All aboard the Seafour tour bus #2

[Seafour]

A new thread for us

Old thread in HDU with respiratory failure and terrified

Well Seafour I think we need another cuppa. I also have some lovely rich chocolate cake for the bus. I had a very productive day taking things to the tip and the charity shop and clearing the decks after Christmas. I am just going to tidy up the bus a bit and air the cushions.

How are you feeling today? Did you manage to get outside at all? It was a lovely mild day here.

And here endeth the chaos! Hot chocolate anyone?

I've had a lovely day thank you, a visit from a friend this morning and another this afternoon, dh is a little better and we are excited that dd will be arriving tomorrow evening for a pit stop before she attends a conference for the rest of the week.
Dd and her dp will be back on Friday ready for our late Christmas on Sunday.

Hot chocolate, you say? 
I have some marshmallows to contribute.

Well, day one of line management seemed to go well. Fingers crossed the rest of the week went well

I'm glad you've had a good day @Seafour

It's good to see you around, Sea, and even better that you've had a good day.
Is the delayed Christmas going to be with all of the trimmings? (In which case I bet dh will be busy. )
We actually had a turkey crown from Aldi this year, which was very good (not mentioning the parking ticket that parking eye tried to give me when I took elderly DM shopping there....)
I had my first full day back at work today - last week we had two training days - and it's been ok.
Onwards and upwards for us both!

I'm glad you had a good day too Sea

Here's to many more!

Christmas will indeed be with all the trimmings, we've left the tree and decs up, have crackers, stockings and will have several of the dc's & dps, 2 dsc too which is lovely, 3dgc and hopefully dmil who has dementia, if she's well enough. DH won't be doing any cooking, everyone's been allocated jobs to do so that he can have the day off.

How's his back today Seafour?

That’s lovely. I am glad you saved Christmas for when you are well enough to enjoy it.

Wittyname glad your day went well, thankfully you only have to live one day at a time.

Witch he was a bit better today, it's going to take time it's come as a real shock to him and me to be honest he couldn't even put the bin out tonight. I think the young lad next door appreciated the sweets we gave him for doing it for us.

Applesandpears really looking forward to it but especially seeing dd, she is also a wheelchair user and as her mum I always feel I want to do more to support her.

I have two basal cell carcinomas on my nose and cheek, I had initially hoped to have MOS surgery which is considered to be the gold standard with a 97% success rate, this would have involved a skin graft over the site.
I was not a suitable candidate for MOS surgery and as a result was offered light dynamic therapy which involves using a cream which is applied, left for two hours then activated using a red light, the area and a margin around it is burnt as a result, the photograph I posted was after the first treatment, it is repeated a days later.
The success rate isn't as good as MOS and as I've stated before I have yet to attend my follow up appointment to find out if the treatment has been successful or whether I require further treatment.

I posted after my second treatment on a thread about sun bed use, when my face looked and felt at its worst.

I have never said that an hdu department was opened just for me, or that it was located in Derbyshire.

I feel deeply saddened that I have been targeted by a group of deeply unpleasant people who have set themselves up as the unofficial troll hunting police of MN, who's discussions on my posting history is truly vile and on this thread in particular insults the intelligence, kindness and empathy of everyone who has read my story and supported me. They have even sent "evidence" of my wrong doing (in their sick minds) to a hospital.

I am more than happy to provide all the proof in the world to MN including the names of the hospitals where I've received treatment, where my respiratory team are based and would urge them to take me up on that offer, they can even have a copy of the photograph from the ribbon cutting ceremony.

They have accused me of fabricating my life, sometimes in part and sometimes in its entirety, of pretending to be a number of those people who have supported me, including Fabulous. Does that hurt, yes you bet it does I have no need to fabricate any part of my life, I certainly don't have the time and energy to run multiple accounts. They have had the audacity to think that they have proof that my PA doesn't exist, she is a real person who is genuinely very ill and really suffering, it is not my place to divulge details of her personal life but these vile people have really overstepped the bounds of all decency in doing what they have done.

I now have to decide if the emotional upset, hurt and stress of keeping this thread going is worth it.

Hiroo Have you noticed that your fellow troll hunters have actually listened to MNHQ and left? You're on your own now, love.

seafour please keep posting, I want to know how you are getting on, your DH, you fab pa, your family your carer. Your journey. Don't be dragged down. Carry on with your lovely writing style. My life at the moment is a complete car crash ( don't know why I've told you that ). Off to work now have a good day - remember to check out the Matt Hampton foundation xx

Minty thank you and I'm sorry you're having a hard time, but at the moment this thread is making me more sad than happy and that's not good is it. There are other ways I can tell my story and other places I can do it, I don't want to let them win and chase me off, there is one particularly vile individual who has targeted me before, sometimes it's easier just to let them win and go away. I'm not sure that now is the right time for me to be doing battle, I should be concentrating on my recovery.

Maybe try to just scroll on by any vile posts and ignore. All the buslings are still here waiting for the weather to improve.

'Have you noticed that your fellow troll hunters have actually listened to MNHQ and left? '

Not everyone raising concerns has been troll hunting. I have always believed the op has significant health issues and wish her well but just suggest it may be helpful to access CBT or similar to give her strategies to help her cope and manage her negative thought processes.

Also, please seafour don't make derogatory comments about current hcps, it is inappropriate and very unkind. Best wishes.

On your linked post you refer to being hounded off the low carb posts as well op

Chanel I will continue to post the truth, the good bits, bad bits and the totally mundane. I am not a negative person, far from it people who know me in real life will tell you I am one of the most positive people you could meet. I make the very best of a really difficult life and try and get out and actually live a bit rather than sit at home and worry about my health.

In amongst the sustained attack on this thread you asked lots of questions about my condition, I have no need, desire or gain from embellishing or exaggerating any aspect of my health or how it is treated or managed, I have offered to categorically prove any of that to MN and they can report back on my integrity. Right now there is nothing to be gained from feeding the reddit monster on an open forum.

Thank you for your suggestion of CBT and counselling, I have had extensive counselling and it improved my life enormously, I have no desire to undergo any further counselling at this time, I just want to recover from my surgery and get fit enough to enjoy life.

Horace yes indeed, did you have a point to make or were you merely confirming that I've been the subject of sustained hate campaign by the unofficial troll hunters.

So my attention has been drawn to this thread, because of the comments about being 'hounded off' Bootcamp.

That is not true @Seafour and you know very well that it isn't.

So you reserve the right to post negatively about HCPs you deal with, even though they are clearly identifiable as you have posted your identity and photos of yourself in hospital on here?

Like your current carer, you have posted photos of yourself and you have one current live in carer who you complain - about including her appearance? How are they not identifiable? Genuine question. I see you also didn't address not paying your fabulous PA while she's off sick, after detailing your diamond purchases?

This thread is not how you'll get the support and help you clearly do need.

BIWI with the greatest respect you know nothing about what happened to me when my account was suspended but it was for the same reasons that this thread was attacked yesterday.
I have enormous respect for the sterling work you and others put into boot camp it's a wonderful supportive community and I didn't mean to imply it was anyone within that community who hounded me, it was sadly the same vigilantes who have targeted me here.
I will always be grateful to boot camp for giving me the confidence to ditch the carbs and helping me to lose weight.

On 23/11 you posted

“Having me has been good for the hospital, they now have a medical HDU and a dedicated Acute Respiritory HDU, my second home, I felt honoured when I was invited to cut the ribbon when it opened last August. “

which is why people might be confused and think you opened an HDU that was set up because of your needs :) I’m sure there’s a crossed wire somewhere, but things like this are why people might be getting a bit funny about the stuff you post! Hope you’re okay today.