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Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

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Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Chronic pain

Chronic pain Cafe - support thread #3 All Welcome

989 replies

Akire · 27/11/2021 12:09

New shiny thread to get us through December & Xmas and possible New Year!

This thread is for anyone who has days , weeks, months at time when get chronic pain flair or lives in pain constantly. There are so many conditions that have pain and often limited understand of how it feels to be living with it. Everyone is very welcome

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HerRoyalHappiness · 27/11/2021 12:13

Thanks for the new thread @Akire

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BackInBits · 27/11/2021 15:05

Thanks for the new thread @Akire. Baby and I are going home to the West of Ireland today. My husband's collecting us.

I've a little bit more back pain today, but I think that might be from the facet joint. The steroid should be kicking in in a day or so.

My face is a bit flushed and I'm so hungry, but it's a small price to pay!

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Akire · 27/11/2021 15:13

That’s lovely have you been staying closer to the hospital? Safe travels hope weather has calmed down.

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BackInBits · 27/11/2021 15:41

My parents live in Cork and I vaguely know the pain management consultant from my student days, so I stayed there for a few days. Can't wait to get home to the cats and my own bed now, though!

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ndo4000 · 27/11/2021 18:02

Hi everyone!

Thanks for making a new thread @Akire

Hope everyone has had a good day today? I've been making play dough for one of my lessons this week. Very therapeutic!

Has anyone here tried CBD oil before? One of my friends recommended it to me.... thoughts?

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SpindlesWhirl · 27/11/2021 18:04

I've tried CBD oil but unfortunately it didn't work. I'm seriously thinking about upgrading to THC.

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Akire · 27/11/2021 18:12

I’ve tried it high strength 6000mg boots sell high strength that’s about 1500mg so names mens nothing. Can’t say it’s a miracle but took it am and on for about 6 weeks and didn’t really notice a change. Will use the rest of the bottom up though. Think others have had more success with the THC but I’ve been to chicken try!

To much Tv so ready for bed now

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Akire · 27/11/2021 18:12

*bottle not bottom!

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bicyclesaredeathtraps · 27/11/2021 18:17

Hello, can I join? I'm usually terrible about staying on these kinds of threads. But chronic pain is doing my head in, so I thought it would be nice to meet others.

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Akire · 27/11/2021 18:30

Hi of course you are welcome we have group regulars but also people who pop in now and again just to scream when gets to much!

We only had these boards since mid August so still getting to know everyone. What sort pain gives you most trouble? Or is it combination of conditions?

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HerRoyalHappiness · 27/11/2021 18:36

My date went well.
Hes so lovely. I offered to pay half of the meal and he told me not to be silly.
We're meeting again next Saturday. He said he can't do the Saturday after as he's out with work for their Christmas do. I laughed and told him that's fine, he doesn't have to explain himself!

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fairycakesandtea7 · 27/11/2021 18:38

Hey! I have arthritis and nerve pain, as well as chronic inflammation in my achilles. Have had surgery on my ankle nearly 4 months ago which has exacerbated my nerve pain!

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ndo4000 · 27/11/2021 18:42

Hi @bicyclesaredeathtraps! I'm new here too, but everyone has been really lovely on here.

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iklboo · 27/11/2021 18:44

May I please join? Two protruding discs at L3/L4. One is impinging my sciatic nerve on the left hand side. Also osteoarthritis in my left hip.

Currently on tramadol and I take an amitriptyline as well at night to help me sleep. CBD oil didn't help me at all but the Voltarol (Voldemort) gel takes the edge off a bit.

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SpindlesWhirl · 27/11/2021 18:45

I have psoriatic arthritis and osteo-arthritis, and other auto-immune conditions. I'm not coping very well at the moment and the side-effects of the medications (weak immune system) mean my life and my world has become smaller and smaller as covid becomes bigger and bigger.

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Akire · 27/11/2021 18:55

@HerRoyalHappiness

My date went well.
Hes so lovely. I offered to pay half of the meal and he told me not to be silly.
We're meeting again next Saturday. He said he can't do the Saturday after as he's out with work for their Christmas do. I laughed and told him that's fine, he doesn't have to explain himself!

He does sound nice, once a week dating gives you time to recover with limited energy as well.

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Akire · 27/11/2021 18:58

@iklboo

May I please join? Two protruding discs at L3/L4. One is impinging my sciatic nerve on the left hand side. Also osteoarthritis in my left hip.

Currently on tramadol and I take an amitriptyline as well at night to help me sleep. CBD oil didn't help me at all but the Voltarol (Voldemort) gel takes the edge off a bit.

Hi @iklboo welcome to the thread back pain is so nasty. I hurt mine for 2months and it felt like it would never heal. It is much better now though lucky for me. Are you just about managing in the day or are you really limited on what you can do?

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Akire · 27/11/2021 19:02

@SpindlesWhirl

I have psoriatic arthritis and osteo-arthritis, and other auto-immune conditions. I'm not coping very well at the moment and the side-effects of the medications (weak immune system) mean my life and my world has become smaller and smaller as covid becomes bigger and bigger.

Nice to see you @SpindlesWhirl I’m glad at least Boris is bringing mask back for shops in a England. Even though many will be complaining about one minor inconvenience. I’ve not been anywhere really for months still meeting friends outside once a week. Not that I did huge amount before but still takes away your quality of life.

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sweetkitty · 27/11/2021 19:19

Thanks for the new thread @Akire

The neurologist I saw for my migraines wasn’t very helpful at all, he said I was taking too many sumatriptans too but I can go weeks without taking one then I need maybe 4-5 in a week it just depends. He said I’ve to go cold turkey and have a migraine without them. Sorry but no I’m not spending 2 days in bed unable to function, eat, drink or talk when there’s something that may help. I’ve toyed with Botox too even paying private. Speaking of which I’m getting my new mouthguard to stop me grinding my teeth at night to help with TMJD. What the specialist did say is try and wear it as much as possible during the day too erm no 1) I have a job where I speak all the time and 2) my life is hard enough, my body already feels heave and sore without having a mouthguard in my mouth too

Sorry to rant but it just does seem like one thing after another doesn’t it? I’m interested in a TENS machine now some of you are using them for pain I’ve never used one before? Wondering if it would help? You know what it’s like you’ll try anything.

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Akire · 27/11/2021 19:34

I’ve had one 15y used to be mainly period pain but then used all over. They are much cheaper now than used to be. Mine is about £70 but same make always used and I can feel the buttons and turn it on at night or with eyes shut in migraine to restart a programme or change strength. Without having to open eyes or turn lights on or glasses which is major biggy for me.

The cheaper ones have digital displays which puts me off. I know someone said other day have to charge theirs. Mine is just 2xAA batteries so can just change and no delay.

Is neuro happy about 4-5 a month and it’s just using so close that’s problem? Would they not recommend botex for you? Or do NICE guidelines mean you practically have them everyday first?

Just having some reached the point in evening when I’ve had ENOUGH so toast the new thread if you have any to hand. Thanks help keeping me sane

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iklboo · 27/11/2021 19:41

@Akire - I can manage most days unless I've over exerted myself, then it bloody locks up and I have to lie down until that eases, then gently start moving it again.

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iklboo · 27/11/2021 19:42

I have a TENS machine. They can be really helpful but my pain is sometimes in a weird place I can't put the pads on.

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Worrysaboutalot · 27/11/2021 19:51

Thanks for the new thread @Akire

I am having a good day today pain wise, may it long continue!

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frazzledfragglefromfragglerock · 27/11/2021 20:35

Hi, new to the thread. I have rheumatoid arthritis and probably fibromyalgia but still
Jumping through the hoops for a diagnosis!!

I was having a good day today but then did a food shop!

I was taking CBD which I thought helped but I think I was just having a good few weeks tbh as it makes no difference now!

Other than that I have a low dose of amitryptiline which does nothing really. Have a review in a couple of weeks.

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Akire · 27/11/2021 20:38

Hi @frazzledfragglefromfragglerock what a name lol we are our own worst enemies some times when we do to much. Not that is often much choice. Hope you find thread helpful

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