AIBU to object to being told how I should think

[2shoes]

that I should not be joyful or positive about dd and her disabilitie, that I should post doom and gloom, as if I don't I am only showing a biased veiw.
I don't seem to be allowed to post that my life is good, that I am happy and dd is a pleasure.

I was put on duty, like I was going to tell all about my burden everytime I phoned. kick up a stink.(pardon the pun)

I don't know if this is relevant to this thread, but I feel on your behalf. I found the SN forum when dd1 started to go through an ASD dx. What struck my straight away was the warmth, support and positive attitude of the MNers on here.
I have not come across one pessamistic comment in any of the threads I have started and it has been a pleasure to 'meet' such inspiring parents. My dd is perfect just as she is - as are your dc- and I think that people should walk a mile in our shoes before they judge.

Phew! Rant over

Am just off to wash my veil through for tomorrow ! x

I too have found all the "sn posters" very helpful and supportive. but if you go out into the main board that is where you find it different.

Next spring is no good.

complaint form for your council more info here although that looks complicated- just fill in the form it's their job to get it to the right person.

After setting out the complaint (and your dd being unable to wash is reason enough to complain) tell them if you are not happy with the way the complaint is dealt with you will take your complaint to the local govt ombudsmen.

I now have an email address for ds1's social work assistant (he doesn't have a social worker ). I email her whenever he does something I think they need to know about. He broke another window last night so I emailed them and asked her to put it on file.

ha ha your council is optimistic with it's are you making a compliment box

Riven, would it be easier for you just to move than try to get a social worker in your area.
From what you write it does seem v bad in your area.

Besides you must be making your neighbours very depressed.

I am indeed. Though about moving. DH is on 14K. Reckon we can get a 4 bed house somewhere for 3 times that salary? Tonga Islands?
But its all part of our burden....

You can get a 4 bed house here for about 125K & the care for our burden is good here too - they no longer stone us in the streets.

I would advice, but I am drug selling HA scum, so can't

pmsl saintpagwatch, just seen "blees them"

Everyone is lovely on here. I don't venture out much now (obv coz of my new burden), maybe as far as behaviour/development or Baby names (but only if its dark). RIVEN really - its fucking shit the treatment you get, a bloody disgrace. I was only (half)joking when I mentioned moving on another thread but, Christ!!!! So far so good for our little burden, 1st appt with community paed this week and have been referred to play specialist and OT. Level of support fantastic so far, but sadly, house prices are ridiculous. Plus, no room for another (whisper it) disabled child round here. Don't want competition for my upcoming beatification.

where you live Anon? We're low paid therefore worthless scrounging scum you know.
Not as high up as 2shoes though. Can't afford drugs cos of our burden

I do find that , whilst i actually quite enjoy the main board, coming here - even just to lurk is like that chill out at the end of the day feeling.

There are some real weirdos out there in the real world though arn't there. And, a bit like DS2 , you would probably never guess from looking at them.

I lurve the main board, but you can't win over there. if you mention your burded too much, you are called an attention seeker, and hounded. saw that happen to a saitly person.
although someone really dissed ds on a thread once and he is not a burden but a chosen child.

I feel the same pagwatch. I think from now on I'll just lurk on the main board and only 'join in ' on SN.

Got involved in a nasty thread yesterday (same old, just naughty not SN) and I was really upset about it.

Thought it's either time for a break from MN altogether or stick to where you know!

Suffolk Coast Riven, underpopulated so therefore not too long on the waiting lists ....currently 0 waiting list for wheelchair services!
Go on come over to Sunny Suffolk!

okies. Find me a nice 4 bed house forunder 100K. Not too near the sea so it wont fall in and not too inbred locals
And we'll be right over.
I'll be close to Hesfes too
off to pack as hate bloody crappy Bristol....

please saintriven, stop acting like you are allowed to move.
we to stay where we are so we keep the burdens spread evenly

I'm off to live with Anon so ner ner