All aboard the Seafour tour bus #2

[Seafour]

A new thread for us

Old thread in HDU with respiratory failure and terrified

That salmon sounds well lush! I love sprouts, much to the confusion of my family. Christmas is the best as they cook a shed load of them and then everyone else refuses to eat them 🤤

MsOliphant yes travel insurance is very expensive for people with health problems and disabilities. I haven't flown long haul since I've been ventilated, it's a discussion I will have at some point with my respiratory team.
Going to NZ is a dream at the moment so I can't answer all of your questions at this time.

Well thank you for answering Seafour. I’m sorry you can’t know more at this time! I hope you can have a meeting with your team at some point and get something in place. You seem to be extremely adaptable in the face of your conditions, these past couple of weeks have just shown how much, so I’m sure a long haul flight and 12,000 will be something you could do. And then hopefully tell us all about it.

Sorry- that should say 12,000 miles! It’s an epic journey. I’m lucky enough to be in good health and it was a seriously hard-going 27 hours 😱 so I take my hat off to you OP for considering it. for you and all the adversity you continue to face!

Wow Seafour, even a trip to Italy
with your complex health conditions must be a huge underaking! I take my imaginary hat off to you 🎩 💐

Another one throwing their imaginary hat into the mix! I would never be able to do it myself so I think you are exceedingly brave (not that I didn't already, of course). Hope you're OK Sea.

If I constantly worried about what could/might happen I would never do anything or go anywhere. I had several years of not going out or doing anything and I never want to go back there.

It was lovely waking up and having dd and her dp in the house.

Morning Sea, it is cold and frosty which is unusual for us here. Packed DC1 off to school with hat, gloves and warmest coat with strict instructions to wear all out at play time! It is so rarely really bitterly cold here that it’s quite a shock when it does turn. Hope you are able to manage the journey to see MiL today. Mine has just cancelled coming to visit as she is full of cold and germs, while I will miss seeing her I do appreciate her thoughtfulness.
I managed a walk round to local coffee shop yesterday, about 0.75 km. more than that I fed baby Rupert out in public and also changed him out and about (big steps for me). I’m hoping to go to the post office today when Rupert has another long nap in the sling.
Salmon sounded delicious and I’m very impressed at home grown broccoli! Hope thefabulouspa is on the mend.

'if I constantly worried about what could/might happen I would never do anything or go anywhere.'

This is so true op. It's having the ability to keep things in perspective, be prepared and not to panic that enables people to live and cope with disabilities.

@gruber

I'm the same (ftm to a now 16 month old) and still panic about changing him out and about. It's horrible although it does get done.

Glad ur getting out and about.

@Seafour sounds like a lovely trip!

The wheels on the bus go round and....

Oh. Wait.

Where did all the buslings go?!

I guess they want to keep away from the nasty troll hunters or maybe they've found other ways/places to offer support, they may even have connected with me in real life.

First time is always the hardest @gruber so well done.
@seafour wise words there, if we spend all our time worrying over what ifs we'd never do anything! Enjoy the time with your family and I hope your DH and @Thefabulouspa are on the mend.
I've just eaten the last of the Christmas cheese for lunch! Feel sad yet relieved it's gone!!
Hope everyone else is having a good day.

Gruber, lovely to have an update about you and baby Rupert, It was chilly here this morning both cat and rabbit were reluctant to venture outside first thing.
It's great that you're venturing out so soon after having a cs let alone as the mum of a new baby.
DH is the gardener, we have raised veggie beds or nothing would survive the rabbits attention, the rest of the garden unfortunately suffers from rabbit attacks on a daily basis, it's trial and error trying to find plants that he's not interested in.

Fabulous is still not fighting fit and dh is resting today as his back is still very painful.

Well I'm feeling very pleased with myself because I walked to school this morning without oxygen. It's a mile and a half round trip to drop the boy off so is a good benchmark for how I am and how my lung function is. I won't deny that I was pretty slow and out of breath when I got back, but still it was done!
It was a lovely crisp bright morning and so many lovely people to say hello and Happy New Year to - felt amazing when I got back.
Since then I've been sitting in front of my laptop and catching up on work.
Have a plan to walk up a hill tomorrow, although that probably will require oxygen!

Knacknick that sounds fantastic, amazing that you managed without oxygen it sounds like a long way I take it that's a big improvement in your lung function? It must have been really lovely for your little boy too. Mums being ill is tough on little ones, they do get used to a different kind of normal I suppose but it has to be hard all the same.
I'm looking forward to hearing how you get on tomorrow.

Hello lovely people.

It has been a very worrying new year to date. My lovely dm is in hospital and it has been a case of day my day wondering if I have to get on a plane, we'll, two planes. She's 86 and refuses to take her much needed meds. Of course, it all catches up with her and she ends up horribly unwell. She's fighting an infection but with very few reserves to do so. It's times like this when being so very far away is heartbreaking.

On a better note DS has possibly found a great job. He got laid off from his non profit job after ten years, so has been dithering whether to risk going back into that tenuously funded world, or to give up the doing good to ensure a pay check.

Finger crossing for both, if you can manage it please ❤️

So many typos. Sorry. So little sleep 😟

Fingers duly crossed for you 2018.

2018 I'm so sorry to hear about your dm, I can imagine that it's hugely stressful and worrying especially if as you say she won't take medication that she needs. Is going to be with her a possibility, Does she have other family members nearby to visit and keep her spirits up? Sorry too many questions.

Everything crossed and prayers offered for good news for your dm and ds

thank you Yawning and Sea.

I have DB's and 1 DSis there. She carries the main burden, which makes me feel oh so guilty every day. I go twice a year and stay with DM for 3 weeks, picking up as much of the slack as is possible. But I recognize that is just like putting icing on a cardboard cupcake :( Big family, all happy to do what they can but DM is so stubborn, and rebels at any interference. We cannot fathom why she will not take the meds, but it has been several years, and nothing we do/say can make it change. It is some weird power struggle - she wins BUT she loses. As do we all. Still very active socially, and lots of friends. Loves to travel. Craves more. It is a conundrum why she then won't do the one thing that will help it all remain possible.

I'm on standby to fly any day, but so far it has been a case of waiting - will she turn around this time? She is getting excellent care ,and has had multiple scans that are reassuring, so it is a wait and see. If i turn up (was last there 6 weeks ago) she will panic and think it is the end. Or that I've come to clear her house out and put her in a home - not true at all BUT one of her fears. So I wait. I can be there in 24 hours, and work is very caring and understanding, so we play the waiting game.

Thank you for the prayers. Much appreciated!

Ha ha, I'm sure that were I to do a lung function test I would blow the same crappy number that I've managed for some time now. And I'm also sure that my O2 level probably dropped below a desirable level at some point on my walk this morning. But I'm hopeful that with continued activity I can improve the numbers by the time my next clinic appointment comes round, assuming I don't get ill again before then.
I find it hard to not get obsessed by the numbers and to go more by how I'm feeling so that's what I'm trying to focus on at the moment.
I'll report back after my hill tomorrow!

Just giving you a quick wave to let you know I'm still here, Sea.
Today is been a terrible day so I'll leave it there until I feel able to join in more fully.

to all who need it.

Morning, how is everyone this morning?
I'm enjoying a cup of tea back in bed for ten minutes before I wake the children up for school. Just thinking how they used to wake me up now it's for the other way round!
Looks cold out there today but don't think there's a frost.
Have a great day whatever you're doing.