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June 2014 Bus for those with RMC issues

408 replies

NorahVanstone · 04/10/2013 09:58

Hello everyone, welcome to our new hopeful but slightly paranoid bus!

NorahVanstone edd 6th June, 4 previous MC

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IBelieveInEngels · 29/10/2013 20:24

Oh Jen I'm so sorry Thanks

London hope you're taking care of yourself too. I think it's a different process for (some) men to go through. When I could physically feel the mc and the bleeding, it just ripped me up. DH was the same as yours, though I know he's hurting too and was just trying to support me in his own way.

seat hope your scan went well.

tiny will be thinking of you tomorrow.

Tins I didn't even know there was a mc board. Was expecting it to be in conception, but tucked away under body and soul. Don't know if I will be headin g down testing road - will all depend on what happenes next for me. This is my 2nd mc - the 1st was 2 months before I got pg with DS. Reckon it has to be 3 before you're considered as RMC? (though I'm not in UK so may be different). Sorry for babbling Confused

PJen · 29/10/2013 20:38

Thank you for all your nice words ladies. It does help to talk about it with someone and know that you are all there.

I have had any possible RMC tests on the planet, including sending my blood monthly to California for the immunology testings that are very controversial and not all doctors believe in. I will do a repeat test of the immune testings this week to see if immune attacks are too blame for loss of this pregnancy (NK cells or heightened antiphospholipid antibodies). I was on IVIG, LIT, Progesterone, Clexane, estrogen, synthroid (for mild hypothyroidism), baby aspirin, and 5 mg folic acid for this pregnancy. I feel as if I have reached the end of my way as I am not sure what to do to not miscarry again. :(

Bakingtins · 29/10/2013 21:35

engels I think the Mc board is hidden away lest we offend the pregnant people, but there is a lot of support there. Officially you have to be 3-in-a-row to qualify for RMC testing, but there's some discretion there. I went private after 3rd MC but only 2-in-a-row, but GP did most of the testing consultant recommended which saved us a fortune.
Jen I have high NK cells too and this is my first pregnancy on steroids. I don't know what more you can do or how you decide when to call time on it. It's heartbreaking to throw everything at it and still lose.

lucyfluff · 30/10/2013 07:01

Im so sorry pjen to hear your news pjen Sad

lucyfluff · 30/10/2013 07:01

and my typing is not making sense this early lol!!!

LondonSuperTrooper · 30/10/2013 11:03

Jen I'm so sorry. I really don't what else that I can say as no matter what I say your heart will be breaking. Look after yourself and hopefully you'll have the support that you need.

Tiny hope everything is going to plan this morning. I'm thinking if you.

I've found the RMC bus on and I've tentatively joined the thread asking for advice. Somehow I don't think that having 2 miscarriages qualifies for any testing on the NHS but I'm 40 on Monday & I feel that time is not on my side. My DS keeps asking for a sibling and why is it that God is not listening to our prayers. I'm at a loss as to what to say to him. I'm so grateful that we didn't tell him that I'm pregnant.
Also, I'm due to have my scan at 2.30pm and I really do not want to go. I know that I'm miscarrying and do not need the scan to confirm that.

LondonSuperTrooper · 30/10/2013 11:06

I hope that my post makes some sense. My head is sliver the place and it's hard to think clearly.

My sister in law is having her baby showe in 2 weeks time and my mum & DH think I should go. I really can't face it and they think I'm being selfish in not wanting to go... Plus it'll be rude. Am I being selfish for wallowing in my own misery? I'm happy for her but she's so blooming smug!! And I can't face it at all.

LondonSuperTrooper · 30/10/2013 11:07

Silver should read all over!!

hackneybird · 30/10/2013 11:30

SO, so sorry Pjen. Thinking of you.

London, I am quite shocked that your Mum and DH think it is you that is being selfish in not wanting to go to your SILs baby shower. How incredibly unfair.

LondonSuperTrooper · 30/10/2013 12:11

Hackney I guess it's all to do with keeping up appearances & not upsetting my brother & his wife. My DH and parents are the only ones that know about the pregnancy.

Thank you for your support. It really felt like I was ring unreasonable. It's good to know that I'm not alone in thinking that.

LondonSuperTrooper · 30/10/2013 12:12

Ring should read being. Sorry for all the typos today. I guess I'm nervous about the scan. I know it's going to be bad news given my heavy bleeding. But I'm still very nervous.

Penguinita · 30/10/2013 12:41

Sorry to hear your sad news pjen. Sounds like you have really been through a lot so make sure you give yourself time to rest and recover emotionally before worrying too much about what to do next.

Hoping your scan will at least give you a definite diagnosis london, and maybe some hint at a cause. You are so not being selfish for avoiding the baby shower! Surely your SIL wouldn't want to force you through that and have you sitting miserable and red eyed through her happy occasion.

We had to tell our landlord and his wife that I was pg this week as they wanted to come round and paint the house, but I need to avoid the fumes. More people know now than last time around, really hoping that won't jinx it Confused

PJen · 30/10/2013 14:07

baby showers are from hell. Feel free to avoid them London.

Thank you ladies for all nice words. :)

PJen · 30/10/2013 14:07

London good luck. I pray from bottom of my heart that you get a miracle good news.

hackneybird · 30/10/2013 15:56

I have never been to a baby shower. I don't seem to move in those circles. Am quite pleased about that!

TinyTear · 30/10/2013 17:06

Hi London stay strong and avoid the blasted baby shower. On my first one I had to tell someone at work I could not go and buy a baby present for a colleague as I would break down in the shop.

Had my erpc. Not till 11am and I was getting tired of waiting. Feel slightly at peace but won't go to work until Monday or Tuesday.
Now waiting for my husband to collect me , but as it was later than expected he is getting our daughter from the nursery first.

Rest day at home tomorrow.

seatfor5 · 30/10/2013 18:41

My scan went really well baby measuring 6+6 (which agrees to fertility friend bar 1 day) and the heart is beating.

So sorry to hear your news Jen am so hoping its good news for london

Penguinita · 30/10/2013 18:55

Lovely news seat, congratulations.

Look after yourself tiny and take it easy.

Bakingtins · 30/10/2013 19:01

Good news, seat hope everything goes smoothly from now on.

PJen · 30/10/2013 20:22

Lovely news seat

I know what you mean with feeling at peace Tiny :(

London where are you? I am dying from anxiety to know how your scan went. I hope it is good news and celebration that is keeping you from posting.

We need some more good news, otherwise all the new comer will run away from this thread!

IBelieveInEngels · 30/10/2013 20:55

Tiny and london - have been thinking of you both today.

Great news seat.

LondonSuperTrooper · 30/10/2013 21:33

No it's not good news that's keeping me silent. Scan showed that the embryo and sac have grown since last week but no beating heart. I am having a miscarriage but everything is still intact inside me.

Midwife said that as I've started bleeding to let nature take its course. I've got another scan in 10 to make sure that there is no residue etc. if there us then I'll have to have medical management whatever that is.

I had a major fight with my husband as he has gone and told my entire family about my miscarriage. I can't understand why he did it as they are not supportive. He's being an utter brat as I told him I needed some time just by myself and didn't think that this was healthy..... So he bloody toldy entire family!!!

All in all it's been a pretty shitty day. Sorry for the bad language but I haven't got the energy to sugarcoat what I'm feeling.

LondonSuperTrooper · 30/10/2013 21:34

Seat, good news on your scan. You must be thrilled. Wishing you a healthy and successful pregnancy.

LondonSuperTrooper · 30/10/2013 21:37

Forgot to share my good news. I'm bring referred to the RMC clinic. So hopefully I can start getting some answers and hopefully I won't be in the unexplained category. At least now I don't feel do helpless. I'm going to see the GP tomorrow for the referral and also to be signed off for the next week or so.

LondonSuperTrooper · 30/10/2013 21:37

Bring = being!