TTC/Pregnancy on Prednisolone or similar part 5

[suemays]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

battery pleased that you're going to bin the doppler! What was the advice on the 1:68 risk? Do they suggest another scan to check on heart development (especially as baby too wriggly) or do they think it's best to do an amnio/CVS to rule it out sooner rather than later? Or is it totally up to you?

battery yeahhhhh , you can sleep tonight, so hapoy for you!

Battery Yey, great news. I don't know what you mean when talking about the heart valve, 1:68 risk. Thats all new jargon to me!

Great news battery, glad the doppler was proved wrong again! So you've had two good signs and one bad? I wonder do most babies' valves just repair by the anomaly scan then? Hope you can relax a bit tonight.

Fab news battery been nervous for you today!! yes what's the advice on heart valve? thank god you can relax a bit. Seems like the dopplers are more stress than it's worth at this stage but can completly understand wanting to keep checking.

Good news Battery. You've been in my thoughts today. I'm also curious to know what they suggest about the heart valve. What are the implications?

Yay battery. I was thinking of you today, hoping for good news. As digi said, do you have to go for more tests to keep an eye on the heart valve? I don't know anything about it I'm afraid but presumably good that it's been spotted now?

hello everyone and thank you for your wishes and thoughts xx

The Dr didn't really advise me any way. He actually said my bloods were not too bad - one was up but the other normal. The thing with the heart is a triscupid regurgitation. Which can be a soft marker for downs. However, all the other signs were good. I will have to chat to dp about next steps etc.I am not too worried - I was just so relieved to see that babe was still alive!!
Am very tired though so will do a proper name check etc tomorrow xx Thanks again everyone xx

That's fab hen! X x x

just need some info..
st anthonys adv £1500 for erpc inc everything which i may do if natural doesnt work out but i dont want to be caught out again, im looking for private medical that covers this sort of stuff, any advice? my hubbys with prudential and hes going to check whats covered before he adds me to it but there is no point if it doesnt cover pregnancy stuff.

Sorry Pico, don't know anything about health insurance. I'm just amazed anyone could pay that much for an ERPC when it's available on NHS! I'm not sure how insurance works if you have a pre-existing medical condition, poss they might charge more or not cover that. Hope you're ok.

pico my Bupa covered ERPC at St A's and my initial tests with Dr S... It must depend on the level of cover you have. Also, there is likely to be a lead in period often one or two years where it won't pay for things arising from issues in the last x years, or any pre existing conditions. Depending on what questions you are asked in the application form, you may now find you have to declare mc's and that you can't get cover for mc/pregnancy issues. Worth investigating though and it may be cheaper to add you to dh's cover.

I think at the end of the day it depends on how much money you have (or how much you are prepared to pay out on all this, which isn't necessarily the same thing!) compared to how you feel about waiting for it to happen naturally or for an nhs ERPC. It's the psychological not just the physical I always think.

Pico I know you said bupa said no but I have dealt with bupa a lot and sometimes you strike someone (usually young chap) who
who lumps mc under the pregnancy exclusion when it is actually a separate section in the policy and usually covered. If you can bear it, it might be worth calling again to check that erpc is not covered (and ask them to read out the relevant wording and f necessary speak to a supervisor). From experience, I know they won't cover the scan to check that the pregnancy is definitely non viable but on my policy the cover kicks in once the pregnancy is
defintiely over (sorry to be so blunt)

Just wanted to say all this before you hand over wads of cash.

Hi to everyone else, it's Friday ! Yay!

My "best" mc experience was my erpc in local hospital, only waited 2 days for appointment and they carried out tests for me and were generally very nice. You are home the same day too.

igggy suppose it would depend on the nhs hospital , i dont think i should have to pay for it but i want the best care , i dont need any more complications, anyway hopefully its all going to be natural
choccy thanks will keep that in mind,
pq77 we checked my policy as well and it said nothing to do with conception and related is not covered, problem is once i leave bupa with my comp when im made redundant, anything that has happened to me during that time is considered existing problems even if i join bupa again.

You got lucky iggi... I was told I had a two week wait for Epsom hospital (my local epu) or could take my chances at St Helier one week later by turning up at 7.30am and wait in a room with any number of others having erpc's or terminations, but with no guarantee of being seen. Hence dh taking control and sorting out Bupa so I had the ERPC less than 36 hours after the scan. IMO it was a no brainer decision.

X posts pico. You should be able to get Bupa to give you continued cover when you leave employment ie that you take it over directly. Obv there's a cost but it'll avoid you being caught by pre existing conditions when you join again later. Just another thought!

Morning ladies - just chiming in on the BUPA debate. I found if I spoke to a woman at BUPA they were always way more accommodating, and it got to the point that if I rang and a chap answered, I hung up, waited a bit and redialled till I got a woman! Nuts, but true.

As for cover extending after employment - my company just changed healthcare providers from BUPA to Cigna wef 1st Jan, and I phoned BUPA to ask if I could bring my company policy into a private one, keeping all the Ts & Cs etc, so that I could have continued coverage with BUPA if Cigna turned out to be less helpful. BUPA told me this could not be done, and that I would have to take out a new private policy - and that the things I had been covered and treated for up to 1st Jan would not then be covered as they'd be considered pre-existing conditions ... ! Absolutely crazy :(

Mind you - as PQ says - it often depends on who you talk to at BUPA, as to what answer you get. Worth ringing and asking again - stress the point that you are no longer technically pregnant (sorry, just to get through to them) and they do state in their Ts & Cs that miscarriage is covered. Well it did in my policy, of course others may be different :(

Morning everyone. Had a scan this morning. Mixed results. Good strong HB, but had only grown 2.3mm since last Fridays scan and the guy said he would have expected it to have grown by more like 5mm.

So not sure what to do with all that really. Gave blood sample for prog and my consultant will look at the blood/scan result and give me a call later.

Now I'm back at my desk and my head is all over the place. Why can't anything be straight forward.

dunnitt Nothing is straight forward for us! I would hold on to the fact that you saw a good HB. My sonographer has said in the past that growth at this stage is very varied. When is yor next scan? Your babe just might be a lazy slow grower :)

I am with bupa, and they did say they didn't cover pregnancy but would cover complications due to pregnancy.

Hope everyoen is gearing up for a good weekend :)

battery, that's great news about your scan. Don't forget that symptoms do fluctuate, especially from 13 weeks! Oh and free, the inflating and de-flating bump is probably something to do with your little friend shifting positions. Think of it like the lump under the duvet that you see when you look at your DH in bed. Flatter if he's on his back or side, not so much if curled up on his side!

Yes, I was going to say that about pre-existing conditions. It's my understanding that health insurance companies will only cover you for stuff like ERPCs if you are already a client but they would most likely exclude treatments for pre-existing conditions or circumstance from your cover if you are taking a new policy.

I am with UCH in Central London and have always had my ERPC appointments within a few days, if not 24 hours, of confirmation of MMC. I've had pretty good care from them too. I know my tales of scarring are scary but I think this is a risk with any intra uterine surgery, whether private or NHS. The consultant who did my recent scan to discover the scarring said that it was most likely incurred from having an incomplete termination - which was carried out at Marie Stopes Clinic, not UCH (even though it was UCH who outsourced the procedure).

I'm having cramps today and praying that my AF doesn't decide to show up extra early, otherwise it means I will have to wait another month until next cycle for my first Superovulation, which will be a big pain in the backside.

PQ how r u? What dpo are you now? When r u testing and are u feeling anything?

Hi dunnit I'd hold on to the good news about the heartbeat. When things have gone wrong (and right) with me the speed of the heartbeat was the key thing. Thinking of you.

How are you today pico? And battery?

duggs I only got a smiley face on mon day 16 and reckon I ov'd Wednesday (day18). Thought I would be oh so clever and take 5mg pred mon and tue and went up to 25 mg on wed (cos I think the pred delayed me ov last cycle). So no symptoms or anything yet of course and will test 19 feb. Just REALLY HUNGRY from the pred. You must be testing sooner though - come on, tell us all the symptoms

And can I just have a moan - got a £40 parking ticket today for turning up 5 minutes after my ticket had expired. So f*ing furious - the guy was sticking it on my windscreen when I arrived (but it was affixed to the car so I can't pull out any crafty lawyer arguments - I know it's a strict liability offence so i'll just have to lump it). To add insult to bloody injury i was buying yet another baby present and I was dithering over what card to buy which was why I was late back to the car. Grrrrrrrr.

Dunnitt I agree with the others that it could be a slow burner but I should imagine you are going out of your mind.

Battery keeping my fingers crossed for you too that all will be OK with your little bean. Such a worrying time that it makes me wonder if I ever want to get pregnant again at all!

Going back to the Bupa discussion - I know insurance companies don't cover you for pre-existing conditions as you have to list everything (we are in the process of joining with DHs work). I contacted all of the large insurance companies before we decided to join Bupa and none of them would cover me for investigations into infertility (which RM's are classed as). As someone else said on here - they do normally let you have an ERPC though but again there is a qualifying period where you can't claim for around the first 6 months!
My local hospital have been fine with my 2 ERPCs so I guess it depends on where you live.

PQ what a pain about getting a parking ticket - can you try and get out of it?

dunnit are you with Dr S ? If so it might be worth mentioning to him.. am sure it isn't anything to be concerned about, however, I remember free saying Dr S told her off for not updating him on anything that is remarked at the scan a little out of the ordinary? Just a thought. You could email Louise and she will pass on.

PQ well...It all happened a bit quickly this month after op. Went for mid ov scan CD9 and was told to trigger there and then and back in CD10 for IUI. That was last friday so I am now 8dpo. I was also told to start my progesterone supposetries (I think is standard part of any fertility treatment like that). So I've been popping the pred, the metformin and the progesterone this week. I have caught the cold thing going around and feel rubbish. I have lower back ache, cramps and twinges and feel a bit nauseaous, but I've been at this game long enough to know that could be anything.. most probably the concoction of drugs I'm on.

Was told to test 15 days post IUI which is saturday 18th Feb.. but I can't take pred until then really so I will be testing middle of next week I guess.

Does anyone know if the progesterone makes them feel this way ?
waves to all and an extra hug to pico you are an impressive woman.