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Bereavement

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Eris' thread for bereaved mummies

1000 replies

feedmenow · 16/04/2008 16:28

OK, so the thread begins! I tried to think og something better to call it, but all I have in my head (still) is Shabsters comment about how it would have been better if we'd all met on a thread called 'how to cope with excessive wind'!

Anyway, we have somewhere to come now. Somewhere 'proper' where we can chat and remember our precious lost children, whether they were stillborn like my angel, or whether they were with us for 2 hours, 2 weeks, 2 months, 2 years or 20 years. No matter how long they were here it is still so very wrong to lose a child.

I just wanted to tell you all about yesterday. It was such a very strange day. Dp and I were collected by the FD in the limo that Eris was in and we drove slowly down our road behind one of the FD men. I felt like a fraudster, like I was going to be caught out and asked what the hell we were doing 'playing' around.

Anyway, it turns out that the crem we went to is absolutely beautiful, really gogeous gardens. The service was lovely. The songs and music we chose were perfect, and both my mum and mil got up and said some really touching, beautiful words. The minister read a story I had chosen and also an extract from Winnie the Pooh that he suggested. I sat with my dd1 on one side and my ds the other, then dp next to him. We all had our arms around each other and I cried silently throughout. Then at the end the minister asked everyone else to leave so the 4 of us could say our final goodbyes, at which point I started weeping with a vengeance. It wasn't til we went outside to join everyone else that I saw all the people who had come to be with us.

We went back to my parents house for brunch, which went really well. I come from a family who crack open the wine and beer at the earliest opportunity, so the wine flowed along with the tea and coffee for the drivers. It was a beautiful day, the sun shining, so we went into the garden. The children and the men played football, the ladies chatted and did a bit of skipping (who would have ever known that I could still 'jump in'???. I had got some helium balloons printed with the words "Too beautiful for earth..." so everyone released one and 'raised a toast' to Eris. People gradually drifted off home, but a group of people stayed with us all afternoon and into the evening. We had takeaway and eventually got home about 10pm. It was a very special day. I talked about Eris lots and, very importantly, people had fun. A very important thing to do, IMO, when celebrating a life instead of mourning a death. As people left I asked them all to be sure to remember my little baby girl, to think of her often and not let her be forgotten.

Dp and I set up a fundraising page to raise money for SaNDS for people to make donations instead of brining flowers. When I checked earlier today, we have had donations of £1360! It makes me sad that we're in the position to have received those donations, but we smile when we realise how much people care.

Anyway, dp went to the FD this afternoon and picked up Eris' ashes, so we at least have now brought our daughter home. It raised a few laughs yesterday when we were asked what we planned to do with the ashes and I said we would bring her home and put her in the wardrobe with nanny (whose ashes have been in my wardrobe for 2 years now!). Some might find this odd, but others thought it touching and comforting that they would be in the wardrobe together.

Anyway, I have wittered on more than I intended. I am pleased to say that I do actually feel a sense of peace now that the funeral is over. Both dp and I had been scared of yesterday as we were both aware that a funeral brings about a finality and reality to what has happened. And somehow, facing that finality has helped me achieve a degree of acceptance.

So, in memory of my precious baby daughter, Eris, I would like to pronounce this thread for bereaved mummies "OPEN"!!

OP posts:
shabster · 19/04/2008 08:27

Morning everyone. It is freeeeeeezing up here in Bolton.

Doobydoo · 19/04/2008 09:48

Good Morning.
I have been lurking round this thread on and off and have cried and laughed.You all sound amazing[and human].
This is a positive thread and I still feel angry at times about the situation I found myself in 18 years ago...angry is not the right wordI mean things that happened after.
Deep Breath....
I was 21 when my daughter was born at 33 weeks[she lived for 15 days].
I had polyhydramnious[too much amniotic fluid]which probably brought about the early labour.I had seen the midwife 2 days before and there was no sign of it then.
I think I must have been in labour for a couple of days[didn't realise]very uncomfy etc.
I went to hospital and was given pethidine and went to the toilet,where my waters broke[could have surfed out...there was so much!.
I had a natural labour[an episiotomy]and do remember thee doctor saying that if she wasn't out soon I would have to have forceps.
She weighed 4lb 7oz.
At first I think they thought all was ok.but she stopped breathing in the incubator and was resuscitated.
WE were transferred to a bigger hosp.
There was much bleeding in her brain and during her time she went to Guy's Hospital for tests etc.
She stopped breathing quite a few times and was resusitated.
We were called to the hosp one night as they thought she was going to die.We had to make some very difficult decisions but in the end I think she chose for herself[hope that sort of makes sense]
On the day she died,I went to visit and was washing my hands before I went to the NICU.A nurse said she is in the small room...I asked why[thought it might be for a positive reason]The nurse looked worried and told me she had died.She thought we had been contacted and knew.
When I saw my beautiful daughter without all the tubes,wires she looked so amazing and relaxed I could not believe she had died,she was still warm and looked like she was asleep.
I registered her birth on the same day she died.
There is much more I could say about what happened after,but that is for another day.
I became a paediatric nurse because of my daughter.I worked in the NICU,where she had been and wanted to give something back,as the nurses were wonderful.
Thanks FMN,for giving us all the chance to say things.

TinkerbellesMum · 19/04/2008 10:21

fmn that's an argument I've had with my brother. His eldest (who's not his) is a twin and boy twin died at 6 weeks. He tried to tell me that his partner had it worse because she has the memories. On the other hand, my Grandma lost her daughter to cancer when she was 40 (my aunt was), she looked after her through the last few months. So my argument is does she have it even worse because her daughter was 40? Does it get worse for each day/year of their life?

The thing is they are our children and we love them, do you love your living children any more than when they were born? It changes but I don't think I can love her any more. I grieve what I will never have with Lily-Hope. I will never see her smile, hear her first words, change her nappy, stroke her head when she's sick, take her to her first day at school, comfort her through splitting up with boyfriends or boys that she likes and don't like her, cry at her wedding, hold her hand when she has her own baby... I might not have the memories of that, but that's what I grieve as much as it is what Grandma grieves.

shabster · 19/04/2008 10:46

Dooby so very sorry for your loss. Stick on Eris' thread - we can all help each other here.

Tinks - I think the grief we feel for a lost child is always overwhelming. I dont think there is any loss that is 'easier' than another. I have often wondered how mums of adult children feel - especially if the adult child died through drug abuse etc etc. I would imagine their grief is just as overwhelming but maybe tinged with anger at the actions of their child? The human heart and brain are so powerful though aren't they? I used to wonder how come I had woken up each morning, the only conclusion I came to was that I had Dan to care for and my heart and mind would not let me give up.

feedmenow · 19/04/2008 12:34

Blimey Shabster!! I got up this morning and popped in with my bowl of cereal, opened the fridge and poured myself what I thought was a nice glass of apple juice only to discover I'd started on your cider! I know I like a drink, but at 9am I think thats a bit extreme!!

Glad you heard from Matt's old school friend - it is lovely to have unexpected reminders of happy times, and to know that your boy was liked. Also a good lesson for us all not to judge a book.....

Dooby, glad you came back and told us about your daughter. What is her name? Do you still work as a paediatric nurse? It is fantastic that you chose that as your path because of what you had been through.

Triplets, don't mean to pry or intrude or anything, but gather from your post that your dh is unwell. Big hugs from me too. xx.

Haven't set foot outside the house today, but Surrey is looking pretty grim (went to a childrens farm yesterday - it was blinkin' freezing!)

Anyone got any exciting plans for the weekend?

OP posts:
shabster · 19/04/2008 12:38

Hiya FMN - dont go near the cider apple juice - I got myself in 'the family way' (as my nana would have said!) three times after drunken nights on the aforementioned apple juice Tis very, very dangerous.

I love to see you having a joke on our thread - its wonderful. Even if you dont feel that way you are making an unconcious effort to smile - well done you

Its freezing here too and very grey. On a lighter note my friend, Nikos, in Rhodes, Greece just came on msn and told me it is 75 degrees in Faliraki. Thank you my love I replied and he missed my sarcasm

lilyloo · 19/04/2008 13:49

FMN i just had to pop in to see how things went. The day sounds like it went as well as could be expected.
I am glad you have found a sense of peace and that you have set up Eris thread.
I hope you get lot's of comfort and support from all the other wonderful mummys on here and you can help each other by the way.

feedmenow · 19/04/2008 14:37

Shabs, thats the problem with the plonk - the getting in the family way malarkey! I too am a living testament to the "don't drink and ride" lesson! Typical though that when I actually planned a pregnancy I suffered a mc last January followed by my little Eris last month. It is big old sods law that women spend years and years trying to avoid pregnancy then, when they want to be pg, they discover PCOS, ovulation probs, general fertility issues, blah, blah, blah!

OP posts:
ILikeToMoveItMoveIt · 19/04/2008 15:00

Hi Dooby, thanks for sharing your story with us. I hope you don't mind asking, but what is your little girls name?

Your story really is inspiring. After spending so much time in hospital with my little boy, it really did cross my mind to become a nurse. Although I'm not 100% sure I am cut out for the caring profession!

feedmenow · 19/04/2008 17:17

ILTMIMI - what do you do at the moment workwise? I have quite fancied training as a midwife for quite a while now (insert contemplative emoticon) ......

OP posts:
TinkerbellesMum · 19/04/2008 17:20

All the years of contraception mask the problems that some women have. It's a little like the disease I have, I know so many women who lost baby after baby with it, then when they were finally diagnosed and treated they lost another due to IC. The Hughes masked the IC because they'd never gotten that far. Thankfully I was scanned weekly to make sure I didn't have IC for that reason.

Doobydoo · 19/04/2008 18:41

Hi Again everyone ,Dhe was/is called Hannah Kate,after my Granny.I have not nursed for quite a few years.My last nursing job was at a childrens hospice in the Uk.I now look after my sons fulltime.DS1 nearly 9 and DS2 who has just turned one
My main regret is that I never got to hold whilst she was dying and I should have picked her up and cuddled her when she had died.I just gave her a kiss.She looked very different[more babylike]and I wish I had really looked at her properly when she had died.
I am extremely lucky to have 2 such fab sons.

frasersmummy · 19/04/2008 19:51

Hi guys

Although I havent posted in a while I have been reading all your amazingly brave posts and sending hugs to you all

As you are all more than aware some days are harder than others and I just havent had the strength to get involved the last few days

This is a lovely thread . so many of these conversations on other boards quickly become depressing but there is a lot of positivity and humour being posted on here. I am glad shabster talked you into this thread fmn

You seem to be doing really well for such early days fmn.. are you really or are you hiding behind a brave face...??

Shabster how can you say you are a coward you are a complete tower of strength.

sending you all hugs from sunny Glasgow.. not its not sarcasm its been lovely here.. been out the back all day

Twominutes · 19/04/2008 20:20

Hi I have been reading this thread with a big lump in my throat you are all so brave I especially love say her name it is so what I want to say to our friends and families.

My Dd passed away almost 10 years ago now she was 5 weeks old and perfectly healthy for the first three weeks then she developed bronchoilitis she spent three days on a general ward then collapsed and went to ICU where she battled for four days but all her organs shut down and her brain swelled massivley . She died in our arms on the 13th december.

The aftermath was surreal I can remember feeling angry with close relatives like my mum and mil as all they could talk about was when I was going to "lose it" which of course me been a stubborn cow then refused to cry in front of anyone ! I also insisted that noone sent a sympathy card and asked them all to get her a xmas card as she would have never had one otherwise The FH put them all out in her room whenever I went to see her.I can also remember the vicar he was a newbie and it was his first time doing a funeral of a child he was so nervous but so kind and reassuring we had chosen 2 songs to be played at her funeral and a hymn "silent night" but I kept getting this strange feeling he was going to forget the music and I kept reminding him and he assured me he wouldn't
On the morning of the funeral we had the coffin on the way to the crem on our knees and as we pulled in all i saw was this poor vicar diving over walls to get to us and he poked his head through the window and said "I forgot the cd's" and rushed off back to the vicarage to get them .
Now the FD was mumbling stuff while we all sat and waited but me and dp found it so funny it was like Hannahs last little joke the funeral went really well and was beautiful .
She does have a plaque at the crem but lives in my Mums cupboard I just can't think of her outside in all weather

Nobody really talks about her anymore except me and DP and our LO's who were born after she died they mention her all the time but family don't ever really talk about her unless I do and it upsets me when I think of all the beautiful cards and letters they wrote at the time but now they go out of their way to avoid mentioning her

Sorry for such a long post it is such a comfort sometimes to know that you are not alone .

Doobydoo · 19/04/2008 20:39

Ah TwominutesYou are not alone

frasersmummy · 19/04/2008 20:51

oh twominutes I feel so much for you - my family dont mention my son to me either and it makes me soo angry

I think it was beautiful idea to have xmas cards for hannah.. so much nicer than sympathy cards.

we wont avoid saying Hannah's name to you on this thread .. we will say her name and talk about what happened to her as much as you want

Twominutes · 19/04/2008 20:58

thankyou so much I have been having a bad day Not because of Hannah just a general crap day but this thread has made me feel a bit beter tonight x

frasersmummy · 19/04/2008 21:04

And if you are anything like me when you get low for other reasons you will start thinking about Hannah

I know it works that way for me with Fraser

Here is a great big {{{{{{{{hhhhhuuuuugggg}}}}}

shabster · 19/04/2008 21:41

Two minutes - sorry for your loss my love.

We are making a good little crowd between us aren't we? Everybody here - having a sad moment, having a cry, and then we are all managing a laugh and a smile.

When Eris' thread started a few weeks ago every post (quite rightly) was littered with emoticons. This past week I have noticed several and one or two
I think we are all better when talking about our dear children and in 'company' albeit virtual company it makes every one of us realise 'we are not alone'.

You'll never walk alone Hope you dont think this is too cheesy - it came into my mind as soon as I started writing this. It should be our anthem.

frasersmummy · 19/04/2008 22:26

shabster.. are you feeling a little better after your bubble earlier??

At the risk of setting you off again .. it seems Matt touched more lives than you realised.. he is obviously a credit to you

triplets · 19/04/2008 22:26

Hello everyone..............Shabs is right, and it is right to smile and laugh again, it is not a betrayal though I know we have all felt that way when we find ourselves laughing for the first time. What is life, life is being here, counting, for how many hours, days weeks, years, death comes to us all, but you know, how many leave this life unoticed, our children will always be remembered not just by us, not just because they left us so young but because for some reason we as yet do not understand, they were and are special. Our heartache as their parents will never go away, because we love them so........and always will, something that time can never take away. Love to you all and to all your children xxx

Twominutes · 19/04/2008 22:29

Thanks frasersmummy

Hi shabster that is a great song choice not cheesy at all I had what is considered a cheesy song at Hannahs funeral ---Goodbye by the spice girls===

It's not my usual taste in music but at the time it was always playing on the radio in the ICU and I always remember she went down for a final scan at 2pm on the day she died and that song started playing bang on 2pm .

The words are very apt though

Night Night all x

TinkerbellesMum · 19/04/2008 22:50

In answer to our relatives and friends who don't talk about our little ones.

An Angel Never Dies.

Don?t let them say I wasn?t born,
That something stopped my heart
I felt each tender squeeze you gave,
I?ve loved you from the start.

Although my body you can?t hold
It doesn?t mean I?m gone
This world was worthy, not of me
God chose that I move on.

I know the pain that drowns your soul,
What you are forced to face
You have my word, I?ll fill your arms,
Someday we will embrace.

You?ll hear that it was meant to be,
God doesn?t make mistakes
But that won't soften your worst blow,
Or make your heart not ache.

I?m watching over all you do,
Another child you?ll bear (I sent this to OH 2 days after Tink was concieved)
Believe me when I say to you,
That I am always there.

There will come a time, I promise you,
When you will hold my hand,
Stroke my face and kiss my lips
And then you?ll understand.

Although I?ve never breathed your air,
Or gazed into your eyes
That doesn?t mean I never was,
An Angel never dies."

TinkerbellesMum · 19/04/2008 22:51

And another one I wanted to share:

These Are My Footprints

These are my footprints, so perfect and so small.
These tiny footprints never touched the ground at all.
Not one tiny footprint, for now I have my wings.
These tiny footprints were meant for other things.
You will hear my tiny footprints, in the patter of the rain
Gentle drops like angel tears, of joy and not from pain.
You will see my tiny footprints, in each butterflies lazy dance.
I?ll let you know I?m with you, if you give me just a chance.
You will hear my tiny footprints, in the rustle of the leaves.
I will whisper names into the wind and call each one that grieves.
Most of all these tiny footprints are found in mommy?s heart.
Cause even though I?m gone now, we?ll never truly part.

~Author Unknown

triplets · 19/04/2008 22:54

Oh Tink................

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