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Bereavement

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Eris' thread for bereaved mummies

1000 replies

feedmenow · 16/04/2008 16:28

OK, so the thread begins! I tried to think og something better to call it, but all I have in my head (still) is Shabsters comment about how it would have been better if we'd all met on a thread called 'how to cope with excessive wind'!

Anyway, we have somewhere to come now. Somewhere 'proper' where we can chat and remember our precious lost children, whether they were stillborn like my angel, or whether they were with us for 2 hours, 2 weeks, 2 months, 2 years or 20 years. No matter how long they were here it is still so very wrong to lose a child.

I just wanted to tell you all about yesterday. It was such a very strange day. Dp and I were collected by the FD in the limo that Eris was in and we drove slowly down our road behind one of the FD men. I felt like a fraudster, like I was going to be caught out and asked what the hell we were doing 'playing' around.

Anyway, it turns out that the crem we went to is absolutely beautiful, really gogeous gardens. The service was lovely. The songs and music we chose were perfect, and both my mum and mil got up and said some really touching, beautiful words. The minister read a story I had chosen and also an extract from Winnie the Pooh that he suggested. I sat with my dd1 on one side and my ds the other, then dp next to him. We all had our arms around each other and I cried silently throughout. Then at the end the minister asked everyone else to leave so the 4 of us could say our final goodbyes, at which point I started weeping with a vengeance. It wasn't til we went outside to join everyone else that I saw all the people who had come to be with us.

We went back to my parents house for brunch, which went really well. I come from a family who crack open the wine and beer at the earliest opportunity, so the wine flowed along with the tea and coffee for the drivers. It was a beautiful day, the sun shining, so we went into the garden. The children and the men played football, the ladies chatted and did a bit of skipping (who would have ever known that I could still 'jump in'???. I had got some helium balloons printed with the words "Too beautiful for earth..." so everyone released one and 'raised a toast' to Eris. People gradually drifted off home, but a group of people stayed with us all afternoon and into the evening. We had takeaway and eventually got home about 10pm. It was a very special day. I talked about Eris lots and, very importantly, people had fun. A very important thing to do, IMO, when celebrating a life instead of mourning a death. As people left I asked them all to be sure to remember my little baby girl, to think of her often and not let her be forgotten.

Dp and I set up a fundraising page to raise money for SaNDS for people to make donations instead of brining flowers. When I checked earlier today, we have had donations of £1360! It makes me sad that we're in the position to have received those donations, but we smile when we realise how much people care.

Anyway, dp went to the FD this afternoon and picked up Eris' ashes, so we at least have now brought our daughter home. It raised a few laughs yesterday when we were asked what we planned to do with the ashes and I said we would bring her home and put her in the wardrobe with nanny (whose ashes have been in my wardrobe for 2 years now!). Some might find this odd, but others thought it touching and comforting that they would be in the wardrobe together.

Anyway, I have wittered on more than I intended. I am pleased to say that I do actually feel a sense of peace now that the funeral is over. Both dp and I had been scared of yesterday as we were both aware that a funeral brings about a finality and reality to what has happened. And somehow, facing that finality has helped me achieve a degree of acceptance.

So, in memory of my precious baby daughter, Eris, I would like to pronounce this thread for bereaved mummies "OPEN"!!

OP posts:
TinkerbellesMum · 19/04/2008 22:56

And to those who say the wrong things. (Try spitting this poem out when you're angry)

Don't tell me that you understand
Don't tell me that you know
Don't tell me that I will survive
How I will surely grow.

Don't tell me this is just a test
That I am truly blessed
That I am chosen for this task
Apart from all the rest

Don't come at me with answers
That can only come from me
Don't tell me how my grief will pass
That I will soon be free

Don't stand in pious judgment
Of the bounds I must untie
Don't tell me how to suffer
And don't tell me how to cry

My life is filled with selfishness
My pain is all I see
But I need you, I need your love
Unconditionally

Accept me in my ups and downs
I need someone to share
Just hold my hand and let me cry
And say "My Friend, I Care."

Anonymous

triplets · 19/04/2008 22:58

Truth in every word Tink, like my new unwanted situation, if anyone else tels me this has been sent to us because we are strong enough to bear it, then I shall scream, we already have had our share , and it all makes me feel so angry!

Twominutes · 19/04/2008 22:59

TM they are lovely thankyou for sharing them.

TinkerbellesMum · 19/04/2008 23:00

lol I've made myself cry. Sorry if I've posted too much at once

shabster · 19/04/2008 23:11

Cant post to much Tink! I love words and poems.

shabster · 20/04/2008 00:44

Night my new friends. Night night to all our children. xxxxx

frasersmummy · 20/04/2008 08:02

Tink these are beautiful and soo true

I have printed them off and kept them

thank you for sharing them

shabster · 20/04/2008 08:09

Morning girls - Everybody ok?

Doobydoo · 20/04/2008 09:42

Good Morning
Still haven't been able to read all posts but hope to be able to bring myself to soon.
Hope everyone has a lovely day

feedmenow · 20/04/2008 10:51

I can't believe how chatty everyone has been every time I log on!

Tink, I love the footprints one....

Frasersmummy, not sure whether I'm doing well or not really. I think a lot of it is a brave face. The children go back to school tomorrow and I am soo desperate to have some time to myself. I don't actually feel like I know what I feel at the moment cos of everybody else (dp also took all of last week off work so I've had him around too!). I think in a lot of ways it has been good for me to have to think about other people, but I have noticed this week that I'm getting a lot of panicky episodes - I can't call them panic attacks cos I (touch wood) can always handle them. But yesterday I felt for the whole afternoon and evening that my heart was really thumping and was right up, almost in my throat. It felt like my pulse was racing (which it wasn't) and I was really hot and bothered. I think what I needed to do was go and curl up in bed safely, but couldn't.

I think though that because there is no "normal" with grief then not only do I have no idea of how I should be feeling but I also don't think I would know how to describe how I actually do feel. The emotions I am going through just don't fit into the usual categories of emotions from everyday life, IYSWIM.

Trips, have people actually said those sorts of things to you? I mean, about how you are strong enough, etc, etc? I know those things get said to other people but thank god nobody has said anything of the sort to me!

Hi Twominutes. Can't believe that Spice Girls song is 10 years old! That makes me feel old.....

FM, is Glasgow still sunny today? Surrey is as dull and dreary as it has been for the past few days.

Funny how we Brits talk about the weather isn't it? My best friends mum (in her 60's!) set off travelling back in January on a 6-month world tour. My mate, A, said she spoke to her mum, D, the other day when she was in Oz. D spent the first 20mins of the call talking about the Australian weather before she actaully got back on to the important stuff like where she was and what she's seen and where she's going next! So even from the other side of the world the Brits talk about the blinkin weather!

Shabs, how do you manage to get up so early after a late night? I swear I need at least 10 hours a night!!

OP posts:
shabster · 20/04/2008 12:57

Hiya FMN - good to hear from you on our special thread.

I have always been a poor sleeper. When I had my twins my sleep patterns were non existant!!!!

I can really identify with your need to 'be alone' it is great to get all the support but so very nice to be alone with our thoughts isin't it? Even if we are alone doing the housework - all our temper and anger and frustration can be taken out doing it! I crave being on my own sometimes.

When the children are at school and DP is at work then it is YOU time. I have a great routine..school run, quick tidy, mumsnet and Jeremy Kyle show, and it repeats like that thru the rest of the day and I LOVE IT!!

Wishing you peace my new friend

Lou1971 · 20/04/2008 16:34

Just a few thoughts and responses ........

I can remember my mum watching me like a hawk (I lived with my parents at the time) when all I wanted was to be left alone. I think a balance is needed but some alone time is definitely important.

I also remember being obsessed with a programme called Sunset Beach which was the crappest thing on telly ever but I was compelled to watch it! An hour of forgetting everything!

I also used to have panicky times and have developed a heart murmur (partly down to the pregnancy but definitely improved as time when on).

And, on the subject of people saying inappropriate things, I remember a member of hospital staff telling me that is was probably for the best that I lost one of my twins because I was a single mum. Oh my. I just remember looking at her and thinking "what a freak". Ha ha.

ILikeToMoveItMoveIt · 20/04/2008 17:45

Just popping in to see what's been going on and to say hello.

After a dull start to the day it has turned out warm and sunny here.

We planted some forget-me-nots on Cole's grave today, and it was beautiful and sunny in the woodland where he is.

TinkerbellesMum · 20/04/2008 18:53

Hospital staff can be the worst for the wrong things to say.

When I was pregnant I wrote in my green notes, para "1+1" (one miscarriage and one live birth), they kept changing it to (not sure if this is the right way around) 0+2 (meaning 0 live births, 2 miscarriages) I kept changing it back. Eventually one midwife said "I know you count your daughter but we don't because 20 weeks is a miscarriage" I said "I have a birth and death certificate for her" "I know, but we still class her as a miscarriage"! I've been told by PALS to talk to them next time if it happens again.

When I was in labour with Tink the doctor said that if I was allowed to deliver the waters probably wouldn't break, I said "that's what happened last time" he started to ask me a question but was cut off by another doctor who said "yes, but you were only 20 weeks". Love the first doctor (hosptial director) who gave her the filthiest look and questionned me about my first labour, he made me feel it was important to my care this time. Actually he made decisions based on it and it was the right thing - like only letting me have an hour to respond to the drugs because I had been quick before.

Just after I had been released from hosptial with Lily-Hope I had the CMW come and see me, she kept saying "miscarriage" and Mum kept saying "she wasn't a miscarriage, we have a death certificate for her" (I hadn't been well enough to go to the registry office by then, but Mum and TD had registered her death so they could start with funeral arrangements).

feedmenow · 20/04/2008 18:59

ILTMIMI, is he buried in one of the proper woodland places? I've seen pictures and the established ones look absolutely beautiful. Is today the anniversary of when Cole's illness first showed? Just wondering if thats why you were there today....?

Lou, nice to know the staff are so compassionate!!!

After I had Eris I lost loads of bllod and had to go in to theatre, etc, so when I came out I was drugged up and pretty much out of it, but in one of my moments of clarity one of the doctors came in, shook my dp's hand and said "Congratulations!"!!!! I know it was an oversight, but you would have thought someone could have told him before he came in

OP posts:
Doobydoo · 20/04/2008 20:09

Hi All
I had some probs with hospital staff too.When I was expecting ds1 and ds2 I had to go through the same story with each person]Also,one of the reasons I became a paediatric nurse was because I felt I would be able to see things from a parents point of view.A couple of the nurses were insensitive and I know how,as a parent,we remember EVERYTHING,that is said to us[good and bad].

TinkerbellesMum · 20/04/2008 20:19

If anyone has another baby, make sure you ask for a Tear Drop sticker. It is a sticker that SANDS provides to make sure they don't ask you any difficult questions "So, how is DC1 doing? Is s/he looking forward to the new baby?" etc.

I remember going to the hospital for a scan with my SIL with one of hers. I was in the waiting room and heard a scuffle in the U/S room, a MW comes running out going "tear drop sticker, I need a tear drop sticker!" They'd not put one on the notes for that baby and she'd gone and asked a question about the "twins".

A few weeks ago my niece's (Twin 1) ear drum perforated and she spent some time in hospital (thankfully slightly deafened). The doctor came in and said "so Chloe, I hear you're a twin?" my dad exagerated saying "no, she's not" and had to take him out to explain! Apparantly her notes still say "Twin 1" and he has twins himself so that was why he said something.

frasersmummy · 20/04/2008 22:06

oh my god tink I dont know how you've managed to refrain from hitting those mad people who call Lily-Hope a miscarriage.

Of course your daughter wasnt a miscarriage she was born alive.. stupid people

shabster · 20/04/2008 23:39

Tinks - when my DTS should have had their last immunisations I took just Danny to the clinic. I sat down and the woman said 'Oh yes Daniel and Gareth for their last jabs - is that right?' I remember saying, 'Gareth died in July and my heart is breaking' she just looked at me and fished around for a red pen. She took Gareths clinic card from me and wrote deceased right across it. Cover your eyes now my new friends but I wanted to shout you evil fucker person but instead I took the card and said......thank you.

shabster · 21/04/2008 00:11

Night everyone - Night Night to all our beautiful children xxx

TinkerbellesMum · 21/04/2008 02:18

I think that when people have said it I've been in a rather vulnerable position and quite withdrawn. I think the CMW was fortunate Mum didn't hit her.

What doesn't help with the hospital is that Lily-Hope was born and died either side of midnight and the doctor accidently wrote "28th September" on birth AND death, meaning she was certified dead before she was born. Mum got to the registry office and couldn't register her death - different proceedures for SB - and had to get it fixed, but they don't seem to have fixed my notes.

amyjade · 21/04/2008 09:41

Sand Fleas
written by Susan Larson

?The death of a child takes you places you?ve never been before, not only in terms of emotions, but in terms of awareness of ?all that is.? I liken the experience to playing on the shore with your friends and complaining about an occasional bite from a sand flea. It?s painful and annoying, but at least everyone else understands how you feel when you?re bitten.
Then one day, a wave grabs you and pulls you out into the ocean where you are bitten by a shark. You feel pain you never imagined could exist. And you?re alone in unfamiliar territory. When you get back to shore, you try to explain your pain to your friends, but the worst pain they can imagine is being bitten by 1,000 sand fleas. That?s all they know. There is no way to explain it to them.
But it?s not just the pain you can?t explain. While struggling under the water you?re suddenly aware that there is infinitely more to life than what we see on the shore. You see the ocean floor with coral reefs and rock formations, things you had never before imagined. You have tapped into the vastness of creation to a higher degree. And again, there is no way to adequately describe this vastness you see and feel. You have nothing to compare it to.
You have a true sense of a greater dimension, and you know that the loved one you miss is out there. You also know your loved one is not lost, but has only gone before you to a place more beautiful and vast than those on the shore could ever imagine. Yes, you still get annoyed with the sand fleas, but you now realize how trivial they are. And even if your friends don?t understand you, you know there is Someone greater out there who does.

shabster · 21/04/2008 10:22

Amyjade that is so right xxx

shabster · 21/04/2008 11:16

For Eris

'You live on in the minds you inspired
In the projects you pioneered
In the lives you enhanced
In the hearts that loved you
You will never die'

Gently stolen from a Compassionate Friends newsletter.

ILikeToMoveItMoveIt · 21/04/2008 11:27

FMN - yes, Cole is buried at a woodland burial site. At the moment there is a small clearing surrounded by a copice, it really is lovely and peaceful. DP and I have spots next to Cole, so when our time comes we will all be together again.

And we will be together again, I just know.

Enough of being slightly morbid , we went for my 20 week scan today and found out we were having a little boy. I just knew it would be a boy and I was right . It's all a bit bittersweet, but exciting too xx

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