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All aboard the Seafour tour bus #2

999 replies

Seafour · 12/12/2018 20:12

A new thread for us

Old thread in HDU with respiratory failure and terrified

OP posts:
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16
BIWI · 08/01/2019 09:50

If your account was suspended then it was for good reason. MNHQ do not do that lightly. So that's not quite the same as being 'hounded off' is it? I really resent the insinuations that you have made in this thread (because I've read it all now) that you were somehow a blameless victim, and that Bootcampers were the evil ones.

BIWI · 08/01/2019 09:52

Oh, and if it's happened more than once to you, does that not tell you something?

ChanelPlease · 08/01/2019 09:52

Sorry op, are you suggesting I've attacked you, or just you feel attacked in general as people have pointed out issues regarding your story?

As someone with years of ITU and community care experience I am trying to reassure you. If you expect gp visits for elevated temperatures it will increase you anxiety if you get a nurse. Next time have your care plan handy and expect a nurse. They'll escalate any concerns to the gp.

'she had failed to reconnect the tubing to my suction machine. This could have really frightening consequences, because I can't cough I rely totally on the suction machine to clear secretions loosened by being on the ventilator'

Again I'm trying to reassure you. If your cough wasn't strong enough to clear tracheal secretions you would have a tracheostomy. The fact you don't indicates there wouldn't have been any frightening consequences if the new carer hadn't attached suction tubing so again, no need to panic.

Do you agree you won't make further deogatory comments about current hcps as you've identified yourself as this is at best grossly unfair and at worst defamatory?

Seafour · 08/01/2019 10:15

BIWI I thought I'd made it clear that it was troll hunters, not members of boot camp who hounded me off. The tone of your replies is hurtful and unpleasant.

OP posts:
BIWI · 08/01/2019 10:21

Because I told you how I feel? You don't take into account how I might feel, do you?

MichaelMumsnet · 08/01/2019 10:23

Just dropping by to post this once again....

We do have to ask everyone to tone it down now. Troll hunting can result in both a suspension and permanent ban and derailing also breaks talk guidelines (so it can have the same outcomes).

Please, if you don't like a thread or you're unhappy/concerned with it, report it to us and take a step back.

Thanks all.

Seafour · 08/01/2019 10:32

BIWI my reply was very kind and complimentary about you and boot camp so I'm totally confused about how I've made you feel.

OP posts:
KatesMott · 08/01/2019 10:35

Apologies @Seafour and thanks for explaining further regarding your basal cell carcinoma. I’ve been a bit would up on this thread as I had melanoma a few years back and still bear the scars now so was a little confused by your postings around scarring and recovery time etc. For example on a thread about sunbed use on 16/10/2018 you said:

I have skin cancer on my face. I'm having treatment at the moment and have a large open wound the size of my palm covering my nose and one cheek. I've watched my grown up kids cry this week because of my disfigured face”

Only to then say two months later:

”I was diagnosed in June with two basal cell carcinomas, I've had light dynamic therapy to burn the bastards off, I find out in the new year if I need radiotherapy. In the grand scheme of things it's no big deal. I had a very scabby face for a few weeks, it hasn't left a scar.”

I guess I was just a little resentful as almost 7 years on I still have the scar from my skin cancer. Really glad you found a treatment that worked so well and so quickly for you Flowers

BollocksIsNoACompleteSentence · 08/01/2019 10:50

Seafour do you want to answer my earlier post about carers?

Seafour · 08/01/2019 11:00

Katesmot I'm sorry you get caught up in yesterday's debacle and I'm sorry you've been the victim of melanoma. When I was offered ldt I was very nervous about the potential scarring because results vary enormously. I still don't know if it's been successful or if I will need more treatment.

OP posts:
BahHumPug · 08/01/2019 11:03

Just wondering if you could clear up the confusion about opening the HDU? Flowers

Seafour · 08/01/2019 11:28

BahHumPug I'm not prepared to go into details about locations/hcp involved in my care other than directly to MN but I'm more than happy to do that along with any other proof required.

OP posts:
BahHumPug · 08/01/2019 11:49

Totally understand privacy stuff (although you’ve posted selfies so I think you’re quite identifiable, especially combined with unique medical circumstances- might want to get MNHQ to redact those) but I was more interested that you just denied opening the HDU even though you said you had on 23/11?

Seafour · 08/01/2019 11:52

I will continue to post here about my recovery and my life but I won't be responding to any goady posts or attempts to "prove" that my health and treatment is anything other than exactly how I have described it. I have nothing to prove to anyone other than those people who are here to offer genuine support.

I don't have the time or energy to be checking this thread multiple times a day, I have physiotherapy, recovery and a family to focus on, a dh who is suffering because of a bad back, a family "Christmas" to prepare for and precious time to spend with a dd who I share lots of creative hobbies with.

Things I didn't get to post about yesterday that filled my life with joy rather than internet induced anxiety:

One family member starting a new job
One dgc starting pre school and telling me all about it in great detail during a video call
Lola playing with her bestie when my friend came to visit
Delicious salmon for dinner
Getting out into the garden to pick some broccoli

OP posts:
ChanelPlease · 08/01/2019 12:01

'I will continue to post here about my recovery and my life '

Can you do so without calling hcps names like dick shit and being rude about your current carer? Also try not to over catastrophise, it will help you feel less anxious. There's lots of relaxation apps that may help.

BollocksIsNoACompleteSentence · 08/01/2019 12:05

Of course you don't have to answer questions asked of you but I still think people have the right to express their opinions of carers being treated badly.

freeAnneBoleyn · 08/01/2019 12:08

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

WitchDancer · 08/01/2019 14:36

How's your appetite now Seafour? Salmon sounds lovely

yawning801 · 08/01/2019 15:50

Provided that people provide their opinions without being nasty about it, then there's nothing wrong with having an opinion.

Salmon sounds good Sea, what did you have it with? Also congratulations on the family member's new job.

Crownandheelshigh · 08/01/2019 19:19

@Seafour salmon sounds lovely, I keep meaning to get some as I love it and want little man to try it but keep forgetting!

Hope ur dh back is getting better slowly!

Congrats on family members new job! Xx

Seafour · 08/01/2019 19:25

Witch we had the salmon with home grown broccoli, sprouts with pancetta and celeriac mash. Dog and cat had leftover salmon treats and the giant house bunny thought the peelings were mighty fine.

Meatballs tonight and a chicken and asparagus casserole is in the slow oven of the Aga for dd and her dp who are arriving late (she doesn't eat red meat often) we will have the chicken tomorrow.

I got out for a dog walk with dh in the lovely afternoon sunshine and saw youngest dgc who has become a human mountain goat in the last few weeks and is an absolute delight. DH is still suffering from his sore back but it's better than it was yesterday.

If I feel up to a car journey tomorrow I will go and visit mil with dh, it's only about ten minutes away so perfect for a first outing. Mil has dementia and doesn't always recognise us, she knows that she knows us just can't make the connection, she is always delighted to see the dog as are the other residents in the care home. I was really lucky when I met dh because his parents were fab and welcomed me and my dc into the family very naturally. They lived very close to us until fil became too ill to manage at home and after he passed away we were able to support mil until fairly recently. She's very happy where she is and well cared for, it's close enough for us to be able to go several times a week when we're both up to making the journey.

I did a long physio session which left me shattered but it feels good to be making progress.

We have almost plucked up enough courage to book flights and accommodation for a wedding we've been invited to in Italy in July. But it's flights to NZ in December to see eldest dd that I really want to have the confidence to book.

OP posts:
MintyT · 08/01/2019 20:10

Sea. That's better a lovely post. Onwards and upwards, would never put sprouts with salmon but I love both, I really need to take myself in hand and diet. Off for some counselling tomorrow. Take care

MsOliphant · 08/01/2019 22:10

Sorry for asking OP but since you e says you welsmone questions about your health- I have a couple about you manage to travel to NZ! It’s wonderful you are able to do that with all the health issues you face. I imagine getting insurance is a big hurdle. Then do you have to have a carer to travel with you? How do you manage all your breathing equipment? What if you go into respiratory arrest or some other health crisis once over there? Do they have the same blue-light plan and an HDU unit ready for you?

MsOliphant · 08/01/2019 22:11

Excuse the typos through my cracked screen- hope it makes sense Blush

2018SoFarSoGreat · 08/01/2019 22:22

I am delighted by your update. And envious of your salmon dinner, except for the pancetta in the sprouts. Sounds delicious.

A wedding in Italy sounds glorious, although have done that in July and the humidity was a real pain. If you are dressed appropriately, and have a parasol, it canbe done. New Zealand - now that is a goal to strive for. You can do it. You can. Just one step at a time, figuratively and literally. It will be such a milestone. Think how happy your DD will be to see you, and vice versa.

Come on Sea - you can do it!