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AIBU to object to being told how I should think

171 replies

2shoes · 19/09/2008 11:04

that I should not be joyful or positive about dd and her disabilitie, that I should post doom and gloom, as if I don't I am only showing a biased veiw.
I don't seem to be allowed to post that my life is good, that I am happy and dd is a pleasure.

OP posts:
dustystar · 19/09/2008 11:08

Has someone upset you 2shoes? Ignore idiots who tell you how you should feel. They don't know you or your dd. I think its great that yuo feel the way you do and your dd is very lucky to have such a lovely mum

coppertop · 19/09/2008 11:10

YABU. You know very well that you should wear black at all times (preferably with a veil) and weep delicately into a hankie. We should never forget our burdens.

deeeja · 19/09/2008 11:12

No, definately not unreasonable. It is good to post joyful positive posts. I love readin other people's positive stories. Even if my ds's are having a bad day, or month, it warms my heart to think of other children doing well.
Please post positive posts, it is fantastic reading them.

2shoes · 19/09/2008 11:12

oh does that mean ds is ok, he wears balck all the time

OP posts:
vicsta · 19/09/2008 11:12

What?????? Who said that, have I missed a thread? The only things that keep me going are DSs little milestones. He held a toy for the first time yesterday and I am sooo proud. He is an absolute joy to have around, smiley and giggly with his own little way of doing things. Yes it is bloody hard sometimes when he's having a bad time, but its also brilliant. He's brilliant and I'm glad he's in my life and so proud of all his efforts. Perhaps someones having a shit day, don't take it personally. I am always sad when someone posts about the bad times, but surely we should share the good times too, even if they are few and far between.

coppertop · 19/09/2008 11:13

Your ds wears black because his life has been wrecked.

coppertop · 19/09/2008 11:15

I should probably add, just in case anyone finds this thread in the archives at some point, that I'm referring to something from another thread.

Just in case you all think I'm being heartless and cruel.

Twiglett · 19/09/2008 11:15

ROFL at coppertop

2shoes · 19/09/2008 11:16

vicsta that is brilliant.
copper yes poor lad life has been wrecked, it is so sad, I mean having a sibling you adore and adores you

OP posts:
vicsta · 19/09/2008 11:17

Just peeked at DD on your profile. Could she be anything other than a pleasure? Such a lovely photo.

Peachy · 19/09/2008 11:20

YANBU
it works both ways. With Harry and his regressions, I find its easiest not to get tooe xcited about milestones- how many times has he lost his toilet training? A bit of scepticism about permanence protects me from yet another heartbreak, but I get told to be more positive.

I am positive about harry, he's fab and he's my baby- as for the rest, I'll beleive it when I can see it lasting more than 6 moths!

2shoes · 19/09/2008 11:30

be careful though peachy. people read sn posts and then use them to bolster their arguements on other threads.

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Peachy · 19/09/2008 11:31

Bugger that- the whole point is that we all cope differently.

Anyway if they piss me off I will send Sam in to sort them out- that should scare anyone LOL

Soapbox · 19/09/2008 11:34

Interesting - that isn't how I read it (wrt the other thread). I read it as 'although you are happy, you shouldn't assume that that is how every one looking after a child with disabilities feels'.

bubblagirl · 19/09/2008 11:36

no i completely agree at the end of the day we cant change our chuildren and as humans we love them no matter what no point in feeling doom and gloom all the time when every day they bring an eliment of joy into our lives

i get told off for saying i feel blessed to have ds why feel blessed to have child with sn but i do he helps me see the world 2 ways and i wouldnt have that gift if i didnt have him

its made me a nicer more thoughtful person and to not judge others on why or how they do things as who knows why they may have to do it that way as with my ds i have to do things certain ways for him

but most of all i love my child unconditionally and even on our bad days i still wouldnt change him i accept him for him his challenges and all

my ds brightens my day and i relish every milestone he he meets no matter how trivial to others its called being a mum a good one

bubblagirl · 19/09/2008 11:39

i understand completely though with other peoples dc with sn have a much harder time than me so wont think the way i do as my struggles are not the same but when i speak i speak for myself and dont want to affend anyone else

but its about free speech and expressing on the one thread that should understand we all have differences we all see things differently and thats why this thread is so good as alot of us even if we dont agree can still support each other as we are all struggling in some way and somewhere can all relate on something

Peachy · 19/09/2008 11:41

2shoes- your last post- were you telling me how to think?

its quite possible to differentiate the total love and adoration one has for their child sn or not with individual concerns and worries about progress. I cherish ds3 as he is, I dnt focus on milestones with him becuiase there are no guarantees and I find heavy focus then knocks me when he does regress. but I get so much joy from him- his beautiful personality, sense of humour etc- the 'needs' are just the window dressing anyway.

probably doesnt make sense.

2shoes · 19/09/2008 11:55

soapbox I read it more as...you should post the neagatives as by posting the positives you are giveing a biased veiw.
I was "told off" for saying my family was normal.

OP posts:
BriocheDoree · 19/09/2008 12:02

What, 2shoes, you mean you don't all have two heads and green skin that glows in the dark

2shoes · 19/09/2008 12:04
OP posts:
FioFio · 19/09/2008 12:05

This reply has been deleted

Message withdrawn

dustystar · 19/09/2008 12:30

Thats a good point about making you see things differently bubblagirl. I think that having ds has made me far less judgemental of other people and more understanding.

2shoes · 19/09/2008 12:46

Oh sorry fio I forgot about china

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coppertop · 19/09/2008 13:24

I happen to know that this is what 2shoes really looks like.

pagwatch · 19/09/2008 13:27

2shoes

can I just suggest that you read my posts and stop misinterpreting what I say.
I took the time to cut and paste the paper I read in 1982 entitled " your lives are crap so stop pretending - and never forget that I know best" written by that genius called Pagwatch.
But you just don't listen and think you are so damn clever with your nice children and you amused ironic take on life.
But I know.
You are sad. because you are ultimately never going to be me.

Ungrateful fuckers.