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All aboard the Seafour tour bus #2

999 replies

Seafour · 12/12/2018 20:12

A new thread for us

Old thread in HDU with respiratory failure and terrified

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Seafour · 11/01/2019 23:20

Justanotherchristmasuser what wonderful news and how generous are you to share it here with us 💕

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bexcee · 12/01/2019 09:00

@JustanotherCHRISTMASuser01 what lovely news I'm sure it won't be an easy journey for you but it will be so worth it. Wishing you all the very best for your application.
Morning everyone else. Off to watch DS play football this morning so need to find my thermals I think!

MintyT · 12/01/2019 09:37

Sea. Sounds like you had a normal day yesterday,
Notjust congratulations I hope you have a smooth journey, my DH was adopted, isn't it funny how we can share on here, the car crash that is my life continues, as I'm looking one way somethings happens from the other. Oh well what doesn't kill you makes you stronger and all that. Have a lovely day all

Seafour · 12/01/2019 10:01

Morning everyone, yesterday did feel like a more normal day with the exception of dgc and their dm turning up for a shower, which isn't normal for a Friday evening.
Because it's our unofficial Christmas weekend we had to watch Elf again and play Uno. Friday night is pizza night so no elaborate catering required. It was a lovely day.
DD is taking the dgc out this afternoon and then stockings will be hung this evening.
It's going to be a lovely weekend.

I'm doing well in terms of recovery and being pretty much confined to the house and short trips out with Lola it's perfect for avoiding all the winter coughs and colds.

Have a lovely day everyone

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mineofuselessinformation · 12/01/2019 19:26

Hi, Sea, I really hope you're having a lovely weekend with your family.
I have had a much better day today.
Dc and I went to a supermarket further away (much bigger than our local one) and had a wander round and look at everything. Dc bought some clothes.
When dc feels hungry tonight we are going to have a baked Camembert, and tomorrow we are going to have my own version of miso soup which has garlic chilli and ginger in it. If my finger joints are behaving I will use chopsticks and slurp as appropriate! If not, a fork will do.
I'm looking froward to hearing how your second Christmas has gone.
Onwards and upwards as always. Thanks

MintyT · 12/01/2019 19:48

Please cross fingers and toes for me.

bexcee · 12/01/2019 20:05

@MintyT hope everything works out well for you am thinking of you

yawning801 · 12/01/2019 21:53

Minty Thinking of you

2018SoFarSoGreat · 13/01/2019 04:54

Thinking of you Minty 🙏

MintyT · 13/01/2019 07:12

Thank you so much, I was moved I really was - I think there has been a small step in the right direction)

Seafour · 13/01/2019 08:47

Minty keeping you in my thoughts and prayers, a long journey ahead but lots of people rooting for you.

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Seafour · 14/01/2019 16:25

The bus has gone to be deep cleaned and will be parked up in a new location. I will see you there if you've received an invitation. If you think you've been inadvertently missed off the guest list send me a pm.
I'm not leaving MN but want to take my original Buslings with me on the rest of my journey where I can be the real me, safe from the troll hunters who came and crapped all over a lovely supportive thread that was hurting no one and giving lots of people a safe place to share.

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Crownandheelshigh · 14/01/2019 16:45

@Seafour have pm u cx

Seafour · 14/01/2019 17:21

Have already sent you an invite, as if I'd miss you off the list.

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LuckyLou7 · 14/01/2019 18:39

Seafour, wishing you well and hoping your new place is safe and supportive Flowers

ChanelPlease · 14/01/2019 18:52

Best of luck op.

I hope you get support and appropriate encouragement wherever you go next.

Please remember not to call hcps names and try to be fair to those trying to do their best for you. Also I would try not to convince yourself you are critically all the time, it will make you horribly anxious Flowers.

Nacknick · 14/01/2019 21:14

@ChanelPlease, if chronically ill people who have an illness or injury that may or may not prematurely shorten their life were able to be anything other than anxious about their condition then it would be wonderful. I count myself as one of those people and it's horribly debilitating to have to think about it all the time, but the amount of time I have to spend managing my health is ridiculous (treatment, physio, getting medication from multiple sources, appointments, exercise, eating - the list is endless). Barely an hour goes by in the day when I don't think about it.
I really don't think you have any idea how patronising you are when you say things like the comments you have just made and I thought for a while about whether to respond. But given that I think you have said you are a HCP I thought it worth trying to share a different perspective that it would do you well to have a think about.

Nacknick · 14/01/2019 21:15

For the avoidance of doubt I'm referring to this comment:

Also I would try not to convince yourself you are critically all the time, it will make you horribly anxious

ChanelPlease · 14/01/2019 21:24

'But given that I think you have said you are a HCP I thought it worth trying to share a different perspective that it would do you well to have a think about.'

I'm a HCP but also I've personal experience of caring for someone with significant serious health issues. I fully understand the constant worry, the exhaustion, the mental stress, the dread about further opas and treatment. The impact this has on the whole family..

The thing is, coping strategies must be developed. We can't all live our imagining resus, blue lights, failing ventilators. I get that the op wants to talk at length, to moan. We all do it. Sometimes being positive and realistic can have a much more positive effect than dramatising all the though. Ime.

Schuyler · 14/01/2019 21:35

Nacknick I’m afraid I politely disagree. I also have serious health problems and I also have anxiety about my health. I might feel as if I’m dying because I feel really unwell and my brain has convinced me it’s the end but I don’t go around telling people about it nor the worse case scenario.

bexcee · 14/01/2019 22:08

As we leave at the next stop I wish you all well on your onward journeys.

Seafour · 15/01/2019 00:45

I want to say thank you to all those posters who got me through the difficult days, the admission to hdu two weeks before surgery, the run up to my operation and the difficult days that followed. We had something special, we cared about each other and it was lovely.

It's very very easy to pick over someone's posting history and cherry pick posts or parts of posts and whip a few people up into a frenzy so that none of you are capable of independent thought or research. You all believe you've discovered someone with motives that are unpleasant, dishonest and ultimately out to hurt the lovely genuine posters that enjoyed being on a virtual bus. They felt a sense of belonging, safety and mutual support, the very thing that Mumsnet set out to be.

I made no attempt to hide who I am or what I was going through because I have nothing to hide. My story is what it is, my family has had more than it's fair share of tragedy and misfortune. The story is still there for anyone to read, I haven't asked for it to be taken down because it's real.

If you really want to go over my whole posting history you will find lots and lots of examples of me being supportive to other people, lots of examples of me complimenting hcp's for the excellent care I've received. But hcp's don't always get it right, they make mistakes, they get things wrong, they unfortunately sometimes hurt and harm the people they should be caring for.

Chanel you seem to have become fixated on a small selection of my posts covering a period in my life when my ventilation wasn't effective and the result was repeated emergency admissions to hospital under very frightening circumstances. You haven't done your research, take a proper look through my posts and you will see that I have a lot of positivity in my life. I do a lot for other people, I have hobbies and a life outside my home. Yes I'm living with a very frightening set of health conditions but they don't define me, you got me so wrong. All of the answers to all of your questions are there in my story, you can go and look for them if you want to.

As for the troll hunters who think they are so clever, their vile, disgusting posts and ridiculous theories that I'm posing in my daughters wheelchair or that I'm a carer myself and using the equipment of the person who employs me. Do you know how stupid you sound. There are no sock puppets, no duplicate accounts, I'm not out to scam people and I don't care what you think or do. You got it wrong.

Yes you hurt me and lots of the lovely posters on my thread too, yes you made me cry and made my family angry but that's what bullies do. They hang out together and think they are the dogs bollocks but really they're just a bunch of saddos with nothing better to do than pick on an easy target. Well you got your kicks and had your fun I hope it made you feel big and strong and important.

I won't be leaving MN or name changing because I've been bullied before and running away isn't the answer.

I want to thank MN for their help and support too, I felt that you were there for me when I needed you most.

The bus has been spring cleaned and repopulated with Buslings, we've left MN and found somewhere secure to carry on with what was started in the early hours of the morning in November when I was in a high dependency unit and terrified. I asked for a handhold and got one, thank you mumsnetters, you did good.

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Seafour · 15/01/2019 00:46

My thread my right to finish it

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Seafour · 15/01/2019 00:46

Goodbye

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