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Feminism: Sex and gender discussions

Meet the new CEO of Endometriosis South Coast

666 replies

Maaate · 12/11/2023 20:52

I don't know why I'm surprised really

Meet the new CEO of Endometriosis South Coast
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TheChristmasPig · 12/11/2023 23:45

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Bloodeehell · 12/11/2023 23:47

Agree with you @Slothtoes

The charity does seem a bit strange speaking about being inclusive before speaking about endometriosis.

I would say there’s some backstory with the founders.

Remarkably odd.

Oh my god. Even their explanation of the disease is bananas. BA-NA-NAS

“Endometriosis is a systemic disease that affects the metabolism in the Liver and Adipose tissue which leads to systemic inflammation which in turn alters gene expression in the brain and causes pain sensitisation and mood disorders.”

Vs this from endo U.K.

”Endometriosis (pronounced en- doh – mee – tree – oh – sis) is the name given to the condition where cells similar to the ones in the lining of the womb (uterus) are found elsewhere in the body.
Each month these cells react in the same way to those in the womb, building up and then breaking down and bleeding. Unlike the cells in the womb that leave the body as a period, this blood has no way to escape.
In the UK, around 1.5 million women and those assigned female at birth are currently living with the condition, regardless of race or ethnicity. Endometriosis can affect you from puberty to menopause, although the impact may be felt for life….”

Annoying to see even endo U.K. and the who are posturing to the trans gang.

Life as a woman would have been so much easier had I been born male first. 🙄

MariaLuna · 12/11/2023 23:58

I advocate for parents without having children so why can’t someone without a uterus advocate for people with endo?

You cannot possibly compare the two.

Everyone can relate to people, even small ones called children.

A man cannot relate in any emotional or physical way how it is to have endometriosis.

It would be like a woman saying she knows how it is to have prostate cancer or some such bullshit.

I've had it and it's hell.

If he brings in a shitload of money for research and treatment etc. I'm all for it.

I wouldn't wish it on my worst enemy.

Bloodeehell · 13/11/2023 00:00

In their description of the disease they have taken what they wanted out of this paper to mould endometriosis into a disease that men could have too… unbelievable.

https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(21)00389-5/fulltext

Ereshkigalangcleg · 13/11/2023 00:03

I have had really great male doctors so I wouldn’t necessarily require a women’s advocate to be a cis woman.

There's no such thing as a "cis woman" all women are female. Steph is a male misogynist.

MariaLuna · 13/11/2023 00:04

^Oh my god. Even their explanation of the disease is bananas. BA-NA-NAS

“Endometriosis is a systemic disease that affects the metabolism in the Liver and Adipose tissue which leads to systemic inflammation which in turn alters gene expression in the brain and causes pain sensitisation and mood disorders.”^

They're fucking clueless. Spreading lies too. Fuck them.

The above doesn't even make sense! To a lay person like me.

They've drunk the Kool Aid.

Bloodeehell · 13/11/2023 00:21

MariaLuna · 13/11/2023 00:04

^Oh my god. Even their explanation of the disease is bananas. BA-NA-NAS

“Endometriosis is a systemic disease that affects the metabolism in the Liver and Adipose tissue which leads to systemic inflammation which in turn alters gene expression in the brain and causes pain sensitisation and mood disorders.”^

They're fucking clueless. Spreading lies too. Fuck them.

The above doesn't even make sense! To a lay person like me.

They've drunk the Kool Aid.

@MariaLuna it does appear that endometriosis is now being seen as a systemic disease with connections to autoimmune disease etc.

My issue is that they have copied and pasted a small part of a paper, without keeping women in the definition and the reference to the gynae impacts.

Everyone with endo knows you have a tonne of other health problems on top. This isn’t new. It’s the way they’ve presented the information to suit an agenda, it isn’t helpful.

Another interesting paper here
https://www.frontiersin.org/articles/10.3389/fimmu.2022.758440/full

Genomic Evidence Supports the Recognition of Endometriosis as an Inflammatory Systemic Disease and Reveals Disease-Specific Therapeutic Potentials of Targeting Neutrophil Degranulation

BackgroundEndometriosis, classically viewed as a localized disease, is increasingly recognized as a systemic disease with multi-organ effects. This disease is highlighted by systemic inflammation in affected organs and by high comorbidity with immune-m...

https://www.frontiersin.org/articles/10.3389/fimmu.2022.758440/full

NeighbourhoodWatchPotholeDivision · 13/11/2023 01:11

Needmoresleep · 12/11/2023 23:22

Steph’s professional training was as a hairdresser, though appears to have moved into other retail businesses and run some sort of social group for cross dressers.

Steph’s blog suggests Steph is very empathetic , has nursed two wives through cancer and have been both mum and dad to fairly young children. Steph seems quite focussed on Stephself.

Endo is horrid. A close friend of DDs has it and in her mid 20s is already two or this operations in, and is often seriously unwell. An empathetic man with the right professional charity or health service background would be fine. Someone who would be effective. However, like Lily Madigan and period poverty and TWs trying to join workplace menopause groups, this seems like a man using a woman’s issue to promote their own perceived feminity. It then becomes all about them. It needs to be all about endo.

Richards has emphasised the age of the youngest child on two different entries about the end of the marriage. I have not seen Richards explicitly clarify the ages of the two older sons. However, if they are the same people as the younger males of the same surname (and in one case same address) as Richards who have been registered as officers with Richards' company, then they were approximately 19 and 15 when their parents' marriage ended.

Parental divorce is hard at any age, but I wouldn't have described being the lone parent to a 19 year old, 15 year old and 7 year old as parenting three young children. I don't think most MNers would phrase it that way. Having noticed that, it does lead me to wonder what other parts of the situation might be described differently to how most MNers would describe them.

Chronicallyknackered · 13/11/2023 01:12

I really think this is where positive action has gone a tad too far.. I'm a women with Endo, I'm 30, had 9 operations to date. It's Damaged my bladder and bowel. Doubly incontinent, likely infertile , sexual dysfunction. So many invasive procedures I couldn't even count.
How can a transwoman who has never even experienced mild period pain vaguely relate?
Having to go to work on morphine to function. Losing relationships due to treatment. Missing out on life because of a gynaecological condition.
If they had a highly experienced charity career, CEO experience, wife's or children with Endo I would be more supportive. But from what I've read can't see the qualifications to support the title. Publicity stunt gone too far. Do they really have enough experience of the condition to advocate and understand what women with Endo need ??

unwashedanddazed · 13/11/2023 01:24

Endometriosis is trending on Twitter. And it's not because people are happy this bloke has blundered into yet another women's space.

Bloodeehell · 13/11/2023 01:30

At least there will be some publicity for the disease. Shame it took a man to get it.

catduckgoose · 13/11/2023 01:34

Per his tweets he's been worming his way in since mid-2022:

Meet the new CEO of Endometriosis South Coast
Bloodeehell · 13/11/2023 02:03

@Agrona your avocado comment made me really giggle, mainly because I initially got it confused with an aubergine 🤭

My favourite of the comments…

EmmaGrundyForPM · 13/11/2023 04:48

I don't think you have to experience a condition in order to work for an organisation that advocates for people experiencing that condition.

I used to work for a sight loss charity. There is nothing wrong with my sight. I'd like to think I did a good job.

I know a woman who was CEO of a men's cancer charity. She was good at her job.

PatatiPatatras · 13/11/2023 06:03

EmmaGrundyForPM · 13/11/2023 04:48

I don't think you have to experience a condition in order to work for an organisation that advocates for people experiencing that condition.

I used to work for a sight loss charity. There is nothing wrong with my sight. I'd like to think I did a good job.

I know a woman who was CEO of a men's cancer charity. She was good at her job.

He doesn't have to experience the condition to work for the charity.

He will need to listen to biological women and be able to name them to work for this particular type of charity. It's a biological condition: he'll need to be "transphobic" to carry out his function.

This is out of his reach if a woman clocks him as a bloke. His discomfort will be way more important than her story.
Already happening if he's blocked women with endo on twitter.

AlisonDonut · 13/11/2023 06:09

EmmaGrundyForPM · 13/11/2023 04:48

I don't think you have to experience a condition in order to work for an organisation that advocates for people experiencing that condition.

I used to work for a sight loss charity. There is nothing wrong with my sight. I'd like to think I did a good job.

I know a woman who was CEO of a men's cancer charity. She was good at her job.

Just asking, did you pretend to be blind for this charity work?

PatatiPatatras · 13/11/2023 06:12

Bloodeehell · 13/11/2023 00:21

@MariaLuna it does appear that endometriosis is now being seen as a systemic disease with connections to autoimmune disease etc.

My issue is that they have copied and pasted a small part of a paper, without keeping women in the definition and the reference to the gynae impacts.

Everyone with endo knows you have a tonne of other health problems on top. This isn’t new. It’s the way they’ve presented the information to suit an agenda, it isn’t helpful.

Another interesting paper here
https://www.frontiersin.org/articles/10.3389/fimmu.2022.758440/full

Thank you for finding the paper being quoted. But I do think this charity is lying by omission. Not just amending for their own agenda.

Their explanation would have led me to believe that endo was about pain sensitivity and mood swings... the uterine like cells which are the main culprits of said pain seem to have gone awol.

Thingybob · 13/11/2023 06:19

I met and had a long chat to Steph in Portsmouth and the two things I took away from that meeting were that Steph is not very bright and that Steph is seriously deluded. Steph genuinely believes that they are indistinguishable from any other woman and that they physically pass. Even I didn't have the heart to tell them different.

nepeta · 13/11/2023 06:23

The site is pretty dreadful in the information it provides. For instance, the "one in ten people" getting endometriosis is created by replacing 'women' with 'people' which, of course, should not be done without halving the number, given that half of all people are male and the rate of endometriosis among male people is so low that it won't affect the result.

So it should be "one in twenty people", but of course that reduces the level of information from "one in ten women".

And if you had to pick just one variable for predicting the group most likely to suffer from endometriosis it would be being female. But this site argues that it is not a useful variable at all!

The site has a long quasi-scientific argument that sex is not a relevant variable at all (!), given that all the different ways of defining sex don't classify every single person into either male or female sex in exactly the same way (though they are all going to classify the vast, vast majority into those two sexes the same way).

This is like saying that the concepts of light and dark during a 24-hour cycle are not useful because we may have trouble defining exactly when dawn begins or exactly when dusk begins and what exact level of light or darkness would move us form light to dark or back. That this is true does NOT mean that the concepts themselves are without value.

The site also clearly prioritises trans men and female nonbinary individuals, even though they are extremely few compared to the number of female women. And it erases the female sex from language, thus contributing to patriarchy by making it ever harder for the more oppressed sex to organise politically around the issues which matter to it, including endometriosis.

It is not a pleasant feeling to be erased.

ApocalipstickNow · 13/11/2023 06:55

Appoint male to important role in women’s sector.

Remove any reference to actual women.

Annoy women supporters, who stop donating/supporting.

Women’s resource folds.

Man moved on without looking back.

Women lose vital services/networks.

Have I missed anything?

FarEast · 13/11/2023 07:06

EmpressaurusOfCats · 12/11/2023 21:25

That’s the same Steph who organised the protests against FiLiA in Portsmouth a few years ago.

Not a sign of someone who cares about or empathises with women.

Whaaaa? Is this the person who organised a protest against a massive group of women meeting to hear about the appalling conditions for women in refugee camps? To hear about the work done for and by trafficked women? Two of the important sessions at FILIA that year.

When women in public service roles are being disciplined left, right and centre for feminist views, apparently it’s OK to appoint a man to a post that serves women, who actually hates women.

This is where we are.

Waitwhat23 · 13/11/2023 07:14

He hates Mumsnet too, unsurprisingly. All those women talking. Tsk tsk.

Meet the new CEO of Endometriosis South Coast
Helleofabore · 13/11/2023 07:18

Feliciacat · 12/11/2023 23:20

It is very unlikely that a man would be better than a woman with endometriosis. Where I was coming from with thinking maybe Steph was the best one for the job is that jobs often get very few applicants (despite what LinkedIn would have you believe). So maybe there were only ten applicants, five were shortlisted, two dropped out and only three were interviewed on the day. Maybe Steph performed best at interview and got the role. So it’s believable under these theorised circumstances that Steph could have legitimately got the role. So they were the ‘best’ but that doesn’t mean ‘better’.

And to be fair, the organisation would be better starting the recruitment cycle again. Maybe appointing a caretaker in a temporary role until they found someone.

This person is trying to amass influencer prestige and power by doing this. I believe they are in it for the glory and validation. They will take this charity down a path where it will may never recover reputation wise if they are so small. What regional women are going to use this charity if it is headed up by this person and they feel confused by the communications and like the charity doesn’t really understand and are just delivering nice words?

Edinburgh Rape Crisis immediately had women self excluding from its services and Beira’s place was set up in response. Steph wishes to be known to be a significant player in the trans activist world, that is the motivation here.

Helleofabore · 13/11/2023 07:26

Waitwhat23 · 13/11/2023 07:14

He hates Mumsnet too, unsurprisingly. All those women talking. Tsk tsk.

I always suspected they posted here and many regulars would remember the username and the misogyny and lack of cohesion in the arguments of that particular poster. So much so that there is not much to have caused much doubt in my mind that it was likely to be them.

That Steph flamed out accusing women here of being fully responsible for male violence at the protests outside of WiSpa. Apparently, women were absolutely responsible for male assaulting each other after a male person sexually abused women and girls in a naked female spa section. They were banned, but I do have my suspicions as I have never seen Richard’s act in a way that was different.

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