TTC/Pregnancy on Prednisolone or similar part 5

[suemays]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

pico I'm so sorry to hear about your scan. Hugs.

so sorry pico. That's heartbreaking.

(In terms of practicalities - if you decide to have an ERPC (though I am sure you know there are advantages to doing it naturally - I am sure you'll talk this through with a dr) I have had two ERPCs on BUPA at the Portland hospital. Couldn't recommend it more highly. I had to pay a small shortfall between BUPA and the charges for the aneathetist and consultant - but not much more than what one would pay for one consultant appointment. The Portland is a BUPA approved hosptial so everything else is covered and v easy)

Thinking of you Pico x x

Oh no pico :( Thinking of you. xxx

Oh no pico, I'm so very sorry, that's just rubbish! Sending you huge virtual hugs.

Pico, that's really horrible for you. I'm so sorry. Keep the faith in the treatment though, some of us are doing various kinds of tweaks on the treatment and there are successes after losses on the treatment. x

oh picolina how terribly sad. I'm so so sorry

Sounds like it might have been a blighted ovum - which the pred wouldn't necessarily have made a difference with. Don't lose heart with the treatment, this may actually have been your one 'bad luck' case. My fourth mc was a chromosomal issue - if I had been on the treatment during that pregnancy the pred wouldn't have made any difference. As has already been said, a few women on here have miscarried on the treatment and gone on to 2nd trimester and counting. Thinking of you .

Pico I'm so very sorry to hear your news. You must be devastated. Bupa can be fantastic and I hope they come through for you.

Sending virtual hugs! My thoughts are with you!

Pico I'm so sorry that's awful. As digi says it may have been nothing to do with the NKC's. I mc'd in November on Pred. I'd done intralipids and everything "properly". There's no way to be sure why. Take the time you need to get through it. We're all here. Hugs.

Bupa will cover you at St Anthony's in Cheam which may be closer for you if you're based at St Helier. I had my ERPC there last year. I Hadnt had any operations before and was obv feeling dreadful and terrified of the op, but they were all so sweet to me there. Couldn't fault them. Bupa covered all of it inc a follow up appt a month or so later. Thinking of you.

Having counted back to work out when I mc'd ref my last post, I decided I should be more positive and count forward to when I will be ttc again. That'll be just over 3 eeeks' time seeing as I just ov'd earlier this week.

Back in the saddle again... :)

3 weeks' time. "Eeeks"??! There's a Freudian slip if I ever saw one!!

Suemays - I live in High Wycombe! They categorically said that Bucks would not pay out for ANY fertility drugs. Maybe they've just got the hump as I've gone private for my treatment. What town is your GP in? I may write a letter or complaint.

Mercator I too am getting pains/cramps and I too get freaked out about them. On Sat they were really prominent, quite intense on the righ hand side where I know the sac is attached. I'm told, as everyone else has said that it is due to the cervix and ligaments moving and stretching as things grow. Lets hope so.

Picolina So sorry to hear about your loss. Is this your first MC? My last MC was a blighted ovum (a sack but nothing else). Luckily I insisted my GP (this was before I went private) give me regular HCG counts done so I knew it wasn't viable early on (at week 4/5) and had a scan at weeks 6 and 7 to confirm it. You are going to feel so desperate for a while. Don't think too much about the future yet. Just grieve for now.

Hi Pico I am sorry, its heartbreaking, thinking of you, big hugs x

Picolina, that is so bloody unfair, I am really sorry.

Picolina, so sorry to hear of your loss.

Choccy, eeek does sound like a freudian slip!

Welcome to lisa and greenolives, can't remember whether I've welcomed pebbles or not. Gosh this board is getting busy, I'm having trouble keeping up!

Wow! Iggi, well done on reaching that milestone. I know it's hard to relax completely but I hope you are feeling more optimistic these days.

Battery, are you going to go to FMC for a scan? Try not to think the worst, turn the odds around, there is a 109/110 chance that there isn't a problem. when I had my TS21 pregnancies they didn't even get as far as odds, they knew straight away at the nuchal that there was a problem. You didn't mention them having concerns at the size of the Nuchal fold so I'm assuming your results are based on your age and your bloods more than the Nuchal fold. Fingers crossed that's a good sign.

I have my appt with Mr S to talk about my results on Monday. I may or may not have a scan, depending on when my AF decides to show up as I'm not sure if it will be the last day of my cycle or the first day of the next one. OH's SA came back "acceptable", his morphology was apparently JUST normal (they typed it that way in capitals!), at 5%. I wonder what that means. I'm a bit concerned about the drugs they propose to thicken my lining, if I need them. As far as I've gathered they are oestrogen based and I wasn't allowed to be on the combined pill as the oestrogen was considered risky for people with visual migraines. If they can't scan me on Monday, Louise says they will just check my lining when the do my follicle scan mid cycle in a the next few weeks. Although I can't help wondering if it's a good idea to spend all that money on the Superovulation on a cycle that I don't know I have sufficient lining to sustain

thanks ladies , feel stronger at moment. decided to take a break after all this is over , im going home to australia for a couple of mtsh once im made redundant in april and then come back and try this again in june, i just need to get back to myself a bit. you have all given me a bit of hope, so thanks.

im not sure about the blighted ovum, they did a hgc count at 4 weeks and it was doing what it should 48 hours later and they were happy, does that mean it wasnt?
i called bupa and they said the dont cover anything to do with pregnancy! must be the policy we have at work, crap! i would have felt happier do its at st anthonys .

im hoping i will miscarriage naturally but i dont know how long to wait before i give up ? any ideas, maybe i need to be off the cyclogest for a little while

Pico Sorry Bupa won't cover you, not sure where you live, but you mentioned St Anthonys. I've had 2 ERPC's at St Helier in Sutton and have to say the care I reveived was excellent. My uterus was perforated the second time, that is a risk but the nursing care was amazing including the porter and the HCA's.

Big hugs x

It's all to do with the hormones. I MC naturally about 3 weeks after it stopped growing, but I wasn't on any additional meds then. Perhaps it will take longer for your levels to decrease after being on meds.

Pico, so sorry to hear of your loss :(

lisa thats so good to hear, im in sutton and im worried on doing it on nhs, there are such horrid stories. im going to call st anthonys tomm just to find out how much if i pay for it , then ive decided to try naturally , if i can afford to pay st anthonys is plan b, if not st heliers is plan c

dunnitt this is offically my 3rd since june 2011 but i think i had one a couple of years ago but didnt know i was pregnant and never had a confirmed test.

Picolina just wanted to say how sorry I am and send you a big hug. Its such a horrible time, going home sounds just what you need. Not sure how many weeks you are or if this helps but I had a similar thing. No h/b or pole at 6wks+4days just a yoke sac. Nobody said a anything about a blighted ovum and my hcg levels were very high and as they should be.

pebbles im 8 weeks , but my last sacn was at 6 and the sac has grown but nothing else so may be it stopped earlier ? did you miscarry natrually?

pico sounds like a good idea to go home and try to recover a bit. I hope it hasn't put you off and I;m sure you will be in a better frame of mind after some tlc and time.

coley How did your nuchal go?
Hopeful Good news with your scan, how far are you along it's not on list?
buster are you testing soon?

free, Battery and Igggi brilliant milestones adn hope you have yourself booked in for the more detailed nuchal batt at FMC to put your mind at rest. (god if we don't have enough to worry about!)

sorry if missed anyone out it is maddly busy on here now!

On that subject (and I like to keep tabs on people ) are we still using the google link? It's just helpful to see peoples history.

docs.google.com/spreadsheet/ccc?key=0AtEN_z1FdjUMdHd6c0xCd2JRd3hXVmtTZXROYVE1OGc#gid=0

Pico I can understand you wanting to go to St Anthonys, St Heliers reputation is pretty bad, I work for the NHS in the community and we deal with them alot and they are shocking. If at anytime in the future you want to meet up for a chat and a coffee let me know as I also live in Sutton x