DLA WAIT TIME THREAD 60

[zoeybrooks45]

Hello everybody, I have made a new thread please put in your scan date, hopefully we hear some good news this month. please be kind and feel free to share scan date, entitlement award and what child is diagnosed with as others in similar position can feel uplifted in these stressful times. 💐
New claims (NC) are taking ‘around’ 20 weeks.
Mandatory Reconsideration (MR) & Change Of Circumstances (COC) between 20-25 weeks approx.
Renewals between 15-20 weeks approx
tribunals: when you disagree with MR and are considered by a court
scan date (SD) date form was scanned on the system and counting weeks for decision
original claim date: date you called up for the forms and you will be backdated
UC : universal credit
DWP: department of work and pensions
DM: decision maker; the person who assesses each claim and awards/decline a case
number for an update 121-4600 0800 121-4600
currently we are in July/August for decisions! xx

I'm tempted to call tomorrow but don't know if I should bother SD 07/08 NC but when I last called a few weeks ago they said not to bother calling back til after Christmassigh like a lot of us, I'm just really really struggling financially and each day that goes by I feel more and more anxious that it's gonna be a no and we have to do it all over again.

Exactly this, my daughter masks in school and this is a big reason she can't come in because she's so scared ro be herself, my daughter is in year 4 and after meeting her 3 time the asd assessor stated she should have an ehcp and a referral to camhs, no one phones or check in when she's off and it's only now they are starting to say they will do something, because I kicked off that no one even bothers to do anything to get her in or helps with her anxiety. Our senco started this year, great start, then at the start of this school year total radio silence it's a mess at the school so many parents are pulling their senior kids out but I don't have that option because I've 3 others there that get on really well. It's like put sen on their paperwork and it's just a joke

Ring them it won’t hurt to call. I’m sure there has been new claims with dates after yours that have been done. Good luck

Masking is a big issue and something they should be looking out for too. A child would find it hard to fully mask or the effort of masking means she wants to be at home as it’s too much to be in school. We’ve had some really great sendcos when my son was in primary but this one now I will go head to head with no problem. I couldn’t believe the way she just flippantly said it. If anything then it should show them he’s struggling no more than the other ASD kids?! I’m thankful to them for pushing me to my limit which they will see when we all have a meeting in January. If possible do it by email so you’ve got evidence of what was said etc our school prefers to call, I now ignore the call which they then email instead. I’ve seen a lot on here where DM calls the school but they need to factor in whether that school is meeting need or not when making their decision. We should both know by January. I’m going to spend the break once Christmas is done prepping for tribunal!

I am starting to have massive doubts about being eligible. 😥 DD has just turned 15 and is on the ASC pathway, unable to attend school, has very disordered eating, I have to regularly prompt her to change clothes, clean teeth etc. she doesn't go out alone anywhere. I can't go back to work whilst both of them are struggling with EBSA. 😩

We find out by 5th Jan if an EHCP is going to be granted after their needs assessment.

Actually speaking of a needs assessment would I be able to have copies of all the information they have gathered during it to send to DLA? I already have the EP report, I'm more on about what school/health/social care has said. We have a family support worker who has added info.

That's what I've started doing, we had a few conversations and discussed things and they then "forgot to do it and denied they had said stuff so always get back up email now. I really hope so as 6 months is just ridiculous for MR as they have actually reviewed the case anyway so it should just be additional info they need. They've even got her full diagnosis now so it should be more straightforward.

Send everything you can, the more evidence the better, what is your scan date if you don't mind me asking? From the sounds of it you've got a good chance 🤞

This is what this awful wait does to you. I’m sure many of us have felt the same. The self doubt creeps in. I would send in and request whatever you can from the agencies involved with your child. They should be able to provide you with the information they hold on your family

I’ve always been happy to take calls which I now regret as I don’t have it in writing. I will request when we have the meeting in January that we correspond via email so that I have a trail. I’ve already expressed to them my upset about actions being agreed on and then not done. A diagnosis would certainly help your case and like you said it’s not looking at the whole claim again, it’s factoring in that additional evidence. When is anything straightforward with DLA 🥴

Congratulations to everyone awarded. Amazing to see so many!

So last week I missed a call from the decision maker and they said they would call back that afternoon but didn’t. No surprise the call handlers wouldn’t put me through to them when I called back:

today decision maker called me and wanted to know progress on my child’s ADHD/ASD pathway; despite me sending them every letter and email stating there is a 26 month wait. I said to him no we are no nearer and said I had the emails from the school senco confirming this also as she chases it up every month.
he was asking me loads of questions like has your child had SALT yet, I said no and you know he hasn’t because I sent you the appointment letter stating it was in March 2025, were in December 2024!

I told him I had extra evidence I needed to send in etc if required and he said no that’s fine no extra evidence needed at this stage.

now I’m flapping whether it’s going to get declined or not. I spoke to my sons senco today and she said don’t send them evidence in just send it if we need to do a mandatory reconsideration just incase. Asked him when a decision would be made and he said I’ll have a decision in January if not sooner and to look out for the text or letter!

dont understand why they make this so difficult it’s hard enough as it is without them taking months to look at claims.

well that’s my Monday rant over, Merry Christmas everyone 😂😂

Mines 24/9 NC,so just after you.Lets hope they speed through Aug & Sept claims🤞x

Positive post

Morning ladies/gents I just woke up to back pay of 2758! I think she's been awarded high rate care low mobility im not sure as she was receiving low rate care low mobility
MR scan date 22.8.24
Original scan date 11.4.24
I cannot believe it im in tears I was fully expecting to go to tribunal
I wrote to my MP for help 2 weeks ago wasnt sure how this would be perceived but i suffer with many health conditions thyroid cancer now NED but under surveillance, arthritis, FND, depression anxiety and panic attacks I think MP input has helped push it through quicker as I was told on one of 2 times I managed the call for MR that was looking at February for outcome
So if you feel it's dragging too long please reach out to MP I cannot believe my little girl has won her MR
I now can focus on trying to move from my 2 bed flat as I suffer from flashbacks from when my eldest 14 year old late daughter passed away at home which was her wish from osteosarcoma in 2020 after a 2 year battle which chemo couldn't save her 💔
Iv been so depressed iv not asked for help but barely manage any sleep when my autistic 10 year old manages some bits of sleep especially as she refuses her melatonin it's a nightmare luckily my other 2 ASD children have no night time needs then have 2 neurotypical children who are fine all round 😇 haven't even started the other 2 ASD children's claims and don't even want to cause of how stressful it all is it's the wait mostly and how they don't acknowledge evidence that if they did they would sort it from early on
The paediatrician wrote a supporting letter as he said my diagnosed ASD daughter who doesn't sleep well and was prescribed melatonin which she refuses that she should have her own room due to disturbing the rest of the family with her outbursts
Merry Christmas guys honestly be lost without you all🥲😭😭😭😭😱😭

Guys I'm sticking around wanna see your outcomes @SKB12 and few others around early august for MR In particular now @Chels2020 and @Kc1999x have had their outcomes
Gotta be your turn soon as I know you are before me xxx

Sorry 2714.90 x
Not sure of rates if it's high rate care or what wasnt due to have her dla paid until next Tuesday tho so not sure if she will still get a payment next week or if it's included x

Ngl I just cried a little from reading this😭 the council should have helped you move because of your child passing, I’m so sorry for your loss, I cant even begin to imagine the pain you’ve been through!💔
amazing to see that they’ve overturned your child’s original decision, to me it looks like hrc has been awarded but definitely worth a phone call. My son got awarded last week on his MR, and he received his DLA today with news rates today so that wasn’t included in the back pay if that makes sense.
I know I’m a stranger but extremely proud of you for fighting for your child and while battling a fight in your own head at the same time!
well done momma! I hope you and your children have the bestest Christmas ever!💗💗💗

Thank you soooo much it means alot tbh I never feel like I'm going through stuff as always feel like others have life much harder but losing my daughter i haven't dealt with at all turned down PATCH grieving services as I'm not ready nor strong enough to speak on it yet properly as I think I'll crumble and fall apart if I start and I don't want the services my ASD 10 year old daughter accesses to be concerned about me especially when they know I have complex health issues on top of my late daughter

Thank you so so much for your kind words
I never addressed moving to the council as I have suffered in silence since but only this year I have started to try to pull myself together as iv not accessed the help my 10year old ASD daughter is entitled to nor my 2 other ASD non diagnosed ATM
One on pathway
Thank you so much again and many congratulations on your sons award I know yours was super long the weight of the fighting is a major relief as you all know

I will call this morning but yes I think it's high rate care low mobility
So thinking I need to get rates confirmed as disabled child element will increase too

Thank you all so much love you all be lost without you and praying for you all for outcomes sooner than later x

Contact MP guys who's been waiting past letter time which is all of us they can't keep getting away with it x

Good morning everyone i have woke up this morning with back pay in my account on christmas Eve! SD 06/08 NC unsure on the elements but if anyone wants to work it out the payment is £1608. No letter yet to confirm. I hope others get the same Christmas Present x

your feelings are valid too, there will always be someone worst off than you or vice versa but that doesn’t matter. You don’t have to worry about those other people, but you do need to think about yourself. Everyone grieves in their own way and if you don’t want them services then you don’t have to have them. You can reach out whenever you feel ready too because grief has no limits, and one of the hardest losses is losing a child, it’s not supposed to be like that🥺 you can access all your daughter needs along side getting support for yourself when you feel ready to do so. Your mental health and feelings has nothing to do with what support your daughter needs!
so my partners sister passed away and her mother couldn’t stay in the family home where she grew up so the council helped her move- so there is always that option to look at. Sometimes they can be quite nice other times not so much. Not the same circumstances but I was in a two bed flat, with my 3 children. My son attempted to jump out the windows daily because he’s an eloper and it was first floor. Council said it wasn’t a danger to my son🙃😂 went directly to a housing association in the end and I was lucky enough to be offered a 3 bedroom house from them. We’ve been here for 4 months now🙏 there’s so many options to explore!
i definitely think HRC and LRM too. But definitely best to double check so that way you can sort out your UC properly too.
the weight off of the shoulders is an amazing feeling! Thankful it was sorted before Christmas!
congratulations once again, now take a deep breathe and prepare for Christmassssssssesssssss tomorrrowwwwwww🎉😂

Congratulations so happy for you, hoping you have a lovely Xmas and new year xx

Congrats x
Give them a call will be able to confirm rates awarded on phone so you can update UC x

Oh wow I’m so happy for you. I can’t imagine the pain of a child passing and sorry they didn’t move you. I hope with the new award things are slightly easier for you. I’m usually a little put out when I see dates after mine being done but I genuinely couldn’t be happier for you. It’s such a shame they put us through such turmoil to get to this stage. Wishing you and your family the very best Christmas xx

Just got through to a lovely gentlemen said ours is now with a dm and should hear within the next couple of days , SD 12/08.

same scan date as me
Good luck x

Congratulations on your award, perfect Christmas present 🎉

Thank you so much here's hoping your awarded soon as as its been long enough x