Chronic pain Cafe - support thread #3 All Welcome

[Akire]

New shiny thread to get us through December & Xmas and possible New Year!

This thread is for anyone who has days , weeks, months at time when get chronic pain flair or lives in pain constantly. There are so many conditions that have pain and often limited understand of how it feels to be living with it. Everyone is very welcome

That sounds much better idea of said cat will get in it. Had nice time friend in end but feel like being on round trip to Australia.

i finally have a neurology appointmetn and its in march! hurrah!

That is good news not to far it’s nearly February. They do seem to be leaving appointments till last minute I’m sure this works better. Years ago you get them like 6months in advance not sure how many they lose by you forgetting that was before the txt you week before services.

Woohoo at last one

@OneNightTimeMenaceStrikesBack

i finally have a neurology appointmetn and its in march! hurrah!

Brilliant news!

@Akire

That is good news not to far it’s nearly February. They do seem to be leaving appointments till last minute I’m sure this works better. Years ago you get them like 6months in advance not sure how many they lose by you forgetting that was before the txt you week before services.

Hope you enjoyed coffee out with your friend. It really does take some deciding about whether these things are worth it doesn't it? Hopefully it was

Yes it is, sometimes you make
The wrong call but when body is rubbish a best guess it all you can do. Pain has settled this afternoon so feel like can take some deep breaths. You don’t resize how much shallow and shoulder holding breaths you do. Hope everyone has decent evening

@OneNightTimeMenaceStrikesBack

i finally have a neurology appointmetn and its in march! hurrah!

Excellent news!!

I've been asked to book a GP appointment for pain relief review. They can't fit me in until March though. Crazy.

Pain relief “review” as in we care that we are managing your pain or “review” sim
Is take Off as many drugs as possible regardless Of pain levels?

@Akire

Pain relief “review” as in we care that we are managing your pain or “review” sim Is take Off as many drugs as possible regardless Of pain levels?

Haha now there is the million dollar question!!

I'll let you know when I know!

Suggestions for name
For 4th thread chronic pain… drop
In something!

How is everyone’s Saturday going?

I'm day drinking. Kids aren't due home until after 5 so fuck it

Sounds a half decent plan! Needs must

Exactly. If it helps numb the pain I may as well

Hi everyone,

Hope you don't mind me dropping in. I've had a restless nights sleep and I'm struggling a bit.

Some of you may remember me as I posted a thread some time ago.

I'm a twenty eight year old woman awaiting a possible fibromyalgia diagnosis.

For the last few months, I've just felt like I'm drowning slowly. I'm just in constant pain every day and all I seem to do is sleep or be in pain. My mental health is suffering because I just feel so low. I'm Currently on Amitriptyline and sertraline, which has helped a little.

I'm engaging with my doctors (GP surgery) but the doctor who's took over my case there has been very vague. I've been ringing up begging for answers, but it's all 'well, we can't tell you.' I'm just getting so frustrated, and I don't know whether I'm coming or going.

Thank you so much for reading. I'm so glad I found this thread ❤️

@OnwardsEverStridingOnwards rant away, it's utterly shit how we are treated by doctors and nit told things. I'd insist in seeing your medical records to find out what's what

Welcome @OnwardsEverStridingOnwards

I sympathise as I have had another restless night too. Just sat in my dressing gown waiting on painkillers to work enough for me to start work.

@HerRoyalHappiness

I'm day drinking. Kids aren't due home until after 5 so fuck it

Don't blame you!

Hi @OnwardsEverStridingOnwards
Sympathies. I had a crap night too even with amytriptiline. Not so much pain but just general agitation and anxiety.
Back in bed to try and nap now.
I have to ring GP for an appointment tmrw.
DREADING IT

Thank you @TheDoveFromAboveCooCoo and @HerRoyalHappiness. 😘😘 I'm seeing another GP tomorrow who apparently knows about neurology. 🤞🏻 I get some answers.

@TheDoveFromAboveCooCoo hope you feel better soon ❤️

@wildthingsinthenight

Hi *@OnwardsEverStridingOnwards* Sympathies. I had a crap night too even with amytriptiline. Not so much pain but just general agitation and anxiety. Back in bed to try and nap now. I have to ring GP for an appointment tmrw. DREADING IT

@wildthingsinthenight 👋

I understand how you feel. GP's are shit at the moment. Some of them just don't seem bothered 😕😘😘

@OnwardsEverStridingOnwards

Thank you *@TheDoveFromAboveCooCoo* and *@HerRoyalHappiness*. 😘😘 I'm seeing another GP tomorrow who apparently knows about neurology. 🤞🏻 I get some answers.

@TheDoveFromAboveCooCoo hope you feel better soon ❤️

*@HerRoyalHappiness* just trying to tag you properly. 🙂

Hi again @OnwardsEverStridingOnwards it’s so hard isn’t it. On Tv doctors love a mystery and not stop till they find out what. Back in real world of can’t diagnoses you first off you may eventually get referred for some test but when it’s all vague nobody wants pick up Baton for you. Doesn’t help If you see different GP each time. Mine has revolving doors locums.

@Akire

Hi again *@OnwardsEverStridingOnwards* it’s so hard isn’t it. On Tv doctors love a mystery and not stop till they find out what. Back in real world of can’t diagnoses you first off you may eventually get referred for some test but when it’s all vague nobody wants pick up Baton for you. Doesn’t help If you see different GP each time. Mine has revolving doors locums.

@Akire I remember you 🙂 how's things going?

Yes that's very true 😂 the original doctor dealing with my case has just been putting me on a bit of a merry go round- doing about six blood tests and going 'well, it's not that.' I'm just like 'well, what is it then?!'

It's a bloody minefield 😟