Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

DLA WAIT TIME THREAD 60

1000 replies

zoeybrooks45 · 18/12/2024 09:55

Hello everybody, I have made a new thread please put in your scan date, hopefully we hear some good news this month. please be kind and feel free to share scan date, entitlement award and what child is diagnosed with as others in similar position can feel uplifted in these stressful times. 💐
New claims (NC) are taking ‘around’ 20 weeks.
Mandatory Reconsideration (MR) & Change Of Circumstances (COC) between 20-25 weeks approx.
Renewals between 15-20 weeks approx
tribunals: when you disagree with MR and are considered by a court
scan date (SD) date form was scanned on the system and counting weeks for decision
original claim date: date you called up for the forms and you will be backdated
UC : universal credit
DWP: department of work and pensions
DM: decision maker; the person who assesses each claim and awards/decline a case
number for an update 121-4600 0800 121-4600
currently we are in July/August for decisions! xx

OP posts:
Thread gallery
5
Mummaof4neurodivergent2non · 24/12/2024 09:18

SKB12 · 24/12/2024 08:59

Oh wow I’m so happy for you. I can’t imagine the pain of a child passing and sorry they didn’t move you. I hope with the new award things are slightly easier for you. I’m usually a little put out when I see dates after mine being done but I genuinely couldn’t be happier for you. It’s such a shame they put us through such turmoil to get to this stage. Wishing you and your family the very best Christmas xx

Thank you so much hunni I'm overwhelmed and can't believe it
Praying your award is soon as because you definitely been waiting way too long and I knew yours should be before mine honestly think to do with MP tbh xxx
Merry Christmas hunni xxxx

Chels2020 · 24/12/2024 09:20

Mummaof4neurodivergent2non · 24/12/2024 03:18

Positive post

Morning ladies/gents I just woke up to back pay of 2758! I think she's been awarded high rate care low mobility im not sure as she was receiving low rate care low mobility
MR scan date 22.8.24
Original scan date 11.4.24
I cannot believe it im in tears I was fully expecting to go to tribunal
I wrote to my MP for help 2 weeks ago wasnt sure how this would be perceived but i suffer with many health conditions thyroid cancer now NED but under surveillance, arthritis, FND, depression anxiety and panic attacks I think MP input has helped push it through quicker as I was told on one of 2 times I managed the call for MR that was looking at February for outcome
So if you feel it's dragging too long please reach out to MP I cannot believe my little girl has won her MR
I now can focus on trying to move from my 2 bed flat as I suffer from flashbacks from when my eldest 14 year old late daughter passed away at home which was her wish from osteosarcoma in 2020 after a 2 year battle which chemo couldn't save her 💔
Iv been so depressed iv not asked for help but barely manage any sleep when my autistic 10 year old manages some bits of sleep especially as she refuses her melatonin it's a nightmare luckily my other 2 ASD children have no night time needs then have 2 neurotypical children who are fine all round 😇 haven't even started the other 2 ASD children's claims and don't even want to cause of how stressful it all is it's the wait mostly and how they don't acknowledge evidence that if they did they would sort it from early on
The paediatrician wrote a supporting letter as he said my diagnosed ASD daughter who doesn't sleep well and was prescribed melatonin which she refuses that she should have her own room due to disturbing the rest of the family with her outbursts
Merry Christmas guys honestly be lost without you all🥲😭😭😭😭😱😭

Guys I'm sticking around wanna see your outcomes @SKB12 and few others around early august for MR In particular now @Chels2020 and @Kc1999x have had their outcomes
Gotta be your turn soon as I know you are before me xxx

Congratulations on your award hun! You are a true inspiration to your children! Merry Christmas xxx

SKB12 · 24/12/2024 09:43

OMG I called up to ask to speak to DM about my claim date and the call handler said a decision has been made today. I feel so sick. He wouldn’t tell me what the decision is said they can’t tell over the phone for MRs. I really don’t know if should I ring back up and potentially ruin our Christmas if it’s a decline. Literally shaking if it’s a decline I would rather I find out after tomorrow. Wasn’t expecting to be told a decsion has been made. If it was good news he would’ve told me over the phone?

SKB12 · 24/12/2024 09:44

Honestly don’t know if I should call up. A decline will be such a blow. I’ve worked hard in to the night to get all evidence I can for my son. I don’t want to look at him over this period and think I let him down if it hasn’t gone in our favour but I will carry on the fight for him

SKB12 · 24/12/2024 09:46

@Kc1999x 20 weeks today decision made he wasn’t a nice call handler insisting that he can’t tell me over the phone so I’m thinking it’s a decline 😣

s39 · 24/12/2024 09:47

SKB12 · 24/12/2024 09:43

OMG I called up to ask to speak to DM about my claim date and the call handler said a decision has been made today. I feel so sick. He wouldn’t tell me what the decision is said they can’t tell over the phone for MRs. I really don’t know if should I ring back up and potentially ruin our Christmas if it’s a decline. Literally shaking if it’s a decline I would rather I find out after tomorrow. Wasn’t expecting to be told a decsion has been made. If it was good news he would’ve told me over the phone?

I would definitely call back you would rather know you will be thinking and stressing over Xmas if you don’t know what outcome is

SKB12 · 24/12/2024 09:48

s39 · 24/12/2024 09:47

I would definitely call back you would rather know you will be thinking and stressing over Xmas if you don’t know what outcome is

I’m shaking just yesterday it hadn’t been assigned and was waiting for a call back to query the date they had on my claim

Kc1999x · 24/12/2024 09:48

SKB12 · 24/12/2024 09:46

@Kc1999x 20 weeks today decision made he wasn’t a nice call handler insisting that he can’t tell me over the phone so I’m thinking it’s a decline 😣

Call back! Go to option 4 instead of 3. They didn’t tell me mine on that line either! Omg omg omg

SKB12 · 24/12/2024 09:50

Option 4 is PIP line isn’t it? My mind is all over the place. I was sure we would be after the new year I know I won’t be able to bounce back and be happy with the kids if it’s bad news it didn’t sound like it was good news from the call handlers tone

SKB12 · 24/12/2024 09:51

Kc1999x · 24/12/2024 09:48

Call back! Go to option 4 instead of 3. They didn’t tell me mine on that line either! Omg omg omg

I’m going to try that option honestly I feel so sick my tummy has gone all funny

s39 · 24/12/2024 09:53

I couldn’t wait till after holidays!
Been awarded LRC I was expecting MRC but I guess it’s better than nothing DD IS 4 been awarded until 2026
SD 12/8 awarded at 19+2 weeks
Didn’t send in a lot of evidence SALTs report peads letters on autism spectrum not confirmed few school reports
I’m so glad decision has been made and wait is over!
Good luck to everyone waiting x

Kc1999x · 24/12/2024 09:55

SKB12 · 24/12/2024 09:51

I’m going to try that option honestly I feel so sick my tummy has gone all funny

This is how I felt! Option 4 is general enquiries. Just say you’re checking the decision on your sons claim

zoeybrooks45 · 24/12/2024 09:57

SKB12 · 24/12/2024 09:44

Honestly don’t know if I should call up. A decline will be such a blow. I’ve worked hard in to the night to get all evidence I can for my son. I don’t want to look at him over this period and think I let him down if it hasn’t gone in our favour but I will carry on the fight for him

It will be fine. Please call up. Can’t wait to hear good news!

OP posts:
Kc1999x · 24/12/2024 09:58

s39 · 24/12/2024 09:53

I couldn’t wait till after holidays!
Been awarded LRC I was expecting MRC but I guess it’s better than nothing DD IS 4 been awarded until 2026
SD 12/8 awarded at 19+2 weeks
Didn’t send in a lot of evidence SALTs report peads letters on autism spectrum not confirmed few school reports
I’m so glad decision has been made and wait is over!
Good luck to everyone waiting x

Congrats to you and your child!! If you feel the award isn’t right you can always do an mr x

zoeybrooks45 · 24/12/2024 09:58

Seeing all the awards is lovely, I am currently away and didn’t send all my evidence in for MR I was hoping I had till end of Jan lol MR date 20/08. I will beating myself up if they made a decision without my evidence :( no backpay or text so we will see xx

OP posts:
s39 · 24/12/2024 10:01

Kc1999x · 24/12/2024 09:58

Congrats to you and your child!! If you feel the award isn’t right you can always do an mr x

Thank you x I think I might consider a MR in the new year but the thought of waiting another 20 weeks is really putting me off il see how I feel come January x

Kc1999x · 24/12/2024 10:02

zoeybrooks45 · 24/12/2024 09:58

Seeing all the awards is lovely, I am currently away and didn’t send all my evidence in for MR I was hoping I had till end of Jan lol MR date 20/08. I will beating myself up if they made a decision without my evidence :( no backpay or text so we will see xx

I think you’ll be perfectly fine! Even if a decision has been made and you haven’t received either back pay or text it doesn’t mean you have been declined! Good luck and fingers crossed you can get that extra bit of evidence in🤞🏽🤞🏽

s39 · 24/12/2024 10:02

Can anyone tell me what I need to update on UC for LRC please x

JW070116 · 24/12/2024 10:02

SKB12 · 23/12/2024 22:01

I’ve always been happy to take calls which I now regret as I don’t have it in writing. I will request when we have the meeting in January that we correspond via email so that I have a trail. I’ve already expressed to them my upset about actions being agreed on and then not done. A diagnosis would certainly help your case and like you said it’s not looking at the whole claim again, it’s factoring in that additional evidence. When is anything straightforward with DLA 🥴

Me too, always thought it was better to be on good terms and not so formal, I've learnt my lesson now x

Kc1999x · 24/12/2024 10:03

s39 · 24/12/2024 10:01

Thank you x I think I might consider a MR in the new year but the thought of waiting another 20 weeks is really putting me off il see how I feel come January x

I get what you mean, but if you think of it like you are still going to be getting payments in the mean time so it isn’t so bad to begin with, it’s just as the day approaches you get more anxious😂 speaking from experience🤦🏽‍♀️😂

Kc1999x · 24/12/2024 10:04

s39 · 24/12/2024 10:02

Can anyone tell me what I need to update on UC for LRC please x

Disability child element. You won’t receive the carers unfortunately! But the disability child element is still 156 extra a month and it will be back dated x

DLA WAIT TIME THREAD 60
Kc1999x · 24/12/2024 10:06

@SKB12 sat here so anxious waiting for your update😬😬😂🙏

s39 · 24/12/2024 10:07

Kc1999x · 24/12/2024 10:03

I get what you mean, but if you think of it like you are still going to be getting payments in the mean time so it isn’t so bad to begin with, it’s just as the day approaches you get more anxious😂 speaking from experience🤦🏽‍♀️😂

yeah of course I totally understand what you mean I’m defiantly going to consider it x
Thank you so much for all the support on here it’s been so helpful xx

s39 · 24/12/2024 10:09

Kc1999x · 24/12/2024 10:04

Disability child element. You won’t receive the carers unfortunately! But the disability child element is still 156 extra a month and it will be back dated x

Thats great thank you 156 is better than nothing shall I put the date in from SD or date I called for the forms? X

Kc1999x · 24/12/2024 10:10

s39 · 24/12/2024 10:09

Thats great thank you 156 is better than nothing shall I put the date in from SD or date I called for the forms? X

Date you called for forms x

Please create an account

To comment on this thread you need to create a Mumsnet account.

This thread is not accepting new messages.