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Here are some suggested organisations that offer expert advice on special needs.

Original poster

Good luck Claw!

186 replies

fightingtheLA · 14/06/2010 22:14

Hi Claw
Have been following your sorry saga with school for a while now. Just wanted to say good luck with the meeting tomorrow and hope you get more from it than the usual clap-trap,fob-offs etc. etc. I find it difficult dealing with everything even with a very supportive school so am in awe of your tenacity. Knowledge is strength and posters such as yourself, Debs, Star,Attila etc..have really given me the confidence to fight for my ds!

OP posts:
Bigpants1 · 14/06/2010 22:22

Yes, good luck, Claw. When you have time, let us know how you got on.

StarOfValkyrie · 14/06/2010 22:56

Yep wondered where you had got to, and hope you are okay and together enough for tomorrows meeting.

Try never to let these things feel like a last chance though. Usually, in reality, they are not!

lou031205 · 14/06/2010 23:10

Go Claw, Go Claw, Go Claw, Go Claw

(Do you think I could earn a living waving pom-poms? )

debs40 · 14/06/2010 23:21

Good luck Claw - post and tell us how it went. Hope you're ok!

thederkinsdame · 15/06/2010 00:45

Good luck, Claw - go girl and let us know how you get on. x

TheArsenicCupCake · 15/06/2010 00:56

Good luck from me too xx

silverfrog · 15/06/2010 07:01

Oh yes, good luck. Noticed you haven't been around for a few days - hope preparations are in place, and that you feel in control.

Star is right - this isn't even close to last chance, but I do recall how it feels as though it is.

We're here if you need to rant/cheer

5inthebackofthenet · 15/06/2010 07:11

Good luck Claw!!!

claw3 · 15/06/2010 08:30

Arr thanks everyone, yes i am prepared, armed and highly dangerously

I have been busy letter writing and even got an apology from CAMHS, following a letter!

BriocheDoree · 15/06/2010 08:57

Bonne chance (from the other side of the channel )

MiladyDeScorchio · 15/06/2010 09:00

All the best

AttilaTheMeerkat · 15/06/2010 09:03

Good luck today Claw!!!

Go claw, go claw!!!!

StarOfValkyrie · 15/06/2010 09:10

To keep yourself sane during any infuriating moments, think to yourself

'he he, what a load of crock. Wait til I tell the people in my computer what you just said!'

claw3 · 15/06/2010 09:10

I have written down all of ds's difficulties, followed by reports which support this difficulty.

I aim to try and be constructive. But this is always my aim and it usually deteriorates into school stating ds doesnt have that need and doesnt need any help.

Im hoping school wont be able to say that with CAMHS, EP, PP and attendance officer present and even if they do they will look pretty stupid!

debs40 · 15/06/2010 09:51

What time is it at? You sound super well-prepared and you have the trustee sword of truth on your side!

StarOfValkyrie · 15/06/2010 10:09

Sure, you sound well prepared. Don't be afraid to use your knowledge as an 'expert'.

You might not see us, but we are all in the room with you!

claw3 · 15/06/2010 10:40

Debs, 12.30 school's bum is obviously flapping as ASD Outreach went into school yesterday, last ditch attempt to get 'evidence' to support them no doubt.

ASD Outreach has just phoned and told me she did observe another incident at playtime. So its kind of back fired on them!

She is also emailed OT (who school told no difficulties to) to say she has observed ds having difficulty opening his drink etc at lunchtime and needs to have his fine motor skills looked at!

She is also recommending that ds not do PE and introducing him to it slowly.

It's looking good isnt it!

Star, i will have to be careful not to refer to the experts actually present as Debs, Star etc

StarOfValkyrie · 15/06/2010 10:42

Sounds like she is switching sides to the winning team claw. It's a good sign!

debs40 · 15/06/2010 10:43

This is a breakthrough moment Claw!! I can feel it. Thank God!

At last someone seems to have some ideea of his problems.

You watch, you'll get there for your meeting and it'll be 'we thought we'd call this metting to tell you how we plan to help DS with his problems so that we can all work as team' blah blah bastardos!

StarOfValkyrie · 15/06/2010 10:44

I try to remind people now and then that I am only an expert in MY DS, MY LA and MY particular circumstances though. Very happy to share it all, in case it helps others, but don't rely on anything I say as gospel.

thederkinsdame · 15/06/2010 10:46

That's great. Claw3. You probabluy know this anyway, but I've always found it works really well to say, really calmly:

'So, to clarify for all parties present, you are saying that DS has no need of support.' You'll be surprised how it makes people squirm and backtrack as they do not want to explictitly state something they've alluded to.

Also, don't be afraid to pause and leave a silence. It's always interesting to hear what people say as they babble to fill it.

StarOfValkyrie · 15/06/2010 10:47

Agree with debs , try not got get too cross when they imply that this meeting was planned all along to help develop strategies to deal with his very obvious difficulties!

However, do guard against them rewriting history. It has been a mistake of mine once or twice to allow them to write nonsense about the past because I feel more confident about the future (i.e. making up provision that ds has supposedly HAD to reflect what he should have had, but is now getting iyswim).

thederkinsdame · 15/06/2010 10:47

Sorry forgot to say, let the force (of mumsnet) be with you today - go and wipe the floor with them. xx

silverfrog · 15/06/2010 10:50

Oh that odes sound promising - fingers crossed!

DO remember that you are the only expert in your ds - the other might know a thing or two about their fields (or not in some cases!) but only you know the things that are relevantot your ds.

And only you know because your ds is unableto trust the others enought to tell them. I have found it shocks people a lot when I say "dd1 tells me..." as they don't expect ehr to be able to.

BUt they cannot dismiss it out of hand if it is somehting that has happened.

I have had years of "well, if she doesn't tell us, how are we supposed ot know" type conversations with schools - it is so very wearing.

BUT you have the ASD outreach person on your side, and things are looking up.

wasuup3000 · 15/06/2010 10:58

LOL@ Let the force of Mumsnet be with you today!
Indeed may the force of Mumsnet be with you!!