Dla waiting times second thread

[Ems1991]

Hi the first thread ended because when it reaches a 1000 comments it will close I thought I would set this up so everyone can talk again

@Alk19 I updated them the 23rd Sept, I knownyou were before me too so surely they can't have you waiting much longer. I sent them a really long, detailed message on Thursday and they finally took notice

@Jneill2021 my letter like that was dated the 1st and got the decision on thursday which was the 18th xx

Hello ladies.

This is my first ever post, bought here by Google, in my stressful time waiting to hear about our Sons DLA decision.

He has Sacral Agenesis (missing the bottom of his spine, he is built differently waist down, inside and out), multi-cystic dysplastic kidney (only has one kidney now), neuropathic bladder and other smaller problems connected to each issue.

He cannot walk without his medical walker and is being fitted for a wheelchair. On this basis we hope for HRM and to get into the Motability Scheme.

As for care, we are hoping for at least MRC. He has to be assisted when dressing, due to balance (he has legs deformities and his legs are shorter than average). Also has balance issues when bathing and has to be kept dry throughout the night as his bladder issues lead to skin infections below.

Our claim was recieved on the 29th September. So we are anxiously waiting.

My question is, which may have been explained previously, (sorry, I am slowly catching up but currently have COVID so am really dopey right now lol) if successful with the claim, when declaring it to UC, would I put the date in which they recieved our claim, or the date in which I hear the decision on the claim?

Thank you if you made it this far,

DW x

@DeludedWench Hello you put the date when dla was awarded from UC is a long wait for back payment but they elements should be added on relatively quick I hope you get better soon X

@Nic247 sorry I meant how long after having the decision did it take for ur payment confirmation x

@Alk19 ah I got the letter from decision maker on the 31st Oct. Not sure how long it takes for the payment to actually reach my bank. All it says is we will pay XXXX into your bank

@Alk19 thank you for your reply!

@CloMo1995
Thankyou
I rang on Friday and they said with the decision maker

Will keep the thread posted x

@Loladiego38 fingers crossed for you xx

Anyone elses still in holding? Phoned up again on Friday to be told it was in holding that was 9 weeks on Friday 😌

I am 9 weeks 3 days today still nothing got told on Friday they where working on up to the 15th of September last week so we should hear this week she advised if nothing by Friday to phone back up so you could phone today and see if they have made a decision @Lozca93

Anyone having trouble getting through today keeps cutting me off x

@Jneill2021 if you get through can you tell me what they say as I’m going to phone today later x

@Jneill2021 yes i have had trouble, apparently they're having technically difficulty try back after an hour.. still no luck since 9am. Trying my luck tbh as our claim on its 6th week. Fortnightly hospital visits 12 mile round trips and the parking costs are astronomical, especially with the cost of everything rising.

@Blabbermouth93 I manged to get through there lines seem to be working now , no change on my claim but its only 8 weeks so expecting another week or 2 x

@LovingLanz5 I’m on 9 & a half weeks it’s ridiculous but I get it I have 4 disabled and only
Applied for one at this moment as it is draining process to go through however because I’m a single parent and just had to give my job up as all 4 are under consultants so here there and everywhere universal credit have now told me to make sure I apply for them all just can’t come quick enough never been unemployed in my life and with Christmas coming up I’m stressing so much 😑

@Jneill2021 thank you for letting me know I’ll try contact them and see if there is any change they definitely said I should here by this week but it keeps changing x

@Blabbermouth93
I'm sorry to hear that. I was working full time with my 3 children eldest at the time was in mainstream secondary struggling with Adhd and Autism, constantly getting called in, it was so hard I had to take VR. I now have 5 children eldest is 19 and still struggles Pip is another story(vile people) but my baby spent 4 weeks in hospital very ill and finally got diagnosed with Systemic Juvenile idiopathic Arthritis awful auto immune disease. So back and forth to hospital is bloody big expense. They just don't understand this drawn out long process wreaks havoc on people's stress and Anxiety. Hugs to you.

@LovingLanz5 oh god your situation sounds so similar to mine , oldest nine has a heart problem and adhd second 8 autism and adhd third he is 4 had a cardiac arrest and pneumonia double lung collapse at two weeks old so much going on with him due to brain shutting down and adhd and my 4th had meningitis at one week old and now suffers absences and seizures honestly so hard trying to juggle all consultants and appointments I feel you on the pip I’ve been through it absolute joke I feel your struggles always here if you need a rant it is hard going x

@Blabbermouth93 my heart hurts for you. My goodness all 4! Babes how do yo cope? I'm struggling mentally atm. Recovering from covid and it's played havoc on my IBS/health anxiety. Do you have a support network around you? How old is your youngest. I know someone who applied mid 2021 and they was awarded in 4 weeks. DLA and their timescales are shocking. Thank you. Same goes to you to.. xx

I called today and the lady informed me that it is taking up to 10weeks for new claims.

@DeludedWench

I called today and the lady informed me that it is taking up to 10weeks for new claims.

I hope this helps. It puts a timescale on things.

Just caught up and I'm sorry to read everyone's struggles.

I can understand the many hospital appointments in many places. As stated above, our son has SA (missing the bottom of his spine, causes leg "deformities"), kidney, bladder and bowel issues (linked to his SA). We are under three specialist at GOSH, they never book to see him on the same day lol. And he sees another two specialist for his legs and viable tissue at RNOH, they never book the same day. He also goes to our local hospital for some tests, and they are always running late.

Driving to them alone is exhausting, but hospitals seem to siphon your every being from you too. So I definitely understand and emphasise with you all, and I hope DLA get sorting some claims so it can give some relief, before Christmas.

@DeludedWench I'm so sorry to hear about your son, my heart goes out. Its difficult to deal with a sick child and then to top it off the nuisance called DLA just adds to the pressure we're under. Do you live far from GOSH? My daughter is under bham children's hospital, even though Heartlands is closer they don't have a paediatric rheumatology clinic. Very much hoping it'll be sorted before Xmas. Xx

I’m sorry we all seem to be struggling oh I suffer Ibs and health anxiety too @LovingLanz5 so definitely know your struggle it’s brutal xx