting to creep through with more diagnoses, more treatment, bfps, good scans and soon there will be some babies! The gradual successes are there, as euro says, and can help keep us all going. (getting off soap box now and back to the pool!)

Just quick post as on the train. Babe alive and well ;) rusk however now 1:68 due to leaky heart valve. But he did say he could only get a limited view because it was so wiggly. Also that a lot of babies do have a leaky heart valve at this stage anyway . Nasal bone present and nuchal fold low x

Yay for a wiggly baby!

free yes get back to the pool and make the most of the sun while you can!