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Bereavement

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Eris' thread for bereaved mummies

1000 replies

feedmenow · 16/04/2008 16:28

OK, so the thread begins! I tried to think og something better to call it, but all I have in my head (still) is Shabsters comment about how it would have been better if we'd all met on a thread called 'how to cope with excessive wind'!

Anyway, we have somewhere to come now. Somewhere 'proper' where we can chat and remember our precious lost children, whether they were stillborn like my angel, or whether they were with us for 2 hours, 2 weeks, 2 months, 2 years or 20 years. No matter how long they were here it is still so very wrong to lose a child.

I just wanted to tell you all about yesterday. It was such a very strange day. Dp and I were collected by the FD in the limo that Eris was in and we drove slowly down our road behind one of the FD men. I felt like a fraudster, like I was going to be caught out and asked what the hell we were doing 'playing' around.

Anyway, it turns out that the crem we went to is absolutely beautiful, really gogeous gardens. The service was lovely. The songs and music we chose were perfect, and both my mum and mil got up and said some really touching, beautiful words. The minister read a story I had chosen and also an extract from Winnie the Pooh that he suggested. I sat with my dd1 on one side and my ds the other, then dp next to him. We all had our arms around each other and I cried silently throughout. Then at the end the minister asked everyone else to leave so the 4 of us could say our final goodbyes, at which point I started weeping with a vengeance. It wasn't til we went outside to join everyone else that I saw all the people who had come to be with us.

We went back to my parents house for brunch, which went really well. I come from a family who crack open the wine and beer at the earliest opportunity, so the wine flowed along with the tea and coffee for the drivers. It was a beautiful day, the sun shining, so we went into the garden. The children and the men played football, the ladies chatted and did a bit of skipping (who would have ever known that I could still 'jump in'???. I had got some helium balloons printed with the words "Too beautiful for earth..." so everyone released one and 'raised a toast' to Eris. People gradually drifted off home, but a group of people stayed with us all afternoon and into the evening. We had takeaway and eventually got home about 10pm. It was a very special day. I talked about Eris lots and, very importantly, people had fun. A very important thing to do, IMO, when celebrating a life instead of mourning a death. As people left I asked them all to be sure to remember my little baby girl, to think of her often and not let her be forgotten.

Dp and I set up a fundraising page to raise money for SaNDS for people to make donations instead of brining flowers. When I checked earlier today, we have had donations of £1360! It makes me sad that we're in the position to have received those donations, but we smile when we realise how much people care.

Anyway, dp went to the FD this afternoon and picked up Eris' ashes, so we at least have now brought our daughter home. It raised a few laughs yesterday when we were asked what we planned to do with the ashes and I said we would bring her home and put her in the wardrobe with nanny (whose ashes have been in my wardrobe for 2 years now!). Some might find this odd, but others thought it touching and comforting that they would be in the wardrobe together.

Anyway, I have wittered on more than I intended. I am pleased to say that I do actually feel a sense of peace now that the funeral is over. Both dp and I had been scared of yesterday as we were both aware that a funeral brings about a finality and reality to what has happened. And somehow, facing that finality has helped me achieve a degree of acceptance.

So, in memory of my precious baby daughter, Eris, I would like to pronounce this thread for bereaved mummies "OPEN"!!

OP posts:
Saturn74 · 16/04/2008 16:39

What a lovely post, feedmenow.
I'm so glad that you feel a sense of peace, and that you were all supported and cared for yesterday.
Eris' thread is a wonderful idea - a lovely reminder of a beautiful baby girl.

hazygirl · 16/04/2008 16:42

she is a lovely little angel, big hugs x

cece · 16/04/2008 16:43

Don't know what to say FMM but your post has made me cry.

Reading about saying goodbye to Eris has reminded me so much of our goodbye to Hope. It really is lovely (wrong word but you know what I mean)at the crematorium isn't it?

I am glad you have found some degree of acceptance.

NorthernLurker · 16/04/2008 16:47

Great post FMN - I so pleased you had such a day - celebration and mourning all mingled. I was thinking about you and Eris yesterday and it seems to me to be a very wonderful thing that a life so small can make such a big impact. That's the power of love isn't it?

All the best to you and all the brave, lovely people on your thread who will join you here and support one another.

shabster · 16/04/2008 16:51

What a wonderful, wonderful day!! I know that you will realise that is a heartfelt statement. I knew the sun would shine...I just knew it. So glad you remembered how to 'jump in.' So glad it was a 'thanksgiving' day. Eris would have been so proud of you all for both your tears and smiles - balloons, loved ones, skipping, games - there are folk who live to be 100 who dont get a 'send off' like that

I can imagine Eris, my boys, and all the much loved children that have been mentioned on our threads watching over us and saying 'WOW Eris they are rejoicing for you.' I bet they had games as well - knowing my Matt he would have wanted a few rounds of kiss chase!!

So proud of you all - big hug for your DC and (Im getting much too familiar with this young man) massive hug for your DH! Hug for you as well my darling. [proud emoticon]

walkinlikeacowboy · 16/04/2008 16:54

What a beautiful post FMN.

I'm glad it went OK. Finn's funeral was very similar, DH, DS and me sitting holding each other. I too cried silently all the way through until the end when the coffin was covered and then I truely sobbed. He is playing in heaven now with all the other angels and probably causing as much mayhem there as his big brother does here - well thats how I like to think of it anyway.

Closure/peace for me was getting the post mortum results but I hope you find peace in the best way for you and your family and allow yourself to grieve - I'm not sure I have yet.

Yvonne xx

amyjade · 16/04/2008 17:55

FMN, i'so glad the day went by peacefully. It's nice to think of Eris in the wardrobe next to nanny xx We have reserved the buriel plot next to Freya for whoever goes next in out family(elderly relative hopefully) to keep her company. Strange for some people but comforting for us bereaved mummy's.

Such a good idea to start this thread as there are often times i need to chat to someone who understands.

Well i will start by telling you my story.
On the 16th April 2005(today is the 3rd
anniversary ) my 19 month old daughter Freya died from Pneumococcal Meningitis.
She had spent 10 days in PICU fighting this awful disease before she was transferred to Naomi house children's hospice where she died tucked up in bed between me and her Daddy.

After her death we found out that there was a vaccination that could have prevented her death but it wasn't yet introduced in this country. We did numerous interviews on the Tv and in magazines and newspapers to raise awareness of the importance of this vaccine. Thankfully in september 2006 in was introduced to the uk immunisation programme but sadly too late for Freya.
HERE

We have come along way since Freya's death but there are days like today where it hits home how much we miss her and what all of us went through 3 years ago today.

Dear Freya,

Our hearts are filled with memories
The sound of laughter's ring
You've moved on to your final rest
A place where angels sing

A land where flowers never fade
Where little children play
They say true love will never die
We'll meet again some day.

We little knew that day,
God was going to call your name,
In life we loved you dearly,
In death we do the same.

It broke our hearts to lose you,
You did not go alone.
For part of us went with you
The day God called you home.

You left us beautiful memories,
Your love is still our guide,
And though we cannot see you,
You are always at our side.

Our family chain is broken,
And nothing seems the same,
But as God calls us one by one,
The chain will link again.

amyjade · 16/04/2008 18:04

SAY HER NAME!

The time of concern is over. No longer are we asked how are we doing. Never is the name of our child mentioned to us. A curtain descends. The moment has passed. Her life slips from recall. There are exceptions, close and compassionate friends, sensitive and loving family. For most, the drama is over. The spotlight is off. Applause is silent. But, for us the play will NEVER end.

The effects on us are timeless. Say HER NAME to us. On the stage of our lives she has been both leading and supporting actress. Love does not die. Her name is written on our lives. The sound of her voice replays within our minds. You feel she is dead. We feel she is of the dead but still she lives. She ghostwalks our souls, beckoning in future welcome.

You say she was our child. We say she is. Say HER NAME to us, and say HER NAME again. It hurts to bury her memory in silence. What she was in flesh is no part of our now. She was our hope for the future. You say not to remind us. How little you understand; we cannot forget. We would not if we could.

We understand you, but feel the pain in being forced to do so. We forgive you because you cannot know. And we would forgive you anyway. We accept how you see us, but understand you see us not at all. We strive not to judge you, but we wish that you could understand that we dwell in both flesh and in spirit. The mystery is that you do too, but know it not.

We do not ask you to walk this road. The ascent is steep and the burden heavy. We walk it not by choice. We would rather walk it with her in the flesh, looking not to spirit worlds beyond. We are what we have to be. What we have lost you cannot feel. What we have gained, you cannot see.

Say HER NAME for she is alive in us. She and we will meet again, although in many ways we've never parted. She and her life play light songs on our minds, sunrises and sunsets on our dreams. She is real and shadow, was and is.

Say HER NAME to us and say HER NAME again. She is our child and we love her as we always did.

NorthernLurker · 16/04/2008 18:12

amy - my dd3 has had that vaccination - THANK YOU!!!!

margosbeenplayingwithmynoonoo · 16/04/2008 18:14

First of all, FeedMeNow, I'm so glad that yesterday was a sunny day and the service sounded beautiful, just what Eris deserved.

AmyJade - In memory of Freya too. What lovely words.

They're all such special children loved so much by very special people.

lottiejenkins · 16/04/2008 18:20

When we had Jacks funeral i was determined i didnt want a white coffin (dont know why just didnt like the idea) anyways, my stepson(whos older than me) carried Jacks coffin to our family part of the churchyard, he was buried near my Grandad and Uncle and next to two of my GD's brothers and sisters who died as children, we had a tea afterwards for family and friends. The shock/surprise came afterwards when two weeks later we opened the bill from the FD and he hadn't charged us for the funeral, nothing at all not a penny................. it was such a nice thing to do and we still get on with his family now in fact we bought this house from him and his wife, to repay the FD we paid for him and his brother to taker their wives to my sisters restaurant for dinner. Every year now for the past five years i have attended the chapel at the hospital for a babyloss service, they have a book in the chapel where Jacks inscription is written for me to see.

lackaDAISYcal · 16/04/2008 18:52

FMN, your account of yesterday sounds lovely and I'm glad it was all that you wanted it to be. You sound incredibly brave and strong, as do your whole family.

Could you post a link to Eris's fundraising site; I'd like to donate if you don't mind.

This thread is a wonderful idea, but ikwym about it being better to meet on a thread about wind.

Take care lovely lady

frasersmummy · 16/04/2008 19:15

fmn .. It sounds like you had a lovely day for your baby girl. I think your balloon release was a lovely thing to do

amyjade both your posts are beautiful say her name is soooo true...!!!

how are you holding up on the worst day of the year for you ???

WrongSideOfTwenty · 16/04/2008 19:34

You have made me shed a tear FMN. It sounds like yesterday was lovely and it will be a day you can remember forever and smile as well as be sad.

Was thinking of you and your family yesterday.

I hope that this thread brings comfort to many people and you can gain strength from others going through or who have been through similar experiences.

ILikeToMoveItMoveIt · 16/04/2008 19:47

What a lovely post FMN, it is true that the day of the funeral is a big milestone towards acceptance.

It seems us mum's have had a strange day today.

I had a very realistic dream that I put my ds to bed last night. I can vividly remember changing his nappy and putting him in his sleepsuit, before tucking him up in bed.

I woke up this morning and very nearly said to my dp 'I didn't hear Cole in the night, he must have slept through, I hope he is ok.'

It is nearly 6 months since he died and this was the first time I have forgotten that he wasn't with us anymore. It made me feel really sad, but the vivid dream I had of Cole more than made up for it. I'm glad he came to see me last night.

Much love and peace to all on this thread xx

bellavita · 16/04/2008 19:54

You are all wonderful brave mummies and I am sat here reading all your lovely posts with tears running down my cheeks.

feedmenow · 16/04/2008 19:57

Amyjade, we'll say Freya's name to you and with you. I read your story on the link you added. Her picture is gorgeous - she looks like a right cheeky little minx! Do you think Libby is like Freya? It is amazing what you have done to stop other people going through what you and your dh went through. The poem you've posted is lovely - is it one that you wrote?

Daisy, if you would like to make a donation, the address is www.justgiving.com/eris. However, please don't feel that you have to! I would hate it to seem like I mentioned it to plug you lot for donations!

Lottie, what colour coffin did you end up choosing for Jack? I know our FD won't be charging us for their services either (I think it is now law that they can't charge for a basic funeral for a child uner 3...). The crem don't charge if you go for their group baby slot, but they are charging us 50% of the fee as we booked a private slot. Not sure about the minister yet.

Shabster, I think my dp now thinks you are a complete nutter cos I told him what you said about getting too familiar with him!!! I told loads of people yesterday about your boys and the forget me nots, and about your son asking about the pot in the house, and what he said to you. He sounds like a very wise and sensitive young man - you must be very proud!

OP posts:
feedmenow · 16/04/2008 20:01

Oh, I forgot a couple of things!

Firstly, happy belated birthday to Fraser? How did the day go for you Frasersmummy?

Iliketomoveit, hope you don't mind me asking but how old was Cole when he died? It must have been so weird forgetting he wasn't with you anymore. I can imagine that for that brief moment your world must have felt normal and 'right' again. Lovely while that brief moment lasts but heartbreaking all over again when you remember.....

OP posts:
trulymadlydeeply · 16/04/2008 20:02

Tears in my eyes ... what brave ladies you all are.

Lots of love.

xxx

ILikeToMoveItMoveIt · 16/04/2008 20:06

I don't mind you asking. Cole was 15mo when he died. He was born a healthy baby but suffered from acute liver failure when he was 9mo (reason unknown). He then went through four liver transplants in 6 months, so the last 6 months of his life we were mainly in hospital.

He was a brave, strong lad. But in the end it was too much for him.

This months is a weird one for us as this time last year we first noticed the jaundice in his eyes and within 10 days of that he had his first transplant.

I can't believe it was a year ago. Where does the time go?

shabster · 16/04/2008 20:11

FMN - thanks for your comments about Tommy - he is a good kid. You would love my 26 yr old, Danny - a good example of a man who lost two of his brothers but has managed to do well for himself, he is a compassionate, caring lad with a wicked sense of humour

DP - You are right my love - I am a complete and utter nutcase - I find it helps!! please forgive me for sending you hugs and kisses - I am an overfriendly Northerner.

Love to all mummies on here - thrilled to bits that we have a meeting place.

Thinking of everyones children tonight - I bet they have all met up and are laughing at us lot going on and on

frasersmummy · 16/04/2008 20:14

hi fmn its nice of you to ask

our day was quite surreal.. we sent ds2 to nursery..

spent the morning ignoring the fact.. reading telly etc..

then one of us said something and we had a long session of "do you remember this" with lots of tears

later we took a poem I had written, some flowers and 4 blue balloons up to his "garden"

I dont know if anyone else on here feels this.. but we find the week before his b/day is harder than the day itself. Its like we worry so much about getting through it but on the day we just do

I think its doubly hard that week as well because Fraser died on the Tuesday and we were sent home for 2 days .. I wasnt induced till the Thursday

frasersmummy · 16/04/2008 20:14

hi fmn its nice of you to ask

our day was quite surreal.. we sent ds2 to nursery..

spent the morning ignoring the fact.. reading telly etc..

then one of us said something and we had a long session of "do you remember this" with lots of tears

later we took a poem I had written, some flowers and 4 blue balloons up to his "garden"

I dont know if anyone else on here feels this.. but we find the week before his b/day is harder than the day itself. Its like we worry so much about getting through it but on the day we just do

I think its doubly hard that week as well because Fraser died on the Tuesday and we were sent home for 2 days .. I wasnt induced till the Thursday

frasersmummy · 16/04/2008 20:14

hi fmn its nice of you to ask

our day was quite surreal.. we sent ds2 to nursery..

spent the morning ignoring the fact.. reading telly etc..

then one of us said something and we had a long session of "do you remember this" with lots of tears

later we took a poem I had written, some flowers and 4 blue balloons up to his "garden"

I dont know if anyone else on here feels this.. but we find the week before his b/day is harder than the day itself. Its like we worry so much about getting through it but on the day we just do

I think its doubly hard that week as well because Fraser died on the Tuesday and we were sent home for 2 days .. I wasnt induced till the Thursday

frasersmummy · 16/04/2008 20:14

hi fmn its nice of you to ask

our day was quite surreal.. we sent ds2 to nursery..

spent the morning ignoring the fact.. reading telly etc..

then one of us said something and we had a long session of "do you remember this" with lots of tears

later we took a poem I had written, some flowers and 4 blue balloons up to his "garden"

I dont know if anyone else on here feels this.. but we find the week before his b/day is harder than the day itself. Its like we worry so much about getting through it but on the day we just do

I think its doubly hard that week as well because Fraser died on the Tuesday and we were sent home for 2 days .. I wasnt induced till the Thursday

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