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AIBU to complain about Heathrow special assistance for non-visible disabilities?

183 replies

cloudsky567 · 05/10/2026 16:12

Last week I travelled from Heathrow on a long haul flight. I booked special assistance through BA because I have non-visible disabilities. I am ND (confirmed diagnosis I only received a few years ago, not self diagnosed) and as a result I get overwhelmed with anxiety in crowded places and have a hearing impairment which I use a hearing aid for. For context, I travel a couple of times a year on short flights within Europe and have never booked assistance through an airline as I always thought it was only available to people who have wheelchair or mobility needs. It only recently came to my attention that I could potentially request assistance to make the airport experience easier as I usually just suck it up, I sometimes book fast track security and try to accept it’s part of the travel experience but I do struggle. I hate air travel and sometimes even opt for the Eurostar.

This however was my first time flying long haul to US and I didn’t know what to expect in terms of security as I’ve never flown from Heathrow so I decided to book assistance on this occasion.

When I presented myself to the assistance desk, I was initially ignored for quite a while and staff at the desk dealt with people who arrived after me even though I was politely waiting first. Eventually a member of the staff at the desk grumpily acknowledged me and asked where was my boarding pass, I tried to show it to her on my phone but she aggressively replied with ‘I can’t do anything without your boarding pass so you’ll need to get that’ and I asked her where I was supposed to get it from to which she then dismissively waved her arm towards the large check in queue to my left where a bunch of people were waiting and said ‘you’ll have to get it from there’. I was a bit confused as I only had hand luggage so I didn’t want to queue up for ages and couldn’t queue jump in front of everyone else. I hadn't realised I was supposed to print off the pass and ended up finding a self service kiosk rather than having this simply explained to me.

When I returned after getting my pass a different member of staff dealt with me and asked if I needed a wheelchair and I said no. Tbf she was more supportive and gave me a sunflower lanyard and then booked for someone to take me down to security and told me to wait there.

Things then got worse. Whilst I was waiting a different member of staff then approached me to ask if I needed a wheelchair and when I said no I didn’t she asked why I was there. I explained again that I have non-visible disabilities and I'd booked assistance and was waiting for it. She looked at me incredulously and said ‘well if you don’t need a wheelchair you don’t need someone to go down with you to security surely- its just over there’. I tried to explain that I struggle with crowds and queues and said that it had clearly stated that they support non visible disabilities and the sunflower lanyard scheme so what was the problem.

When I had checked in online at home I’d had a message saying that I may need to have my documents checked before going through security so I asked about this and she started laughing and asked if I had a valid ESTA and then when I confirmed I did she then burst out laughing and asked me ‘Oh dear is this your first time travelling?’ in a really patronising tone. I said to her that no it’s not but I haven’t flown long haul and she doubled up pissing herself laughing. The other colleague who had booked the assistance for me could see I was getting a bit annoyed and upset and came over and defended me in fairness to this staff member who said to her ‘oh she doesn’t need someone to go down with her, what’s wrong with her’ and the colleague pushed back and said I had non visible disability but by that point I was so uncomfortable that I just asked them to cancel the assistance entirely and walked off and said I’d manage. I found the whole thing incredibly humiliating and demeaning and felt I was being laughed at just because I wasn’t in a wheelchair.

I was upset after the interaction and wondering whether I'm being sensitive or whether I should complain. I do get that there are people who ‘swing the lead’ and pretend to need assistance or wheelchairs when they don’t to skip lines etc, but Im not one of them and do think people with non-visible disabilities should be treated with dignity and not made to justify themselves or feel as though they're somehow faking it. It’s taken me a long time to come to terms with being ND and I was often mocked and dismissed when I was younger for things I now realise were as a result of that.

AIBU to wonder if you would complain about this, or would you put it down to a bad experience and move on?

OP posts:
JustWalnut · 05/10/2026 19:04

I would suggest that someone who travels regularly and can normally "suck it up" and deal with the whole airport experience doesn't really need assistance.

JustWalnut · 05/10/2026 19:06

MrsPottsMumofChip · 05/10/2026 18:56

Op. I am fence sitting on this so much, I have splinters in my bum.

I am neurodiverse and am very short sighted in a way glasses cant come close to correcting. I was really anxious about solo flying earlier this year, so I arrived at the airport 4.5 hours early, which was ridiculous. I got through security, raced through the perfume smells and found a quiet area with natural.light and parked myself there with an audio book to listen too and plonked my bag on the next seat along so no one could sit there. It was fine and you know what I felt so proud of myself. I will carry that condidence into other parts of life

My mum cant travel without assistance, and she needs the wheelchair. She is also very vulnerable. Her needs are so much more than mine and resources are limited. In the area of disability, we keep on seeing resources stretched as more people are diagnosed with ASD/ADHD and the population is aging. This keeps on leading to services being gatekept more and harder to access.

They shouldnt be rude to you and you are not unrrasonable to complain. But, disability services are a limited resource and being independent often feels so much better.

Edited

Taking up a seat with your bag is so rude and inconsiderate in a busy airport. 😡

Soontobe60 · 05/10/2026 19:07

Luckily there are security cameras all over the airport so I imagine once they receive your complaint they’ll be able to confirm the member of staff who was doubled over pissing herself laughing.

otnot · 05/10/2026 19:08

Do you have an access card? You have to send off medical evidence detailing what specifically you need help with, which can include difficulty in crowds. I've not used the Heathrow accessibility service but I would expect them to recognise the card and assist you accordingly.

Access Card: Making access easy

Access Card: Making access easy

Get your access requirements recognised at thousands of events, attractions, venues, and locations across the UK and beyond.

https://www.accesscard.online/

Soontobe60 · 05/10/2026 19:09

This reply has been deleted

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JahanaraBegum · 05/10/2026 19:10

Yep I have MS and while I can walk distances if I have to mostly, I have booked assistance at Heathrow because I never know how far the gate will be and I struggle to stand for lengths of time ie in queues etc. This is particularly relevant if I am travelling long haul and am staring at 21 hour journey in the face. I look healthy and you wouldn't know from the outside that anything was wrong.

I have been told in Heathrow that I don't need a wheelchair twice, once at check in and once at a lounge, after being looked up and down. I shouldve argued but I was just embarrassed and didn't plus there was a part of me struggling with the new diagnosis and feeling like I wanted to be 'normal'. I've also experienced rude and grumpy assistance staff. Now I don't do assistance cos of that.

Soontobe60 · 05/10/2026 19:11

cloudsky567 · 05/10/2026 18:10

Oh well, guess I don’t look ‘disabled’ enough then 😬🤣
It’s not that I necessarily needed someone to ‘escort’ me to the plane, or provide the full assistance that would be given to someone with mobility issues.

But what did you need then?

Perfectpillowsdontexist · 05/10/2026 19:22

Complain. We always book assistance for my son who sounds similar to you. Anxiety particularly in security area, he is overwhelmed and panics when his things disappear into the x-ray machine.
We are supported through security to get us through and out as smoothly and as quickly as possible. Yes we have a staff member escorting us and no we don't need a wheelchair.
The lanyards are not about queue jumping, although as part of assistance we do ask to board early as my son gets stressed in queues. They are about highlighting extra support needs or understanding that you my need more time or patience.
TBF I haven't used LHR with him, but LGW are brilliant.
An alternative that might suit you if you've been put off trying assistance forever might be to book the speedy security service. Its not hugely expensive and is a lot calmer than going through normal security.
I'm sorry it was so stressful for you. Don't let people make you feel you shouldn't expect support. That service is there for everyone who needs support.

Fidgety31 · 05/10/2026 19:26

I had terrible attitude from BA staff at T3 Heathrow when travelling to the USA with my adult son . He also has assistance for invisible disability.
We don’t need accompanying but do use the accessibility lines at security and pre boarding .
he has been told more than once that he doesn’t look disabled so should not be using these - despite the accessibility code being on his boarding pass !

MrsPottsMumofChip · 05/10/2026 20:00

JustWalnut · 05/10/2026 19:06

Taking up a seat with your bag is so rude and inconsiderate in a busy airport. 😡

Haha there were plenty of free seats available 😂😂

But thank you, I have seen these sort of ridiculous posts before, but never a recipient. I feel like I have joined a very non exclusive club.

cloudsky567 · 05/10/2026 20:22

This reply has been deleted

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So you were there were you and can confirm that it didn’t happen? Okay 👍

OP posts:
cloudsky567 · 05/10/2026 20:29

JustWalnut · 05/10/2026 19:04

I would suggest that someone who travels regularly and can normally "suck it up" and deal with the whole airport experience doesn't really need assistance.

Yes of course that’s right, because those of us who have been unaware of having a disability for most of our lives, been mocked for being ‘different’ and been unaware that there’s assistance available to those without obvious mobility issues definitely doesn’t need it right?? How typically ableist and stupid a comment 🥱

OP posts:
seahorsessky · 05/10/2026 20:29

They definitely should not have been so rude. If they offer the service, they should train the staff, and maybe have notices advising what they can offer. It shouldn't be up to you to tell them about non-visible disabilities.
Complain.

Noras · 05/10/2026 20:38

When we get special assistance it helps with security but frankly with boarding we like to board last with son and get off the plane last.

For ASD it’s meant to get you through security and also be on stand by it you get distressed eg the alarm sounds and you have to be body searched / they also help gather the stuff eg bags and coats etc ( son gets muddled executive function and stress)

We then find the quietest spot - there is one behind a large advert thing in a cafe or in the special assistance seating

We then get taken onto the plane ideally last

At the other end we let everyone get off and then get escorted through security ( sometimes later than the other passengers)

That’s what you can expect - it’s really security - my son has paranoia about passports / can’t use a bank card as such so it’s all that stuff.

if you can queue there is little advantage and as said some times you get boarded last so are last on and off plane ( which for us is ideal as it’s to avoid the crowds).

We went like this after DS when young told everyone we had dangerous substances’ in our bags due to his anxiety. He has also discussed German bombs etc

OrangeFlower14 · 05/10/2026 21:03

@cloudsky567 i’m quite confused

You did ultimately manage on your own

So what did you actually want them to do? Yes, it’s a struggle to cope with the queues and the crowds and everything. Did you want them to escort you to the front of the queue? Is that what they normally do with hidden disabilities?

Did you look up what they provide in advance?

With the hearing difficulties, I’m guessing you needed someone to approach you when it was your time to board is that correct, in case you missed the announcement?

It sounds like they were really rude to you, but it also sounds like you managed on your own so it is quite confusing. Also, ND doesn’t tell us much. It’s just a big umbrella.

MeetMeOnTheCorner · 05/10/2026 21:07

Why could you not read up
on how the system works in terms of passport checks? It’s not rocket science. You just need to read up how it works and not say that’s special assistance. It’s really not. I can see a frustrated laugh might have been forthcoming.

Octavia64 · 05/10/2026 21:08

JustWalnut · 05/10/2026 19:04

I would suggest that someone who travels regularly and can normally "suck it up" and deal with the whole airport experience doesn't really need assistance.

Erm I travel regularly and can usually suck it up and deal with the whole experience but the one thing I cannot do is walk.

i do need an ambilift and if the main security/customs etc is not step free then I do need level access.

Makebelieveanotherlife · 05/10/2026 21:12

MeetMeOnTheCorner · 05/10/2026 21:07

Why could you not read up
on how the system works in terms of passport checks? It’s not rocket science. You just need to read up how it works and not say that’s special assistance. It’s really not. I can see a frustrated laugh might have been forthcoming.

Same thing I thought. Op said she travels so clearly knows how airports work. She was able to sort herself out so not sure what she wanted? There’s queues and crowds everywhere, not to mention she was probably on a full flight anyway!

Mulledjuice · 05/10/2026 21:22

Laughing and mocking you is unacceptable.

"Neurodiverse/ND" is not a condition. I infer from your post that you are autistic. I agree with others that you probably need to specify what support you need so that you can help them to help you.

When we have booked passenger assistance with railway companies we have told them in the booking form the type of help we need, as well as telling the staff member on arrival.

AmethystDeceiver · 05/10/2026 21:23

My sister books special assistance for my autistic niece when they fly, including to and from UK - USA. They get escorted through to the head of the queue, security is done in private, and get to board first. I think they also have a special assistance waiting area.

That makes the difference between a little girl being utterly traumatised and having a meltdown, and just about being able to cope with the process. It is the very definition of a small adjustment that allows a disabled person to access the same services as everyone else.

I'm sorry you didn't get the same @cloudsky567 - you should have. If you can complain you should so that they can do better next time

cloudsky567 · 05/10/2026 21:28

AmethystDeceiver · 05/10/2026 21:23

My sister books special assistance for my autistic niece when they fly, including to and from UK - USA. They get escorted through to the head of the queue, security is done in private, and get to board first. I think they also have a special assistance waiting area.

That makes the difference between a little girl being utterly traumatised and having a meltdown, and just about being able to cope with the process. It is the very definition of a small adjustment that allows a disabled person to access the same services as everyone else.

I'm sorry you didn't get the same @cloudsky567 - you should have. If you can complain you should so that they can do better next time

Thank you - this is exactly the sort of support I was after that your niece gets. Given the size of Heathrow and that I haven’t flown from there long haul I had visions of the security line being immense and struggling to cope with that. Despite some of the rude and clueless responses from people on here about how I obviously don’t need assistance as I’ve travelled before, what was I expecting and that the passport checks aren’t rocket science and I could have read up on that I did infact read up and realised that there was a dedicated security line for assistance at Heathrow and also quiet areas situated in the airport to wait at before boarding. Had the assistance desk not been so rude and actually asked what I needed I would have told them and they could have reassured me that the security line wasn’t infact that busy and I would have accepted this.

OP posts:
Makebelieveanotherlife · 05/10/2026 21:38

AmethystDeceiver · 05/10/2026 21:23

My sister books special assistance for my autistic niece when they fly, including to and from UK - USA. They get escorted through to the head of the queue, security is done in private, and get to board first. I think they also have a special assistance waiting area.

That makes the difference between a little girl being utterly traumatised and having a meltdown, and just about being able to cope with the process. It is the very definition of a small adjustment that allows a disabled person to access the same services as everyone else.

I'm sorry you didn't get the same @cloudsky567 - you should have. If you can complain you should so that they can do better next time

This is a child. Op is a fully grown adult travelling on her own.

GettingBTickets · 05/10/2026 21:43

MeetMeOnTheCorner · 05/10/2026 21:07

Why could you not read up
on how the system works in terms of passport checks? It’s not rocket science. You just need to read up how it works and not say that’s special assistance. It’s really not. I can see a frustrated laugh might have been forthcoming.

Laughing at a customer is not acceptable. It is downright rude. In any public-facing situation. I wouldn’t dream of talking to anybody like that in my job. Esp if they looked confused and were struggling.

havingoneofthosedays · 05/10/2026 21:56

Makebelieveanotherlife · 05/10/2026 21:38

This is a child. Op is a fully grown adult travelling on her own.

This 👆🏼

Summerunlover · 05/10/2026 22:00

I don’t get what you wanted them to do. I also wouldn’t take them asking if you needed a wheelchair personally. I am blind and they always bring a wheelchair to the gate to get me when all I need is some one to guide me. When you booked the assistance originally did you state what assistance you needed.

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