AIBU to object to being told how I should think

[2shoes]

that I should not be joyful or positive about dd and her disabilitie, that I should post doom and gloom, as if I don't I am only showing a biased veiw.
I don't seem to be allowed to post that my life is good, that I am happy and dd is a pleasure.

I'm so glad for this thread. Although I only dipped in and out of the other thread I was really upset at some of the tone of it, and particularly at the use of the SN board.

i think the other thread proved that the sn topic should be hidden in a dark cupbaord

Your right it should be hidden in a dark cupboard, but even that makes me feel quite sad. Oh well boll*cks to 'em.

but we have to be sad, we have to be all doom and gloom, it is our role in life, whilst wearing halos

Fio, it was that exact quote that pissed me off to the bottom of my soul!!

Do you think that's really how people in RL view us? As just pretending to be happy when we're secretly miserable. I bloody hope not.

That thread made me feel more down than DS ever does, but then I am very oversensitive at the moment.

Your right Fio, neither have I. Obviously when he has been very unwell I have wished it wasn't so but that would be the same for DS1 (NT).

There are no saints in this household, just people mostly enjoying our lives, each other and our children. LOL at having halo's, they obviously haven't heard my language when the boys are in bed!

I can understand wishing a illness away, but what "people" don't get is in time you can't imagine your child without their disability, because without it they wouldn't be the same child...
I know, I know I am breaking the rules and posting from my own personal expierence.

I do think we should all change our names though

Perhaps we can get MNHQ to make a halo emoticon

but only we can use it
oh that would be fun

there's a child under the disability? Say it ain't so....

mines just a bundle of labels covered in snot and dribble.
And a burden of course

mine is whinging as I won't bath her yet, she wants to watch her new dvd in bed
yet a nother tumble tot dvd

mine just peed on me. Bloody nappies are crap. And a 4yo does a lot of pee.
Now she has fallen asleep having refused an after lunch nap but still needs 3 meals plus all her meds. Argh. If I wake her she'll go into seizure.
argh I say, argh.

aww poor you
I am giving in and will go and throw her in the bloody bath

can yoiu wash dd for me? Still no farking shower seat and the adaptations have now slipped till next spring (when it will be 3 and a half years since we applied).
She smells.

that is dreadful.I can't believe they are making you wait so long.

its the usual length of time here.

I have no idea how you manage! my freind was without a bathroom for a few weeks(she had her house adapted) and she had to resort to bathing her dd at work(she is a nurse) or here.
can you ask if there is a residential home you can take her to, where you can bath her?

she just doesn't get washed.
Actually, thats a good idea. I will ring the SS tomorrow. We currently don't have a SW as she left. Called them today to ask who the next one will be to be told it could take weeks to be allocated one. Sigh.