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do you ever feel so different that you just don't fit?

209 replies

special2shoes · 15/04/2009 21:43

or is it just me, I think dd has changed me.
i just got told of for posting on a home birth thread, how dare I say that dd would have died if I had a home birth.
I just don't fit sometimes.

OP posts:
amber32002 · 17/04/2009 11:55

In the CofE. the only official opinions are those of a bishop or archbishop or someone reading an agreed opinion of theirs for them. Everything else is personal opinion or general thoughts.

saint2shoes · 17/04/2009 11:55

I have emailed mn hq but not yet had a relpy

saint2shoes · 17/04/2009 13:02

riven I have to say that thread is a good idea, hopefully it will give people the chance to see what one of the "choices" are(is?)

5inthebed · 17/04/2009 13:17

Lottie, that is truely sad about your family. Glad you have your sister there to fight your corner, although she shouln't have to!

Its hard enough having to battle with complete strangers about our DC, we shouldn't have to put up with the crap from our families!

sarah293 · 17/04/2009 13:41

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springlamb · 17/04/2009 14:38

I can't find the thread that has caused y'all to become pariahs (again!) as I've been away over the holidays. On a previous thread of that ilk a long time ago I wanted to post a little of ds's history which people might have found interesting. Or not as the case may be, you know me I'm not a sensitive sort really.
Some of you will know that ds's disability was caused at birth and this has been proven.
When I was 6 weeks pregnant with ds, I had some spotting. After a scan I was told I'd 'lost the baby'. I asked for a second opinion and was told the same. That night I had an ERPC. A month later I had a phone call. The ERPC had been analysed and they hadn't found what they expected. I was still pregnant. Big furore, lots of scans and tests followed. Hospital said they couldn't see that baby had been damaged by ERPC but it may become evident further along. I could've had a termination at any stage. When I asked what the cut-off point was, I was told in this case there wasn't one. So I went through the entire pregnancy being scanned every two weeks, waiting for them to tell me that he was missing this or that or some surgical instrument had pierced something or other, believing that at some point I was going to have to take a decision to terminate or not to. I never really came to a decision (I don't think). Two weeks before ds was born he was pronounced whole and healthy.
And then the silly buggers f**ked up when I went into labour and he has quad cerebral palsy.
Them's the druthers. Couldn't win either way.
FWIW, I think we bring a hell of a lot to the debating table on this subject AND I think the question of who is 'strong', 'them' or 'us', is one of things to be debated.
I have no friends. Only dh and we live in our own little bubble of 'us life'. I think I'm a better person for it.

Woooozle100 · 17/04/2009 15:34

Oh I missed all this as well. Woosh. Have posted on t'other thread

Rather more complex one for me - have had an testing with subsequent pg. Still don't have a great deal of empathy with the whole nuchal scans eek a downs folk so am going to refrain from posting any more on the matter. I got upset when I was pg last time round. Sorry you feel a bit chewed up slightlycrumpled.

Hey riven I'm not yr stalker am I Always seem to come back and home in on yr threads.

sc13 · 17/04/2009 16:01

Maybe I should say that I did choose to have an amnio when pg. I had no intention to terminate (although I am pro-choice), but the control freak in me wanted to be prepared, to the extent to which one can be prepared, for what was going to happen. And when I miss, every now and then, the life I had before I had a child, this has nothing to do with DS having SN or not. I wouldn't change him for the world - I just want the occasional holiday from being a mum.
I think the real horror stories are not those of children or adults with SN, but of the provisions (or rather, lack of provisions) for them. That's what scares and angers me: the long battles to get statements, care and respite being cut, bullies being ignored by the school authorities, all the way down to the f** waiting lists just to have an assessment. Those are the horror stories, and what's sad, there's no real need for things to be that way.

TotalChaos · 17/04/2009 18:46

Lottie - so sorry your family are behaving so dreadfully , glad you have your sis on side.

amber - thanks for yoyr explanations re:church etc. damet/fio - I share your concerns.

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