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Support thread for women who are pregnant or TTC after a termination for abnormalities 2

1000 replies

LittlePoot · 05/07/2010 09:49

Dear all lovely ladies past, present and future. Welcome to support thread number two, to help us through the anxious TTC waiting, early scary weeks of pregnancy, nasty scans and tests, growing bumps and babies and everything in between. May this thread bring luck and (eventual) joy to us all and at least we'll all be here to hold eachothers' hands along the way. x

OP posts:
Coffeeandchocolate · 07/12/2010 21:39

Hello ladies, and thank you all for your wishes. Kittens, I can?t believe you didn?t get a phonecall! I?m thinking of you. I hope work keeps you distracted for the next couple of days.

Eavers, welcome and congratulations, I hope it will all go well for you. Day by day, as Cantdo said.

Sorry in advance for a long post. My scan went well, I think. It was an excruciating half an hour though, I thought I?d faint on the table. We went in and I was holding my notes, but the doctor didn?t look at them properly, so we told him about our previous problem and he started by looking at the brain. And then silence, he measured again and again without saying anything, but with a concerned look on his face. And after about 5 minutes, he just goes on to show us the stomach on the screen! At that point, my poor dh, who had turned white, asked him if everything is ok with the brain, and he mumbled something like ?borderline measurement?!!!

To cut it a bit short, we threw question after question at him, my dh mostly as I felt I couldn?t open my mouth. He measured one brain ventricle at 8.8mm and in the end it turns out borderline measurement would have been 10mm, which is what we knew from when Silvia?s problems were picked up. And we could say he wasn?t very happy with this measurement, but after going into a bit more detail and after we told him that it was 8mm at our 21 week scan and the professor we saw was very happy with this, he had a complete change of attitude, saying it didn?t grow much, which is a good sign, and that because we are having a boy, the ventricles are bigger anyway! Thank you very much for giving me a heart attack then!

We are very disappointed with his attitude, there was no empathy at all, and we had to fight for every bit of information. The measurements are all ok, the baby very active, but because of his initial doubt I now don?t feel very reassured. I also feel a bit Confused about him not looking at the previous measurements properly and having a complete change of heart 15 minutes into the scan. He even went on to say that he only recommends a 32 week scan because of our previous history, but that the prognosis is excellent! And that even if at 32 weeks the measurement is 10mm or slightly above, he would not be concerned. Right, after telling me 10 mins earlier that 8.8 is borderline!

Needless to say we?ll go to see the professor again at 32 weeks. The more I think about today, the more worried I get, so I just hope I?ll get some proper sleep tonight and wake up a bit calmer tomorrow. I almost wish I didn?t go to this stupid scan! Why don?t they teach bedside manner at medical school?!

Coffeeandchocolate · 07/12/2010 21:43

Manitz, sorry to read the antibiotics didn't work, I hope you'll feel better soon. How are you, it's still early days for you...xxxx

flower11 · 07/12/2010 21:43

cherry i had light bleeding on and off before first proper period, doctor said was normal following termination, probably hormones reajusting. I started bleeding today which i think is unexpected period, which means all the ttc was a waste of time as wrong time in cycle, not sure what my body is doing really, still letting me down feel pretty shit I just want to be pregnant.

Cantdothisagain · 07/12/2010 22:04

Oh Coffee what a mare. I really feel for you - nightmare. Was this consultant working privately? Can you ask for a 32 week scan with your trusted professor?

As an aside, I had my scans with my consultant in my last pregnancy, but then had one - the anomaly scan - with someone else as he was off sick. And she wasn't like your man today, not at all, but she lacked the compassion and gentle thoughtfulness of my consultant, and I found it utterly nerve wracking. I closed my eyes and wouldn't look to start with (remember the previous anomaly scan had out of the blue shown a condition incompatible with life!) and she was very dismissive, saying 'you are making me feel anxious' and 'come on, it's all looking fine, you can look, please look now'. And I felt bashed, bruised, faint, too, even though there was no sinister message.

I wonder, with your guy, if he lacks experience at dealing with people who've been through what we have, and hence opened mouth before engaging sensitive brain.

I also think we are probably a bit more sensitive (heck, a lot more) so we react more to this sort of thing. NOT what you needed. But it sounds like it was all fine and he was just over-reacting (covering himself?) and Coffeebean is just fine. Remember that and try to put the rest out of your head.

Also I think Shangrila wisely said once that or people like us, 'reassurance scans' can be as terrifying as they are reassuring....

manitz · 07/12/2010 22:29

Thanks for asking coffee. I'm alright but desperate to leave work and be at home with my family. awaiting vol redundancy offer in jan with baited breath. Need some space for us really. And a wee, again.

i have had scans which are similar to that. It is really disconcerting but I like the concentrated look - I wouldn't want a sonographer to be too chatty and miss something. Obviously he gave a lot of mixed messages too though which is really horrible. I think Can't is right and he probably lacks experience of dealing with people (and people who have been through this).

Sometimes i think it's just better not to have all these bloody scans, though I can see why you need them too...

Coffeeandchocolate · 08/12/2010 04:18

Thank you ladies, as always it feels good to get things out of my head!

Cantdo, this was a private scan at the FMC hence high expectations. The prof offered me another scan after 21 weeks and I knew I'd have it, but at the same time I knew I couldn't have just one more, so we thought we'd get a private one in between. It must be me who's excessively anxious and not coping very well with uncertainty. What a nightmare about your anomaly scan too, all you need to hear is that you're making THEM anxious!

Manitz, you're right, it was the mixed messages which threw me into a panic. I'm just trying to think more about the take home message, that there was no bad development since 21 weeks, when everything appeared normal, that the borderline measurement is 10mm for a reason, and maybe he just didn't word it properly. So for my own sanity I'll just try to think of the figures, the black on white, and not about the ways things were communicated to us.

Gosh, 40 weeks is a looooooong time....

Mishtabel · 08/12/2010 08:33

Another quick one I'm afraid...

Kittens, what a test on your patience! Keeping you in my thoughts xx

Coffee, so sorry that what sounds like an actual good scan, was handled in such a way as to cause you to be anxious. Don't they know we hang onto and interpret (sometimes inaccurately) every word/look they give? It's so hard not to worry as it is xx

Welcome Eavers, I remember your thread. It's lovely to see you here, and congratulations xx

And again, hello and love to everyone else. Tea time here, so must love you and leave you xxxx

Havingkittens · 08/12/2010 09:36

Coffee, so sorry your scan experience was like that. When I left the hospital the other day I said to my OH, "there's a lot to be said for continuity of care" for that very same reason. I was also not treated with the tenderness and empathy that I had been used to. It's baffling though. I mean, even if they don't know our history or seen our previous heartbreak, you'd think working in their particular field they should understand how fragile their patients must feel.

I hope you are feeling more relaxed now.

I'm working this week so that'll keep me distracted for a little bit (hence my limited post - apologies for lack of 'personals'. Just wanted to post for Coffee today)

xx

Coffeeandchocolate · 08/12/2010 10:13

Thanks Kittens. You're right, continuity of care is important, and in retrospect we should have gone to see the same prof now and just decide later on if we wanted another scan.

I'm glad you're keeping busy, I hope your oh will manage to speak with someone at the hospital today. It must be so, so hard for you, all this waiting game and the anxiety.

I'm not very calm, but will be away for work until Friday now so hopefully this will distract me. I'll be thinking of you and hope you will get some answers sooner rather than later. xxxx

Cherrybug · 08/12/2010 14:52

Coffee - sorry to hear you went through the emotional wrangle yesterday courtesy of your consultant speaking before thinking. Glad the take home messages were good though, on the whole it does sound positive. Hope you're feeling more relaxed now.

Kittens - thinking of you today.

Manitz, Cant and Flower - Thanks for the advice re bleeding. I now think my bleeding might actually be AF as its got heavier (still not as heavy as usual though) and is continuing. Plus I have a rather lovely spot on my chin which is a usual AF sign! I hope it is anyway. Flower I know how you feel about TTC, I'm the same, good luck for the next round.

Manitz, I hope also you get rid of that persistant UTI soon enough. I've heard Cranberry and Blueberry juices are good too for flushing out bacteria.

Love to everyone else.

Havingkittens · 08/12/2010 15:41

OH spoke to the consultant today. He can't really add anything to what's already been said which is understandable. I have an appointment with him for a scan on Monday morning which is good. I'm really glad it's him doing it seeing as he was the one that questioned the first two diagnosis and he was also very kind and sincere.

katiecubs · 09/12/2010 08:23

Kittens hope the wait til monday passes quickly and you get some definite answers - very glad you have the kind consultant doing it, it does make a differance. Will be keeping everthing crossed.

Coffee sorry your scan was not as reassuring as you hoped but he was probably just being over cautious, i'm sure you have nothing to worry about at all. These next few weeks will fly by and you will have your beautiful baby boy in your arms before you know it :)

eavers · 09/12/2010 12:52

Thankyou all for your welcome.
Am trying to take it one step at a time, will probably book a private early scan to give me a little bit of reassurance. I doubt I will be offered this on the NHS.

Kittens-thinking of you during your wait.

louzie · 10/12/2010 16:47

Hi ladies,

I'm so sorry you're having to arrange private scans. My daughter Fern was born sleeping 2 wks ago at 24 wks with bilateral renal agenesis. I've been really well looked after by my local NHS Fetal Medicine Unit and they've said if we ever decide to try again I'll get an early scan, one at 12 wks, 15, 20 and thereafter any time I feel necessary. I had assumed this would be standard care throughout the Uk.

I only wish I had such good things to say about our community midwives..........

Coffeeandchocolate · 12/12/2010 19:26

Kittens, I'll be thinking of you tomorrow and send you lots of good thoughts.

Louzie, I'm glad that despite the awful experience of losing Fern, you have been well looked after. Be kind to yourself, it's such early days for you. I hope you have support in RL.

I've managed to get an appointment with our professor on 23 Dec, I'm so anxious again and I feel that after some good few weeks of enjoying being pregnant and starting to dream about a future with our baby boy, I'm back to square one. There are times when I have a bad feeling that things are not right... We still haven't bought anything for him, we made a list but it all seems unreal.

Anyway, this was not meant to be about me. I just wanted to say good luck to Kittens for tomorrow and that I'm keeping everything crossed, I so hope it will all work out for you. Big hugs xxxx

NumptyMum · 13/12/2010 10:56

Thinking of you this morning, Kittens...

shangrila · 13/12/2010 11:36

Hi Kittens With you in that scan room today. Hoping for the very best of news. x

Mishtabel · 13/12/2010 12:25

Me too Kittens xxx

Havingkittens · 13/12/2010 14:29

Didn't go well I'm afraid. ERPC tomorrow Sad. Got to cancel a job now too so I'm loosing a couple of hundred quid to boot. Not really my week. Or should I say, year?

Thanks for your support, as always, lovely ladies. xxx

Coffeeandchocolate · 13/12/2010 14:35

Kittens, I'm so so sorry, this is so crap! I can't even begin to imagine how you must be feeling... I'm sorry and I wish there was something better I could say. Thinking of you and your OH xxxx

LittlePoot · 13/12/2010 17:27

Kittens - I'm so sorry. Wish there was something I could do. Thinking of you. xxx

OP posts:
katiecubs · 13/12/2010 17:40

Also thinking of you kittens, it's so unfair. Please get OH to take good care of you - much love xxx

VivClicquot · 13/12/2010 17:46

Oh kittens, I'm so sorry. Hope you and DH are being kind to yourself, and that tomorrow goes as well as it possibly can do under the circumstances. Lots of love xxx

ghislaine · 13/12/2010 18:27

Kittens, I am so very sorry. I'll be thinking of you tomorrow, and if you need anything or I can do anything for you, please let me know.

Cherrybug · 13/12/2010 18:35

I'm so sorry to hear that Kittens. Will be thinking of you tomorrow. x

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