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Autistic Women Assemble! #2

982 replies

Nepmarthiturn · 06/08/2023 11:18

Helloooo lovely people, a new thread for a us to continue to chat and connect with other autistic women (small talk and word mincing not required). 😊

As before, anybody newly stumbling upon this is very welcome to join us (even if still awaiting diagnosis). But we'd be grateful if others could leave us alone please, like the NT man we encountered in thread #1. 🤣

OP posts:
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OwlsRock · 06/08/2023 17:48

TheShellBeach · 06/08/2023 16:49

@OwlsRock Hi. I meant to acknowledge that you'd posted about getting your diagnosis on the last thread.
Are you now sitting back and making sense of your life? Ask the things that somehow went wrong, despite your best intentions?
Etc. You know what I mean.........

Thank you for asking 😊

It feels odd. Not a shock as I always knew something was off but a year ago I thought it was depression and my weirdness.
I'm definitely thinking back through stages of life and things do make sense a bit more now but I probably still a bit rabbit in headlights about it. I've not told anyone yet.
I am thinking a lot about the link and conflicts between Autism and ADHD though.
Sometimes I think it's good I've got both as they counter act each other sometimes but then that can be counterproductive too sometimes.

blacknredsweeties · 06/08/2023 17:53

Hi I didn't know there was a thread.

Hi everyone x

OwlsRock · 06/08/2023 17:54

Hello @MumofoneASD

Yes I know what you mean about childhood stuff. I was labelled as so difficult at times which my mother (as an obvious but oblivious and undiagnosed autistic) found so hard. I get why she struggled but I left me with the reputation for not complying with stuff and horrendous punishment.
I'm sorry that your father treated you like that.

OwlsRock · 06/08/2023 17:56

Washing on holiday - I always wonder about how clean the machine is !

Will assess the one at the place I'm going to and decide then. Reminded me to pack some powder and DW tablets too though 👍

OwlsRock · 06/08/2023 17:58

QuitChewingMyPlectrum · 06/08/2023 17:16

To the person that was talking about food delivery and meal plans, I hear you.
I switched to Ocado as they almost NEVER substitute and when they do it's usually a sensible one.
Shopping costs about the same as it did from my previous supermarket too!

I'm a big fan of Ocado for usual deliveries. Or go to sainsbury or elsewhere for other bits.

I do seem to struggle with checking the end basket properly and end up without things I thought I added and with double things I didn't want, more than id like

crackofdoom · 06/08/2023 18:04

TheShellBeach
She grooms herself (she's only 7), but if we don't keep up with regular brushings (which she adores), she's prone to puking up copious fur balls, preferably on my bed 🤮

Rummikub · 06/08/2023 18:08

This is fascinating. I’ve always taken bags to put dirty clothes in, separate bags for shoes etc so it stays separate from clean clothes.

my dd got her ASHA diagnosis recently and that’s what prompted me to seek mine as so much was recognisable!
Awaiting diagnosis. Had a letter for the asd saying I’m on a wait list. But not heard anything back about adhd assessment.

it will take me a long time to get round to chasing it.
on a similar note- I keep
delaying getting my prescription meds as it’s changed to I have request 7 days prior. That’s too much mental load for me.

TheShellBeach · 06/08/2023 18:36

Ugh. Prescriptions.
Every month when I order them I panic because I imagine the pharmacist won't let me have them. I mean all my meds, including things for heartburn.
I get antidepressants and mood stabilizers as well, and I have this recurring nightmare that the pharmacist will announce that they won't give me any of my stuff.

To be fair, this has never happened but my anxiety will not allow me to accept this.

Yellowdaysaregood · 06/08/2023 19:23

Takes deep breath, 😅 hi am self DX at minute mainly because I don't think I am strong enough to come up against opposition if faced with it. I struggled massively in the year before lockdown with my mum who was ill, I am an only child so no other support. Doctors were again of the opinion that it was anxiety and depression, having read around autism and late diagnosed women specifically I'm 💯 per cent sure that I've struggled all my life because of this. I am trying to build myself up to reach out for a diagnosis so maybe reading some of your stories on here might give me courage.

TheShellBeach · 06/08/2023 19:43

Welcome@Yellowdaysaregood

Rummikub · 06/08/2023 19:48

TheShellBeach · Today 18:36
Ugh. Prescriptions.
Every month when I order them I panic because I imagine the pharmacist won't let me have them. I mean all my meds, including things for heartburn.

I feel the same. I hate it too when my dose of thyroxine is changed without warning or if the packaging is different.

Apparently other people don’t tend to sit in the dark or struggle with moving from
one task to another. Who knew!

TheShellBeach · 06/08/2023 20:30

Rummikub · 06/08/2023 19:48

TheShellBeach · Today 18:36
Ugh. Prescriptions.
Every month when I order them I panic because I imagine the pharmacist won't let me have them. I mean all my meds, including things for heartburn.

I feel the same. I hate it too when my dose of thyroxine is changed without warning or if the packaging is different.

Apparently other people don’t tend to sit in the dark or struggle with moving from
one task to another. Who knew!

I HATE this unending, unrelenting fear.

Craftycorvid · 06/08/2023 20:45

Hello! 👋🏻 Got a diagnosis (autism) this year in my 50s after a very long journey which has included working with autistic adults - took ages for the penny to drop! I strongly suspect my parents were also autistic (definitely my dad). Finding out about myself has helped me understand and accept a lot of my childhood experiences, especially spending my pre-teens being told to grow down and the rest of the time being told to grow up.

Loving all the 😻pictures!

My ‘thing’ with laundry is that I MUST unpack the second I’m through the door after being away - literally the first thing I do, and put things away or put them in the wash. It would feel like I hadn’t properly arrived home otherwise.

Iguessyourestuckwithme · 06/08/2023 20:47

Hello.

Almost 2 years since private diagnosis.

Adhd/autism/sensory processing/rejection sensitivity/pmdd

lunaalice · 06/08/2023 21:42

Hi. I was looking where to post this. I don't want to add it to chat.

After some advice.

My kids have been arguing and physically fighting above my head. I hate arguments, loud noise and people touching my head. They are old enough to know what I can and can't handle. I put my hoody over my head to cover my ears. They both laughed. My husband laughed. I said it's my last resort. I kept telling them to stop messing.

I hate to use this but I said you don't understand it's not me being dramatic I'm autistic.

Husband said I can't use that as an excuse for everything in life.

He said there is a large scale and I'm on one end so I might have a little bit if that.

Why do people have to drive you to make an idiot of yourself.

So fed up x

lunaalice · 06/08/2023 21:42

I'm nearly 40. Was diagnosed at 35,

thehedhogcanneverbebuggered · 06/08/2023 21:51

@StopStartStop haha I'm so annoyed at myself and thankyou for pointing out my silly typo! I bet I can't change it now!

truthhurts23 · 06/08/2023 22:01

can someone please advise me on the best route to get diagnosed , i was quoted a ridiculous price for private , do i just go to gp and say i think im autistic?

I realised I had symptoms when my daughter was diagnosed and everything clicked into place for me, its difficult , im sure i have co morbid things too like adhd , depression, anxiety and possibly ptsd

thehedhogcanneverbebuggered · 06/08/2023 22:02

@camelCase can totally relate about the workmem in the garden thing . Where I live there has been 5 months of constant building works right next door to me, building men hollering, vabs, building rubbish leant up against my house, parking chaos, doors slamming, circular saws, drilling. I'm in social rented accommodation and have made a complaint. Not least because they never even told anyone when the building works would start, let alone finish. There's been lots of unsocial hours too with it. I've had 3 meltdowns this week alone and my poor pup is distressed at the noise! Hope yours is resolved very soon!

thehedhogcanneverbebuggered · 06/08/2023 22:03

*vans. My fingers, me eyes and my phone hate me 😭🤣

truthhurts23 · 06/08/2023 22:05

also do they give you medication to help manage symptoms or is it more therapy based? i feel like im not good at masking, i was always bad at it but its gotten worse as ive gotten oldeR because I dont have the energy to mask anymore, i always felt like i was pretending to be someone else and had to copy people, so i dont really have my own identity

i knnow nothing about the drugs because im not keen on my own daughter getting drugs

thehedgehogcanneverbebuggered · 06/08/2023 22:15

Hi @lunaalice 'Husband said I can't use that as an excuse for everything in life.'
You could try telling him that it's not an excuse for everything, it's the REASON I am as I am.

My mother and father didn't take my diagnosis well and said the same thing as your husband. They treated me very badly as a child (physical and emotional abuse) and they didn't protect me as a teenager when I was having horrendous times.
You deserve to be allowed peace when you need it to avoid meltdowns...and your loved ones need to start listening to you. It's cruel and actually discrimination to purposely wind up someone who is autistic.
🌸

lunaalice · 06/08/2023 22:55

Thank you @thehedgehogcanneverbebuggered ❤️

QuitChewingMyPlectrum · 07/08/2023 00:13

MumofoneASD · 06/08/2023 17:31

Hi, not sure if I posted on the last thread, have been awaiting a diagnosis for a year or so, had a teams consultation last week and the psychiatrist said he will formally diagnose me with ASD, just needs DH to fill a form in (childhood friend did it already but he wants another one.)

Also waiting for ADHD assessment - think I have about another years wait for that one - I've had the 'pre-assessment' and they've spoken to DH and said they think it's probable that I have ADHD so have put me on the waiting list for a full assessment.

Just can't believe really how much of 'me' has been masking, my whole life. That my 'tantrums' as a child were not 'tantrums' and certainly not because I was a 'spoilt bitch' (DF - not so D really.)
Everything has been such a hard slog, and now I know it's not because I'm stupid. And I can cut myself some slack.

I'm mid fifties now so hoping to get another 25 years plus of not trying so hard to fit in!!

I wash clothes on holiday too - and take black sacks to put any dirty washing in so it doesn't touch the clean clothes. In fact I probably take more plastic bags to put shoes, dirty stuff etc in than I do clothes.

Hello fellow AUDHD-er (probably!)
Yep, similar boat. Expect lightbulb moment, followed by a lengthy period of anger that you weren't nicer to yourself for a while and a long transition period where you figure out who you are without the mask. Personally, I have a ND therapist. It's massively helpful.

QuitChewingMyPlectrum · 07/08/2023 00:16

TheShellBeach · 06/08/2023 18:36

Ugh. Prescriptions.
Every month when I order them I panic because I imagine the pharmacist won't let me have them. I mean all my meds, including things for heartburn.
I get antidepressants and mood stabilizers as well, and I have this recurring nightmare that the pharmacist will announce that they won't give me any of my stuff.

To be fair, this has never happened but my anxiety will not allow me to accept this.

Feel you. I have various complaints and take a total of 11 different tablets per day.
The ONLY one I've been questioned about is my ADHD meds. My usual reply is that if I don't get them I ain't requesting or taking the others because my
ADHD Won't allow it

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